Aaron Baum shown on the left taking a selfie in front of a mirror and on the right playing golf.
Patients with neurofibromatosis type 1 (NF-1) need care that evolves with them. Read Aaron Baum's story to learn how a new adult clinic at @ucsfhealth.bsky.social helps #AYA patients manage the symptoms of this lifelong genetic condition: tiny.ucsf.edu/AwfrQM
#NFAwarenessMonth #neurofibromatosis
30.05.2025 23:45 β
π 4
π 1
π¬ 1
π 0
The proposed Continuing Resolution bill, up for vote today, cuts the Congressionally Directed Medical Research Program (CDMRP) by 57%. CDMRP is one of our nationβs most important investments in med research including #cancer (pediatric, #nf ), #autism, #substanceabuse, #chronicpain
11.03.2025 11:34 β
π 1
π 2
π¬ 1
π 0
Moment of Zen: When your newly diagnosed #GBM patient starting therapy today on a clinical trial brings you lemons from their yard in rural Northern California - βWhen life gives you lemons, you just roll with it.β Our patients are our best teachers.
05.03.2025 02:46 β
π 3
π 0
π¬ 0
π 0
Today was a heavy day - spoke to my #DIPG family about their childβs progression and then spoke to a younger (for adult world, that is) #GBM patient who has not yet started therapy despite our teamβs outreach & came in with progression. Trying to hold space today for our patients and families.
04.03.2025 04:18 β
π 3
π 1
π¬ 0
π 0
UCSF neuro-oncologist Susan Chang, MD, FASCO. Photo credit: Patrick Leung.
Congrats to @ucsfhealth.bsky.social neuro-oncologist Susan Chang, MD, FASCO for receiving a 2025 @capilanou.bsky.social Alumni Award of Excellence! π The Relevance Award recognizes her renowned career as a physician, researcher, and mentor:
www.capilanou.ca/about-capu/g...
@ucsfcancer.bsky.social
27.02.2025 21:26 β
π 14
π 3
π¬ 0
π 0
I have friends/family who don't understand why I'm "so upset over politics". The thing is, I've worked & lived all my life for beliefs that are now being attacked--that science moves us forward, that education leads to opportunity, that kindness can outdo bigotry, & that diversity is celebrated.
09.02.2025 20:59 β
π 282
π 37
π¬ 14
π 0