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Long COVID Physio

@longcovidphysio.bsky.social

#LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies https://bio.site/longcovidphysio

1,877 Followers  |  118 Following  |  157 Posts  |  Joined: 14.11.2024
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Posts by Long COVID Physio (@longcovidphysio.bsky.social)

Image des trois visuels cล“urs pour notre action pour le long Covid Awareness

Image des trois visuels cล“urs pour notre action pour le long Covid Awareness

๐Ÿ—“๏ธ15 mars 2026 โ€“ Journรฉe internationale de sensibilisation au #CovidLong

Le Covid Long isole.
Il rend invisibles des millions de vies.

ร€ lโ€™occasion de cette journรฉe, nous lanรงons un mouvement simple, visible et symbolique :

๐Ÿ’› Faisons battre des cล“urs partout.

04.03.2026 15:04 โ€” ๐Ÿ‘ 4    ๐Ÿ” 5    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 1
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Clip: Dr @binitakane.bsky.social explains how ME is an energy-limiting illness.

The hallmark symptom, Post-Exertional Malaise (PEM), means even normal activities can trigger a worsening of symptoms. Some of her patients have to choose between a shower or preparing a meal that day.

04.03.2026 11:33 โ€” ๐Ÿ‘ 41    ๐Ÿ” 18    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 2
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The proteome (>7,000 circulating proteins) in people with ME/CFS exhibits immune system, vascular and metabolic dysregulation compared with controls
(and likely homologous in #LongCovid)
www.cell.com/cell-reports...

04.03.2026 15:58 โ€” ๐Ÿ‘ 87    ๐Ÿ” 30    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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๐Ÿ‘๐Ÿ‘๐Ÿ‘Thanks to Rivka Gottlieb from @cbffjuk.bsky.social ๐Ÿ’•

Ongoing issues today:
"Wider access to vaccination...
Legislation around air quality...
Mask wearing in healthcare settings that would protect the vulnerable."

These are simple things, but they have become so politicised."

04.03.2026 16:41 โ€” ๐Ÿ‘ 21    ๐Ÿ” 10    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
On behalf of Solve M.E., President & CEO Emily Taylor calls for the Los Angeles City Council to recognize International Long Covid Awareness Day on March 15.

On behalf of Solve M.E., President & CEO Emily Taylor calls for the Los Angeles City Council to recognize International Long Covid Awareness Day on March 15.

Solve M.E. is proud to have supported the call for the Los Angeles City Council to acknowledge International Long Covid Awareness Day (March 15). The Council passed the resolution and will light the LA City Hall teal. Read our letter here:
https://ow.ly/hLQz50YoSzY

#LongCOVIDAwareness

03.03.2026 21:55 โ€” ๐Ÿ‘ 6    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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WORKWELL JOINS "COFFEE WITH A CLINICIAN"
The sessions are dedicated to sharing key principles and practical tips from the BHC Clinical Care Guide.

Wed, March 11th
10 am MDT (9 am PT / 11 am CT / 12 pm ET)

Register for Free
conta.cc/3NeLfuQ

#MECFS #LongCOVID #PEM @batemanhornecenter.bsky.social

04.03.2026 18:07 โ€” ๐Ÿ‘ 5    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Covid inquiry reaches โ€˜bittersweetโ€™ final day of witness testimony Campaigners say โ€˜hard-hitting, clear-sighted and damningโ€™ inquiry โ€“ the most expensive in history โ€“ โ€˜absolutely has been worth itโ€™ * โ€˜A new normalโ€™: inquiryโ€™s key findings on how Covid changed UK society Bereaved families have marked the final day of witness testimony in the long-running Covid inquiry by saying government โ€œincompetence, chaos and callousness is now on the public recordโ€. Matt Fowler, co-founder of Covid-19 Bereaved Families for Justice UK (CBFFJ), urged officials to use the inquiry as a blueprint โ€œto take brave, decisive, urgent actionโ€ and warned the country was still not prepared for a future crisis. Continue reading...

