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Long COVID Physio

@longcovidphysio.bsky.social

#LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies https://bio.site/longcovidphysio

1,877 Followers  |  118 Following  |  157 Posts  |  Joined: 14.11.2024
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Posts by Long COVID Physio (@longcovidphysio.bsky.social)

Teal background graphic with white text. Top left: “whn.global.” Top right: “Long COVID Awareness Month.” Large centered headline: “Long COVID isn’t rare.” Below in smaller bold text: “Per the WHO, approximately 15 in 100 people still have symptoms at 12 months after contracting COVID-19.” Bottom line: “World Health Network - Science for a safer, healthier world.”

Teal background graphic with white text. Top left: “whn.global.” Top right: “Long COVID Awareness Month.” Large centered headline: “Long COVID isn’t rare.” Below in smaller bold text: “Per the WHO, approximately 15 in 100 people still have symptoms at 12 months after contracting COVID-19.” Bottom line: “World Health Network - Science for a safer, healthier world.”

Long COVID isn’t rare.

According to the WHO, about 15 in 100 people still have symptoms 12 months after COVID-19 infection.

Prevent infection. Prevent reinfection. Protect your health.

#LongCOVID #LongCOVIDAwarenessMonth #PublicHealth #CleanAir

03.03.2026 18:36 — 👍 91    🔁 51    💬 2    📌 4
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We’re proud to support WHO Europe on this vital project tackling myths and misinformation about Long Covid

#LongCovid #LongCovidAwareness
#HealthInformation

www.who.int/europe/event/myth-busters--debunking-long-covid-myths-and-misconceptions

21.02.2026 08:52 — 👍 37    🔁 25    💬 1    📌 1
Graphic with a dark textured background and teal text reading: “LONG COVID. You can look ‘fine’ and still be very unwell. Fund Long Covid research. Long Covid Awareness Month.” The Long Covid SOS logo appears at the bottom.

Graphic with a dark textured background and teal text reading: “LONG COVID. You can look ‘fine’ and still be very unwell. Fund Long Covid research. Long Covid Awareness Month.” The Long Covid SOS logo appears at the bottom.

You can look “fine” and still be very unwell

We are still waiting for answers
Still waiting for treatment
Still waiting to be believed

Fund Long Covid research.
We can’t wait any longer.

#longcovidawarenessmonth #fundlongcovidresearch #wecantwait #LongCovid

03.03.2026 16:27 — 👍 20    🔁 12    💬 2    📌 1

Mark your calendars! Please support us on Long COVID awareness day and beyond. I'm honoured to be speaking at the Vancouver event. (Begins 11:30am PST outside the Vancouver Art Gallery)!

02.03.2026 07:32 — 👍 29    🔁 9    💬 1    📌 0
Quote graphic on a light blue background with teal silhouette borders at top and bottom. Large text reads, “We are being left in some kind of void.” Attribution below: “Margaret O’Hara, Trustee, Long Covid Support.” Small line reads “BBC News | 1 March 2026” with the Long Covid Support logo at the bottom.

Quote graphic on a light blue background with teal silhouette borders at top and bottom. Large text reads, “We are being left in some kind of void.” Attribution below: “Margaret O’Hara, Trustee, Long Covid Support.” Small line reads “BBC News | 1 March 2026” with the Long Covid Support logo at the bottom.

Quote graphic on a light blue background with teal silhouette borders at top and bottom. Text reads, “I struggle to have a conversation. I’ve lost my thinking ability and short-term memory. I think that’s one of the hardest things.” Attribution: “Susannah Thompson, Former GP living with Long Covid.” Small line reads “BBC News | 1 March 2026” with the Long Covid Support logo at the bottom.

Quote graphic on a light blue background with teal silhouette borders at top and bottom. Text reads, “I struggle to have a conversation. I’ve lost my thinking ability and short-term memory. I think that’s one of the hardest things.” Attribution: “Susannah Thompson, Former GP living with Long Covid.” Small line reads “BBC News | 1 March 2026” with the Long Covid Support logo at the bottom.

Quote graphic on a light blue background with teal silhouette borders at top and bottom. Text reads, “Services that were there, instead of being enhanced, are being run down. I find that shocking and want to do as much as I can in parliament to raise the need for proper care.” Attribution: “Luke Akehurst, MP for North Durham.” Small line reads “BBC News | 1 March 2026” with the Long Covid Support logo at the bottom.

Quote graphic on a light blue background with teal silhouette borders at top and bottom. Text reads, “Services that were there, instead of being enhanced, are being run down. I find that shocking and want to do as much as I can in parliament to raise the need for proper care.” Attribution: “Luke Akehurst, MP for North Durham.” Small line reads “BBC News | 1 March 2026” with the Long Covid Support logo at the bottom.

