Lizzy

Definitely glad to be home. Very frustrated we didn’t get answers again but it’s good I’m safe enough to be at home again (in theory) so 🤞🏼🤞🏼🤞🏼 x

2wks after being admitted, I’ve been discharged.

Things are far from ‘better’ but I’m not critically ill like I was going in so that’s good, & I have some source of nutrition. Still didn’t get answers for my GI inflammatory markers being so high but 🤞🏼 my other team will help.

Glad to be home❤️

Monochrome photograph featuring a small white girl walking to the left, with blonde hair, wearing a white dress and with feet inside a pair of men's large black shoes, pushing a doll's pram on a pavement in front of a brick wall

UK photographer Shirley Baker documented the city of Manchester's streets in the 1960s #WomensArt

Thank you so much. Oh no😭 they’re horrible aren’t they?! X

Maybe next week. Agreed, hospital is exhausting. Just still not sorted in terms of working out why or sorting the issue x

Thank you lovely, me too x

Thank you Steve x

Now only my 11th😭 in 8days. They’re horrible aren’t they? Xxx

Thank you xx

Bird saying “when the fuck will this shit stop getting worse”

Update: a week after my 31st birthday I was taken back into hospital. Still here a week later.

Fed up, but still here and still persevering.

On my 10th failed cannula, extremely frustrated, and totally wiped out. I guess we’ll see what today brings.

Oh yay thank you!!!! What a lot of amazing trinkets to look at. It’s amazing!!!! I love the bottle with the butterfly on😍 and the palm reading hand I’ve never seen one like that before that’s so cool! X

#myalgicencephalomyelitis #MECFS

Yayyy!!!! X

Thank you!! The tray is my mums🥹❤️

Also, here's mine.
Cobwebs are models own. 😆

You have one too!!!! This is so exciting thank you so much for showing me!!! I love the teeny houses! Oooh I’m going to enjoy having a proper nose at these😍 thank you! Oh and the cobwebs are essential, Halloween decorations year round ;)

🥹😍😍😍 I love seeing peoples trinkets and things! There’s so much to look at isn’t there hehe.
Lots are things I’ve collected, or things from my grandma, or mum, or cousin, then bits I’ve found on the beach, all sorts!

So the currently level of hospital admissions from #COVID in the UK is 50x higher than hospital admissions from flu.

A direct result of @teamlabouruk.bsky.social drastically decreasing autumn/winter covid vaccinations for many elderly or at risk adults…

It will get worse. It won’t save money.

Here is the top half of it! @ozgib.bsky.social @rainbowsteph.bsky.social

Thank you for breaking this down

1) The Physios for ME team published a randomized trial on pacing with a heart rate monitor. It included 32 patients with ME/CFS and 15 with Long Covid.

A brief breakdown of the main results 🧵

Thank you, She is😍 it’s so beautiful I’m very lucky!

Here is a sneak peak but I will ask mum to take a photo for me tomorrow 😍 I’d love to share it with you, thank you for asking!! X

Mum has hung the beautiful autumnal bunting she made me for my 30th birthday last October, up across my room. It looks so lovely!

Sending tons of love xx

First day back in Parliament, so time to get this Bluesky thing up and running. Thanks for follows so far. Also working on new website. If constituent, please do email. Going to be a busy week, with statements likely this afternoon. Congrats to @darrenpjones.bsky.social on his new job!

I long to study, to work, to go out, to help others, to contribute to society, to hike, and look out at the views.
Instead I cried this morning because I am so exhausted that digesting my feed through my feeding tube had taken all my energy.

George, as always thank you so much for covering this topic, it takes knowledge, understanding, empathy and bravery to do so, but my goodness does it mean the world to those of us you speak on behalf of.

In the firing line, as ever, are the UK’s hundreds of thousands of ME/CFS patients. As a practitioner once remarked, “the bastards don’t want to get better”. If there is one characteristic all the ME/CFS patients I’ve come across have in common, it is a desperation to get better.

Thank you lovely, and much love back to you x