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Jo Robson

@robsonjc.bsky.social

Academic Rheumatologist UWE Bristol Patient reported outcomes and impact of rare rheumatic disease on health- related quality of life ANCA associated vasculitis Giant cell arteritis

105 Followers  |  120 Following  |  1 Posts  |  Joined: 20.02.2025
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Posts by Jo Robson (@robsonjc.bsky.social)

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Vaccines don’t cause autism. So what does? Another CDC/MMR study is a waste. Autism rates are increasing due to complicated factors.

Vaccines, including MMR, do not cause autism

Over 25 studies, including a 2019 analysis of 600,000+ children in Denmark, refute any link

No biological plausibility exists: brain changes linked to autism occur in utero, well before vaccination

yourlocalepidemiologist.substack.com/p/vaccines-d...

20.03.2025 17:27 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Lecture by Professor Trish Greenhalgh: Healthcare in the digital age: A new era of inequality? Monday 3 Feb 2025, 18:30 - 20:00 at City Hall, Bristol.

Lecture by Professor Trish Greenhalgh: Healthcare in the digital age: A new era of inequality? Monday 3 Feb 2025, 18:30 - 20:00 at City Hall, Bristol.

1️⃣ Digital health tools promise more efficient and accessible healthcareβ€”but do they benefit everyone equally?

Last night, Prof @trishgreenhalgh.bsky.social explored how digitalisation can actually deepen health inequalities by creating new barriers.

Here are my key takeaways from the lecture.🧡 1/8

04.02.2025 17:35 β€” πŸ‘ 5    πŸ” 3    πŸ’¬ 2    πŸ“Œ 1
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The mere-measurement effect of patient-reported outcomes: a systematic review and meta-analysis - Quality of Life Research Purpose The mere-measurement effect is the phenomenon in which subjects exposed to measurements have their perceptions and/or behaviors on the inquired topic affected simply through the act of respond...

The mere-measurement effect of patient-reported outcomes: a #systematic review and meta-analysis

Simply asking patients about their health can influence their perceptions and behaviours

With a 17% increased likelihood of change, could #PROMs be a subtle intervention? πŸ€”

doi.org/10.1007/s111...

14.02.2025 23:43 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Patient perspectives on the impact of appearance and weight changes attributed to systemic glucocorticoid treatment of rheumatic diseases This research article explores howΒ appearance and weight changesΒ due to systemic glucocorticoid treatment for rheumatic diseases impact patients' lives, based on interviews with individuals in the UK,...

Associated podcast www.podbean.com/ew/pb-4rnxw-...

18.03.2025 23:51 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Patient perspectives on the impact of appearance and weight changes attributed to systemic glucocorticoid treatment of rheumatic diseases AbstractObjectives. To explore patients’ perspectives on the impact of appearance changes attributed to glucocorticoid treatment.Methods. We conducted a se

β€˜I don’t look like me’ Patients share the impact of glucocorticoid-related appearance changes

πŸ§‘β€πŸ€β€πŸ§‘ Societal pressures: Feeling the need to conform
πŸ’” Mental health struggles: Loss of confidence, identity
βš–οΈ Daily adjustments: Clothing sizes, diet, lifestyle shifts

πŸ’Š #SteroidPRO doi.org/10.1093/rheu...

18.03.2025 22:54 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0

I am running for Clinical VP of the RCP.

For those who don't know me, here is a potted bio.
🧡

17.03.2025 11:41 β€” πŸ‘ 29    πŸ” 19    πŸ’¬ 1    πŸ“Œ 4
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Here's to the incredible women who continue to break barriers, inspire change, and shape the world around them. Happy International Women's Day #IWD! We are honoured to introduce our key women behind the scenes helping to organise #IVW2026 vasculitis-melbourne2026.com

05.03.2025 22:04 β€” πŸ‘ 8    πŸ” 3    πŸ’¬ 0    πŸ“Œ 1

Hello Sarah!

20.02.2025 15:21 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0