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the Foundation for Peripheral Neuropathy

@foundationforpn.bsky.social

Through research funding, patient education and advocacy, our work advances our mission to improve the lives of patients living with peripheral neuropathy and accelerate the development of treatments, and one day, cures https://linktr.ee/tffpn

54 Followers  |  53 Following  |  113 Posts  |  Joined: 26.03.2025  |  1.7849

Latest posts by foundationforpn.bsky.social on Bluesky

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Learn how the bodyโ€™s balance system works
Featuring Mark Fasick and Dr. LeeAnn Manoni from NeuroBalance Center. They'll explain how drs check for fall risk and share treatment options

Register https://register.gotowebinar.com/register/4430934453460957279

#balance #neuropathy #webinar

07.10.2025 23:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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"This work aims to transform how we approach rehabilitation for people living with CIPN."
Brendan McNeish, MD
2025 ANF Development Grant Awardee

https://www.newswise.com/articles/american-neuromuscular-foundation-awards-two-development-grants-to-innovative-researchers2
#neuropathy #research

03.10.2025 23:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Oct: Breast Cancer Awareness Month

Common treatment: chemotherapy
70% of chemo patients get chemotherapy-induced peripheral neuropathy, causing nerve damage

Early detection = better outcomes
https://www.foundationforpn.org/october-breast-cancer-awareness-month/

#breastcancerawareness #neuropathy

01.10.2025 23:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Expanding IMAGiNe Study research with a new site: https://www.foundationforpn.org/fpn-welcomes-the-ohio-state-university-as-a-new-site-for-the-imagine-study/

#neuropathy #peripheralneuropathy #neuropathyresearch #fundmoreresearch

23.09.2025 23:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Did you just find out you have peripheral neuropathy?
We know it can be scary and confusing. We have information to guide you. Our resources can help you understand neuropathy and what to do next https://www.foundationforpn.org/newly-diagnosed/

#neuropathy #peripheralneuropathy #neuropathydiagnosis

16.09.2025 23:00 โ€” ๐Ÿ‘ 3    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Ever wonder if something you hear about peripheral neuropathy is true?
This webinar explains some common neuropathy myths: https://www.youtube.com/watch?v=UEWhJkTROTQ

#neuropathy #peripheralneuropathy

12.09.2025 23:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Spending time outside is great for your health, but donโ€™t let ticks ruin the fun. Tick bites can transmit serious diseases, which may lead to neuropathy if untreated

https://www.foundationforpn.org/ticks-can-cause-diseases-in-people-and-animals-may-lead-to-neuropathy/

#TickSafety #neuropathy

09.09.2025 23:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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#chicagomarathon #peripheralneuropathy #fundraiser #marathon #health | Dieter Reuther Only $1,040 are missing to reach my fundraising goal of $4,000 in support of research for Peripheral Neuropathy: https://lnkd.in/gAhHnEQ4 This year will be my 10th Chicago Marathon and it is differe...

www.linkedin.com/posts/dreuth...

09.09.2025 17:40 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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We advocate for congress to fund DoD medical research programs through their Peer Reviewed Medical Research Program. Research funding cut in 2025 may be restored in 2026.
https://www.foundationforpn.org/advocacy-update-2026-defense-budget/

#PRMRP #defensebudget #neuropathy #foundationforpn

06.09.2025 15:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Mayo Clinic research finds AI model can predict ALS
"โ€ฆ might improve outcomes and the quality of life of patients,โ€ says Nathan P. Staff, MD, PhD, Mayo Neurologist

https://www.mayoclinic.org/medical-professionals/neurology-neurosurgery/news/research-finds-ai-model-can-predict-als/mac-20588025

02.09.2025 14:17 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Patient stories help put a face on the invisible condition that is neuropathy.

What to share your story? We're ready to listen: https://www.foundationforpn.org/share-your-story/

#livingwithneuropathy #neuropathy #peripheralneuropathy #patientstories

26.08.2025 23:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Please consider sharing - new flyer for our clinical trial that is still recruiting patients with painful diabetic peripheral neuropathy for spinal cord stimulation. #neuropathy #diabetes #neuromodulation ๐Ÿงช๐Ÿงช

21.08.2025 12:08 โ€” ๐Ÿ‘ 4    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Meet the researchers, including our very own PN researcher, Tiffany Li, PhD!

Li was awarded the FPN-funded scholarship to support her research on chemotherapy-induced peripheral neuropathy.
#neuropathy #neuropathyresearch #foundationforPN #CRTS

20.08.2025 15:28 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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10 marathons. 26.2 miles. 1 mission.
Celebrating Dieterโ€™s journey running Chicago 10x and raising awareness and funds for peripheral neuropathy.

Donate https://fundraisers.hakuapp.com/Dieter-CHI2025

Learn more
https://www.foundationforpn.org/celebrating-a-decade-of-running-chicago-for-a-cause/

19.08.2025 23:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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To celebrate National Make-A-Will Month in Aug, weโ€™re announcing the Mazawey Legacy Circle
https://www.foundationforpn.org/legacy-giving-circle/
ย 
Named in honor of Lou Mazawey:ย former FPN board president, current board member, PN patient, donor
ย 
#neuropathy #foundationforpn #peripheralneuropathy

12.08.2025 23:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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You can watch our past webinars on YouTube: https://www.youtube.com/@foundationforperipheralneu4122/videos

Subscribe to stay up to date with all our videos!

