@ellybrosius.bsky.social
Pets, nature, physics, health, sewing, crafts, ME/CFS/OI/LC science & symptoms, medicinal metaphors, gratefulness practice. Volunteer for Renegade Research including R50, NoVA ME/CFS, OI & Long Covid Support Group, MEAction NC.
Recording of Sleep Dysfunction and Breathing Mechanics, a Clinician's Roundtable with Dr. Avram Gold.
We learn via data & renegade discussion about Obstructive Sleep Apnea (OSA), Upper Respiratory Airway Syndrome (URAS), how you don't have to be a snorer, and more.
www.youtube.com/watch?v=R6XN...
#disability people, here’s a link to the Renegade Research lecture about our research. BTW, I am not a consultant, not looking for patients or subjects, not selling snake oil, and don’t want anything from anyone. We have some hopeful news for many chronic illnesses. www.youtube.com/watch?v=J_WR...
12.08.2025 18:47 — 👍 3 🔁 4 💬 0 📌 0👋
08.03.2026 21:23 — 👍 1 🔁 0 💬 0 📌 0
I love that the paper mentions PPAR agonists!
Maybe we'll hear more at Roundtable with @dbkell.bsky.social & @resiapretorius.bsky.social (+ Dr. Vaughn + Dr. Schofield) + some very awesome panelists.
Fri MAR 13 1 pm EDT US by @renegaderesearch.bsky.social
us06web.zoom.us/webinar/regi...
We have another Clinician’s Roundtable on Friday, March 27 at 1 pm ET US:
“When the Gut-Brain Axis Goes Wrong: Mast Cells, Histamine, and Practical Clinical Management” with neurogastroenterologist Dr. Zac Spiritos bsky.app/profile/rene...
You can register here: us06web.zoom.us/webinar/regi...
Please join our other upcoming events:
Long COVID Awareness Day is March 15! We'll host an X Space on March 17 to discuss Long COVID community thoughts, feelings, concerns, needs, research, care x.com/i/spaces/1nK...
This event will be recorded and posted to our YouTube (and our website later)
Jill Schofield is Founder/Director of Center for Multisystem Disease & a Clinical Associate Professor. She works in antiphospholipid syndrome, autoimmune dysautonomia (& underlying causes in patients conservative therapies fail) & mast cell activation syndrome (MCAS). centerformultisystemdisease.com
08.03.2026 01:26 — 👍 4 🔁 2 💬 1 📌 0
Jordan Vaughn is a physician/researcher at MedHelp, founder of Microvascular Research Foundation for Spike Protein & Long COVID, mvresearch.org
He works in endothelial damage & clotting via spike protein, immunofluorescent microscopy to see amyloid fibrin in blood medhelpclinics.com/service/long...
@dbkell.bsky.social is a Biochemist and Professor of Systems Biology. He studies chemical genomics, network biology, e-science, pharmaceutical drug transporters, iron as a cause of disease, synthetic biotechnology, amyloidogenic clotting in chronic inflammatory diseases like Long COVID.
dbkgroup.org
@resiapretorius.bsky.social is a Distinguished Research Prof. of Physiological Sciences. She studies how blood coagulation and circulating inflammatory markers act in conditions like Type 2 diabetes, RA, psoriases, Parkinson's, Alzheimer's, acute COVID-19, Long COVID/PASC.
resiapretorius.net
You can register for our Research Roundtable “Hypercoagulability, Clotting, Microclotting, and Blood Issues in ME/CFS and Long COVID” on March 13 at 1 pm ET US here: tinyurl.com/renres-03-13...
This event is free, open to the public and will be recorded and posted to our website and YouTube channel
A purple and blue graphic with bubbles, depicting a QR code in the upper left hand corner and the Renegade Research logo in the upper right hand corner. Center and lower left depicts photos of Drs. Douglas Kell, Resia Pretorius, Jill Schofield and Jordan Vaughn. White text reads: Research Roundtable: Hypercoaguability, Clotting and Microclotting, and Blood Issues in ME/CFS and Long Covid. Friday, March 13, 2026, 1 pm ET US. Register: tinyurl.com/renres-03-13-2026. Renegade-Research.org.
Join us March 13 at 1 pm ET (US) for a Research Roundtable with @resiapretorius.bsky.social of @suhealthsci.bsky.social @liverpooluni.bsky.social, @dbkell.bsky.social of @liverpooluni.bsky.social, Jordan Vaughn of MedHelp, Jill Schofield of @cuanschutz.bsky.social
🧵Registration link, research below
“We’re fighting to save science, we’re fighting to protect health, and we’re fighting to defend democracy,” @cdelawalla.bsky.social, founder of @standupforscience.bsky.social, about today’s Stand Up for Science rallies. eos.org/articles/tho...
07.03.2026 21:12 — 👍 159 🔁 47 💬 1 📌 1
Today! Come learn about ways to fix breathing in sleep so the chronic stress response lowers.
New panelists:
Bela Chheda, MD, Inf. disease & internist
Anil Rama, MD, neurology and sleep medicine
Kishan Tarpara, DO, neurologist & sleep medicine at Vanderbilt Autonomic Dysfunction Center
Hey DORKS! Are you attending your local Saturday, March 7th National Day of Action rally?