Covid inquiry reaches โ€˜bittersweetโ€™ final day of witness testimony

04.03.2026 18:23 โ€” ๐Ÿ‘ 79    ๐Ÿ” 24    ๐Ÿ’ฌ 3    ๐Ÿ“Œ 1
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It's important to pace yourself. You can check our PEM guide with helpful tips and tricks to not over do it.
#covid #LongCovid #longcovidawareness #LongCovidAwarenessDay

04.03.2026 19:10 โ€” ๐Ÿ‘ 4    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

(...) clean indoor air through ventilation and filtration, high-quality masks, testing, vaccination, and staying home when sick.

When these protections are used together, they help reduce transmission and protect both individuals and communities.

#LongCOVID #CleanAir #Ventilation #MaskUp

04.03.2026 19:51 โ€” ๐Ÿ‘ 16    ๐Ÿ” 7    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
White graphic with black and pink text. Top left: โ€œwhn.globalโ€. Top right: โ€œLong COVID Awareness Monthโ€. Main text: โ€œEvery COVID infection adds risk, not protection.โ€ The word โ€œriskโ€ is in bright pink; the rest is in black. Below in bright pink: โ€œEach infection increases the risk of Long COVID.โ€ Bottom text: โ€œWorld Health Network - Science for a safer, healthier world.โ€

White graphic with black and pink text. Top left: โ€œwhn.globalโ€. Top right: โ€œLong COVID Awareness Monthโ€. Main text: โ€œEvery COVID infection adds risk, not protection.โ€ The word โ€œriskโ€ is in bright pink; the rest is in black. Below in bright pink: โ€œEach infection increases the risk of Long COVID.โ€ Bottom text: โ€œWorld Health Network - Science for a safer, healthier world.โ€

Every COVID infection adds risk, not protection. The more times someone is infected, the higher their risk of developing Long COVID.

Reducing infections is one of the most important ways to protect long-term health. The Five Pillars of Protection help lower risk by layering prevention strategies:

04.03.2026 19:51 โ€” ๐Ÿ‘ 75    ๐Ÿ” 43    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 1
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3 New Resources, Created byย Young People The Covid Made Long project is a research partnership led by the London School of Hygiene & Tropical Medicine (LSHTM), in collaboration with Long Covid Kids, Imperial College, Long Covid Support, and ...

Three brand-new resources, created by #YoungPeople and for young people, have just been launched, and we believe they have the power to make a real difference to the lives of #children and #families living with #LongCovid.

www.longcovidkids.org/post/covid-m...

#LongCovidAwareness #Resources

04.03.2026 20:04 โ€” ๐Ÿ‘ 16    ๐Ÿ” 10    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 2
New survey released: hyperbaric oxygen / oxygen therapy A new survey has been released, looking for the experiences of people with ME and Long Covid with hyperbaric oxygen or oxygen therapy.If you have experience with this intervention we'd love to know mo...

www.physiosforme.com/post/new-sur...

The survey will be open until the end of March. If you have #ME or #LongCovid and have tried HBOT please share your experiences +ve and -ve. Some really important views shared already. Thanks all. @physiosforme.bsky.social @longcovidphysio.bsky.social

04.03.2026 18:19 โ€” ๐Ÿ‘ 2    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Teal background graphic with white text. Top left: โ€œwhn.global.โ€ Top right: โ€œLong COVID Awareness Month.โ€ Large centered headline: โ€œLong COVID isnโ€™t rare.โ€ Below in smaller bold text: โ€œPer the WHO, approximately 15 in 100 people still have symptoms at 12 months after contracting COVID-19.โ€ Bottom line: โ€œWorld Health Network - Science for a safer, healthier world.โ€

Teal background graphic with white text. Top left: โ€œwhn.global.โ€ Top right: โ€œLong COVID Awareness Month.โ€ Large centered headline: โ€œLong COVID isnโ€™t rare.โ€ Below in smaller bold text: โ€œPer the WHO, approximately 15 in 100 people still have symptoms at 12 months after contracting COVID-19.โ€ Bottom line: โ€œWorld Health Network - Science for a safer, healthier world.โ€

Long COVID isnโ€™t rare.