#FoundationForPN #neuropathy #beyondneuropathy #neuropathyeducation

09.08.2025 23:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Peripheral neuropathy research scholarship
For early career researchers furthering understanding of disease mechanisms, diagnosis or treatment
ย 
Deadline 9/9/2025
https://www.aan.com/research/clinical-research-training-scholarship-peripheral-neuropathy
#fundresearch #neuropathy #neuropathyresearch

05.08.2025 23:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Justin Timberlake speaks about his Lyme disease diagnosis and nerve pain while on tour

01.08.2025 17:02 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Self proclaimed hard-headed girl with a dream, Gabi aims high despite getting neuropathy in her early 20's
https://www.foundationforpn.org/turbulence-made-me-stronger/

#neuropathy๏ปฟ #lifewithneuropathy

29.07.2025 23:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Meet 2025 Next Generation Research Grant recipient Tiffany Li, PhD. She will work with cancer patients to establish new biomarkers for chemotherapy-induced peripheral neuropathy (#CIPN). Funded with @foundationforpn.bsky.social. #BrainSky ๐Ÿง  Read more about Dr. Li's research: buff.ly/GsrzpXX

09.07.2025 23:00 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Neuropathic Pain Management ย  | The Foundation for Peripheral Neuropathy Explore expert insights on neuropathic pain management in this Q&A with Dr. Alexander Chamessian, covering spinal stimul

New on our blog
Q+A follow up to neuropathy pain management webinar with Alexander Chamessian, MD, PhD
Get expert insights on managing peripheral neuropathy pain

Read now: https://www.foundationforpn.org/neuropathic-pain-management/

#Neuropathy #PainManagement #PeripheralNeuropathy

22.07.2025 15:22 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Hispanic people have unexplained higher risk for nerve disorder Hispanic people are more likely to develop peripheral neuropathy than white people, and it's not clear why, a new study

NEW RESEARCH
Hispanics 32% more likelyย to develop neuropathy than whites, even after accounting for known risk factors.
Researchers urge for more investigation.
Read more: https://medicalxpress.com/news/2025-07-hispanic-people-unexplained-higher-nerve.html
#HealthEquity #Neuropathy #PublicHealth

22.07.2025 01:03 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Discovery Raises Prospect of New Neuropathy Treatments | Neuropathy Journal BAR HARBOR, ME โ€“ Recent research by Sandra Rieger, Ph.D., of the MDI Biological Laboratory identifying the underlying me

New findings from our MedSci Board member, Sandra Rieger, PhD, uncover a key mechanism behind peripheral neuropathy, offering hope for treatments that go beyond symptom relief.

https://neuropathyjournal.org/discovery-raises-prospect-new-neuropathy-treatments/

#Neuropathy #NeuropathyResearch

19.07.2025 15:32 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Our most recent webinar on neuropathic pain, along with other past webinars, can all be found on our YouTube channel: https://youtube.com/@foundationforperipheralneu4122?feature=shared

Thanks Brian Callaghan, MD, and our sponsor Lilly!
#neuropathicpain #neuropathy #neuropathywebinar

17.07.2025 19:43 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Looking to fund peripheral neuropathy research? These early career research scholarships might be the answer!ย 
Application deadline is Sept 9, 2025. Learn more: https://www.foundationforpn.org/crts2026/

#research #fundresearch #neuropathy #neuropathyresearch #peripheralneuropathy

15.07.2025 23:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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There's still time to double your impact while funding PN Research. Donate to our matching campaign. Every dollar for research: DOUBLED

Donate now: https://www.foundationforpn.org/donate/

#neuropathy #peripheralneuropathy #pnresearch #neuropathyresearch #donationmatch

10.07.2025 23:03 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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TOMORROW
There are many ways to treat nerve pain. Learn about treatments, limitations and possible costs for neuropathic pain. Register today
https://register.gotowebinar.com/register/5575628310413031255
#peripheralneuropathy #peripheralneuropathywebinar #neuropathicpain

09.07.2025 16:00 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Biospecimens are key to research. Our biobank is the only neuropathy biobank in the country. Weโ€™re happy to have UNC Chapel Hill on board as a new site
https://www.foundationforpn.org/fpn-welcomes-the-university-of-north-carolina-at-chapel-hill/
#neuropathy #neuropathyresearch #neuropathybiobank

08.07.2025 15:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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This Independence Day, we honor veterans who fought for our freedom and continue to fight battles with conditions like peripheral neuropathy. You inspires us.
Veterans + neuropathy: https://www.foundationforpn.org/veterans-and-neuropathy/
๐Ÿ‡บ๐Ÿ‡ธ #Veterans #July4th #InvisibleWounds #NeuropathyAwareness

04.07.2025 16:04 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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We're looking for dedicated people to join our board and help carry out our mission of improving the lives of those affected by peripheral neuropathy. Learn more: https://docs.google.com/forms/d/e/1FAIpQLSfujuFNW7xeMIGlAd0usayGT6JD6FfQ9DG1kiuunL_Ff0CW9Q/viewform
#neuropathy

03.07.2025 23:00 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

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