Madelinenerd

PETITION: Prevent Marcia's Avoidable Death. International and across Canada signatories welcome and encouraged. What happens in one part of the world affects all parts of our world. Marcia Doherty (known publicly online as Madeline) is a 45-yea...

Brain fog has me trying to do an update but I can't put my thoughts together. Running out gfm$ in Nov. Try not to freak out about it. Friendsgiving this weekend I hope will raise my spirits cuz I'm scared #myalgicE #longcovid bit.ly/Marcia_petit... petition; worldwide signatures

SATURDAY, OCTOBER 4TH
6:45pm in Vancouver -- Catch a screening of LIFE AFTER at the Vancouver International Film Festival, followed by a Q&A. Open captions and descriptive audio are available. Also playing Sunday October 5th 11:30am w/ Q&A #lifeafter

Extra hard 7 days after finding out my friend who's been doing my laundry for past 2 years will be stopping in Nov when they retire. Feels like a cold nail in my coffin. Today; again begged MLA staffer for housekeeping & disease supports #myalgicE #bcpoli #disability #longcovid

Anti-neuronal and anti-mitochondrial autoantibodies are associated with lower functional status and more severe respiratory symptoms in post COVID syndrome — Vogelgesang et al. "The present exploratory study showed an association between the auto-Abs and the disease without implying a causal relationship"

From Germany:

Anti-neuronal and anti-mitochondrial autoantibodies are associated with lower functional status and more severe respiratory symptoms in post COVID syndrome

www.frontiersin.org/journals/imm...

Screenshot from latest Science for ME weekly update

#LongCovid #PASC

Variant connective tissue as a risk factor for long COVID: a case-control study of data from a retrospective online survey of adults in the USA and UK — Regina A Torok et al. "findings suggest that people with variant connective tissue (manifest as joint hypermobility) disproportionately experience long COVID." "the measure of extreme hypermobility is novel and not yet validated, and both the measure of GJH and the measure of extreme hypermobility rely on patient responses to survey questions"

Variant connective tissue as a risk factor for long COVID: a case-control study of data from a retrospective online survey of adults in the USA and UK

bmjpublichealth.bmj.com/content/3/2/...

Screenshot from latest Science for ME weekly update

#LongCovid #PASC

POWER

New #podcast ep: POWER open.spotify.com/episode/1BgM...
Hard day. Found out That help with laundry from a friend will stop soon. Plus stink from ductwork issue extra bad. And larger ideas of not having supports due to problematic forms of power all in pod ep
#myalgicE #disability #MECFS

Characterization of Postural Orthostatic Tachycardia Syndrome in Long COVID: Self-reported Data From the LISTEN Study Postural orthostatic tachycardia syndrome (POTS) has emerged as a significant cardiovascular phenotype among individuals experiencing postacute COVID-…

'Characterization of Postural Orthostatic Tachycardia Syndrome in Long COVID: Self-reported Data From the LISTEN Study'

By Akiko Iwasaki, Harlan M. Krumholz et al.

www.sciencedirect.com/science/arti...

POWER

New #podcast ep: POWER open.spotify.com/episode/1BgM...
Hard day. Found out That help with laundry from a friend will stop soon. Plus stink from ductwork issue extra bad. And larger ideas of not having supports due to problematic forms of power all in pod ep
#myalgicE #disability #MECFS

Marcia Doherty ( @madelinenerd.bsky.social ) noticed her #MECFS symptoms improved while taking Paxlovid but still cannot get antivirals prescribed in BC.

She has access to MAiD (already approved) but not antiviral medications at least one of which she knows works.

bsky.app/profile/made...

Hope Is Tricky Business

New #podcast ep, #Hope Is Tricky Business
open.spotify.com/show/0oNLwzI...
The Atlantic article link expired so here's a new one for you to be able to read (Or listen cuz it has a audio version at the top) www.theatlantic.com/magazine/arc...
#disability #myalgicE #myalgicencephalomyelitis #Canada

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Donate to Marcia aka Madeline Petition I WANT TO LIVE, organized by Marcia Doherty Who Am i? I definitely will tell you more below as well as some media links… Marcia Doherty needs your support for Marcia aka Madeline Petition I WANT TO LIVE

@TheAtlantic article link expired so here's a new one for you to be able to read(Or listen to-has a audio version at the top) & share. Link's in GFM update In case you want to share for you can't post news articles on FB/Insta gofund.me/6d981312 #disability #myalgicE #Canada #mecfs #longcovid

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Disability Hate(And how I'm trying to keep afloat)

I'm struggling right now with what feels like disability hate & of course knowing I'm about a month away from running out of $ always does my head in. So it's a bit of a one to punch. I talk about it in this mini podcast ep open.spotify.com/show/0oNLwzI... #myalgicE #Disability #Canada

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Vaccine Volume 63, 17 September 2025, 127676 Commentary COVID-19 vaccinations in America: Don't forget long COVID and the post-acute sequelae by Peter J. Hotez https://doi.org/10.1016/j.vaccine.2025.127676