According to the WHO, about 15 in 100 people still have symptoms 12 months after COVID-19 infection.

Prevent infection. Prevent reinfection. Protect your health.

#LongCOVID #LongCOVIDAwarenessMonth #PublicHealth #CleanAir

03.03.2026 18:36 โ€” ๐Ÿ‘ 100    ๐Ÿ” 59    ๐Ÿ’ฌ 3    ๐Ÿ“Œ 4
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Weโ€™re proud to support WHO Europe on this vital project tackling myths and misinformation about Long Covid

#LongCovid #LongCovidAwareness
#HealthInformation

www.who.int/europe/event/myth-busters--debunking-long-covid-myths-and-misconceptions

21.02.2026 08:52 โ€” ๐Ÿ‘ 37    ๐Ÿ” 26    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 1
Graphic with a dark textured background and teal text reading: โ€œLONG COVID. You can look โ€˜fineโ€™ and still be very unwell. Fund Long Covid research. Long Covid Awareness Month.โ€ The Long Covid SOS logo appears at the bottom.

Graphic with a dark textured background and teal text reading: โ€œLONG COVID. You can look โ€˜fineโ€™ and still be very unwell. Fund Long Covid research. Long Covid Awareness Month.โ€ The Long Covid SOS logo appears at the bottom.

You can look โ€œfineโ€ and still be very unwell

We are still waiting for answers
Still waiting for treatment
Still waiting to be believed

Fund Long Covid research.
We canโ€™t wait any longer.

#longcovidawarenessmonth #fundlongcovidresearch #wecantwait #LongCovid

03.03.2026 16:27 โ€” ๐Ÿ‘ 23    ๐Ÿ” 16    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 1

Mark your calendars! Please support us on Long COVID awareness day and beyond. I'm honoured to be speaking at the Vancouver event. (Begins 11:30am PST outside the Vancouver Art Gallery)!

02.03.2026 07:32 โ€” ๐Ÿ‘ 29    ๐Ÿ” 9    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Quote graphic on a light blue background with teal silhouette borders at top and bottom. Large text reads, โ€œWe are being left in some kind of void.โ€ Attribution below: โ€œMargaret Oโ€™Hara, Trustee, Long Covid Support.โ€ Small line reads โ€œBBC News | 1 March 2026โ€ with the Long Covid Support logo at the bottom.

Quote graphic on a light blue background with teal silhouette borders at top and bottom. Large text reads, โ€œWe are being left in some kind of void.โ€ Attribution below: โ€œMargaret Oโ€™Hara, Trustee, Long Covid Support.โ€ Small line reads โ€œBBC News | 1 March 2026โ€ with the Long Covid Support logo at the bottom.

Quote graphic on a light blue background with teal silhouette borders at top and bottom. Text reads, โ€œI struggle to have a conversation. Iโ€™ve lost my thinking ability and short-term memory. I think thatโ€™s one of the hardest things.โ€ Attribution: โ€œSusannah Thompson, Former GP living with Long Covid.โ€ Small line reads โ€œBBC News | 1 March 2026โ€ with the Long Covid Support logo at the bottom.

Quote graphic on a light blue background with teal silhouette borders at top and bottom. Text reads, โ€œI struggle to have a conversation. Iโ€™ve lost my thinking ability and short-term memory. I think thatโ€™s one of the hardest things.โ€ Attribution: โ€œSusannah Thompson, Former GP living with Long Covid.โ€ Small line reads โ€œBBC News | 1 March 2026โ€ with the Long Covid Support logo at the bottom.

Quote graphic on a light blue background with teal silhouette borders at top and bottom. Text reads, โ€œServices that were there, instead of being enhanced, are being run down. I find that shocking and want to do as much as I can in parliament to raise the need for proper care.โ€ Attribution: โ€œLuke Akehurst, MP for North Durham.โ€ Small line reads โ€œBBC News | 1 March 2026โ€ with the Long Covid Support logo at the bottom.