Not sure where your nearest rally is? Visit standupforscience.net/march7 to find your local rally!!!
#March7
#standupforscience
#science
#rally
A white graphic background featuring a graphic of a blue butterfly flying in pink, orange and blue pain splashes. The title reads "Low-Dose Nicotine Project" in orange text. A QR code is in the upper left hand corner with a graphic below it of a hand with a pointer finger selecting a donate button. The words "A small donation makes a difference" in red and blue text are in the lower left hand corner. The Renegade Research logo is in the lower right hand corner.
A screenshot of the Renegade Research purple Zeffy crowdfunding page, titles "Accelerate Research and Care for ME/CFS and Long Covid," with a description of Renegade Research. Different donations boxes with varying monetary values are depicted. You'll receive a tax receipt for making a donation.
We have several projects in the works by our citizen/patient scientists!
We made a Zeffy page for The Nicotine Test (a followup to our previous Nicotine Test project), to help the budget. PI Troy Roach.
Donate to The Nicotine Test project and our other patient-led projects in this thread 🧵
Looking forward to this! See you there
04.03.2026 23:53 — 👍 2 🔁 2 💬 0 📌 0An airborne virus is a virus that can infect other people through unseen particles in the air, sometimes for hours after the sick person has left the area! Masks and clean, ventilated air can reduce the risk of getting sick from airborne viruses or infecting others.
05.02.2026 16:48 — 👍 382 🔁 200 💬 14 📌 45
SUFS ANNOUNCES DR. JENNA NORTON AS A SPEAKER AT THE MARCH 7TH NATIONAL DAY OF ACTION WASHINGTON D.C. RALLY!
Stand Up For Science announces Jenna Norton, NIH Whistle-blower (@jenna-m-norton.bsky.social) as a speaker at the Washington D.C. National Day of Action rally on Saturday, March 7th!
Visit standupforscience.net/march7 to find a rally near you!
#science
#standupforscience
#rally
#March7DC
#March7
Saturday in D.C.
04.03.2026 13:14 — 👍 22 🔁 9 💬 0 📌 0
A woman with Long Covid won almost one million dollars in a lawsuit against her employer who refused to allow her work from home accommodations.
May this set a precedent.
Remote work should be accessible to all who need it.
It’s a game changer for people with disabilities.
I designed these! 💞 Please boost these posts so our very deserving and #LongCovid and #MECFS communities (and all who care about us) can stay stylish while funding education, research, awareness and advocacy ❤️🩹
01.03.2026 00:29 — 👍 8 🔁 5 💬 0 📌 0
The Most Elusive Color in Chemistry Might Surprise You gizmodo.com/the-most-elu...
27.02.2026 13:02 — 👍 5 🔁 2 💬 0 📌 0
Great events in March by @renegaderesearch.bsky.social
Times ET US
3/06 12p sleep breathing
Dr. Gold
3/13 1p hypercoagulability
Drs. Vaughn, Pretorius, Kell
3/17 TBD X Space
Chat 4 LC Awareness Week
3/27 1p neurogastroenterology
Dr. Spiritos
It's always fun when work you've been part of makes it out of the ivory tower and into the popular press!
Coverage of our paper on brainstem deformation in ME/CFS and Long COVID w/ @renegaderesearch.bsky.social.
www.iflscience.com/what-causes-...
An orange graphic with bubbles, depicting a QR code in the upper left hand corner and the Renegade Research logo in the upper right hand corner. Center right depicts a photo of Dr. Zac Spiritos, Neurogastroenterologist, a smiling white man with short brown hair wearing a black shirt. White text reads: Clinician's Roundtable, GI-NeuroImmune Axis and the role of Histamine and Mast Cells, March 27, 2026 at 1 pm ET US. Co-host #MEActionNC. Renegade-Research.org. Register: tinyurl.com/ypy99ma5
We welcome you to join us on Friday, March 27 at 1 pm ET (US) for a Clinician's Roundtable with neurogastroenterologist Dr. Zac Spiritos
He will be discussing the Gastrointestinal-Neuroimmune Axis & the Role of Histamine and Mast Cells
Registration link below with info on Dr. Spiritos' work 🧵
Graphic with list of 4 ways Medicaid changes affect everyone. 1. Greater cost burden on states 2. Increased strain on hospitals and providers 3 Rising health care costs for everyone 4. Workforce disruptions and new roles Black background with each point in a white box with red accents. Credit at bottom: Information from article in US News & World Report by Christine Comizio
As we continue to build-up our campaign regarding Medicaid work requirements, we will also be spending time helping us all understand Medicaid and the upcoming changes.
Today, we are focusing on how Medicaid changes affect everyone in the US.
health.usnews.com/wellness/art...
#Medicaid #PwME
This Sleep Dysfunction & Breathing Mechanics discussion is actually at NOON on 3/6/2026. Sorry for the mistake.
I'll get an updated graphic for the next post.
Just found out the time is 1 hour earlier at NOON on 3/6.
Glad you are excited for this. 😀
We have 2 new webinars available. The one listed above and Top 10 Lessons From 20 Years of Caregiving with Kim Moy. We also have a new document with advice from caregivers who are also sick.
#MEAction offers two free caregiver calls each month, as well as a Facebook support group.
#Caregiver