“We are being left in some kind of void.” - Margaret O’Hara, Trustee, Long Covid Support

BBC News North East & Cumbria reports the region’s last dedicated Long Covid clinics are due to close this month.

Read: www.bbc.co.uk/news/article...

#LongCovid #LongCovidClinics

02.03.2026 15:55 — 👍 23    🔁 11    💬 0    📌 0
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Email your MSP about Long Covid Awareness Day in Scotland

#Scotland
Link to contact MSP's at Holyrood here: longcovidkids.eaction.org.uk/awarenessday...

@helen-goss.bsky.social @longcovidscot.bsky.social
@longcovidsupport.bsky.social @longcovidphysio.bsky.social @longcovidsos.bsky.social

#LongCovidAwareness

02.03.2026 08:04 — 👍 6    🔁 5    💬 2    📌 0
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Email your MP about Long Covid Awareness Day

💛 It takes just one minute to send our template letter.
💛 Your voice carries weight.
💛 Action matters.

Will you write to your representative today?

longcovidkids.eaction.org.uk/awarenessday

#LongCovidAwareness #LongCovidAwarenessMonth
#MakeItVisible #LongCovidKids

01.03.2026 20:53 — 👍 9    🔁 8    💬 1    📌 0
Is the OMF's ME/CFS BioQuest Study the Study We've All Been Waiting For? - Health Rising The Open Medicine Foundation's huge Bioquest project has the potential to transform ME/CFS patients experience with doctors, dramatically enhance research and get drug companies finally interested in…

More on OMf's bold BioQuest Study
👉 1000 samples
👉 Wide omics approach
👉 Cohorts of ME, MS, Burnout, Long COVID, depression to filter out bio signals of fatigue
👉 Hope to produce 5-20 biomarkers to identify subsets
👉 Phase 1 of 3

Good article 👇

02.03.2026 09:01 — 👍 11    🔁 4    💬 0    📌 0
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Proud moment: our air purifiers are being rolled out to more than 200 schools across London, UK. Schools should be among the first places to have cleaner air.

01.03.2026 18:25 — 👍 11    🔁 3    💬 0    📌 0
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Our paper on Symptom Patterns, Recovery, and Impact of
#LongCovid is now published. This is follow up data over 1 yr. Note how the pattern of symptoms changes over time with most starting out as fluctuating pattern and more ending up with a constant symptom pattern.
academic.oup.com/ofid/article...

27.02.2026 19:16 — 👍 86    🔁 35    💬 9    📌 6
The image is black and white. 5 young people are stood together, one is holding a book that they are looking at. 1 of the 5 is blurred out. The background is blue. The words on the image say 'Invisible to policy. Visible in children's lives. #Longcovidawareness . There is a white logo for Long Covid Kids charity in the bottom corner.

The image is black and white. 5 young people are stood together, one is holding a book that they are looking at. 1 of the 5 is blurred out. The background is blue. The words on the image say 'Invisible to policy. Visible in children's lives. #Longcovidawareness . There is a white logo for Long Covid Kids charity in the bottom corner.

Tens of thousands of children across the UK, & millions globally, are living with persistent, life-altering symptoms following COVID infection.
This means disrupted education, reduced attendance, falling attainment & a loss of everyday childhood.

#MakeItVisible #LongCovid #LongCovidKids

01.03.2026 20:53 — 👍 25    🔁 14    💬 2    📌 1
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Long COVID Awareness : Every Heartbeat Counts - YouTube Les videos en differentes langues pour le Long COVID awareness de 2026

You can also find the video here:
www.youtube.com/playlist?lis...
#LongCovidAwarenessMonth
#LongCovidHeartbeats
#LongCovid

01.03.2026 16:41 — 👍 2    🔁 1    💬 1    📌 0

Video by @winslow_la

Alt: Person clenching chest
Explains dangers of COVID infections/Long Covid.
Fibrosis, Necrosis, Pericarditis
Myocarditis, Hypertension, Heart Failure, Fibrillation, Heart Attack,
Thrombosis, Vessel Damage,
Arrhythmia, And More…
#LongCovidHeartbeats

01.03.2026 16:41 — 👍 2    🔁 1    💬 1    📌 0
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One-Year Adverse Outcomes Among US Adults With Post–COVID-19 Condition vs Those Without COVID-19 This cohort study aims to quantify 1-year outcomes among individuals meeting a post–COVID-19 condition definition compared with a control group of individuals without COVID-19.

#LongcovidawarenessMonth
#LongCovidHeartbeats
#LongCovid #LongCovidAwareness
jamanetwork.com/journals/jam...