Quote graphic on a light blue background with teal silhouette borders at top and bottom. Text reads, โ€œServices that were there, instead of being enhanced, are being run down. I find that shocking and want to do as much as I can in parliament to raise the need for proper care.โ€ Attribution: โ€œLuke Akehurst, MP for North Durham.โ€ Small line reads โ€œBBC News | 1 March 2026โ€ with the Long Covid Support logo at the bottom.

โ€œWe are being left in some kind of void.โ€ - Margaret Oโ€™Hara, Trustee, Long Covid Support

BBC News North East & Cumbria reports the regionโ€™s last dedicated Long Covid clinics are due to close this month.

Read: www.bbc.co.uk/news/article...

#LongCovid #LongCovidClinics

02.03.2026 15:55 โ€” ๐Ÿ‘ 26    ๐Ÿ” 13    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Email your MSP about Long Covid Awareness Day in Scotland

#Scotland
Link to contact MSP's at Holyrood here: longcovidkids.eaction.org.uk/awarenessday...

@helen-goss.bsky.social @longcovidscot.bsky.social
@longcovidsupport.bsky.social @longcovidphysio.bsky.social @longcovidsos.bsky.social

#LongCovidAwareness

02.03.2026 08:04 โ€” ๐Ÿ‘ 6    ๐Ÿ” 5    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 0
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Email your MP about Long Covid Awareness Day

๐Ÿ’› It takes just one minute to send our template letter.
๐Ÿ’› Your voice carries weight.
๐Ÿ’› Action matters.

Will you write to your representative today?

longcovidkids.eaction.org.uk/awarenessday

#LongCovidAwareness #LongCovidAwarenessMonth
#MakeItVisible #LongCovidKids

01.03.2026 20:53 โ€” ๐Ÿ‘ 9    ๐Ÿ” 8    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Is the OMF's ME/CFS BioQuest Study the Study We've All Been Waiting For? - Health Rising The Open Medicine Foundation's huge Bioquest project has the potential to transform ME/CFS patients experience with doctors, dramatically enhance research and get drug companies finally interested inโ€ฆ

More on OMf's bold BioQuest Study
๐Ÿ‘‰ 1000 samples
๐Ÿ‘‰ Wide omics approach
๐Ÿ‘‰ Cohorts of ME, MS, Burnout, Long COVID, depression to filter out bio signals of fatigue
๐Ÿ‘‰ Hope to produce 5-20 biomarkers to identify subsets
๐Ÿ‘‰ Phase 1 of 3

Good article ๐Ÿ‘‡

02.03.2026 09:01 โ€” ๐Ÿ‘ 11    ๐Ÿ” 4    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Proud moment: our air purifiers are being rolled out to more than 200 schools across London, UK. Schools should be among the first places to have cleaner air.

01.03.2026 18:25 โ€” ๐Ÿ‘ 11    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Our paper on Symptom Patterns, Recovery, and Impact of
#LongCovid is now published. This is follow up data over 1 yr. Note how the pattern of symptoms changes over time with most starting out as fluctuating pattern and more ending up with a constant symptom pattern.
academic.oup.com/ofid/article...

27.02.2026 19:16 โ€” ๐Ÿ‘ 86    ๐Ÿ” 35    ๐Ÿ’ฌ 9    ๐Ÿ“Œ 6
The image is black and white. 5 young people are stood together, one is holding a book that they are looking at. 1 of the 5 is blurred out. The background is blue. The words on the image say 'Invisible to policy. Visible in children's lives. #Longcovidawareness . There is a white logo for Long Covid Kids charity in the bottom corner.

The image is black and white. 5 young people are stood together, one is holding a book that they are looking at. 1 of the 5 is blurred out. The background is blue. The words on the image say 'Invisible to policy. Visible in children's lives. #Longcovidawareness . There is a white logo for Long Covid Kids charity in the bottom corner.

