Long COVID Physio

Our newly launched #LongCOVIDAwareness month page is filled with everything you need to take action and spread the word this #LongCOVIDAwareness Month. Watch our tutorial here: https://www.youtube.com/watch?v=t48DSF7BCjQ

Head to https://www.longhauler-advocacy.org/lcamonth2026 to get started.

Red broken heart graphic on a navy blue background. The text overlay on the heart reads: "Having Long Covid is heartbreaking because… sweeping my apartment means spending a day in bed." Above the heart, highlighted text reads: "Share what it’s like to live with Long Covid by March 1." In the bottom right of the graphic is a teal bubble; inside, the text reads "your experience here" with an arrow pointing to the heart.

Red broken heart graphic on a navy blue background. The text overlay on the heart reads: "Long Covid is heartbreaking because… it’s robbed my son of his childhood and his education." Above the heart, highlighted text reads: "Caregivers: Share your Long Covid experience by March 1." In the bottom right of the graphic is a teal bubble; inside, the text reads "your experience here" with an arrow pointing to the heart.

March 1 is the deadline to share your Long Covid story for our public awareness project. Submissions will be displayed at our Long Covid Awareness Day events on March 15th, to highlight the many different ways #LongCovid is heartbreaking.

Submit your story here: covidsociety.ca/priorities/l...

Graphic with teal background promoting International Long Covid Awareness Day. Text reads: International Long Covid Awareness Day - March 15. Vancouver, Calgary, Toronto, Montreal. Down the left side, there are three photos of people speaking at last year’s Long Covid Awareness Day events.

On March 15, we invite you to join us for International Long Covid Awareness Day in Vancouver, Calgary, Toronto & Montreal.

Hear from experts and people with Long Covid, and see our public awareness project featuring personal stories.

Details: covidsociety.ca/priorities/l...
#LongCovid #ilcad2026

Email your MP about Long Covid Awareness Day

Awareness leads to understanding.
Understanding leads to change.

Take action today and email your MP / MSP using our template letter. It just takes a minute.

longcovidkids.eaction.org.uk/awarenessday
#LongCovidAwareness #LongCovidKids #LongCovid

By amplifying lived experience, challenging stigma, and improving public understanding.
We invite you to join us.
💙 Turn your feed blue
💙 Share information
💙 Start conversations
💙 Stand with children and families affected by Long Covid and overlapping illnesses
#LongCovidAwareness #LongCovid

🩵 March marks International Long Covid Awareness Month.
We’re turning our feed blue to shine a light on #LongCovidAwareness.

We’ll be driving action, spotlighting resources and information to raise awareness of Long Covid and overlapping illnesses in children and young people.
#LongCovidKids

You can sign up to our #Newsletter at anytime to find out what's going on. Find the link in the footer of our website.

The next one drops tomorrow and includes all the sessions hosted by Chloe and Christina from @uninorthampton.bsky.social
Limited spaces

#LongCovidAwareness #OccupationalTherapy

Association Between Post-COVID-19 Infection and Fibromyalgia: A Controlled Case–Control Study — Ayse Oz and Tulay Yildirim "Patients with a history of COVID-19 showed significantly higher odds of meeting ACR 2016 fibromyalgia criteria, as well as worse clinical symptom burden, compared with controls."

From Turkey

"Patients with a history of COVID-19 showed significantly higher odds of meeting ACR 2016 fibromyalgia criteria"

www.mdpi.com/2077-0383/15...

Screenshot from latest Science for ME weekly update

#LongCovid #Fibromyalgia #Fibro #FMS #FM

ISLC-PAIS Conference 2026 in Amsterdam The ISLC-PAIS Conference brings together reseachers, clinicians and patient leaders working together to improve outcomes for people with Long COVID and other PAIS.

For those wanting the very best in Long C-19 Science‼️

💥 Registration opens very soon 💥

islc-pais.org

Email your MP about Long Covid Awareness Day

Can you spare one minute to support children with Long Covid today?
Use our template to write to your MP.
longcovidkids.eaction.org.uk/awarenessday

#LongCovidAwareness #ChildrensRights
@lcawarenessint.bsky.social @longcovidsupport.bsky.social @longcovidphysio.bsky.social @longcovidsos.bsky.social

We need lower CO₂ thresholds.
We need ringfenced funding.
We need #cleanair recognised as an #equality issue.
Children deserve better.
#ChildrensRights #CleanAir #Education #ChildHealth #Inequality.
#LongCovidKids

@longcovidsupport.bsky.social @longcovidsos.bsky.social @longcovidphysio.bsky.social

News Medical: Study identifies antiviral protein IFN-γ as a potential biomarker for Long COVID fatigue - The ME Association A study, led by The University of Cambridge, has identified […]

News Medical: Study identifies antiviral protein IFN-γ as a potential biomarker for Long COVID fatigue 

Read more: https://meassociation.org.uk/vpow

#LongCovid #LongCovidResearch #PostCovidSyndrome

🚨 NEW DfE GUIDANCE
- VENTILATION & AIR QUALITY -

Clean air matters - especially for #ClinicallyVulnerable children, staff and families. This is an important recognition that airborne transmission is preventable.

