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Vascular Birthmarks Foundation

@vbfoundation.bsky.social

The Vascular Birthmarks Foundation. Networking individuals with vascular birthmarks into proper treatment since 1994. We are making a difference! Visit https://birthmark.org/ to learn more about the VBF.

17 Followers  |  4 Following  |  479 Posts  |  Joined: 06.01.2025  |  1.7182

Latest posts by vbfoundation.bsky.social on Bluesky

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🌟 Dr. Linda’s Fact of the Week 🌟

"SWS is characterized by a facial port wine stain and associated neurological abnormalities."

Research is key to unlocking more answers. Together, we can spread awareness and support families on this journey! πŸ’ͺ

07.11.2025 15:02 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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You can help to make a difference to a family affected by a Vascular Birthmark by giving just $10 per month. Supporting the VBF Mission is that easy!

Start donating today at birthmark.org/donate

LIKE and Share!

#VBFGivesHope #VascularAnomalies #VBF #Donate

06.11.2025 13:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The next Adults Living With Advocacy Network (ALWAN) Zoom session will be on Wednesday, November 12, 2025, 7:30 PM ET / 4:30 PM PT.

Pre-register here: https://birthmark.org/alwan

#VascularBirthmarksFoundation #Supportgroups #Psychosocial #BirthmarkCommunity #LetsTalk

05.11.2025 21:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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YOU are MORE than your Birthmark...I am MORE than MY Birthmark.
Hello Lindsay!
Submit a photo of the individual with the Vascular Birthmark, Anomaly, or Related Syndrome, three or more non-birthmark-related facts about them, and the type of birthmark at: https://birthmark.org/more-than-a-birthmark/

05.11.2025 17:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Presenting our VBF Expert of the Week!

Dr. Gerald Goldberg

Leave a review about this expert here: birthmark.org/vbf-expert-f...

Contact or read more about this Expert by visiting one of the links below:
birthmark.org/vbf-experts

#ExpertOfTheWeek #VBFExperts #VascularBirthmarksFoundation

04.11.2025 12:18 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Interested in submitting a 30-60sec Motivational Monday video? Email kiana@birthmark.org

#motivationalmonday
#VBFBU 😎

03.11.2025 14:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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With each purchase, $10 goes directly to VBF to support life-changing programs. Bring joy to a loved one with a vascular birthmark and support VBF's mission by purchasing a doll today.

πŸ‘‰ Click Here to Shop https://www.kikilishop.com/vbfbirthmarkdolls

#BirthmarkDoll #VBFGivesHope #NonProfit

02.11.2025 12:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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🌟 Dr. Linda’s Fact of the Week 🌟

Dr. Linda, PhD, Founder and Advocacy Director of the Vascular Birthmarks Foundation.
Research is key to unlocking more answers. Together, we can spread awareness and support families on this journey! πŸ’ͺ

#DrLindasFactOfTheWeek #VBF

31.10.2025 14:02 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Happy Halloween! πŸ•·οΈ

31.10.2025 04:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Dr. Linda REPOST:

Back in 1998, myself and our VBF founding medical director, Dr Martin Mihm, participated in evaluating a research study using a biological treatment called OK-432 ... read more here: https://www.facebook.com/share/p/1H8gpM1g4j/

Study link:
https://starborn1study.com/

30.10.2025 17:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Presenting our VBF Experts of the Week!

Dr. Robert Rosen and Dr. Raghav Mattay

Dr. Linda will hosts both of these doctors on the next Facebook live, today at 4:30 PM ET / 1:30 PM PT.

Contact or read more about these Experts by visiting one of the links below:
birthmark.org/vbf-experts

#VBF

29.10.2025 19:52 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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YOU are MORE than your Birthmark...I am MORE than MY Birthmark..

Hello Denise!
Submit a photo of the individual with the Vascular Birthmark, Anomaly, or Related Syndrome, three or more non-birthmark-related facts about them, and the type of birthmark at: https://birthmark.org/more-than-a-birthmark/

29.10.2025 16:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Join our VBF Facebook Live later today, Wednesday, October 29, 2025 at 4:30 PM ET / 1:30 PM PT with Dr. Linda and guests, VBF Expert Dr. Robert Rosen MD and for the first time, NeuroInterventional Radiologist and Endovascular Neurosurgeon Expert, Dr. Raghav Mattay MD.

29.10.2025 04:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Tune in TOMORROW, Wednesday, October 29, 2025 at 4:30 PM ET / 1:30 PM PT, for our next VBF Facebook Live with Dr. Linda and guests, VBF Expert Dr. Robert Rosen MD and for the first time, NeuroInterventional Radiologist and Endovascular Neurosurgeon Expert, Dr. Raghav Mattay MD.

