Nikkie Gallant

It’s like this with music, too. You’d be surprised by how many names you’d recognize who aren’t able to make a living solely from their music.

Imagine all the great art we’re missing out on.

😐

Plz read

Image is a sticker of Nikkie dressed up as a mermaid, seated. Dark hair over one shoulder, arms outstretched in a “ta da” gesture, coral bikini top over a pale sweater meant to look like skin, tail made from a mermaid tail-style snuggie. Iridescent tail fins. Black kn95 respirator.

Happy Halloween

👻 🧜 👻

Love you, too. Happy to do whatever I can to help.

I’m sorry it did, and thank you. I’m glad they were open to including folks with lived experience. I hope it’s been helpful.

I mentioned you in this, @turnoftheshrew.bsky.social

“Hope is not a balm for the reality of pain, it is a witness to it.”

🎯

YouTube video by Nikkie Gallant Long Covid patient lived experience - 3rd Canadian Long Covid Symposium

Thank you to @longcovidweb.bsky.social and @memorialu.bsky.social for including me in the 3rd Canadian Long Covid Symposium in St. John’s, NL 🫶

I made the link to my speech public after the conference ended. It’s here if anyone wants to check it out:

youtu.be/Gv-nTCTR2Yo?...

And, from Canada’s treatment of Indigenous folks.

My dog has a few buttons so she can communicate with words, and one of the buttons says, “I love you.” I’m tickled pink when she pushes that one. (I’m not sure she means to push it, but I’ll take it, every time.)

“union”

This is SO cool!

Exactly.

It’s the same in Canada, without the insurers being in play, but cost is still definitely a factor. In the recommendations/guidelines, they cite incidental findings as the reasons for discouraging it. That and, making the patient worry needlessly which also feels inauthentic and secondary to cost.

“Hope is not a balm for the reality of pain, it is a witness to it.”

Hear, hear. 🙌

The hope never leaves. And, it’s not a cure. It’s there whether you’re improving, declining, or staying at the same baseline.

It seems it’s like pulling teeth to get MRIs ordered, or even other diagnostic imaging. I’ve heard they’re discouraged because of potential incidental findings. They don’t want to find more things that might warrant exploration. But, that leaves people without answers or effective treatments. 🤷🏻‍♀️

*kidnapped

Every day is a new chance to become more ourselves. Maybe you can think of a tiny thing you could do today or tomorrow that would make you feel more like you.

the liminal-space-ness of being in between song obsessions

Close by, though? In this neigh-bourhood?

🤭

That is weird. Hm. Bodies can be so strange. And, I feel like there are so many more medical mysteries than we’d like to think there are.

Gastroparesis?

Image showing Nikkie and Mike playing music together, each holding a guitar.

I’m playing a show tomorrow: The Craft of Song. With my pal Mike Dixon. At the North Bedeque Lil Red Schoolhouse hall. Part of their Love Local Live series. 3 pm. Masks welcome. Admission by donation.

Hashtag It’s going to be fun

Yeah, I would not expect that there at all. Weird! Summerside’s full of surprises

Storefront showing the eggplant emoji in neon lights. But also an alien in neon lights. And a moon with clouds in neon lights.

Sign in front of storefront reads: AUNTEA'S Gifts Make-up Snacks Books Holiday's Gift Wrapping Shoes Clothes And lots more...

Ok I just google mapsed them, and there IS a 🍆 emoji in the window.. but like… there’s also a bunch of other imagery that seems unrelated..

Also, words on the sign, “and lots more…” doing some heavy lifting there

Ok what?!

Ok, yeah, at least they said something.

Weird to have a whole article about MCAS without mentioning that Covid often causes it to flare… Great to see coverage on it, though!

A lot of people think the world can be made better by identifying the bad people and making them suffer in exactly the ways that we suffer. I understand that urge. It may bring some kind of catharsis. But we all need to understand that it doesn't actually *solve* anything.