Gabriella Miller Kids First Data Resource Center's Avatar

Gabriella Miller Kids First Data Resource Center

@kidsfirstdrc.bsky.social

The Gabriella Miller Kids First Data Resource Center (Kids First DRC) is a collaborative pediatric research effort with a goal to understand the genetic causes and links between childhood cancer and congenital disorders. Learn more: linktr.ee/kidsfirstdrc

27 Followers  |  5 Following  |  130 Posts  |  Joined: 12.03.2025  |  1.5449

Latest posts by kidsfirstdrc.bsky.social on Bluesky


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Connect with researchers and families reshaping scientific discovery to save kids. Register now: https://monkeylink.co/8508c3

#TheRareWeShare #RareDiseaseFamilies #KidsFirstDRC #RareButNotAlone

24.02.2026 14:35 — 👍 0    🔁 1    💬 0    📌 0
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Stuck mid-project? Come to MasterClass — our free, monthly live Q&A for deeper dives and real solutions.
🗓️ Third Thursday @ 2 p.m. ET
🔗 https://monkeylink.co/80759b

#KidsFirstData #ResearchSupport #PediatricResearch #OpenScience

18.02.2026 17:10 — 👍 0    🔁 0    💬 0    📌 0
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Explore 10 years of impact and read how #KidsFirstDRC researchers turn data into discoveries.
A Decade of Kids First - Kids First https://monkeylink.co/cc5ed7

18.02.2026 14:43 — 👍 0    🔁 0    💬 0    📌 0
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The Rare We Share Kids First Community Webinar brings families, doctors, and researchers together for a meaningful conversation in advancing rare disease research and care.

Join Us: https://monkeylink.co/8508c3
#TheRareWeShare #RareDiseaseFamilies #KidsFirstDRC #RareButNotAlone

17.02.2026 20:00 — 👍 0    🔁 0    💬 0    📌 0
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On #InternationalChildhoodCancerDay, we honor researchers using Kids First data to fuel discoveries in brain tumors, leukemia, and more—moving toward better outcomes for every child.

#KidsFirstDRC #PediatricCancerResearch

15.02.2026 16:20 — 👍 0    🔁 0    💬 0    📌 0
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Each month, Kids First shares the latest updates from our data community: new stories, tools, and research from the ecosystem, as well as upcoming events and opportunities to connect.

Subscribe for updates today: https://monkeylink.co/5fda8c

#ResearchCommunity

12.02.2026 16:15 — 👍 0    🔁 0    💬 0    📌 0
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Science isn't always about data points. Today, it's about the exceptional women who guide pediatric research at #KidsFirstDRC. #InternationalWomenInScienceDay #February11

11.02.2026 13:43 — 👍 0    🔁 0    💬 0    📌 0
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For rare conditions, connection is everything. Register now to help shape the future of #pediatricresearch

https://monkeylink.co/8508c3

#TheRareWeShare #RareDiseaseFamilies #KidsFirstDRC #RareButNotAlone

10.02.2026 15:05 — 👍 0    🔁 0    💬 0    📌 0
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Partnerships like ours with the #NationalCancerInstitute Childhood Cancer Data Initiative make discovery go further.

Learn more: https://monkeylink.co/6f3a77

#KidsFirstDRC #CCDI #PediatricResearch

05.02.2026 16:10 — 👍 0    🔁 0    💬 0    📌 0
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New to Kids First? We’ve got your back.
Join our free monthly SupportU session—a guided intro to the ecosystem, data access, and tools to get you started.
🗓️ First Tuesday @ 10 a.m. ET
🔗 https://monkeylink.co/80759b

#KidsFirstData #ResearchSupport #PediatricResearch #OpenScience

02.02.2026 17:05 — 👍 0    🔁 0    💬 0    📌 0
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Kids First links researchers to data that improves lives. Learn More: https://monkeylink.co/d2a835
#TheRareWeShare #CongenitalDisorderAwareness

29.01.2026 16:55 — 👍 0    🔁 0    💬 0    📌 0
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Explore the rare connections and overlapping discoveries that lead to answers. Learn More: https://monkeylink.co/d2a835
#TheRareWeShare #CongenitalDisorderAwareness

28.01.2026 16:55 — 👍 0    🔁 0    💬 0    📌 0
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Researchers are connecting the dots among conditions. Rare data is the key. Learn More: https://monkeylink.co/d2a835
#TheRareWeShare #CongenitalDisorderAwareness

26.01.2026 16:50 — 👍 0    🔁 0    💬 0    📌 0
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Sharing knowledge builds a better future for all kids. Learn More: https://monkeylink.co/d2a835
#KidsFirstDRC #TheRareWeShare #CongenitalDisorderAwareness

