sarah boothby

Only two weeks remain to apply for the Paul Foot Award for Investigative and Campaigning Journalism.

Submit your entry by noon, Tuesday 17th March 2026.

➡️ Find out more and apply: private-eye.co.uk/paul-foot-aw...

Hallo Niedersachsen | 22.02.2026 - hier anschauen Bei Hallo Niedersachsen um 19:30 Uhr erfahren Sie alles, was am Tag in Niedersachsen los war.

Link to the original broadcast
Hello Lower Saxony | February 22, 2026
www.ardmediathek.de/video/hallo-...

TW: Assisted Suicide

Clip from German TV. Kim has #MECFS and describes how her illness has progressed, leaving her bedbound and sensitive to light and sound.

At 25, she talks about her decision to apply for assisted suicide, saying she can no longer live like this.

Political support, cross party, has been plentiful.
It's the medical establishment that obstructs any progress. Especially in England.

This treatment is actively being removed by NHS. As if removing treatment that improves quality of life in a chronic, extremely debilitating condition will not contribute to suicidal ideation.
This is the effect of a poorly body badly treated by a national service on the mind.

Treating my low blood volume with weekly IV fluids has improved my quality of life...

While not a cure, educating doctors about our low blood volume could lead to more effective management of #MyalgicEncephalomyelitis.

open.substack.com/pub/colleens...

College has wrecked my daughter's health. The train she takes has sealed windows and no-one wears a mask. At college there aren't any air purifiers and no-one masks. She's missed about 30-35% of her course through sickness and is understandably worried she won't pass her A-levels.

I'm hearing Dalton has resigned.
If ever there was a body less suited to that role . . .
She's done the right thing. Thank you @ashleydaltonmp.bsky.social.
We had the best @theandrewgwynne.bsky.social
Who now?

Socializing, standing, cold

Please contribute #pwME #LongCovidME
Learning from vsME BACME member has noted eating, communicating & moving all provoke #PEM.
For hospitals this information is critical @ashleydaltonmp.bsky.social your staff are failing to give NHS leaders a steer from the NHS frontline.
@laylamoran.bsky.social

From the cfs community on Reddit Explore this post and more from the cfs community

Things that trigger your #PEM the most?
I'm curious for others what things trigger their PEM symptoms the most? For me it's socializing and crying 😢

Ouf 😣 yes. Crying, laughing, arousal, rage... flashing lights.

Otherwise when not in rolling PEM, my number 1: stressful interactions/unexpected situations.
Socialising as well, both from mental exertion but particularly sharing any 'normal' microbes with others :s
+ MCAS reactions

#ME #LongCovid "a loss of everyday childhood" matures into long term disability in adulthood.
Why the waste?

For all the others learning Welsh out there!
Dydd Gŵyl Dewi Hapus!

@ashleydaltonmp.bsky.social one for you to ask your department. If you will.

Correction "effort preference"
(ty @stevefifield.bsky.social)

Ffs. How much explaining does PEM need @ris-law.bsky.social ?
@justice4ME.uk

Same. Afaics, it's the 2024 paper.

Do you have a link to the published paper?
Is it a new analysis of the original NIH study describing PEM as "effort avoidance"?
@davetuller1.bsky.social are you aware?

Graphic listing Bateman Horne Center’s March 2026 online events, including two support groups and a “Coffee with a Clinician” session, with dates, times (MST), and a link to batemanhornecenter.org/events to register.

March events are open for registration

3/3 Support Group: Communicating Needs with Confidence
3/11 “Coffee” with a Clinician: Key Characteristics & Pathophysiology of PEM
3/17 Support Group: Life Stages & Aging with ME/CFS or Long COVID

Register now: http://batemanhornecenter.org/events

🗳️ 𝗦𝘁𝗮𝘁𝗲𝗺𝗲𝗻𝘁 𝗼𝗻 𝘁𝗵𝗲 𝗕𝘆-𝗘𝗹𝗲𝗰𝘁𝗶𝗼𝗻 👇🏻

I’m sharing this not just as someone involved in campaigning, but as a mum.
At the start of the pandemic, I was told COVID wouldn’t affect children.My child developed #LongCovid.
That experience changes how you see everything, especially conversations about prevention.
@departmentforedu.bsky.social

Starting a newsletter-thing.

What would you like me to write about? There'll be photos too, of course.

I have 17-32 years' ME/CFS experience. From early onset, to mild, then moderate to severe, briefly, and back to moderate.

YouTube video by Anil about ME His Death Should Not Be In Vain. Interview with Samuel's mother.

Samuel’s (21) Death Should Not Be In Vain.

An emotional interview with Samuel’s mother about the development of #severeME after #longCOVID and how he later told her that he had decided to "choose" assisted suicide, as well as the impact this had on her.

youtu.be/OMe0PBRwD8I?...

Could you post a link to a description of MINS in this thread?

What a lovely baby!
Thinking of you today.
Please don't let ill health take all your talents from us.

A yellow flower with a green frilly ring of sepals nestled in amongst the daffodils

Oh hello, winter aconite (Eranthis hyemalis).

I thought I’d lost it (the mice ate the others I put up the garden), but this one has persisted amongst the daffodils.

Hey Lucibee.
Mental health is nothing like physical health; it's thought.
Thoughts are not determined by the brain. They are determined by languages. Languages are acquired socially. Thus mental health is a social construct.
The brain is one of several organs. None of them determine mental health.

🙏🏻🙏🏻🙏🏻
☀️
🌺

"Resources" may require a change to the 2022 Act. Have you checked with Jeremy Hunt about the autonomy of your ICB & the contract with GPs?

PLEASE pace. Everything. Always.
Check out @sunsopeningband.bsky.social for why.