01.03.2026 16:41 — 👍 4    🔁 1    💬 1    📌 0
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Cardiovascular Risks in Patients With Post–COVID-19 Condition Post–COVID-19 condition (PCC) following SARS-CoV-2 infection (also known as long COVID) describes a variety of symptoms and health conditions, including both direct and indirect effects of the virus. ...

#LongcovidawarenessMonth
#LongCovidHeartbeats
#LongCovid #LongCovidAwareness
jamanetwork.com/journals/jam...

01.03.2026 16:41 — 👍 5    🔁 1    💬 0    📌 0
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WARNING:
Long Covid is a Multisystemic disease

💔It can deeply damage your heart.
🫀Every heartbeat counts!
😷Protect Yourself!

#LongcovidawarenessMonth
#LongCovidHeartbeats
#LongCovid #LongCovidAwareness

01.03.2026 16:41 — 👍 11    🔁 6    💬 1    📌 0
Teal text on a charcoal textured background reads “March is Long Covid Awareness Month. Year 6. We can’t wait any longer.” Small lifering icons replace the letter O’s. The Long Covid SOS logo appears in the bottom left corner in white with a red lifering in SOS.

Teal text on a charcoal textured background reads “March is Long Covid Awareness Month. Year 6. We can’t wait any longer.” Small lifering icons replace the letter O’s. The Long Covid SOS logo appears in the bottom left corner in white with a red lifering in SOS.

March is Long Covid Awareness Month.

Millions still live with life-altering symptoms & remain without consistent care.
Research funding does not reflect the scale of the crisis

We are calling for sustained investment into research & policy change

#longcovidawarenessmonth #wecantwait #longcovidsos

01.03.2026 17:32 — 👍 27    🔁 18    💬 0    📌 3
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Blyth ex-GP says long Covid patients are being forgotten The NHS in the North East and Cumbria is closing its last dedicated long Covid clinics this month.

“Long Covid patients are being forgotten”

Thank you Dr Susannah Thompson for your continued advocacy work 🙏

www.bbc.co.uk/news/article...

01.03.2026 15:30 — 👍 21    🔁 10    💬 0    📌 1
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Our newly launched #LongCOVIDAwareness month page is filled with everything you need to take action and spread the word this #LongCOVIDAwareness Month. Watch our tutorial here: https://www.youtube.com/watch?v=t48DSF7BCjQ

Head to https://www.longhauler-advocacy.org/lcamonth2026 to get started.

01.03.2026 00:06 — 👍 7    🔁 5    💬 1    📌 1
Red broken heart graphic on a navy blue background. The text overlay on the heart reads: "Having Long Covid is heartbreaking because… sweeping my apartment means spending a day in bed." Above the heart, highlighted text reads: "Share what it’s like to live with Long Covid by March 1." In the bottom right of the graphic is a teal bubble; inside, the text reads "your experience here" with an arrow pointing to the heart.

Red broken heart graphic on a navy blue background. The text overlay on the heart reads: "Having Long Covid is heartbreaking because… sweeping my apartment means spending a day in bed." Above the heart, highlighted text reads: "Share what it’s like to live with Long Covid by March 1." In the bottom right of the graphic is a teal bubble; inside, the text reads "your experience here" with an arrow pointing to the heart.

Red broken heart graphic on a navy blue background. The text overlay on the heart reads: "Long Covid is heartbreaking because… it’s robbed my son of his childhood and his education." Above the heart, highlighted text reads: "Caregivers: Share your Long Covid experience by March 1." In the bottom right of the graphic is a teal bubble; inside, the text reads "your experience here" with an arrow pointing to the heart.

Red broken heart graphic on a navy blue background. The text overlay on the heart reads: "Long Covid is heartbreaking because… it’s robbed my son of his childhood and his education." Above the heart, highlighted text reads: "Caregivers: Share your Long Covid experience by March 1." In the bottom right of the graphic is a teal bubble; inside, the text reads "your experience here" with an arrow pointing to the heart.

March 1 is the deadline to share your Long Covid story for our public awareness project. Submissions will be displayed at our Long Covid Awareness Day events on March 15th, to highlight the many different ways #LongCovid is heartbreaking.

Submit your story here: covidsociety.ca/priorities/l...

28.02.2026 17:39 — 👍 26    🔁 16    💬 0    📌 1
Graphic with teal background promoting International Long Covid Awareness Day. Text reads: International Long Covid Awareness Day - March 15. Vancouver, Calgary, Toronto, Montreal. Down the left side, there are three photos of people speaking at last year’s Long Covid Awareness Day events.

Graphic with teal background promoting International Long Covid Awareness Day. Text reads: International Long Covid Awareness Day - March 15. Vancouver, Calgary, Toronto, Montreal. Down the left side, there are three photos of people speaking at last year’s Long Covid Awareness Day events.