22.01.2026 16:50 — 👍 0    🔁 0    💬 0    📌 0
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Stuck mid-project? Come to MasterClass — our free, monthly live Q&A for deeper dives and real solutions.
🗓️ Third Thursday @ 2 p.m. ET
🔗 https://monkeylink.co/80759b

#KidsFirstData #ResearchSupport #PediatricResearch #OpenScience

21.01.2026 17:10 — 👍 0    🔁 0    💬 0    📌 0
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From rare to known. Progress is possible when we share data. Learn more: https://monkeylink.co/d2a835
#TheRareWeShare #CongenitalDisorderAwareness

20.01.2026 17:10 — 👍 0    🔁 0    💬 0    📌 0
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Discovery begins with you. Every rare condition adds to our collective understanding. Learn how: https://monkeylink.co/d2a835
#KidsFirstDRC #TheRareWeShare #CongenitalDisorderAwareness

15.01.2026 14:50 — 👍 0    🔁 0    💬 0    📌 0
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Overlap between conditions leads to insight that saves lives. Learn More: https://monkeylink.co/d2a835
#TheRareWeShare #CongenitalDisorderAwareness

13.01.2026 14:40 — 👍 0    🔁 0    💬 0    📌 0
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The power of data from #KidsFirstDRC is driving research to improve children’s lives. Learn More: https://monkeylink.co/d2a835
#TheRareWeShare

08.01.2026 14:35 — 👍 0    🔁 0    💬 0    📌 0
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Causes of #CongenitalDisorders are hard to find. #KidsFirstDRC links clues across conditions.
Learn how: https://monkeylink.co/d2a835
#TheRareWeShare #CongenitalDisorderAwareness

06.01.2026 14:35 — 👍 0    🔁 0    💬 0    📌 0
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New to Kids First? We’ve got your back.
Join our free monthly SupportU session—a guided intro to the ecosystem, data access, and tools to get you started.
🗓️ First Tuesday @ 10 a.m. ET
🔗 https://monkeylink.co/80759b

#KidsFirstData #ResearchSupport #PediatricResearch #OpenScience

05.01.2026 17:05 — 👍 0    🔁 0    💬 0    📌 0
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Rare doesn’t mean alone. #KidsFirstDRC is connected by compassion, strengthened by science.
Learn more: https://monkeylink.co/d2a835
#TheRareWeShare #CongenitalDisorderAwareness

01.01.2026 14:30 — 👍 0    🔁 1    💬 0    📌 0
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What's next for #KidsFirstDRC? Rich data, advanced tech, and exciting collaborations. Stay tuned for 2026! #ForwardTogether

23.12.2025 20:00 — 👍 1    🔁 0    💬 0    📌 0
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Ten years of discovery. One shared mission. Leaders across research, clinical care, community advocates, and partners at #NIH reflect on #KidsFirst milestones and momentum.

Watch the recording: https://monkeylink.co/9b86f5

#DataForCures #PediatricResearch

19.12.2025 18:45 — 👍 0    🔁 0    💬 0    📌 0
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Stuck mid-project? Come to MasterClass — our free, monthly live Q&A for deeper dives and real solutions.
🗓️ Third Thursday @ 2 p.m. ET
🔗 https://monkeylink.co/80759b

#KidsFirstData #ResearchSupport #PediatricResearch #OpenScience

17.12.2025 17:10 — 👍 0    🔁 0    💬 0    📌 0
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Explore the vast data pool researchers are using to drive cures. Tap into quality data today. Kids First Data Portal https://monkeylink.co/663fa8 #NoSilos #DataHarmony

16.12.2025 20:00 — 👍 0    🔁 0    💬 0    📌 0
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LIVE at 10:30 a.m. ET! Be part of the future of #KidsFirst at the "Milestones & Momentum" #WinterWebinar!

🔗 https://monkeylink.co/6462d6

10.12.2025 13:35 — 👍 0    🔁 0    💬 0    📌 0
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Automated and manual checks ensure your data is complete, accurate, and meets the highest standards #PediatricResearch #DataQuality

09.12.2025 20:45 — 👍 0    🔁 0    💬 0    📌 0
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On Dec. 10, hear from these NIH experts on how shared data resources are driving momentum in pediatric research. Register at https://monkeylink.co/6462d6 #WinterWebinar

08.12.2025 20:50 — 👍 0    🔁 1    💬 0    📌 0
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Celebrate a decade of impact and how Kids First research is changing outcomes. Join the Dec 10 #WinterWebinar: https://monkeylink.co/6462d6

03.12.2025 15:50 — 👍 0    🔁 0    💬 0    📌 0

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