Michiel

A screenshot of a purple-themed announcement text inviting General Practitioners (GPs) to a free virtual event on March 24th titled "Pulse 365." The text highlights a session on "ME/Chronic Fatigue Syndrome – not just tired all the time" presented by Dr. Alastair Miller, a consultant physician at the Royal Liverpool University Hospital. It notes the event aims to support GPs in confident decision-making, earlier diagnosis, and management, following a Department of Health and Social Care announcement regarding the key role GPs play in caring for patients with mild and moderate ME/CFS.

⚠️ We have serious concerns about Dr Alastair Miller running a GP course for MECFS Diagnosis & Management for Pulse Today.

Miller is:
🔹ex-chair of BACME
🔹reviewer of PACE
🔹GET researcher
🔹anti-NICE

🖇️ tinyurl.com/muvtjbda
📧 support@pulse365.uk

ME/CFS diagnosis and management among topics at free Pulse virtual event for GPs 2 March 2026 GPs are invited to a free virtual event this month featuring sessions across a variety of clinical topics across public health and chronic conditions, including how to best support patients with ME/CFS. The Pulse 365 event, on 24 March, is designed to support GPs in confident decision-marking as well as highlighting strategies for earlier diagnosis and management. Tickets can be found here. ‘ME/Chronic Fatigue Syndrome – not just tired all the time’ will be presented by Dr Alastair Miller consultant physician at the Royal Liverpool University Hospital. This comes following the Department of Health and Social Care’s announcement last summer that GPs will play a key role in delivering care for people with mild and moderate ME/CFS under a new delivery plan.

wtaf is Alastair Miller doing ANYWHERE NEAR an education session for GPs on ME???? 😱

www.pulsetoday.co.uk/news/clinica...

Theres around 7,000 rare diseases. These may be rare individually, but according to the NHS, 1 in 17 people (~6 %, ~3.5 million people in the UK) have a rare disease.

Maybe doctors need to be thinking zebras more often...

digital.nhs.uk/data-and-inf...
www.genomicsengland.co.uk/news/rare-di...

Dr @binitakane.bsky.social explains how a theory that #MECFS is caused by deconditioning and a fear of exercise permeated medicine and framed the illness as psychological. This led to the patients being neglected, gaslit, and some would say abused. Causing huge trauma for the community.

Histamine is a messy messy neurotransmitter. It controls the immune system, digestion, sleep, because YOLO apparently. Seriously, the intelligent design crowd must think their deity a moron for designing something that stupid. Oh a fly bit you. Let’s do indigestion and stay up until 3am. Seems legit

An illustration from Long COVID Transformed My Mommy shows two kids in bed with their mother. She wraps them both up in a hug.

An illustration from Long COVID Transformed My Sister Into a Turtle shows a turtle wearing sunglasses and headphones. The text reads, "My mommy is like a turtle that doesn't want to come out of her shell. She avoids loud noises and bright lights. She prefers cozy, quiet places."

We haven’t seen many narratives about — or for — kids whose family members have #LongCOVID. Author and educator Sara Robitaille seeks to change that with her two new children’s books, Long COVID Transformed My Mommy and Long COVID Transformed My Sister into a Turtle. bit.ly/4csWXfE

Wow. That's unspirational. [background - a beautiful sunset upont he water and hills and shrubbery] have a flare. you've earned it. now go lay in the dark and think about what you did. mybodyistryingtokillme.com

Wow. That's not very inspirational.

Photo of a black sign on a pole stood in a grassy landscape with trees in the distance and blue sky. In white lettering the sign says Please do not climb on the War Horse. At the bottom left corner of the sign is the logo for Test Valley Borough Council.

I took this photo when I visited the War Horse statue, located in a park in a small town in the south of England, commemorating horses lost in the First World War. Today as the US seeks to unleash World War 3, it takes on a whole new meaning. Please everyone. Don't climb on the war horse bandwagon.

Long COVID Defense Series III featuring 6 Virtual Q&A Sessions — Mask Together America March 4, 2026, 4:30pm - 9:00pm EST Join Long COVID Defense Series III to honor patients and their allies who are tirelessly advocating for health justice in this historical struggle. On March 4, 2026....

I am speaking today on #LongCovid for @togetherwemask.bsky.social
5.45 pm EST (late evening/early night in Europe). Part of a longer event for the LC Defense Series, with many other advocates
Looking forward to seeing you online!

#LongCovidAwarenessMonth

masktogetheramerica.org/blog/long-co...

the Dutch CDC is methodologically challenged. Their 'findings' were BS. This thread debunks it nicely

threadreaderapp.com/thread/20269...

I ask you from my heart, please do not underestimate 5 dollars. When many kind people give a little, it becomes life saving care for my child. We cannot do this alone

@saintsluggo.bsky.social
@floydthek.bsky.social
@socaljujujules.bsky.social
@murtoz.bsky.social

Why One Garage Door Hacker Is Fighting Big Tech's Subscription Creep Garage door hacker Paul Wieland creates RATGDO device to bypass MyQ subscriptions and restore local control to smart home automations.

