Madelinenerd

Broken Glass and Other Heartaches

new podcast episode: Broken glass and other heartaches
open.spotify.com/show/0oNLwzI... #canpoli #disability #MyalgicE #pwME #MECFS #MEAction

YouTube #livestream recording of my #petition presentation to my MLA/BC premier @DavidEby office today, January 21st www.youtube.com/live/PN6-ewF...
#MyalgicEncephalomyelitis #healthcare #canpoli #disability #MyalgicE #pwME #MECFS #longviral #MEAction #Canada #Vancouver #bcpoli

YouTube #livestream recording of my #petition presentation to my MLA/BC premier @DavidEby office today, January 21st www.youtube.com/live/PN6-ewF...
#MyalgicEncephalomyelitis #healthcare #canpoli #disability #MyalgicE #pwME #MECFS #longviral #MEAction #Canada #Vancouver #bcpoli

Virtual petition presentation i
to my MLA, premier David Eby's office PST 11-11:30am YouTube live youtube.com/@iammadeline...
Petition open til 9am Wed bit.ly/Marcia_petit...
#myalgicE #disability #longcovid #myalgicencephalomyelitis #Canada #mecfs #canpoli

Virtual petition presentation i
to my MLA, premier David Eby's office PST 11-11:30am YouTube live youtube.com/@iammadeline...
Petition open til 9am Wed bit.ly/Marcia_petit...
#myalgicE #disability #longcovid #myalgicencephalomyelitis #Canada #mecfs #canpoli

@nistolisk.bsky.social Because you were so amazingly supportive of the op-ed I thought you might be interested in the virtual presentation of the petition. We are still accepting signatures until late next Tuesday So hopefully we can get signatures up to at least 1500 from the current 1359

Thanks so much 💗

Really good constituency appt with my MP(feds) this morn. Surprising cuz his predecessor blew me off. This guy gets it. So being hopeful after the meeting got a much better response than I thought i would get was actually super disconcerting #Canada #canpoli #myalgicE #longcovid

Have a meeting with my MP Wed. A lot of brain power preparing for it l, so I hope I'm eloquent enough let him to pay attention & so stop pass the potato nonsense going on between #Canadian feds & provinces
#myalgicE #canpoli #longcovid #bcpoli #Canada #myalgicencephalomyelitis

Jan 1, 2 AM, 2026

New podcast episode January 1st, 2AM 2026 open.spotify.com/show/0oNLwzI...
#NewYear2026
#NewYear #NewYearsEve #MyalgicE #pwME #MECFS #MEAction #disability #mcas #mcs #Christmas #Canada #Canadian #Vancouver #disability #ableist #longviral #canpoli #bcpoli

Marcia: life with severe ME is like screaming into the void Marcia is a person living with ME, amongst a range of other disabilities - here, she writes for the Canary about her life

My op-ed is out! www.thecanary.co/opinion/2025...
If you could share the op-ed everywhere you can that would be amazing!
#MyalgicE #pwME #MECFS #pots #fibromyalgia #MEAction #disability #immunedeficiency #Christmasmagic #Christmas #christmasmiracle #philanthropy #Canada #Canadian #longcovid
⬇️

It getting published so close to Christmas means having it shared by people like you is extra extra important for I'm not sure how much of an impact it has on the petition and the GoFundMe(which currently runs out mid-Jan which means I would have to stop life maintaining supports

Marcia: life with severe ME is like screaming into the void Marcia is a person living with ME, amongst a range of other disabilities - here, she writes for the Canary about her life

My op-ed is out! www.thecanary.co/opinion/2025...
If you could share the op-ed everywhere you can that would be amazing!
#MyalgicE #pwME #MECFS #pots #fibromyalgia #MEAction #disability #immunedeficiency #Christmasmagic #Christmas #christmasmiracle #philanthropy #Canada #Canadian #longcovid
⬇️

New podcast episode, " The Fine Art Of Distraction " open.spotify.com/show/0oNLwzI...
#MyalgicE #pwME #MECFS #pots #fibromyalgia #MEAction #disability #immunedeficiency #Christmasmagic #Christmas #christmasmiracle #philanthropy #Canada #Canadian #Vancouver #genderbias #medicalbias

A winter scene flyer with my pic at the bottom. It reads: Please join us for a talk on: Improving Quality of Life in ME/CFS talk - questions - suggestions December 17 2025 12pm ET, 9am PT, 11am CT Sliding Scale Donations 20% of proceeds to MEAction Talk followed by Q&A Hosted by Jaime Seltzer Scientific Director, MEAction @exceedhergrasp1

I'm giving a talk next week and you're invited!

✨Improving Quality of Life in ME/CFS and Infection-Associated Chronic Conditions✨

The talk is donate-as-you're-able, and 20% will support #MEAction.

You can sign up to attend here: us06web.zoom.us/meeting/regi...

