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the Foundation for Peripheral Neuropathy

@foundationforpn.bsky.social

Through research funding, patient education and advocacy, our work advances our mission to improve the lives of patients living with peripheral neuropathy and accelerate the development of treatments, and one day, cures https://linktr.ee/tffpn

65 Followers  |  55 Following  |  139 Posts  |  Joined: 26.03.2025  |  1.7716

Latest posts by foundationforpn.bsky.social on Bluesky

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TOMORROW DEC 10!
Inside our biobank: the Peripheral Neuropathy Research Registry
Learn how patients play a key role and how the biobank supports neuropathy research
https://register.gotowebinar.com/register/4324838179405547607

#neuropathy #neuropathyresearch #foundationforPN

09.12.2025 14:11 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Meet Susan, whoโ€™s been living with peripheral neuropathy for over 15 years. In our latest video, she shares whatโ€™s helped her stay positive, manage symptoms, and stay hopeful for the future.
Watch here: https://www.youtube.com/watch?v=EabLJHapmMA
โ˜๏ธLINK IN BIOโ˜๏ธ

#neuropathy

06.12.2025 00:00 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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Thanks for joining the battle against neuropathy and making Giving Tuesday a success! Every dollar makes our community stronger, and brings us closer to cures.

#GivingTuesday #FightNeuropathy

03.12.2025 16:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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For many people living with peripheral neuropathy, every day is a battle against pain, numbness, imbalance or digestive issues. This Giving Tuesday join the fight against neuropathy.

Donate now: https://www.foundationforpn.org/donate/

#neuropathy #GivingTuesday #FightNeuropathy

03.12.2025 00:00 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Give your story a voice
โ€ข Share this post
โ€ข Talk about your condition and what gives you HOPE
โ€ข Share your story with us! Fill out this form: https://www.foundationforpn.org/share-your-story/
โ€ข Make a donation today to help give other neuropathy suffers hope: https://www.foundationforpn.org/donate/

02.12.2025 20:00 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Today is Giving Tuesday!
Empower the neuropathy community. Your gift improves the lives of the 190 million people with peripheral neuropathy. Every dollar counts.
๐Ÿ‘‰ Give, or start your recurring gift, today: https://www.foundationforpn.org/donate/

#GivingTuesday #EndNeuropathy #Neuropathy

02.12.2025 14:00 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Diabetes is the main cause of peripheral neuropathy. Weโ€™re supporting diabetes awareness month by promoting diabetes education.

Learn about the risks, and how to prevent it or manage it better: https://www.foundationforpn.org/november-is-diabetes-awareness-month-2/

#diabetesawareness #neuropathy

28.11.2025 20:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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This Thanksgiving, weโ€™re grateful for the strength, support and shared stories within the neuropathy community. Together, we remind each other that no one walks this path alone. Wishing you comfort, connection and hope today and always. ๐Ÿงก

#ThankfulTogether #NeuropathyAwareness #Neuropathy

27.11.2025 16:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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In Nov we honor American Thanksgiving. It's also National Family Caregivers Month.

We're highlighting 53 million family care partners providing unpaid care for loved ones. Caregiving matters:
https://www.foundationforpn.org/national-family-caregivers-month-peripheral-neuropathy/

#caregivers

25.11.2025 22:42 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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You made 2025 amazing!
Webinars, research, advocacyโ€”all thanks to you.
Letโ€™s do more in 2026: www.foundationforpn.org/donate/
#EndNeuropathy #Neuropathy

20.11.2025 20:50 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Research discovery: Certain cells in the brainstem are responsible for transmitting signals of chronic pain. They could potentially serve as biomarkers for chronic pain or even an โ€œoff switch.โ€

Research discovery: Certain cells in the brainstem are responsible for transmitting signals of chronic pain. They could potentially serve as biomarkers for chronic pain or even an โ€œoff switch.โ€

Diseases affected: chronic pain

Diseases affected: chronic pain

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Researchers at @upenn.edu have identified that Y1 receptor-expressing #neurons in the brainstemโ€™s lateral parabrachial nucleus are associated with #chronicpain. This suggests possibilities for future biomarkers and treatments. #Brainsky

18.11.2025 20:01 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Matt began showing signs of neuropathy. He and his wife, Cassie, faced fear and uncertainty.

"Please join us in supporting the Foundation โ€“ I ๏ฌnd hope in their work and hope you do, too." โ€“Cassie

https://www.foundationforpn.org/widow-advocates-for-neuropathy/

#neuropathy #foundationforPN

19.11.2025 00:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Inside our biobank:
the Peripheral Neuropathy Research Registry

Learn how patients play a key role and how the biobank supports neuropathy research
https://register.gotowebinar.com/register/4324838179405547607

#neuropathy #neuropathyresearch #foundationforPN

14.11.2025 00:00 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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โ€œI joined the FPN Board because I want to be part of the solution in understanding, treating, and ultimately curing peripheral neuropathy.โ€
โ€“ George Montague
https://www.foundationforpn.org/fpn-welcomes-new-board-member-george-montague/