So fed up with late stage capitalism. Luckily other people are too: www.gadgetreview.com/why-one-gara...

ratcloud.llc

Screenshot from Nevra's instagram reads "🚨 £400 match funding alert!🚨 All donations this month will be DOUBLED until £400 is reached. £10 becomes £20. £25 becomes £50. Let's unlock the full £800 together!"

🚨 £400 match funding alert!🚨
All donations this month will be DOUBLED until £400 is reached. £10 becomes £20. £25 becomes £50. Let's unlock the full £800 together!

Donate/share: paypal.me/SaveLizNevra & gofundme.com/f/save-nevra

#VerySevereME #pain #food #water #pwME #MillionsMissing #MECFS

Amen.

And you guys wonder why you're constantly circling the drain, istg

Maybe stop publishing toxic nonsense like this. He helped a genocide. In our name. He's crushing trans people. He wants to kill the disabled. He's put someone *Tommy Robinson* praises in charge of refugees.

Starmer can rot in hell.

Ouf 🤯. Another absolute GEM by @lucibee.bsky.social after that FOI on the nhs learning module on #ME.

👏👏
#accountability
#GreatestMEdicalScandal

The DWP never ceases to unnerve me. 2 letters today. One standard about April changes. One saying they need to see my birth certificate within 7 days with the threat of not paying if they don't receive it. The letter is dated 23 February and arrived today.

such an egregious answer. To paraphrase "while germany and the netherlands have ring fenced EUR 570m for biomedical research into IACC's, we thought a *SHOWCASE* would be enough to undo decades of neglect and abuse of #pwME by UK government and NHS.
Oh and we're funding a *cost effectiveness study*"

if anybody needed more evidence that the UK Govt isn't acting in good faith when it comes to #ME/CFS, this thread sums up the neglect and gaslighting nicely.

Hollow, empty words (if any words at all) accompanied by exactly no meaningful action or funding.

uh oh. have a feeling this is going to be a thread full of gaslighting.

I'm going to do a thread 🧵 here on the questions asked in UK Parliament about the #MEDeliveryPlan specifically and ME in general since November 2025.

Due to the vagaries of threads in BSky 🙄, this might not work as planned, but let's give it a go...

NHS Lothian logo in blue on a white background.

#MEAction Scotland volunteers recently met with staff from NHS Lothian to discuss its guidance for GPs who are considering referring patients to the ME/CFS clinic at Astley Ainslie Hospital.

YouTube video by HLTH Compliance Episode 8: "Treating ME and Long Covid with Dr. Binita Kane" | HLTH Chat Podcast

Just over a year ago, I left my 25 year NHS career to dedicate my life to a group of patients who remain largely unseen and unheard by the NHS - people with severe #LongCOVID and Myalgic Encephalomyelitis (#ME). 🧵

youtu.be/pk00btt7CVs?...

Long COVID Defense Series III featuring 6 Virtual Q&A Sessions — Mask Together America March 4, 2026, 4:30pm - 9:00pm EST Join Long COVID Defense Series III to honor patients and their allies who are tirelessly advocating for health justice in this historical struggle. On March 4, 2026....

I will be speaking virtually about #LongCovid for @togetherwemask.bsky.social
LC Defense Series
5:45pm EST. 4 March 2026
Registration link and programme here

masktogetheramerica.org/blog/long-co...

A photo montage showing M E Action volunteers meeting various MSPs, MPs and prospective parliamentary candidates at the Scottish Labour Party spring conference.

Another weekend, another party conference.

This time it was the Scottish Labour Party Conference, a single day conference which proved both busy and fruitful for #MEAction Scotland volunteers, Janet and Judith.

#MyalgicEncephalomyelitis #MyalgicE #HealthEquality

If you’re otherwise healthy, recovering strength after bedrest is a pretty linear and straightforward process.

No special instructions needed.

If you’ve got an energy-limiting disease, however, pushing exercise just makes things worse.

And yet docs do, all the time.

What if there was a mindful way to steal people’s art, pollute Black neighborhoods, and raise everyone’s electric bill?

Our 2026 Manifesto sets out what must change on Long Covid diagnosis, care, jobs, public health & support
Help us act:

✅ Share our posts
✅ Raise it with politicians
✅ Volunteer

International Long Covid Awareness Day is 15 March #LongCovid #LongCovidScotland

Blyth ex-GP says long Covid patients are being forgotten The NHS in the North East and Cumbria is closing its last dedicated long Covid clinics this month.

BBC: “Long Covid patients are forgotten, ex-GP says”

‘A doctor whose career was ended by long Covid said living victims of the virus were being forgotten by politicians and the NHS’

www.bbc.com/news/article...

I donated today.

This is a #pwME with #SevereME and other co-morbidities who had to escape their home situation.

On this #DisabilityDayOfMourning, I want to prevent any more loss. Join me. gofund.me/0b70a3928

#disability #MyalgicEncephalomyelitis