I had to say goodbye to my uncle today bc heโs dying due to complications from Long Covid that escalated to lung failure with the final stroke being pneumonia.
I do mobile COVID testing bc of the queens in ATX who had HIV testing trucks at their bars.
You always deserve to know your status.
10.08.2025 23:53 โ ๐ 8 ๐ 1 ๐ฌ 1 ๐ 0
Seconded, from someone still recovering 13 months later. Nothing guarantees you won't get it, but you *can* improve your odds #LongCOVID
11.08.2025 01:28 โ ๐ 41 ๐ 13 ๐ฌ 3 ๐ 1
Was volunteering at an event this weekend, not a lot of masks but more than I usually see when I'm out. Offered an upgrade to someone working security in a pleated mask on the way in, they were still wearing the N95 on my way out at the end of the day. #SmallWins ๐๐ป
11.08.2025 02:24 โ ๐ 8 ๐ 2 ๐ฌ 0 ๐ 0
I actually saw like 5 other people wearing KN95s in the grocery store today ๐ I don't really bother saying this anymore, but I guess I should: if you stopped masking in public and you want to for any reason/occasion/if you're sick, don't be embarrassed to start again. sometimes is better than never
11.08.2025 02:28 โ ๐ 15 ๐ 5 ๐ฌ 1 ๐ 0
I've never stopped wearing my Q100 & cleaning the indoor air around me.
COVID nearly killed me in January.
Its not a joke.
Prevent infection. Wear an N95 or better. Filter indoor air with #CRboxes & HEPA units.
Open windows/doors for better ventilation.
We know how to prevent infection.
#JustDoIt
11.08.2025 02:33 โ ๐ 20 ๐ 7 ๐ฌ 0 ๐ 0
How to Stay Covid Safe When in Hospital
A guide to navigating the risk of hospital acquired Covid - as well as how to manage overall risk of nosocomial infections and hospital derived complications.
Itโs almost six years since the start of the COVID pandemic & we still donโt have masks in healthcare or clean air standards
In fact, it can be harder to get healthcare workers to mask than almost any other profession
Hospital acquired Covid has a 10% fatality rate
Hereโs how to protect yourself:
11.08.2025 03:05 โ ๐ 510 ๐ 190 ๐ฌ 18 ๐ 8
Saw a super cute probably queer woman looking all goth and amazing, but kept thinking "gosh I'm sad she's not in a mask, she looks like the kind of person who would give a fuck," and as I was quietly lusting and wishing these things, SHE REACHED INTO HER POCKET, PULLS OUT AN N95, AND PUT IT ON! ๐ฅน๐๐ท๐
11.08.2025 03:26 โ ๐ 33 ๐ 2 ๐ฌ 4 ๐ 0
Study examines impact of long COVID on healthcare use
US adults with long COVID had a nearly 3-fold increased risk of additional hospitalization compared with those who had SARS-CoV-2 infections but not long COVID.
What a disaster this is.
"US adults with long COVID had higher rates of additional hospitalization in the 6 months after acute infection compared with those who had SARS-CoV-2 infections but not long COVID, researchers reported last month in PLOS One"
11.08.2025 03:44 โ ๐ 38 ๐ 13 ๐ฌ 1 ๐ 0
When I worked in hospice during COVID, I had a patient (98) whose 30-yr-old granddaughter told me specifically not to wear a mask because "we have immune systems."
She died of COVID before the hospice patient with end stage pancreatic cancer.
I hate these people more than you'll ever understand.
11.08.2025 03:48 โ ๐ 16 ๐ 5 ๐ฌ 1 ๐ 0
#VirusFreeAirNow... because #LongCovidIsCumulative... and #CovidIsAirborne.