Tens of thousands of children across the UK, & millions globally, are living with persistent, life-altering symptoms following COVID infection.
This means disrupted education, reduced attendance, falling attainment & a loss of everyday childhood.

#MakeItVisible #LongCovid #LongCovidKids

01.03.2026 20:53 โ€” ๐Ÿ‘ 25    ๐Ÿ” 14    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 1
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Long COVID Awareness : Every Heartbeat Counts - YouTube Les videos en differentes langues pour le Long COVID awareness de 2026

You can also find the video here:
www.youtube.com/playlist?lis...
#LongCovidAwarenessMonth
#LongCovidHeartbeats
#LongCovid

01.03.2026 16:41 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Video by @winslow_la

Alt: Person clenching chest
Explains dangers of COVID infections/Long Covid.
Fibrosis, Necrosis, Pericarditis
Myocarditis, Hypertension, Heart Failure, Fibrillation, Heart Attack,
Thrombosis, Vessel Damage,
Arrhythmia, And Moreโ€ฆ
#LongCovidHeartbeats

01.03.2026 16:41 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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One-Year Adverse Outcomes Among US Adults With Postโ€“COVID-19 Condition vs Those Without COVID-19 This cohort study aims to quantify 1-year outcomes among individuals meeting a postโ€“COVID-19 condition definition compared with a control group of individuals without COVID-19.

#LongcovidawarenessMonth
#LongCovidHeartbeats
#LongCovid #LongCovidAwareness
jamanetwork.com/journals/jam...

01.03.2026 16:41 โ€” ๐Ÿ‘ 4    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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Cardiovascular Risks in Patients With Postโ€“COVID-19 Condition Postโ€“COVID-19 condition (PCC) following SARS-CoV-2 infection (also known as long COVID) describes a variety of symptoms and health conditions, including both direct and indirect effects of the virus. ...

#LongcovidawarenessMonth
#LongCovidHeartbeats
#LongCovid #LongCovidAwareness
jamanetwork.com/journals/jam...

01.03.2026 16:41 โ€” ๐Ÿ‘ 5    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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WARNING:
Long Covid is a Multisystemic disease

๐Ÿ’”It can deeply damage your heart.
๐Ÿซ€Every heartbeat counts!
๐Ÿ˜ทProtect Yourself!

#LongcovidawarenessMonth
#LongCovidHeartbeats
#LongCovid #LongCovidAwareness

01.03.2026 16:41 โ€” ๐Ÿ‘ 11    ๐Ÿ” 6    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Teal text on a charcoal textured background reads โ€œMarch is Long Covid Awareness Month. Year 6. We canโ€™t wait any longer.โ€ Small lifering icons replace the letter Oโ€™s. The Long Covid SOS logo appears in the bottom left corner in white with a red lifering in SOS.

Teal text on a charcoal textured background reads โ€œMarch is Long Covid Awareness Month. Year 6. We canโ€™t wait any longer.โ€ Small lifering icons replace the letter Oโ€™s. The Long Covid SOS logo appears in the bottom left corner in white with a red lifering in SOS.

March is Long Covid Awareness Month.

Millions still live with life-altering symptoms & remain without consistent care.
Research funding does not reflect the scale of the crisis

We are calling for sustained investment into research & policy change

#longcovidawarenessmonth #wecantwait #longcovidsos

01.03.2026 17:32 โ€” ๐Ÿ‘ 27    ๐Ÿ” 18    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 3
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Blyth ex-GP says long Covid patients are being forgotten The NHS in the North East and Cumbria is closing its last dedicated long Covid clinics this month.

โ€œLong Covid patients are being forgottenโ€

Thank you Dr Susannah Thompson for your continued advocacy work ๐Ÿ™

www.bbc.co.uk/news/article...

01.03.2026 15:30 โ€” ๐Ÿ‘ 21    ๐Ÿ” 10    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1