Long Covid Support Aotearoa

"Some are children who can no longer attend school. Others are young adults who were once thriving and are now bed-bound. Many are mothers and fathers who can no longer care for their own families.

They don’t just need a doctor.
They need multidisciplinary care." #longcovid #mecfs

Body of a person sitting on tiled surface wearing jeans with a cardboard sign. Text in black marker says Dusabled, hot, and left to ROT. In smaller writing below, it says Long Covid Action Now!

One of our members made it to a protest last week 💪

You're welcome 🌸

Thank you 🌸

Screenshot of two sequential posts in my timeline: Long Covid Support Aotearoa: We're new to Bluesky. We are a New Zealand support group bringing forward the lived experience of our community with Long Covid and advocating for awareness, treatment, supports, and prevention. And a post linking a TVNZ news story: Offered rest home care at 24: the lonely plight of young Kiwis with long Covid www.1news.co.nz

Timeline synchronicity. Give @lcsupportaotearoa.bsky.social a warm welcome Kikorangi 🇳🇿. Wish you didn’t have to exist, but glad you’re here. ❤️

www.tvnz.co.nz/news/news-in...

Yep, exactly ❤️

Thanks 🫂

Make sure you watch the full 15 minute clip! We shed a few tears.

Thank you!

We're new to Bluesky.

We are a New Zealand support group bringing forward the lived experience of our community with Long Covid and advocating for awareness, treatment, supports, and prevention.

Offered rest home care at 24: the lonely plight of young Kiwis with long Covid A group of young Kiwis prove what international studies show: that long Covid has a particularly debilitating effect on young people. But how much medical support is there for them?

Heartfelt thanks to our young people with #longcovid who took part in this, sharing their stories #kiwi #nzpol

www.1news.co.nz/2025/10/10/o...

Remember that Herald article that said the economy has Long Covid? We had a few things to say about that.

longcovidsupport.co.nz/news/more-at...

A photographic image of an abandoned grey teddy bear lying facedown on a path outside a house. The text above reads: A second infection doubles a child's Long Covid risk. The background color is a light aqua and Aotearoa Covid Action's logo is at the bottom of the graphic. Photo by Trym Nilsen on Unsplash.

We need to get serious about protecting our tamariki. Study finds Long Covid risk for children doubles after a second infection.
stillcoviding.ca/en/news/long...

Latest episode: Physio Lauren Turner discusses calming the nervous system and Sarah Hoefhamer discusses her lived experience of MECFS www.mpr.nz/show/sickand...

Why investment in clean indoor air is vital preparation for the pandemics and climate emergencies to come Unchecked airborne infections cost billions in lost health and productivity each year – likely more than the cost of better ventilation to clean up indoor air.

Each day, we breathe more than 7,000 litres of air. Unsurprisingly, the quality of this air really matters. And given most of us spend a significant part of the day inside, clean indoor air is essential.

theconversation.com/why-investme...

Awesome idea!
#longcovid #maskbloc #maskup

Yellow image with purple stylised mask graphic in a circle and ACA logo

We are so humbled to have met our donation goal of $500 after only two days after launching our ACA Wellington Mask Bloc donation page. Its so heartening that people believe in this cause so much that they are still willing to donate in a recession. We have set a new goal of $1000.

Poor indoor air quality costing the country a billion dollars each year, researchers say A public health expert says polluted air is costing the country about a billion dollars each year in healthcare costs and decreased productivity.

We support the call to focus on air quality. We need clean air in schools, hospitals, and workplaces to reduce the transmission of air borne viruses such as Covid-19.
#CleanAir #longcovid

www.rnz.co.nz/news/nationa...

Studies show how common long COVID is globally and in teens

Studies show how common long COVID is globally and in teens.

Long COVID is highly prevalent in a new global analysis published in Open Forum Infectious Diseases.

A second study in the Journal of Infectious Diseases found many teens had lingering symptoms, though most resolved within 3 months.

Sick and Tired Aotearoa A show that shines a light on chronic and invisible illnesses in Aotearoa.

The latest episode of Sick and Tired Aotearoa podcast features Larisa Hockey talking about Long Covid Support Aotearoa www.mpr.nz/show/sickand...

Navigating PANS and PANDAS - PANS PANDAS UK Welcome to PANS PANDAS UK. This is our Navigating PANS and PANDAS page.

Free conference on PANS Pandas by @panspandasuk.bsky.social

panspandasuk.org/conference25...

A group of 4 people wearing masks sitting around a table playing a board game holding cards

Our board game social was a success yesterday! Thanks to the D*List for giving us 3 free hours in their office space in Auckland and to Cheeky Parrot Games which provided the games library. We hope to arrange more get togethers like this. We had about 25 people brave Auckland's weather to attend.

Sick and Tired Aotearoa A show that shines a light on chronic and invisible illnesses in Aotearoa.

Sick and Tired Aotearoa: Episode 4 shines a light on CRPS

www.mpr.nz/show/sickand...

#GetLoud #Covid #MaskUp #LongCovid #LongCovidKids

List of deaths due to COVID-19 - Wikipedia

This is a list of notable people reported as having died either from coronavirus disease 2019 (COVID-19) or post COVID-19 (long COVID), as a result of infection by the virus SARS-CoV-2 during the COVID-19 pandemic and post-COVID-19 pandemic.
en.wikipedia.org/wiki/List_of...

These results were from a survey of 121 adults across Australia living with long Covid. They had caught Covid between February 2020 and June 2022.

Long Covid has no diagnostic test, and people often report health professionals are sceptical about their symptoms and their impact. Yet our study showed people’s own ratings of their recovery strongly predicted their disability and quality of life.

Long Covid impact 'similar to stroke or Parkinson's' A new study shows long Covid isn’t just uncomfortable or inconvenient.

People with long Covid reported worse disability than 98% of the general Australian population. A total of 86% of those with long Covid met the threshold for serious disability compared with 9% of Australians overall.

www.1news.co.nz/2025/08/26/l...

The briefing says Long Covid can also lead to a 'substantially increased' risk of sudden death and 'silent' damage to cells and organs which can lead to later illness.