Simple text based graphic with black lettering on cream background. Text: "This is what we are up against: A message from MEAction"

A message from #MEAction:

We are facing an unprecedented crisis for disability & chronic illness communities. People are at the precipice of losing their access to healthcare, home and community-based services, & the promise of new research.

Learn more & support: www.meaction.net/lantern-in-t...

New podcast episode, " The Fine Art Of Distraction " open.spotify.com/show/0oNLwzI...
#MyalgicE #pwME #MECFS #pots #fibromyalgia #MEAction #disability #immunedeficiency #Christmasmagic #Christmas #christmasmiracle #philanthropy #Canada #Canadian #Vancouver #genderbias #medicalbias

New #podcast ep #Sinterklaas where I talk about op-ed I'm writing & how scary all this is open.spotify.com/episode/3Yaq...
note: photo from web 3.bp.blogspot.com/-ms27JJEPgf4...
#MyalgicE #pwME #fibromyalgia #MEAction #disability #Christmasmagic #Christmas #christmasmiracle #philanthropy #Canada

💗💗💗💗💗

Fatigue in children and young people up to 24 months after infection with SARS-CoV-2 - Scientific Reports Scientific Reports - Fatigue in children and young people up to 24 months after infection with SARS-CoV-2

Even 2 years after infection, around 40% of young people are still experiencing significant fatigue — indicating a major long-term health issue affecting a substantial proportion of youth who have had COVID-19.

Published: 20 November 2025

www.nature.com/articles/s41...

LiveAI demo fails on the first prompt at Meta Connect 2025. #Meta #AI #LiveAI

#DaoftheDead, #Halloween and #Miracles; new #podcast episode open.spotify.com/show/0oNLwzI...
#Halloween2025 #dayofthedead #whimsy #Halloweencostume #MyalgicEncephalomyelitis #healthcare #canpoli #disability #MyalgicE #pwME #MECFS #fibromyalgia #MEAction #Canada #Vancouver #pumpkin

I talk about #LIFEAFTER @sundancefestive is on @CBC's @IndependentLens Mon Nov 3rd 9:59 pm PST. So check your listings/time zones so you can PVR it.

My Podcast ep re @VIFFest viewing open.spotify.com/episode/0Sd2...
#canpoli #disability #MyalgicE #pwME #fibromyalgia #MEAction #Canada

Podcast episode where I talk about using whimsy as a survival tactic open.spotify.com/episode/7iqA... #halloween #dayofthedead #whimsy #MyalgicEncephalomyelitis #healthcare #canpoli #disability #MyalgicE #pwME #MECFS #fibromyalgia #MEAction #Canada #humanrights #mcas #mcs #disautonomia

PETITION: Prevent Marcia's Avoidable Death. International and across Canada signatories welcome and encouraged. What happens in one part of the world affects all parts of our world. Marcia Doherty (known publicly online as Madeline) is a 45-yea...

Brain fog has me trying to do an update but I can't put my thoughts together. Running out gfm$ in Nov. Try not to freak out about it. Friendsgiving this weekend I hope will raise my spirits cuz I'm scared #myalgicE #longcovid bit.ly/Marcia_petit... petition; worldwide signatures

SATURDAY, OCTOBER 4TH
6:45pm in Vancouver -- Catch a screening of LIFE AFTER at the Vancouver International Film Festival, followed by a Q&A. Open captions and descriptive audio are available. Also playing Sunday October 5th 11:30am w/ Q&A #lifeafter

Extra hard 7 days after finding out my friend who's been doing my laundry for past 2 years will be stopping in Nov when they retire. Feels like a cold nail in my coffin. Today; again begged MLA staffer for housekeeping & disease supports #myalgicE #bcpoli #disability #longcovid

Anti-neuronal and anti-mitochondrial autoantibodies are associated with lower functional status and more severe respiratory symptoms in post COVID syndrome — Vogelgesang et al. "The present exploratory study showed an association between the auto-Abs and the disease without implying a causal relationship"

From Germany:

Anti-neuronal and anti-mitochondrial autoantibodies are associated with lower functional status and more severe respiratory symptoms in post COVID syndrome

www.frontiersin.org/journals/imm...

Screenshot from latest Science for ME weekly update

#LongCovid #PASC

Variant connective tissue as a risk factor for long COVID: a case-control study of data from a retrospective online survey of adults in the USA and UK — Regina A Torok et al. "findings suggest that people with variant connective tissue (manifest as joint hypermobility) disproportionately experience long COVID." "the measure of extreme hypermobility is novel and not yet validated, and both the measure of GJH and the measure of extreme hypermobility rely on patient responses to survey questions"

Variant connective tissue as a risk factor for long COVID: a case-control study of data from a retrospective online survey of adults in the USA and UK

bmjpublichealth.bmj.com/content/3/2/...

Screenshot from latest Science for ME weekly update

#LongCovid #PASC