Deze petitie staat nu op 975 handtekeningen en stagneert erg. Er zijn natuurlijk meer dan 975 mensen en hun geliefden geschaad door CGT en GET dus TEKEN alsjeblieft en vraag je naasten ook te tekenen. www.petitie24.nl/petitie/5706...
27.02.2025 22:58 β π 1 π 0 π¬ 0 π 0
Sign the Petition
ME Association Chair Neil Riley must step down
Reminder for #pwME and allies to sign this petition. Around 300 signatures atm whereas over a 1000 people signed the previous one.
www.change.org/p/me-associa...
05.12.2024 13:19 β π 3 π 3 π¬ 0 π 0
Anyone concerned about the recent ME Association article can add their name to this excellent letter by @alexisme.bsky.social. #pwME #MECFS
18.11.2024 14:08 β π 21 π 11 π¬ 0 π 0
Any #pwME in Europe tips for OTC skin cream against itchiness and irritation? (Courtesy of being bedbound)
17.11.2024 08:36 β π 0 π 1 π¬ 1 π 0
Nederlanders met #MECVS, stuur je ervaring met CGT en/of GET in vΓ³Γ³r 1 januari. Deze zullen als zwartboek worden aangeboden aan de Tweede Kamer.
14.11.2024 13:43 β π 1 π 2 π¬ 1 π 0
Nederlanders met #MECVS, stuur je ervaring met CGT en/of GET in vΓ³Γ³r 1 januari. Deze zullen als zwartboek worden aangeboden aan de Tweede Kamer.
14.11.2024 13:43 β π 1 π 2 π¬ 1 π 0
Okay probably going to ditch the other app because of the constant onslaught on disabled and covid conscious people by so-called leftists, jeez
13.11.2024 09:55 β π 2 π 0 π¬ 0 π 0
β¦effort
07.10.2023 19:52 β π 0 π 0 π¬ 0 π 0
I couldnβt find a setting to make the font smaller, is there none or is it brainfog?
Swiping here takes me much more than on the other app
07.10.2023 19:51 β π 1 π 0 π¬ 1 π 0
Hello! We're so glad that you've joined us here. If you're new to us, we are Open Medicine Foundation (OMF). We're driving ME/CFS and Long COVID research forward with the end goal of finding effective treatments and a cure. Learn more about us at www.omf.ngo.
04.10.2023 18:10 β π 71 π 30 π¬ 4 π 4
Oh god I should have been able to figure that out myself⦠thank you
04.10.2023 11:22 β π 1 π 0 π¬ 1 π 0
Imperfecte deugkneus. Helaas met ME/LongCovid. Probeert Covid dus nog steeds te ontlopen. Steekt veel energie in het minder gebruiken ervan.
Severe ME | Activism from bed | Small joys
She/her
Severe M.E./LC having creature in a room somewhere in the Netherlands
They/them
Ready to Return to the Woods. And to my art and writing.
Be kind
Be rational
Protect democracy
Govern AGI
Cure ME/CFS & Long Covid
Iβm trying to make this a public health account
#longcovid #pots #pais
#feminist #pvdd
#schrijver #lezer
#misthetbos
Had pech, werd ziek, leven weg (sinds 2009) | Bedgebonden door zeer ernstige ME, POTS, LongCovid, Lyme, CCI | Columniste | Insta: @bentealinda | Strooi met schrijfsels en vooral veel liefdeπ«ΆπΌβ΄
Dutch. Bedbound with severe ME. Trying to find my way back to life.
π¨π¦Just a chronically ill East Coast girl with a sailor mouth. #NB
History/Science/Politics/Gaming/Movies/ #Leafs Hockey/Creator/Cat Rescuer
Leukaemia cancer survivor!
Anti-fascist/Anti-disinfo activist.
Battling #LongCovid since March 2022
#MCAS
#POTS
β
Platform voor mensen met Myalgische Encefalomyelitis, hun familie, vrienden, verzorgers & geΓ―nteresseerden.
https://mecentraal.wordpress.com
https://www.facebook.com/MECentraal
mecentraal@gmail.com
Biomedical engineer, mathematician, equestrian, thru-hiker and generally outdoorsy - now 99% bedbound with #severeME. I like posts on science, literature, world history and art.
Former mathematician. Life came to a sudden halt due to #LongCovid/ME, tweets in Dutch and English.
@LongCovidNL.
Ex ambulanceverpleegkundige. Nu helaas afgekeurd ivm LC
ME al 60 jaar, OI en DVN patiΓ«nt. Partner met MS.
Life on hold since 2021 #LongCovid #POTS #ME
Psychologist for 25 years CBT, EMDR, ACT.
Here to advocate for biomedical research & treatment #PAIS #IACC.
Painfully aware of the harm that was done by my profession to PAIS patients.
Living in the Netherlands. M.E. since 2019. Here to connect with the ME folks and researchers. english, dutch and turkish
Long Covid since feb '21.
Soms is er een aanpassing nodig voor gelijke behandeling! | Op wielen! π¦Ό | Awareness is the key to change!π | 28 jaar | Geeft niet op! πͺ| #EerlijkInkomen4All | https://noortjestrijdtdoor.wordpress.com/
aka the drag queen Leona Love/drag king Flaco Paloma. gender contrarian and all around jovial clown. organizer but not organized. anti-Zionist Jewish Nahua and disabled cutie pie
Actiegroep #MillionsMissing Holland wil betere zorg & sociale gelijkheid voor ME-patienten.