Image des trois visuels cลurs pour notre action pour le long Covid Awareness
๐๏ธ15 mars 2026 โ Journรฉe internationale de sensibilisation au #CovidLong
Le Covid Long isole.
Il rend invisibles des millions de vies.
ร lโoccasion de cette journรฉe, nous lanรงons un mouvement simple, visible et symbolique :
๐ Faisons battre des cลurs partout.
04.03.2026 15:04 โ
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Clip: Dr @binitakane.bsky.social explains how ME is an energy-limiting illness.
The hallmark symptom, Post-Exertional Malaise (PEM), means even normal activities can trigger a worsening of symptoms. Some of her patients have to choose between a shower or preparing a meal that day.
04.03.2026 11:33 โ
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The proteome (>7,000 circulating proteins) in people with ME/CFS exhibits immune system, vascular and metabolic dysregulation compared with controls
(and likely homologous in #LongCovid)
www.cell.com/cell-reports...
04.03.2026 15:58 โ
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๐๐๐Thanks to Rivka Gottlieb from @cbffjuk.bsky.social ๐
Ongoing issues today:
"Wider access to vaccination...
Legislation around air quality...
Mask wearing in healthcare settings that would protect the vulnerable."
These are simple things, but they have become so politicised."
04.03.2026 16:41 โ
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On behalf of Solve M.E., President & CEO Emily Taylor calls for the Los Angeles City Council to recognize International Long Covid Awareness Day on March 15.
Solve M.E. is proud to have supported the call for the Los Angeles City Council to acknowledge International Long Covid Awareness Day (March 15). The Council passed the resolution and will light the LA City Hall teal. Read our letter here:
https://ow.ly/hLQz50YoSzY
#LongCOVIDAwareness
03.03.2026 21:55 โ
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WORKWELL JOINS "COFFEE WITH A CLINICIAN"
The sessions are dedicated to sharing key principles and practical tips from the BHC Clinical Care Guide.
Wed, March 11th
10 am MDT (9 am PT / 11 am CT / 12 pm ET)
Register for Free
conta.cc/3NeLfuQ
#MECFS #LongCOVID #PEM @batemanhornecenter.bsky.social
04.03.2026 18:07 โ
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It's important to pace yourself. You can check our PEM guide with helpful tips and tricks to not over do it.
#covid #LongCovid #longcovidawareness #LongCovidAwarenessDay
04.03.2026 19:10 โ
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(...) clean indoor air through ventilation and filtration, high-quality masks, testing, vaccination, and staying home when sick.
When these protections are used together, they help reduce transmission and protect both individuals and communities.
#LongCOVID #CleanAir #Ventilation #MaskUp
04.03.2026 19:51 โ
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White graphic with black and pink text. Top left: โwhn.globalโ. Top right: โLong COVID Awareness Monthโ. Main text: โEvery COVID infection adds risk, not protection.โ The word โriskโ is in bright pink; the rest is in black. Below in bright pink: โEach infection increases the risk of Long COVID.โ Bottom text: โWorld Health Network - Science for a safer, healthier world.โ
Every COVID infection adds risk, not protection. The more times someone is infected, the higher their risk of developing Long COVID.
Reducing infections is one of the most important ways to protect long-term health. The Five Pillars of Protection help lower risk by layering prevention strategies:
04.03.2026 19:51 โ
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3 New Resources, Created byย Young People
The Covid Made Long project is a research partnership led by the London School of Hygiene & Tropical Medicine (LSHTM), in collaboration with Long Covid Kids, Imperial College, Long Covid Support, and ...
Three brand-new resources, created by #YoungPeople and for young people, have just been launched, and we believe they have the power to make a real difference to the lives of #children and #families living with #LongCovid.
www.longcovidkids.org/post/covid-m...
#LongCovidAwareness #Resources
04.03.2026 20:04 โ
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New survey released: hyperbaric oxygen / oxygen therapy
A new survey has been released, looking for the experiences of people with ME and Long Covid with hyperbaric oxygen or oxygen therapy.If you have experience with this intervention we'd love to know mo...
www.physiosforme.com/post/new-sur...
The survey will be open until the end of March. If you have #ME or #LongCovid and have tried HBOT please share your experiences +ve and -ve. Some really important views shared already. Thanks all. @physiosforme.bsky.social @longcovidphysio.bsky.social
04.03.2026 18:19 โ
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Teal background graphic with white text. Top left: โwhn.global.โ Top right: โLong COVID Awareness Month.โ Large centered headline: โLong COVID isnโt rare.โ Below in smaller bold text: โPer the WHO, approximately 15 in 100 people still have symptoms at 12 months after contracting COVID-19.โ Bottom line: โWorld Health Network - Science for a safer, healthier world.โ
Long COVID isnโt rare.
According to the WHO, about 15 in 100 people still have symptoms 12 months after COVID-19 infection.
Prevent infection. Prevent reinfection. Protect your health.
#LongCOVID #LongCOVIDAwarenessMonth #PublicHealth #CleanAir
03.03.2026 18:36 โ
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Weโre proud to support WHO Europe on this vital project tackling myths and misinformation about Long Covid
#LongCovid #LongCovidAwareness
#HealthInformation
www.who.int/europe/event/myth-busters--debunking-long-covid-myths-and-misconceptions
21.02.2026 08:52 โ
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Graphic with a dark textured background and teal text reading: โLONG COVID. You can look โfineโ and still be very unwell. Fund Long Covid research. Long Covid Awareness Month.โ The Long Covid SOS logo appears at the bottom.
