Eowyn Elleveve

Living life on the edge; supergluing with a tremor.

Same.

WA Folk: Join/support/donate/volunteer/help @wholewashington.org

Call your reps: 800-562-6000 ASAP

Bills require public hearings before Fri 2/21 or they DIE. SB5233 HB1445 are STUCK in committee.

1 call reaches your 2 Reps & 1 Senator. Urge them to show leadership by demanding hearings.

My back went out this week; which is nothing new. The new part is that the doctor’s office staff have stopped telling me I’m too young for that to be happening. At least the lovely seniors at my water aerobics class still tell me I’m too young to be so broken. #fourtysomething

Graphic with a dark blue background titled “Protect Medicaid from cuts”, showing photos of the U.S. Capitol and a small blackboard with “Medicaid” written on it. The text reads, “Proposals to cut Medicaid funding would jeopardize care for millions and shift financial risks to states.”

Alert 🚨 Congress is considering proposals that would reduce Medicaid funding! Medicaid is a critical lifeline for disabled Americans. Our friends @nhelp.bsky.social are hosting a day of action: Call Congress via the Protect Medicaid hotline at 866-426-2631 and tell them to protect Medicaid. No cuts!

Ditto. It’s hard to explain to people why I can’t do something that I did relatively easily last week. For that matter, it’s hard to explain it to myself 😆

And also, none of it is static. Needs and impacts can and do change based on any number of factors throughout an autistic person’s life, and even throughout the day in many cases.

Adding to this: someone's non/verbal status is not the whole picture & you in fact cannot know how much someone's life is impacted by their autism by how well they string together a sentence

Source: a pretty dang verbal autistic with other very profound support needs

Carved print of a daisy in black ink on a white background.

I finished a little daisy #linocut! I tried using that pink rubber eraser-type carving material to see if it would be doable with my hand issues. It took multiple months to finish, but I did it! #disabledartist #disability

While talking to my therapist yesterday about autistic masking, she asked whether I mask in our sessions. And like, yeah, but I can’t tell you that without unmasking. Which I believe, my friends, is the point. Sigh. #therapy #disabled #autisticmasking

I finally have an appointment for autonomic testing! It is over six months away, but since my POTS tends to be worse in summer that is probably better anyway. #tilttabletest #pots

A black and white image of a dahlia superimposed over a brain MRI. Part of a series exploring my chronic illness.

Anyone remember the fried egg, “This is your brain on drugs,” ad from the late 80’s? This piece makes me think of that commercial. This is my brain on flowers. #disabledartist #medicalimaging #dahlia

Going to Seattle for a Sunday afternoon MR Angiogram is not the day date of my dreams, but I suppose I’ll have more medical images for my art project. #chronicillness #disabledartist

I had to taper really slowly and the weird dreams subsided; 1mg steps instead of the usual 1.5mg. I honestly don’t think I have seen much improvement in symptoms, but I continue to take it because my EDS specialist said it can also help prevent some autoimmune diseases from developing.

My autistic instinct is to actually explain how I’m doing, but I realize people aren’t really asking for that.

I usually set my yearly intentions on my birthday since it is my new year, but I do still usually come up with a silly resolution on NYE that is inconsequential. This year I want to find a better alternative to, “Hanging in there..,” when asked how I’m doing.

My New Year’s resolution is to come up with a better answer than, “Hanging in there…,” when asked how I’m doing. Something that implies things may not be great without explicitly saying so. Any suggestions are welcome.

Hi! I love you back!

I use the MiG app. I have both chronic and episodic migraines and this was the only app I found that you can have multiple headaches tracking at the same time. I also use the Bearable app to track all my other chronic illnesses.

Thanks, it’s from a series I have been working on using my medical imaging and photos of my garden to help emotionally process my chronic illnesses.

A black and white photograph of a dahlia flower superimposed over a neck and head MRI image to look as though the flower is growing in my brain.

I am not much of a social media person, but I’ve made it over to Bluesky. I’m a forty-something queer, late diagnosed autistic, chronically ill artist and clothing designer. Hi!

Indeed, it has been many years. The last I remember was maybe a decade ago you played music at our Beltane celebration. I may have forgotten a con more recently though.