1/

Long COVID associated with SARS-CoV-2 reinfection among children and adolescents in the omicron era (RECOVER-EHR): a retrospective cohort study Children and adolescents face a significantly higher risk of various PASC outcomes after reinfection with SARS-CoV-2. These findings add to previous evidence linking paediatric long COVID to multisyst...

• It supports the need for good prevention, research and care.

Research like this builds knowledge so young people can be better supported and protected.
🙏 to the families who took part and to the #RECOVER research team involved.

www.thelancet.com/journals/lan...

#LongCovid #ChildrensRights

Researchers found that, on average, the risk of Long Covid was higher after a 2nd infection compared to a 1st infection.

Why this matters:
• It strengthens the evidence that #LongCovid in young people can affect more than one system in the body.

#LongCovidKids #ChildrensRights

#EPIVINF Webinar
Epigenetic Changes in Children and Adults Following SARS-CoV-2 Infection

📅 Date: March 26
🕒 Time: 2:30 PM (online)
@buonsenso.bsky.social

www.epivinf.eu/event/epigen...

#LongCovid #LongCovidKids #Epigenetics #children #SARSCoV2

Having clear, compassionate resources out there really matters.

I highly recommend the @longcovidphysio.bsky.social video series if you haven’t watched them yet.

They’re evidence informed, practical and available in multiple languages too 🌍

#LongCovid #PwME #POTS #Pacing #OccupationalTherapy

YouTube video by Long COVID Physio Pacing

In the Summer of 2023, I played a small role in the making of the @longcovidphysio.bsky.social Pacing episode in their video series.

youtu.be/USLg5FT86TQ?...

#LongCovid #PwME #POTS #Pacing #OccupationalTherapy

Highlights • Severe ME/CFS patients face deep social, medical, and structural exclusion. • Delegitimation of illness leads to isolation, distress, and denied support. • Gendered stigma shapes how women's pain is dismissed in health care. • Twitter (now X) offers access to the voices of an otherwise unreachable patient group. • This study urges reforms in care, disability access, and illness recognition.

🧵
Contested and neglected: Social and medical marginalization in severe Chronic Fatigue Syndrome

www.sciencedirect.com/science/arti...

"Severe ME/CFS patients face deep social, medical, and structural exclusion."

#SevereME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

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Assessment of dynamic cerebral blood flow changes during cognitive tasks in patients with post-COVID-19 syndrome Kutz et al. found that post-COVID-19 syndrome patients had altered cerebral blood flow, which was quantified using sample entropy (for temporal variability

🧠 Daily Feed of Brain Damage 🧠

With thanks to @jencurtinmd.bsky.social

academic.oup.com/braincomms/a...

#LongCovid
#ME

COVID-19 vaccination status during pregnancy and preeclampsia risk: the pandemic-era cohort of the INTERCOVID consortium COVID-19 vaccination with a booster reduces the odds of PE by 30% approaching 60% reduction among women with pre-existing morbidities.

COVID-19 vaccination status during pregnancy and preeclampsia risk: the pandemic-era cohort of the INTERCOVID consortium - eClinicalMedicine www.thelancet.com/journals/ecl...

Multimodal imaging suggests potential immune-vascular contributions to altered regional brain perfusion and oxygen metabolism in Post-COVID-19 Syndrome Post-COVID-19 Syndrome (PCS) frequently presents with persistent fatigue, cognitive impairment, and emotional symptoms. Although structural brain chan…

www.sciencedirect.com/science/arti...

Episode 18 - Growing Up With Long COVID: A Childhood Interrupted Podcast Episode · Covid Longhaulers Podcast · 20 February · 45m

#Podcast
Thank you to Darya, and her Mum Elham Safani Raker, for sharing their experience.

Together, they speak openly about school, friendships, identity, and the toll that this type of chronic illness takes during adolescence

podcasts.apple.com/gb/podcast/e...
#longcovid #childhood #GrowingUp

Two weeks and we've nearly hit 100 respondents. It would be great to reach this target. Please share widely @physiosforme.bsky.social @meassociation.org.uk @longcovidphysio.bsky.social

www.physiosforme.com/post/new-sur...

A very welcome publication highlighting the critical importance of engaging with complexity in systematic reviews - key reading for anyone involved in evidence synthesis.

Our new paper:

Synthesis challenges in complex evidence: A critical analysis of systematic reviews of face mask efficacy

#episky #healthpolicy #medsky

www.cambridge.org/core/journal...

The British Association of Clinicians in ME/CFS issued a "therapy guide" last year. Very unsatisfactory. Professor Jonathan Edwards and colleagues have responded in an open letter. I spoke with Professor Edwards about it. virology.ws/2026/02/20/t...

This AI generated infographic below summarises our
@physiosforme.bsky.social
feasibility study of heart-rate monitoring to support pacing, which found the protocol was feasible, well tolerated and well received, with high levels of continued use after the study ended. 4/5

Today I had the pleasure of speaking with a knowledgeable patient group about pacing in ME/CFS, with a particular focus on how wearables might support pacing and symptom management.

In preparing the talk, I looked at the emerging research on wearable-supported pacing including.. 1/5