The ALS Association

We are very concerned about the proposed budget cuts at the NIH and the DOD that could impact ALS research. Our Board of Trustees and staff are taking to Capitol Hill on Wednesday to urge Congress to continue to fund ALS research.

Running to raise ALS awareness in the most magical place on Earth? Sibling duo Ashlee and Lee didn't hesitate at the opportunity. Dressed as characters from the movie Mulan they took part in the Princess 5k at Walt Disney World in memory of their mother who passed from ALS.
bit.ly/blooming-in-...

When the @theacademyusa.bsky.social bring the glitz, but we’re still waiting for the real star — a cure for #ALS. Let’s keep the spotlight on the fight.
#Oscars2025

Roberta Flack, Grammy-winning singer with an intimate style, dies at 88 Roberta Flack has died at 88. The Grammy-winning singer and pianist was known for her intimate vocal and musical style on “Killing Me Softly With His Song,” “The First Time Ever I Saw Your Face” and o...

The world lost a true legend today. Roberta Flack, known for her unforgettable voice, passed away after a brave battle with ALS.
Her timeless music will continue to inspire and touch hearts forever. Thank you for the magic, Roberta. You’ll never be forgotten.
apnews.com/article/robe...

In too many states, individuals under the age of 65 living with ALS are unable to buy the Medigap insurance plans they need because they were too young when they got sick.

Learn more about your state’s grade: www.als.org/state-report...

#ALS #Medigap

Join us in the fight against ALS! Every step you take in the Walk to Defeat ALS brings us closer to finding a cure and supporting those affected by this devastating disease.
Sign up today and make a real impact. walktodefeatals.org

We are alarmed by proposed funding cuts that would devastate the fight against ALS. Slashing funding for NIH will hinder efforts to turn ALS from fatal to livable and cure it. Congress MUST reject these cuts! We need your voice NOW more than ever. bit.ly/NIH-funding-...

The ALS Association Seeds Advancements in Treatment and Care through New Grant Program The ALS Association has awarded nearly $800,000 to support 16 innovative research projects that have the potential to significantly impact the experience of ALS by optimizing current care and treatmen...

A 30-second Super Bowl commercial costs $8 million. For the price of just one ad, we could fund 160 seed projects to bring promising ALS treatments and care to life. bit.ly/ALS-Seed-Grant
#SuperbowlLIX

Has ALS impacted your life? Share your story by using the hashtag #MyALSStory to be featured on our website.

More ALS State Report Cards are in! Some states excel at supporting people living with #ALS, while others fall behind.

Find how your state ranks:
www.als.org/advocacy/rep...

From grabbing a cup of water to picking up items from the floor, Stretch is being fine-tuned to assist people with ALS at every stage of their journey, with the hope of giving them greater independence as the disease progresses.

Pitt researchers advancing robot for people living with ALS A University of Pittsburgh research group is reaching new limits and perfecting a robot to help people with ALS live better lives.

The ALS Association is proud to invest $400,000 in groundbreaking research at the University of Pittsburgh to advance Stretch, a robot by Hello Robot, designed to help people with ALS manage everyday tasks.
Learn more about this project in this CBS News clip: cbsn.ws/405sxJV

Thank you so much to Kelly and all of our advocates for this huge win for people with ALS and everyone who relies on these devices to travel safely.

He said that the rule wouldn't have happened if it weren't for the stories and perspectives we shared from our ALS advocates. "All those comments mattered!”

The @usdot.bsky.social just released a new rule protecting people who use mobility devices. We were honored to meet with Kelly Buckland today to celebrate the landmark rule on mobility protections for airline passengers being finalized.

For many people with ALS, home care isn’t a choice—it’s a necessity. Yet, the cost often places it out of reach. ALS is a service-connected disease, recognized with 100% disability. This bill ensures veterans can finally receive the care they deserve.

The Elizabeth Dole Act has officially passed! 🎉 This critical legislation will make home care more accessible and affordable for veterans living with ALS. Learn more about veterans issues: www.als.org/navigating-a...

#ALSVeterans #ElizabethDoleAct

Too often, travelers arrive to find their wheelchairs damaged or broken. This rule will improve airline staff training, ensure faster return of delayed devices, and strengthen rights in cases of damage. It’s a huge win for people with ALS and everyone who relies on these devices to travel safely.

🚨 Big News! 🚨
The U.S. Department of Transportation just released a new rule protecting people who use mobility devices.
Learn more: bit.ly/DOT-Final-Rule

Breaking News!
The Centers for Medicare and Medicaid Services has announced a historic directive requiring Medicare Advantage plans to approve coverage for Qalsody, a treatment for people living with genetic SOD1-ALS.
Learn more about this historic moment: bit.ly/qalsody-access

💌 Our monthly e-newsletter will keep you up to date on the latest happenings within the ALS community! Sign up TODAY: bit.ly/ALSnewsletter

Tell the Senate To Fight for Veterans Living with ALS Contact Your Senators Today!

We did it! The House passed the Senator Elizabeth Dole 21st Century Veterans Healthcare and Benefits Improvement Act (H.R. 8371)! Tell the Senate to pass the bill TODAY: als.quorum.us/campaign/Sen...

#ALSAdvocacy #ALSVeterans

Taking this opportunity to re-introduce ourselves! We are The ALS Association, a national non-profit organization working to discover treatments and a cure for ALS, and to serve, advocate for, and empower those impacted. ❤️💙💛🤍