11.08.2025 03:49 โ ๐ 3 ๐ 5 ๐ฌ 0 ๐ 0
โผ๏ธ๐ฉ
10.08.2025 23:08 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0
that they mentioned deaths and hospitalizations going down, but not long covid + covid-related chronic condition numbers going up is so disgustingly typical
10.08.2025 22:45 โ ๐ 3 ๐ 0 ๐ฌ 1 ๐ 0
#pwME a/o #LongCOVID suffering with #PEM I would like to know how many of you have trialed these 2 off-label medications IN COMBINATION: pyridostigmine + #LDN (low dose naltrexone) and have experienced any improvements in exertion tolerance & less pain?
#Mestinon #Pyridostigmine #LowDoseNaltrexone
10.08.2025 19:07 โ ๐ 17 ๐ 10 ๐ฌ 7 ๐ 0
Catching COVID even one time puts you at risk of severe long COVID
If you didnโt get long COVID on your first infection, that doesnโt mean it wonโt happen in the future
Mask up. Do it for your disabled family/friends/comrades, if you need more motivation.
Resistance means protecting yourself
10.08.2025 20:34 โ ๐ 4 ๐ 1 ๐ฌ 1 ๐ 0
๐ ๐งต on how COVID's general presentation contributes to our continued disregard for its effects on public health. (I'll add that LongCOVID's main symptom being crippling fatigue also contributes to this--invisible disabilities trigger hostility more often than compassion) ๐๐ฝ
10.08.2025 20:36 โ ๐ 5 ๐ 1 ๐ฌ 0 ๐ 0
And take smoke seriously! (shout out to the woman I saw cycling in a Flo mask this morning)
10.08.2025 20:50 โ ๐ 17 ๐ 7 ๐ฌ 1 ๐ 0
Parents should be less concerned with classroom dรฉcor and more bothered by their children being repeatedly hotboxed by COVID and other pathogens.
Advocate for clean air in schools (and mask up) instead of taking to TikTok to also cry about how your kids are sick all the time.
10.08.2025 20:54 โ ๐ 25 ๐ 8 ๐ฌ 1 ๐ 0
TikTok - Make Your Day
The โendโ of the pandemic? More like the beginning of every covid infection wave. Mask up to stop the spread & maybe one day the pandemic will actually end. ๐ท
#COVID #Covid19 #Pandemic #SARS-CoV2 #WearAMask #MaskUp #N95 #Airborne #CleanAir #StillCoviding #PublicHealth #CovidAware #Ableism
10.08.2025 20:57 โ ๐ 2 ๐ 1 ๐ฌ 0 ๐ 0
New study where human muscle was exposed to sera (blood component) of patients with long covid and ME / CFS, and the tissue went into a hypermetabolic state then quickly atrophied and underwent mitochondrial deterioration.
iopscience.iop.org/article/10.1...
10.08.2025 20:57 โ ๐ 34 ๐ 18 ๐ฌ 1 ๐ 1
I missed this thread of Kateโs on the 8th - too important not to share today. Grateful for the people like Kate with severe ME who made a point of using their tiny but crucial reserves to educate and organize the long COVID patients who they knew would follow in their footsteps.
๐๐ป๐
10.08.2025 21:35 โ ๐ 16 ๐ 7 ๐ฌ 1 ๐ 0
My law firm is currently litigating 48 voting and election cases in 23 states including 7 redistricting cases in AL, GA, LA, NC TX, & WI.
10.08.2025 20:12 โ ๐ 13792 ๐ 3121 ๐ฌ 418 ๐ 129
My best friend and I were chatting about dudes who were so bad even the other people of their time were like โwtf, no.โ
Jefferson in particular. While he was avoiding the Revolutionary War, French people were like โpardonne-moi, Monsieurโ you wrote this whole Declaration and yet you keep slaves?โ
10.08.2025 19:01 โ ๐ 443 ๐ 60 ๐ฌ 14 ๐ 2
Yeah JD, we remember. We will never forget your boss was best friends with the guy who ran a literal child sex trafficking ring.
And then that guy was "silenced" forever.
And now we will just not talk about anything else until they...
