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the Foundation for Peripheral Neuropathy

@foundationforpn.bsky.social

Through research funding, patient education and advocacy, our work advances our mission to improve the lives of patients living with peripheral neuropathy and accelerate the development of treatments, and one day, cures https://linktr.ee/tffpn

82 Followers  |  55 Following  |  166 Posts  |  Joined: 26.03.2025
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Posts by the Foundation for Peripheral Neuropathy (@foundationforpn.bsky.social)

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Introducing the 2026 Next Generation Research Grant Recipients - American Brain Foundation Meet the 2026 Next Generation Research Grants recipients and discover how their work is advancing brain research.

We're thrilled that our scholarship recipients, Ariel Zhang, PhD, and Christopher Cashman, MD, PhD, are part of the 2026 Next Generation Research Grants from ABF!
https://www.americanbrainfoundation.org/2026-next-generation-research-grant-recipients/

07.03.2026 00:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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On Rare Disease Day, we shine a light on people with rare conditions that affect the nerves.
Diseases like CMT, Fabry disease, amyloidosis and GBS can make it hard to feel your hands or feet.

You are not alone. We see you. We support you.

#RareDiseaseDay #neuropathy

28.02.2026 16:13 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Have you checked out our blog recently? We've been busy with updates on everything from research, to advocacy, to living with small fiber neuropathy.

Check out our recent posts: https://www.foundationforpn.org/blog/

#neuropathy #FaoundationForPN

24.02.2026 14:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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February is American Heart Month. Maintaining heart health is critical for nerve health.

Learn more from MAPS Centers for Pain Control: https://www.mwpain.com/does-heart-health-affect-neuropathy-insights-for-american-heart-month/

#neuropathy #nervehealth #americanheartmonth

20.02.2026 00:20 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Did you catch our neuropathy research update in January?

IMAGiNe study progress: highlights and what’s ahead
https://www.foundationforpn.org/imagine-study-2025-progress-and-future-goals/

#fundresearch #neuropathyresearch #imaginestudy

17.02.2026 14:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Chatting with our advocacy consultant, Mark Vieth:
https://www.foundationforpn.org/advocating-for-peripheral-neuropathy-a-conversation-with-fpns-advocacy-consultant-mark-vieth/

#neuropathy #neuropathyadvocacy #neuropathyresearch

13.02.2026 17:04 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Shanna Patterson, MD, MS, shares why she joined our board, and why she continues to support our mission:
https://www.youtube.com/watch?v=Mt09morrUbE

#neuropathy #peripheralneuropathy #FoundationForPN

10.02.2026 14:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Register: Behind the lab coat: How medical research works

Learn how new treatments get tested & what a medical researcher does

Register https://event.on24.com/wcc/r/5230763/41EE7FF6F21A24225D1D65D5BCE0FB87?utm_source=bluesky&utm_medium=social&utm_campaign=2026_03_labcoat

#neuropathy #fundresearch

10.02.2026 00:25 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Did you miss our most recent webinar?
As Sean, our guest patient speaker stated, knowledge is power.

Watch it now
All in the family: Update on hereditary neuropathies and treatments
https://youtu.be/IGl6Gg409cY?si=y-G9FezDVjXKpnir

#neuropathy #hereditaryneuropathy #neuropathywebinar

07.02.2026 16:17 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Critical funding restored for medical research!

Veteran-focused Peer Reviewed Medical Research Program funding returned to 2024 funding level after 50% cut in 2025: https://www.foundationforpn.org/peripheral-neuropathy-research-funding-restored/

#fundresearch #neuropathyresearch

06.02.2026 14:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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TOMORROW FEB 5!
Free webinar: All in the family: Update on hereditary neuropathies and treatments

Register to join us live, or to watch it later:
https://event.on24.com/wcc/r/5208110/C917660E597C4885550CCE5D458F5196?utm_source=bluesky&utm_medium=social&utm_campaign=2026_02_allinfam

#neuropathy

04.02.2026 14:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Navigating neuropathy? This story is full of wisdom & hope.

