If we want to offer care that is meaningful, inclusive, and person-centred, we have to be willing to evolveβnot just professionally, but personally too.
#LivedExperience #NeuroAffirming #EatingDisorderCare #PersonCentredCare #HealthcareReflections #MessyButNecessary
5/5
06.07.2025 15:29 β π 0 π 0 π¬ 0 π 0
It means accepting that we might get it wrong, that we might be told we arenβt listening even when we think we are.
That process is messy. Itβs humbling. But itβs also necessary.
4/
06.07.2025 15:29 β π 0 π 0 π¬ 1 π 0
Truly hearing lived experience means stepping into a space of discomfort and uncertainty. It means acknowledging that our usual ways of working might not fit everyoneβand being open to change when they donβt.
3/
06.07.2025 15:29 β π 0 π 0 π¬ 1 π 0
It can be easyβcomfortable evenβto stay within the certainty of our professional frameworks, following methodical steps, evidence-based protocols, and what feels "safe" in our roles. But when we do this without genuinely listening, we risk causing harm.
2/
06.07.2025 15:26 β π 0 π 0 π¬ 1 π 0
Listening to lived experience is not a box-ticking exercise.
1/
06.07.2025 15:26 β π 1 π 0 π¬ 1 π 0
Image of hand holding up plastic cup with two silver metal spoons in it against a turquoise background. Written text above this stating exhibition details 1st to 8th march (closed Sunday, Tuesday and Thursday) time 10am to 5pm, free/drop in, location at inspace, 1 Crichton street, Newington, Edinburgh, EH 8 9AB
EDAC is proud to host an exhibition of photographs, drawings and digital art on the experience and research priorities of autistic people with eating disorders . inspace.ed.ac.uk/youre-not-al.... 1st to 8th march (closed Sunday Tuesday and Thursday, free drop in 10-5 quiet hour on sat.
03.02.2025 13:27 β π 11 π 8 π¬ 1 π 0
Urgent referrals of children in mental health crisis in England rise 13% in year
Charity says NHS failure to help more young people sooner is a βshocking betrayalβ
34,793 emergency, very urgent or urgent referrals to child/adolescent mental health services crisis teams in England in six months.
Cuts in public services & real incomes; eating disorders take toll.
What kind of society hands mental health problems to children?
www.theguardian.com/society/2025...
02.01.2025 08:25 β π 369 π 184 π¬ 23 π 5
The best way to strengthen science is to recognize it contains bias, identify those biases & dismantle them
#science
27.12.2024 14:12 β π 6 π 2 π¬ 1 π 0
An Affirming Approach to Supporting Interoception, Feeding Challenges & ARFID
Follow along this month as we talk about the links between interoception, feeding challenges, and ARFID, and how we can implement affirming supports.
"We really need to help each person discover the way their body feels when it needs food, when it needs hydration, et cetera, instead of teaching 'hunger is when your stomach is growling,' because thatβs not the case for every single person." By Kelly Mahler:
www.kelly-mahler.com/resources/bl...
13.12.2024 00:43 β π 146 π 42 π¬ 13 π 7
Lived experience of EAting Disorders In Neurodivergent and Gender-diverse people (LEADING) Study
https://linktr.ee/leading_study
I am currently a postdoctoral research fellow at the University of Edinburgh in the School of Health in Social Sciences.
My expertise spans child development, eating behaviour, and public health.
HCRW Advanced Fellow at Cardiff University
Lived experience researcher studying gender diversity, neurodivergence & eating disorders (@leading-study.bsky.social) linktr.ee/leading_study
π³οΈββ§οΈπ³οΈβπ He/him
profiles.cardiff.ac.uk/staff/thomask30
Getting through with an eating disorder and OCD. Involved in peer research and NHS volunteering. Please read/share the article in my pinned post. β€οΈπ«
https://www.researchgate.net/profile/Aly-Asaria
Launched on March 1, 2021. Our team researches how young people use resources to prevent and overcome mental distress. Please see more at https://www.qmul.ac.uk/wiph/centres/centre-for-psychiatry-and-mental-health/youth-resilience-unit/
Centre for Psychiatry & Mental Health, world leader in social, cultural & environmental aspects of mental health. Please read more at https://www.qmul.ac.uk/wiph/centres/centre-for-psychiatry-and-mental-health/
Senior lecturer, autism researcher. Reader, writer, radio listener, swimmer and nature lover. Arts buff.
Dislikes: cronyism. Fan of The Archers π
π βΎοΈ AuDHD | Monotropic | Neuro-affirming Autism advocate & consultant.
Interests: monotropism, flow, burnout & neuroqueer theory.
Writer β’ Trainer β’ Resource Creator | Former SEND EY/Primary teacher βΎοΈ π
https://www.autisticrealms.com/
Monotropism is a theory of Autism developed by Autistic people, initially by Dinah Murray and Wenn Lawson.
Read about explanations and applications of the theory, its history, and whatβs happening now on our website.
https://monotropism.org/
Neuro-Affirmative, Neurodivergent collective of Mental Health professionals dedicated to advancing the human rights of #ActuallyAutistic & otherwise #Neurodivergent people
Eating disorder therapist at PHP level of care. Interested in eating disorder research, body image, psychoanalysis (esp Bion and Lacan), basketball, cowboy boots, fashion, unnecessary Barbie movie references, Epic smartphrases, Taylor Swift, and cooking.
The Los Angeles Body Dysmorphic Disorder & Body Image Clinic specializes in the diagnosis and treatment of body dysmorphic disorder and related body image issues. www.BDDclinic.com
Author, Trainer, Consultant & Researcher, supporting settings services & systems in becoming trauma-informed.
Research: care, exclusion, belonging Living in the liminal space with #myeloma
www.lisacherry.co.uk
SWAN Research Group | Anorexia Nervosa & Other Eating Disorders | Based at Orygen/The University of Melbourne | Led by A/Prof Andrea Phillipou & team. Email: eatingdisorders@orygen.org.au
Assistant Professor at Pitt Psychiatry | Clinical Psychologist | Eating behavior, food insecurity, health equity & perinatal wellbeing | Mom π¦πΌπΆπ»π
Prof of Clinical Child & Adolescent Psychology & Psychotherapy at University of Regensburg. Eating disorders, Functional models of psychopathology, EMA π©πͺπ¨π΄πΊπΈπ§π·
Assistant Scientist | Clinical Director| Researching Guts, Brains, and EMA in Eating Disorders π¦ π§ π±
Monotropic writer, science tutor, autistic community organiser and independent researcher. Based in Edinburgh.
Formerly @MxOolong elsewhere.
they/them.
https://linktr.ee/0olong
π©βπ¬ Lecturer in Psychology, University of Bath
π Researching sensory experiences and inclusive spaces for Autistic and Neurodivergent people (she/her)
PhD student/researcher interested in autism, stigma, intersectionality, and communication