On March 15, we invite you to join us for International Long Covid Awareness Day in Vancouver, Calgary, Toronto & Montreal.

Hear from experts and people with Long Covid, and see our public awareness project featuring personal stories.

Details: covidsociety.ca/priorities/l...
#LongCovid #ilcad2026

28.02.2026 23:01 — 👍 82    🔁 40    💬 0    📌 4
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Email your MP about Long Covid Awareness Day

Awareness leads to understanding.
Understanding leads to change.

Take action today and email your MP / MSP using our template letter. It just takes a minute.

longcovidkids.eaction.org.uk/awarenessday
#LongCovidAwareness #LongCovidKids #LongCovid

01.03.2026 10:11 — 👍 4    🔁 2    💬 1    📌 0
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By amplifying lived experience, challenging stigma, and improving public understanding.
We invite you to join us.
💙 Turn your feed blue
💙 Share information
💙 Start conversations
💙 Stand with children and families affected by Long Covid and overlapping illnesses
#LongCovidAwareness #LongCovid

01.03.2026 10:11 — 👍 5    🔁 4    💬 1    📌 0
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🩵 March marks International Long Covid Awareness Month.
We’re turning our feed blue to shine a light on #LongCovidAwareness.

We’ll be driving action, spotlighting resources and information to raise awareness of Long Covid and overlapping illnesses in children and young people.
#LongCovidKids

01.03.2026 10:11 — 👍 13    🔁 7    💬 1    📌 0
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You can sign up to our #Newsletter at anytime to find out what's going on. Find the link in the footer of our website.

The next one drops tomorrow and includes all the sessions hosted by Chloe and Christina from @uninorthampton.bsky.social
Limited spaces

#LongCovidAwareness #OccupationalTherapy

28.02.2026 11:59 — 👍 5    🔁 5    💬 2    📌 0
Association Between Post-COVID-19 Infection and Fibromyalgia: A Controlled Case–Control Study — Ayse Oz and Tulay Yildirim
"Patients with a history of COVID-19 showed significantly higher odds of meeting ACR 2016 fibromyalgia criteria, as well as worse clinical symptom burden, compared with controls."

Association Between Post-COVID-19 Infection and Fibromyalgia: A Controlled Case–Control Study — Ayse Oz and Tulay Yildirim "Patients with a history of COVID-19 showed significantly higher odds of meeting ACR 2016 fibromyalgia criteria, as well as worse clinical symptom burden, compared with controls."

From Turkey

"Patients with a history of COVID-19 showed significantly higher odds of meeting ACR 2016 fibromyalgia criteria"

www.mdpi.com/2077-0383/15...

Screenshot from latest Science for ME weekly update

#LongCovid #Fibromyalgia #Fibro #FMS #FM

28.02.2026 01:47 — 👍 8    🔁 5    💬 0    📌 1
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ISLC-PAIS Conference 2026 in Amsterdam The ISLC-PAIS Conference brings together reseachers, clinicians and patient leaders working together to improve outcomes for people with Long COVID and other PAIS.

For those wanting the very best in Long C-19 Science‼️

💥 Registration opens very soon 💥

islc-pais.org

27.02.2026 23:09 — 👍 38    🔁 15    💬 0    📌 2
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Email your MP about Long Covid Awareness Day

Can you spare one minute to support children with Long Covid today?
Use our template to write to your MP.
longcovidkids.eaction.org.uk/awarenessday

#LongCovidAwareness #ChildrensRights
@lcawarenessint.bsky.social @longcovidsupport.bsky.social @longcovidphysio.bsky.social @longcovidsos.bsky.social

28.02.2026 11:35 — 👍 25    🔁 26    💬 5    📌 0
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We need lower CO₂ thresholds.
We need ringfenced funding.
We need #cleanair recognised as an #equality issue.
Children deserve better.
#ChildrensRights #CleanAir #Education #ChildHealth #Inequality.
#LongCovidKids

@longcovidsupport.bsky.social @longcovidsos.bsky.social @longcovidphysio.bsky.social

27.02.2026 08:53 — 👍 8    🔁 2    💬 1    📌 0
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News Medical: Study identifies antiviral protein IFN-γ as a potential biomarker for Long COVID fatigue - The ME Association A study, led by The University of Cambridge, has identified […]

News Medical: Study identifies antiviral protein IFN-γ as a potential biomarker for Long COVID fatigue 

Read more: https://meassociation.org.uk/vpow

#LongCovid #LongCovidResearch #PostCovidSyndrome

26.02.2026 17:11 — 👍 5    🔁 5    💬 3    📌 0