#neuropathy #peripheralneuropathy #foundationforPN

12.11.2025 00:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Are you struggling with balance because of your neuropathy? Watch our recent webinar to learn how the bodyโ€™s balance system works, why it matters and what could help you improve your balance. Watch now: https://www.youtube.com/watch?v=Njw7zbXa4Ww
#neuropathy #balance

04.11.2025 16:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Itโ€™s hard to learn you have neuropathy. Itโ€™s overwhelming, scary, confusing. These resources can help you manage your symptoms and overall health: https://www.foundationforpn.org/newly-diagnosed/
#neuropathy #peripheralneuropathy #foundationforpn

04.11.2025 00:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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New board member, Jennie Starr, brings her personal experience from having someone close to her struggle with PN to the table: https://www.foundationforpn.org/fpn-welcomes-new-board-member-jennie-starr/
#neuropathy #peripheralneuropathy #foundationforPN

31.10.2025 23:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Closing out Breast Cancer Awareness month with hope:
Researchers are working to reduce or prevent chemo-induced peripheral neuropathy

https://www.foundationforpn.org/chemotherapy-induced-peripheral-neuropathy-research-is-on-the-rise/

#CIPN #neuropathy #fundresearch #neuropathyresearch

28.10.2025 23:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Webinar tomorrow
Learn how the bodyโ€™s balance system works
Mark Fasick and Dr. LeeAnn Manoni from the NeuroBalance Center explain how doctors check for fall risk, and share treatment options for balance problems.

Register register.gotowebinar.com#register/443...
#balance #neuropathy #webinar

21.10.2025 20:04 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Neuropathy patient education matters. Everyone neuropathy touches needs resources to understand PN. Patients, caregivers, practitioners, friends, family all play a role in PN care

Today is FPN Day | Celebrating 18 years of FPN
#neuropathy #FPNday #neuropathyeducation

16.10.2025 01:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Its FPN Day. There's still time for us to reach our $18K goal today. Help us celebrate our 18th anniversary by donating now https://www.foundationforpn.org/donate/

Today is FPN Day | Celebrating 18 years of FPN
#neuropathy #FPNday

15.10.2025 23:00 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1
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Research funding advances understanding and future treatments for neuropathy. We want more researchers to study neuropathy and more funding for promising projects.

Today is FPN Day | Celebrating 18 years of FPN
#neuropathy #neuropathyresearch #FPNday

15.10.2025 18:11 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Our board members share why they're dedicated to our work:
https://youtube.com/playlist?list=PLZmux2N-6EE627vciDlrMLUdfrsmnhsPL&si=-LGbiKhuyegWNHck

They're supporting FPN Day to continue our work for the neuropathy community

Today is FPN Day | Celebrating 18 years of FPN
#neuropathy #FPNday

15.10.2025 16:00 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Advocacy work pays off:
Nearly $20 million in DoD funds for PN research in recent years.

We make sure PN is an eligible research topic by getting it renewed every year

Today is FPN Day | Celebrating 18 years of FPN
#peripheralneuropathy #peripheralneuropathyresearch #FPNday

15.10.2025 14:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Today is FPN Day! We're raising $18K in honor of our 18th anniversary.
Help us celebrate 18 years of increased neuropathy support and research, donate now for FPN Day: https://www.foundationforpn.org/donate/

#neuropathy #FPNday

15.10.2025 12:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Preview
Vertex Joins Forces with the Foundation for Peripheral Neuropathy as 2025 Premier Impact Partner | The Foundation for Peripheral Neuropathy Discover how Vertex Pharmaceuticals and the Foundation for Peripheral Neuropathy are partnering to advance research, edu

Vertex becomes the Foundation for Peripheral Neuropathy's 2025 Premier Impact Partner
https://www.foundationforpn.org/vertex-joins-fpn-as-2025-premier-impact-partner/

14.10.2025 23:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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It's one week until FPN day! In honor of our 18th anniversary, we talked to our founder, Jack Miller, about living with PN for 30 years.

Read Jack's update: https://www.foundationforpn.org/jack-miller-96-years-living-with-neuropathy-fpn-update/

#FPNday #givingday #neuropathy

08.10.2025 23:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Learn how the bodyโ€™s balance system works
Featuring Mark Fasick and Dr. LeeAnn Manoni from NeuroBalance Center. They'll explain how drs check for fall risk and share treatment options
Register register.gotowebinar.com#register/443...

#balance #neuropathy #webinar

08.10.2025 17:45 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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"This work aims to transform how we approach rehabilitation for people living with CIPN."
Brendan McNeish, MD
2025 ANF Development Grant Awardee

https://www.newswise.com/articles/american-neuromuscular-foundation-awards-two-development-grants-to-innovative-researchers2
#neuropathy #research

03.10.2025 23:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Oct: Breast Cancer Awareness Month

Common treatment: chemotherapy
70% of chemo patients get chemotherapy-induced peripheral neuropathy, causing nerve damage

Early detection = better outcomes
https://www.foundationforpn.org/october-breast-cancer-awareness-month/

#breastcancerawareness #neuropathy

01.10.2025 23:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

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