You can look โfineโ and still be very unwell
We are still waiting for answers
Still waiting for treatment
Still waiting to be believed
Fund Long Covid research.
We canโt wait any longer.
#longcovidawarenessmonth #fundlongcovidresearch #wecantwait #LongCovid
03.03.2026 16:27 โ
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Mark your calendars! Please support us on Long COVID awareness day and beyond. I'm honoured to be speaking at the Vancouver event. (Begins 11:30am PST outside the Vancouver Art Gallery)!
02.03.2026 07:32 โ
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Quote graphic on a light blue background with teal silhouette borders at top and bottom. Large text reads, โWe are being left in some kind of void.โ Attribution below: โMargaret OโHara, Trustee, Long Covid Support.โ Small line reads โBBC News | 1 March 2026โ with the Long Covid Support logo at the bottom.
Quote graphic on a light blue background with teal silhouette borders at top and bottom. Text reads, โI struggle to have a conversation. Iโve lost my thinking ability and short-term memory. I think thatโs one of the hardest things.โ Attribution: โSusannah Thompson, Former GP living with Long Covid.โ Small line reads โBBC News | 1 March 2026โ with the Long Covid Support logo at the bottom.
Quote graphic on a light blue background with teal silhouette borders at top and bottom. Text reads, โServices that were there, instead of being enhanced, are being run down. I find that shocking and want to do as much as I can in parliament to raise the need for proper care.โ Attribution: โLuke Akehurst, MP for North Durham.โ Small line reads โBBC News | 1 March 2026โ with the Long Covid Support logo at the bottom.
โWe are being left in some kind of void.โ - Margaret OโHara, Trustee, Long Covid Support
BBC News North East & Cumbria reports the regionโs last dedicated Long Covid clinics are due to close this month.
Read: www.bbc.co.uk/news/article...
#LongCovid #LongCovidClinics
02.03.2026 15:55 โ
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Email your MSP about Long Covid Awareness Day in Scotland
#Scotland
Link to contact MSP's at Holyrood here: longcovidkids.eaction.org.uk/awarenessday...
@helen-goss.bsky.social @longcovidscot.bsky.social
@longcovidsupport.bsky.social @longcovidphysio.bsky.social @longcovidsos.bsky.social
#LongCovidAwareness
02.03.2026 08:04 โ
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Email your MP about Long Covid Awareness Day
๐ It takes just one minute to send our template letter.
๐ Your voice carries weight.
๐ Action matters.
Will you write to your representative today?
longcovidkids.eaction.org.uk/awarenessday
#LongCovidAwareness #LongCovidAwarenessMonth
#MakeItVisible #LongCovidKids
01.03.2026 20:53 โ
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Is the OMF's ME/CFS BioQuest Study the Study We've All Been Waiting For? - Health Rising
The Open Medicine Foundation's huge Bioquest project has the potential to transform ME/CFS patients experience with doctors, dramatically enhance research and get drug companies finally interested inโฆ
More on OMf's bold BioQuest Study
๐ 1000 samples
๐ Wide omics approach
๐ Cohorts of ME, MS, Burnout, Long COVID, depression to filter out bio signals of fatigue
๐ Hope to produce 5-20 biomarkers to identify subsets
๐ Phase 1 of 3
Good article ๐
02.03.2026 09:01 โ
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Our paper on Symptom Patterns, Recovery, and Impact of
#LongCovid is now published. This is follow up data over 1 yr. Note how the pattern of symptoms changes over time with most starting out as fluctuating pattern and more ending up with a constant symptom pattern.
academic.oup.com/ofid/article...
27.02.2026 19:16 โ
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The image is black and white. 5 young people are stood together, one is holding a book that they are looking at. 1 of the 5 is blurred out. The background is blue. The words on the image say 'Invisible to policy. Visible in children's lives. #Longcovidawareness . There is a white logo for Long Covid Kids charity in the bottom corner.
Tens of thousands of children across the UK, & millions globally, are living with persistent, life-altering symptoms following COVID infection.
This means disrupted education, reduced attendance, falling attainment & a loss of everyday childhood.
#MakeItVisible #LongCovid #LongCovidKids
01.03.2026 20:53 โ
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Video by @winslow_la
Alt: Person clenching chest
Explains dangers of COVID infections/Long Covid.
Fibrosis, Necrosis, Pericarditis
Myocarditis, Hypertension, Heart Failure, Fibrillation, Heart Attack,
Thrombosis, Vessel Damage,
Arrhythmia, And Moreโฆ
#LongCovidHeartbeats
01.03.2026 16:41 โ
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WARNING:
Long Covid is a Multisystemic disease
๐It can deeply damage your heart.
๐ซEvery heartbeat counts!
๐ทProtect Yourself!
#LongcovidawarenessMonth
#LongCovidHeartbeats
#LongCovid #LongCovidAwareness
01.03.2026 16:41 โ
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Teal text on a charcoal textured background reads โMarch is Long Covid Awareness Month. Year 6. We canโt wait any longer.โ Small lifering icons replace the letter Oโs. The Long Covid SOS logo appears in the bottom left corner in white with a red lifering in SOS.
March is Long Covid Awareness Month.
Millions still live with life-altering symptoms & remain without consistent care.
Research funding does not reflect the scale of the crisis
We are calling for sustained investment into research & policy change
#longcovidawarenessmonth #wecantwait #longcovidsos
01.03.2026 17:32 โ
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