Meet Will Schwalbe β€” author, editor, and FPN supporter β€” who has lived with small fiber neuropathy since 2017.
Watch here β†’ https://www.youtube.com/watch?v=mHazfr-zoXs

#neuropathy #smallfiberneuropathy #patientstories

03.02.2026 20:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Thanks to our research funds, Francesco Michelassi, MD, PhD, was able to explore how boosting mitochondrial function might protect patients from chemo‑induced PN

Hear his story
Learn why funding PN research matters now more than ever

Watch the video https://youtu.be/Ag98K9bmjhA?si=W0hsoMfOkBGLhO6I

27.01.2026 20:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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All in the family: Update on hereditary neuropathies and treatments
Sponsored by Alnylam

https://event.on24.com/wcc/r/5208110/C917660E597C4885550CCE5D458F5196?utm_source=bluesky&utm_medium=social&utm_campaign=2026_02_allinfam

Can't attend? Register for recording
#neuropathy#neuropathywebinar

20.01.2026 20:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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It’s hard to learn you have neuropathy. It’s overwhelming, scary, confusing. These resources can help you manage your symptoms and overall health: https://www.foundationforpn.org/newly-diagnosed/

#neuropathy #peripheralneuropathy #foundationforpn

14.01.2026 00:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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New year: same impactful mission and work.
We are educating patients, advancing PN research and advocating for a better future for all neuropathy sufferers.

Learn more at https://www.foundationforpn.org/
#neuropathy #foundationforPN #research #fundmoreresearch

07.01.2026 00:05 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Hoping your 2026 is filled with hope, joy and more symptom free days. Happy New Year!
#happynewyear

01.01.2026 06:01 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Neuropathy affects millions. There's still time to make a difference this year!
Give today: https://www.foundationforpn.org/donate/
#HopeThroughResearch #EndNeuropathy #Neuropathy #supportFPN

31.12.2025 00:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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As we’re wrapping up 2025, we want to highlight some of our most popular content.

In case you missed it, here are some of our top items:
https://www.foundationforpn.org/2025-content-recap/

#neuropathy #neuropathyeducation #wrapup #2025warpup

26.12.2025 17:04 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Wishing you and yours peace and joy this holiday season

25.12.2025 00:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The holidays are here! While we all love festive treats, let’s keep our health in mind, especially if you’re managing neuropathy.

https://www.foundationforpn.org/healthy-eating-for-pn-with-chef-bill-nolan/
#neuropathy #healthyliving

24.12.2025 00:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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It's the time of year when lots of people travel. All travel can be stressful, but traveling with neuropathy can be a real challenge.

Craig shares helpful tips on how to make the most out of your travel: https://www.youtube.com/watch?v=uZjWZlNx09U

#neuropathy #neuropathytravel #travelmore

20.12.2025 16:17 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Here in the midwest this time of year brings icy walkways and slippery streets.

Maintaining good balance can be hard with neuropathy. This webinar can help you learn how balance works and why it matters
https://www.foundationforpn.org/events/exercise-physical-therapy-with-pn/

#neuropathy #balance

18.12.2025 00:00 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
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Make an impact all year! A monthly gift keeps research and education going strong. Even a small amount adds up to big progress: https://www.foundationforpn.org/donate/
#HopeAllYear #Neuropathy #EndNeuropathy

16.12.2025 20:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Our biobank is advancing neuropathy research. Dr. Ahmet HΓΆke and patient advocate Adam Halper explain its purpose and patient impact.

Watch now https://www.foundationforpn.org/events/inside-fpns-peripheral-neuropathy-research-registry-pnrr/

#neuropathy #neuropathyresearch #PNRR #FoundationForPN

13.12.2025 16:00 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Holidays can be joyful, and stressful. For those with neuropathy, stress, changes to routine can amplify symptoms.

Author Will Schwalbe talks about the importance of your support network. Leaning on your community can make a real difference.

Watch now: https://www.youtube.com/watch?v=mosJ8r-iI0M

13.12.2025 00:00 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Neuropathy News Dec. 2025 | The Foundation for Peripheral Neuropathy The Foundation for Peripheral Neuropathy’s June 2025 eNews brings you the newest research developments, inspiring patien

Our latest newsletter is available online: https://www.foundationforpn.org/neuropathy-news-dec-2025/
#neuropathy #neuropathynews

10.12.2025 00:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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TOMORROW DEC 10!
Inside our biobank: the Peripheral Neuropathy Research Registry
Learn how patients play a key role and how the biobank supports neuropathy research
https://register.gotowebinar.com/register/4324838179405547607

#neuropathy #neuropathyresearch #foundationforPN

09.12.2025 14:11 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Meet Susan, who’s been living with peripheral neuropathy for over 15 years. In our latest video, she shares what’s helped her stay positive, manage symptoms, and stay hopeful for the future.
Watch here: https://www.youtube.com/watch?v=EabLJHapmMA
☝️LINK IN BIO☝️

#neuropathy

06.12.2025 00:00 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Thanks for joining the battle against neuropathy and making Giving Tuesday a success! Every dollar makes our community stronger, and brings us closer to cures.

#GivingTuesday #FightNeuropathy

03.12.2025 16:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0