#SevereMEday #SevereME #MEcfs π₯²
08.08.2025 07:41 β π 5 π 0 π¬ 0 π 0@bexsme.bsky.social
Parent carer to a daughter with severe #ME Interested in medical research, true crime and DIY.
#SevereMEday #SevereME #MEcfs π₯²
08.08.2025 07:41 β π 5 π 0 π¬ 0 π 0The hashtag made her laugh πΉ Yay so pleased that research is still ongoing, research funding is the biggest issue to helping those with M.E.
07.08.2025 14:02 β π 1 π 0 π¬ 0 π 0DecodeME: The Results announcement post. The graphic has a blue background with a DNA helix. In the centre of the graphic it says βWe have released our initial DNA results! We have discovered that your genes contribute to your chances of developing ME/CFS.β At the bottom left of the graphic is an image of a research paper.
Our initial DNA results! DecodeME have discovered that people with an ME/CFS diagnosis have significant genetic differences compared to the general population.
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Summary of our results: shorturl.at/pgsjk
Check out our full preprint paper: shorturl.at/VwN3s
Bravo @cgatist.bsky.social @actionforme.bsky.social and everyone that contributed their #spitforscience
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Love the hashtag π Iβll show my girl it tomorrow, she was one of thousands who contributed her spit π€£ so pleased that awesome researchers wanted to do this and got funding. So much more hopefully for the future now
06.08.2025 21:05 β π 5 π 1 π¬ 2 π 0I hope it goes well and you cope ok.
08.07.2025 06:52 β π 1 π 0 π¬ 0 π 0@meiselasb.bsky.social looks like USA needs UK visitors now, wonder why π€ #ElbowsUp π¨π¦
28.03.2025 13:52 β π 2 π 0 π¬ 0 π 0When lockdowns started, people said: βthis is what your life is like all the time? I had no idea!β
They seemed to understand how hard it is to be disabled & housebound. I found support & empathy.
Then they got bored. Wanted their βnormalβ back. Support vanished & disabled people were left behind.
I always thought it was to get rid of water from near their ears but my dog goes loopy after just dunking his feet in the bath - think mineβs broken π
06.12.2024 21:15 β π 1 π 0 π¬ 1 π 0Updated last night - All that black behind apps, wow! Not sure I like that
29.11.2024 08:43 β π 0 π 0 π¬ 0 π 0#RoundwayHill #Rowde #Wiltshire
24.11.2024 10:28 β π 4 π 0 π¬ 0 π 0Nightmare #PavementParking #Wiltshire wish theyβd hurry up π©βπ¦½ββ‘οΈ
22.11.2024 09:18 β π 9 π 0 π¬ 0 π 0Itβs not just healthcare workers, all the OTβs, Adult Health Care and Educational Health Care people who come to my house without a mask is shocking. I provide one to all when visiting my girl, fortunately they will wear them.
22.11.2024 08:26 β π 3 π 0 π¬ 0 π 0Iβm getting tired of all of this narrative. You look after yourself when youβre looked after by others & when youβre not struggling with poverty, social isolation & discrimination. The state has a pivotal role in preparing the soil. Whether thatβs NHS or beyond.
www.thetimes.com/uk/politics/...
Iβm not living in fear of a virus, Iβm living with the disgust I feel from watching you all prioritize your feelings over the heath of your families and communities. Iβm not afraid, Iβm offended and Iβm pissed off that I was tricked into thinking that most people had at least some decency.
15.11.2024 18:44 β π 230 π 50 π¬ 4 π 3So pleased youβre now on here, welcome
16.11.2024 11:16 β π 0 π 0 π¬ 0 π 0