My concern is the new FDA guidance does not consider COVID’s post-acute sequelae. In 2025, researchers at Penn Medicine and the U.S. National Institutes of Health (NIH) Researching COVID to Enhance Recovery (RECOVER) Initiative (to understand, treat, and prevent the post- acute sequelae of COVID-19) reported their findings on almost 400,000 children and adolescents. They found that the Pfizer mRNA vaccine was greater than 95 % effective against long COVID among adolescents during the delta wave in 2021, and more than more than 60 % effective against long COVID in children and 75 % among adolescents during omicron wave in 2022 [7]. Similarly, a Department of Veterans Affairs Health Care System study of more than 400,000 veterans with COVID-19 and over 4 million non-infected controls found significant reductions in post-acute sequelae events among those vaccinated [8]. Additional studies support the benefits of booster vaccinations to prevent long COVID in the omicron era [9].

For now, the decision to receive an annual COVID-19 for groups not considered to be at the highest risk for death or hospitalization should remain between the patient (or the patient’s caregivers) and their doctor. This practice is consistent with the health freedom tenets of the Make America Healthy Again (MAHA) philosophy and is very much in line with “a balance of regulatory flexibility and a commitment to gold- standard science,” which in fact has always been the philosophy and practices of the FDA and CDC and their advisory committees. Along those lines, the FDA, CDC, and NIH should redouble their commitment to support research into the molecular, cellular, and immunological mechanisms of COVID’s post-acute sequelae, and how vaccines prevent these serious complications. Instead, we are just learning about the cuts to the budget of the National Institute of Allergy and Infectious Diseases (NIAID), and a potential dismantling of government support for infectious disease research in America. The simple reality is that gold-standard science simply cannot be maintained should MAHA dogmas replace scientific research and development.

LongCovid is "not rare...In addition to its health burden...economic estimates show...longCOVID could result in billions...in productivity losses. The FDA should consider policies that adequately embrace this new reality&allay the legitimate concerns of the American people."
doi.org/10.1016/j.va...

Madelinenerdfighter from the @IamMADELINEpod on X: "New Atlantic article link(gift link below expired). This will let you read it. I'm only a small part in it, But I am hoping it might precipitate some legacy media coverage that really focuses in theologic and human rights atrocity of what's happening to me https://t.co/oI0R3lYcf1" / X New Atlantic article link(gift link below expired). This will let you read it. I'm only a small part in it, But I am hoping it might precipitate some legacy media coverage that really focuses in theologic and human rights atrocity of what's happening to me https://t.co/oI0R3lYcf1

New Atlantic article link(gift link expired). I'm only a small part in it, But I am hoping it might precipitate some legacy media coverage that really focuses in the illogic & human rights atrocity of what's happening to me
Twitter link that has it x.com/Madelinenerd...
#disability #MyalgicE

Still fighting!

petition really needs to get 2000 signatures before we present➡️ bit.ly/Marcia_petit...
below is the Atlantic article.

This is the @Canaryuk article that came out with the petition www.thecanary.co/global/world... #MyalgicEncephalomyelitis #disability #MyalgicE #Canada

No s*** Sherlock

Le sigh

*Bangs head softly against wall that we are still even having conversations and or studies around the psychosomatizing of what has already clearly been proven to be a biochemical and biomechanical disease*
#myalgicE #myalgicencephalomyelitis

Still fighting!

petition really needs to get 2000 signatures before we present➡️ bit.ly/Marcia_petit...
below is the Atlantic article.

This is the @Canaryuk article that came out with the petition www.thecanary.co/global/world... #MyalgicEncephalomyelitis #disability #MyalgicE #Canada

In what way? I'm not familiar with the book or the author

Canada Is Killing Itself The country gave its citizens the right to die. Doctors are struggling to keep up with demand.

#theAtlantic article just came out that includes me www.theatlantic.com/magazine/arc... by @elainaplott I'm so grateful that they linked to my podcast. For Atlantic readers open.spotify.com/show/0oNLwzI... #myalgicE #MyalgicEncephalomyelitis #Canada #canpoli #bcpoli #disability #disabilityawareness

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Long Covid patients gaslit by GPs, Surrey study finds The University of Surrey study says patients faced "gatekeeping" of medical treatment from doctors.

"Dr Jayadeva, who co-authored the study, added: 'We found that people with #longCovid are often led to fend for themselves in a system that isn't adequately informed about their condition and doesn't offer them appropriate medical support.'"

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Long COVID: a clinical update Post-COVID-19 condition (also known as long COVID) is generally defined as symptoms persisting for 3 months or more after acute COVID-19. Long COVID can affect multiple organ systems and lead to sever...

into school or work you are at increased risk again of #Longcovid by not resting. Somehow this research is just not filtering through or being ignored by our government.
Here it is for those who would like to take a look. www.thelancet.com/journals/lan...