#ReleaseThe_EPSTEIN_Files
10.08.2025 20:54 โ ๐ 34141 ๐ 11083 ๐ฌ 868 ๐ 474
as the pieces detail, until recently, researchers have insisted it's a psychological/FND condition. i'm assuming you mean that when advocates have pushed back on that label and things like graded exercise therapy, which worsens ME/CFS, they're blamed for a lack of compliance.
10.08.2025 21:49 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
please share details on patient advocates driving researchers away. i've read otherwise, in the guardian pieces i linked
10.08.2025 21:46 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
i didnโt say you did. you claimed it had psychosomatic elements, yet every CBT intervention has failed to make a difference. people would rather not be trapped in bed watching their lives slip away. it's been difficult to diagnose because of the lack of research, leading to lack of tests.
10.08.2025 21:42 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
it's so deranged how rich business owners have demanded for decades that they be called "job creators" despite the fact that every single person i know has experienced a rich guy buying out an existing business and firing everyone and usually completely bankrupting it before cashing out and leaving
10.08.2025 18:57 โ ๐ 7852 ๐ 1684 ๐ฌ 58 ๐ 79
Formerly queencynethryth | She/her ๐ฉโ๐ป | No to GenAI! ๐
โโ๏ธ | Trans rights! | Demisexual ๐ค๐ค๐ | I like ๐ป๐๐ฎ๐ชก๐๐ฎ
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โก @jluvs2luv.bsky.social โก Into: MMA, science, nature ๐ชธ๐ฆ๐ ๐๐ฟ, polyam/ENM, accessibility, antifascism, & Pokรฉmon. ADHD/APD. Pansexual. ๐ณ๏ธโ๐ Cis she/her #BlackLivesMatter #LandBack #ToitลซTeTiriti
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Running for Mayor to deliver a safer, more affordable, and better-run New York City.
landerfornyc.com
Account for the #CallForPublicHealthAction demonstration, for clean air, evidence-based infection control and care and biomedical research for Long COVID & ME. The demonstration has been going since July 2024.
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Free Palestine, forever
anti-Zionist Jew, currently in ancestral homeland (Brooklyn)
disability justice
attorney, arguably
Old-ish, Neurodivergent, nature lover, she/they, ๐๐ณ๏ธโ๐๐ณ๏ธโโง๏ธ#BLM, busy trying to decolonize my mind, #cPTSD #ME/CFS, covid cautious
Cree | RR Mรฉtis | Slavic, 2S nonbinary asexual autistic first-gen scholar studying plant mycobiomes, climate-adaptive agricultural interventions; occasional palaeontologist. Assistant Prof @UManitoba; Indigenous Scholar in Science. www.klymiuk.ca
โWeโre driving in the dark with our sunglasses on!โ
Retired lecturer/therapist - feminism, politics, music, culture, science, languages #LC. Woke AF
#ME (1987) ๐ณ๏ธโโง๏ธ๐ต๐ธ
Maker of #FanningTheFlames
๐ซ OnlyFans, GoFundMe, DMs
@MEownersClub.bsky.social
Mum of two boys. Early Childhood Lecturer. Long Covid Kids advocate. Clean Air campaigner. Long Covid in 2021.
There ARE things we can and should be doing...
๐งฌ The worldโs biggest study of genetic causes of #MECFS. Launched September 2022. ๐งฌ https://www.decodeme.org.uk/
PR/Mktg Freelancer. Writer. #Neurodivergent Mom. I sell jewelry at https://www.stelladot.com/?ref=thesmileyeffect. I appreciate every order. I am in an #AutismAwareness documentary: http://bit.ly/NavigatingAutismDocTrailer #CovidIsntOver #StillMasking
Engineer & Scientist. Breaks down Covid papers and data. Does a masked fitness series.
All views expressed are my own, I speak from a US perspective.
Not a Covid researcher nor a Covid scientist.
youtube.com/@patrickthebiosteamist?si=FoWeCh6fdBWY5jEt