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BeckyH

@bexsme.bsky.social

Parent carer to a daughter with severe #ME Interested in medical research, true crime and DIY.

141 Followers  |  368 Following  |  12 Posts  |  Joined: 19.10.2023  |  1.5069

Latest posts by bexsme.bsky.social on Bluesky

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#SevereMEday #SevereME #MEcfs πŸ₯²

08.08.2025 07:41 β€” πŸ‘ 5    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

The hashtag made her laugh 😹 Yay so pleased that research is still ongoing, research funding is the biggest issue to helping those with M.E.

07.08.2025 14:02 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
DecodeME: The Results announcement post. The graphic has a blue background with a DNA helix. In the centre of the graphic it says β€˜We have released our initial DNA results! We have discovered that your genes contribute to your chances of developing ME/CFS.’ At the bottom left of the graphic is an image of a research paper.

DecodeME: The Results announcement post. The graphic has a blue background with a DNA helix. In the centre of the graphic it says β€˜We have released our initial DNA results! We have discovered that your genes contribute to your chances of developing ME/CFS.’ At the bottom left of the graphic is an image of a research paper.

Our initial DNA results! DecodeME have discovered that people with an ME/CFS diagnosis have significant genetic differences compared to the general population.
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Summary of our results: shorturl.at/pgsjk
Check out our full preprint paper: shorturl.at/VwN3s

06.08.2025 18:24 β€” πŸ‘ 253    πŸ” 147    πŸ’¬ 17    πŸ“Œ 37

Bravo @cgatist.bsky.social @actionforme.bsky.social and everyone that contributed their #spitforscience

πŸ‘πŸ§¬πŸ‘πŸ§¬πŸ‘πŸ§¬

06.08.2025 19:12 β€” πŸ‘ 10    πŸ” 2    πŸ’¬ 2    πŸ“Œ 0

Love the hashtag πŸ˜‚ I’ll show my girl it tomorrow, she was one of thousands who contributed her spit 🀣 so pleased that awesome researchers wanted to do this and got funding. So much more hopefully for the future now

06.08.2025 21:05 β€” πŸ‘ 5    πŸ” 1    πŸ’¬ 2    πŸ“Œ 0

I hope it goes well and you cope ok.

08.07.2025 06:52 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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@meiselasb.bsky.social looks like USA needs UK visitors now, wonder why πŸ€” #ElbowsUp πŸ‡¨πŸ‡¦

28.03.2025 13:52 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

When lockdowns started, people said: β€œthis is what your life is like all the time? I had no idea!”

They seemed to understand how hard it is to be disabled & housebound. I found support & empathy.

Then they got bored. Wanted their β€œnormal” back. Support vanished & disabled people were left behind.

10.03.2025 08:40 β€” πŸ‘ 602    πŸ” 118    πŸ’¬ 14    πŸ“Œ 4
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a little girl is hugging a monster from monsters inc ALT: a little girl is hugging a monster from monsters inc
04.03.2025 20:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I always thought it was to get rid of water from near their ears but my dog goes loopy after just dunking his feet in the bath - think mine’s broken 😜

06.12.2024 21:15 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Updated last night - All that black behind apps, wow! Not sure I like that

29.11.2024 08:43 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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#RoundwayHill #Rowde #Wiltshire

24.11.2024 10:28 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Nightmare #PavementParking #Wiltshire wish they’d hurry up πŸ‘©β€πŸ¦½β€βž‘οΈ

22.11.2024 09:18 β€” πŸ‘ 9    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

It’s not just healthcare workers, all the OT’s, Adult Health Care and Educational Health Care people who come to my house without a mask is shocking. I provide one to all when visiting my girl, fortunately they will wear them.

22.11.2024 08:26 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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NHS β€˜will be overwhelmed unless patients look after themselves’ The public must be motivated to take charge of their own health, a Labour adviser has said

I’m getting tired of all of this narrative. You look after yourself when you’re looked after by others & when you’re not struggling with poverty, social isolation & discrimination. The state has a pivotal role in preparing the soil. Whether that’s NHS or beyond.
www.thetimes.com/uk/politics/...

19.11.2024 07:56 β€” πŸ‘ 501    πŸ” 142    πŸ’¬ 28    πŸ“Œ 12

I’m not living in fear of a virus, I’m living with the disgust I feel from watching you all prioritize your feelings over the heath of your families and communities. I’m not afraid, I’m offended and I’m pissed off that I was tricked into thinking that most people had at least some decency.

15.11.2024 18:44 β€” πŸ‘ 230    πŸ” 50    πŸ’¬ 4    πŸ“Œ 3

So pleased you’re now on here, welcome

16.11.2024 11:16 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

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