Gary Robinson

And there are plenty of people in far worse shape who would like to have my level of (in)activity 😔

I hope those other non-cardio exercises are of benefit to you anyway.

I can do about 4500 steps a day now when not crashed. Had been doing maybe 6000 in the year before crashing.

Oh I wouldn't be able to do any gym classes! I was able to do some very mild strength training at home in December but overdid it and wrecked my thighs. Since then, I can walk less.

Thanks Rose. Going to try PR Lotion and a magnesium muscle spray. Hope you're managing the ME as well as possible 💪🍀

Has anyone with #LongCovid #MECFS got recommendations specifically for muscle pain/weakness/stiffness in PEM? Currently taking Mg, taurine, glycine, creatine (20g), ALA, CoQ10, dichloroacetate, quercetin, l-glutathione, NAC, B1, B2, C, D3, PureGenomics UltraMultivitamin. Thanks

Hi there. Is this only for people in the US?

Does anyone know of providers treating CCI non-surgically in or near NYC/Brooklyn?

PT, PRP injections, etc all very welcome. #LongCovid #mespine

I am curious to know if any #pwME or #LongCOVID have tried whole-body red-light therapy, and found it helpful for symptoms? There's a place near me that does it relatively affordably (for sports recovery/beauty) but I have been thinking about giving it a go? #MECFS

Hi. Is this only open to people living in the UK?

The Cambridge Global Handbook of Financial Infrastructure Cambridge Core - Finance and Accountancy - The Cambridge Global Handbook of Financial Infrastructure

Thrilled to share that the Cambridge Global Handbook of Financial Infrastructure, co-edited with Malcolm Campbell-Verduyn and Barbara Brandl, has been published!

You can find all chapters open access: doi.org/10.1017/9781...

We’re recruiting a fixed term (3 years) researcher in clinical exercise science and Long COVID. If you want to join a team that is at the forefront of the pathophysiology/lived experience research then please get in touch.

Please share with your network!

www.derby.ac.uk/jobs/current...

Sorry to read all this 😔. I hope this latest chapter in the neverending saga of medical shiteness passes quickly and as painlessly as possible. Miaow✌️

A few links below on involving patients in research, in case they're of use. Cheers

* mh.bmj.com/content/51/1...
* www.nature.com/articles/s41...
* researchinvolvement.biomedcentral.com/articles/10....
* normalness.com/2023/12/15/t...

Ah, pity.

A 60-min video interview in one go may be too much for some patients (I couldn't do it without symptom exacerbation) and so might limit your pool of respondents. Apologies for that unsolicited advice, especially if you've already considered that. Good luck with the study!

Have you tried rapamycin for #longcovid or #mecfs? I'm writing a story for The Sick Times. Get in touch Felicity.nelson@frogsandstars.com

Hi. Is your study only open to people in the US? Thanks

A Failure to Convalesce An interminable struggle to put on a jumper.

'...it’s like waking up in a suit of medieval armour after a night on the mead'.

Really well written piece on #LongCovid

www.the-fence.com/a-failure-to...

YouTube video by Renegade Research Renegade Research Roundtable - The Acid Test

Link to the video: youtu.be/6BUZtcC1Ezc?...

2 hours long though.

Not only in the brains. In the blood, I think from muscle mitochondria problems -> anaerobic metabolism. A bunch of us on LC Twitter did some self testing in 2023 for a study we called #TheAcidTest. Many of us have higher than normal levels. There was a recent presentation and video about it.

I've bought dichloroacetate from www.dcalab.com to try to reduce lactate levels. Not sure it worked but haven't tried it in a sustained manner. Also unsure about safety.

Logo for virology blog $305 0% Raised toward our $68,000 Goal 6 Donors 29 days left Project ends on May 05, at 11:59 PM PDT Project Owners Project Owner Image Give Now Trial By Error: Reporting on ME, ME/CFS, Long Covid, & so on...

Please support @davetuller1.bsky.social's important work: he has the necessary skills, knowledge & networks to be able to challenge those who promote dubious psychobabble theories & that conditions can be overcome with enough effort/discipline

crowdfund.berkeley.edu/project/46120
#MEcfs #LongCovid

Excited to share that The Cambridge Global Handbook of Financial Infrastructure, co-edited with Malcolm Campbell-Verduyn and Barbara Brandl, is on its way!

Expected publication date is May 2025.

www.cambridge.org/core/books/c...

"As usual, Zachary’s comments are easy to rebut." 🤣🤣🤣

Wow, strange how it worked less well for you after LC. Yeh, definitely interesting and also frustrating how differently people react, not only to LDN but to other stuff too.

For sure. I think I read something interesting about psychedelics potentially having a positive effect on the brain's default mode network, which is impacted in long COVID. That's what got me curious.

Hopefully some proper trials can be done to build on the anecdotal stuff.

Fantastic, thanks for sharing!

Good to read you've found something that works. Would you mind sharing a bit more of how psychedelics helped you recover? Thanks

At least (for me anyway) there was no withdrawal. The effects were gone within 24 hours of stopping without tapering. I've seen others say they had withdrawal symptoms though.