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Ros J

@flossydotscake.bsky.social

Music, art and nature is my happy place. Chronic blood cancer has changed my life in so many ways.

101 Followers  |  171 Following  |  12 Posts  |  Joined: 07.11.2024  |  1.5797

Latest posts by flossydotscake.bsky.social on Bluesky

A and B?

06.11.2025 22:56 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

53

06.09.2025 20:40 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Also, don’t let nausea take hold, get meds and try to control before it gets bad.

05.05.2025 21:53 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

How long ago was sct? Typically taste is changed, and nausea can be an issue. Keep hydrated and eat whatever foods you like for a few months until things settle. Move around for small amounts frequently rather than a walk if walking is difficult. Anything seems wrong, check with his treatment team.

05.05.2025 21:52 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Preview
a young boy is covering his face with his hands while sitting on a bed . ALT: a young boy is covering his face with his hands while sitting on a bed .
02.05.2025 22:53 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I had a stem cell transplant in Jan 22. I was very scared leading up to it reading people’s experiences. I got lucky, no major issues and out of hospital in 13 days. Make sure hubby sucks on ice before,during and after the melphalan to reduce mucositis. Drink plenty of water/fluids.

05.01.2025 21:02 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

I’m living with multiple myeloma, favourite icecream flavour would be salted caramel. Best thing this year is the trial I’m on (Linker) is going really well, thought I was β€œcircling the drain” in August. I’m about to move to a new place with my adult kids tomorrow, just as fabulous!

05.12.2024 04:21 β€” πŸ‘ 10    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

Dormant until it gathers enough cells to be active on tests again. If you’re one of the lucky ones it stays at low levels for a long time. I’ve been on active treatment or maintenance since diagnosis for over 3 years, on my third line of treatment, never experienced a period of dormancy.

25.11.2024 19:56 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I am, thanks! Everything crossed for a great recovery for you.

22.11.2024 05:49 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

I’ve had one, I remember the real fear beforehand. I kept telling myself they wouldn’t do it unless they thought it would work. Some really hard days around day 8-12 for me, but I got there. Wishing you all the best.

22.11.2024 05:41 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Beautiful

10.11.2024 08:53 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

Beetle in the morning sun

08.11.2024 22:23 β€” πŸ‘ 9    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

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