28.10.2025 04:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Interested in submitting a 30-60sec Motivational Monday video? Email kiana@birthmark.org

#motivationalmonday
#VBFBU 😎

27.10.2025 13:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸ“£ Do you know of any great children’s books that promote self-confidence, diversity, or stories of overcoming challenges all while being affected by a vascular birthmark, anomaly and/or related syndrome (VBARS)? We’d love to hear your suggestions!

πŸ“š https://birthmark.org/kidslibrary

26.10.2025 20:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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THERE’S A NEW SHERIFF IN TOWN!!!

VBF is proud to announce the fulfillment of our succession plan, ensuring VBF will continue long into the future.

Introducing Steve Hartley, VBF’s first Executive Director to follow Founder, Dr Linda.

Full post here: www.facebook.com/share/p/19gP...

26.10.2025 19:25 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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🌟 Dr. Linda’s Fact of the Week 🌟

Dr. Linda, PhD, Founder and Director of Patient Advocacy of the Vascular Birthmarks Foundation
Research is key to unlocking more answers. Together, we can spread awareness and support families on this journey! πŸ’ͺ

#VascularBirthmarks #VBF

24.10.2025 04:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The next Adults Living With Advocacy Network (ALWAN) Zoom session will be on Wednesday, November 12, 2025, 7:30 PM ET / 4:30 PM PT.

Pre-register here: https://birthmark.org/alwan

#VascularBirthmarksFoundation #Supportgroups #Psychosocial #BirthmarkCommunity #LetsTalk

23.10.2025 12:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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YOU are MORE than your Birthmark...I am MORE than MY Birthmark..

Hello Eeghan!

Submit a photo of he individual with the Vascular Birthmark, Anomaly, or Related Syndrome, three or more non-birthmark-related facts about them, and the type of birthmark at: https://birthmark.org/more-than-a-birthmark

22.10.2025 16:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Join Dr. Linda and guests, VBF Expert Dr. Robert Rosen MD, and NeuroInterventional Radiologist and Endovascular Neurosurgeon Expert, Dr. Raghav Mattay MD, on Wednesday, October 29, 2025 at 4:30 PM ET / 1:30 PM PT
Topic: Interventional Treatment of Vascular Anomalies: Head to Toe

22.10.2025 04:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Presenting our VBF Expert of the Week!

Dr. Beth Drolet

Leave a review about this expert here: https://birthmark.org/vbf-expert-feedback/

Contact or read more about this Expert by visiting one of the links below:
https://birthmark.org/vbf-experts

#ExpertOfTheWeek #VBF #VascularAnomalies

21.10.2025 22:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Interested in submitting a 30-60sec Motivational Monday video? Email kiana@birthmark.org

#motivationalmonday
#VBFBU 😎

20.10.2025 13:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Shubh Diwali
May the sacred light of deyas fill your life with happiness, calmness, and prosperity.

20.10.2025 04:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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🌟 Dr. Linda’s Fact of the Week 🌟

Dr. Linda, PhD, Founder and Director of Patient Advocacy of the Vascular Birthmarks Foundation
Research is key to unlocking more answers. Together, we can spread awareness and support families on this journey! πŸ’ͺ

#VBF #DrLindasFactOfTheWeek

17.10.2025 20:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The VBF is the leading resource and only non-profit in the world that brings the top experts and patients together in one place for everything VBARS, for FREE! Help support our mission by making a donation here: birthmark.org/donate

#VBFGivesHope #VBF2025NYC #VBF #VBARS

17.10.2025 14:55 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Every patient who attended our 2025 NYC Super clinic received a FREE copy of Dr. Linda's book Birthmarks Are Like Flowers!

What did you think of the book? Leave us a review here: https://birthmark.org/kidslibrary/#review

This book is only available by donation: https://birthmark.org/book


16.10.2025 22:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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YOU are MORE than your Birthmark. I am MORE than MY Birthmark.

Hello Brantley!
Submit a photo of the individual with the Vascular Birthmark, Anomaly, or Related Syndrome, three or more non-birthmark-related facts about them, and the type of birthmark at: https://birthmark.org/more-than-a-birthmark

16.10.2025 12:35 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Join Dr. Linda and guests, VBF Expert Dr. Robert Rosen MD, and NeuroInterventional Radiologist and Endovascular Neurosurgeon Expert, Dr. Raghav Mattay MD, on Wednesday, October 29, 2025 at 4:30 PM ET / 1:30 PM PT
Topic: Interventional Treatment of Vascular Anomalies: Head to Toe

15.10.2025 16:02 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Presenting our VBF Expert of the Week!

Dr. Joseph Panarelli

Leave a review about this expert here: https://birthmark.org/vbf-expert-feedback/

Contact or read more about this Expert by visiting one of the links below:
https://birthmark.org/vbf-experts

#Glaucoma

14.10.2025 16:02 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

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