kellybergin

Quince!!

Me too!

I’m Still Standing I didn’t fall.

I'm in incredible pain. My prognosis is a year. I will spend every day in unbelievable pain until then. I wrote about why I'm enrolling in a clinical trial. I chose survival because leaving would have broken them worse than it broke me to stay. ninelivesbykpb.substack.com/p/im-still-s...

God help me, I think I’m becoming a bird person.

Same!! He read Harry Potter at 5 years old, pre JK Rowling and was horrified at the house elves treatment. Now he’s in law school at UCLA and leading protests. I’m so proud.

My Venmo is kellypatberg if you’d like to pitch in $5 for me to DoorDash myself a fucking beer. Love you. Thanks. lol kill me

Spilled a Gatorade and ruined: my phone (had to get a new one), my beloved Powerbeats Pro, my iPad’s battery, and my MacBook’s charger. One spill cost me thousands of dollars. Combine this with PMDD, grief, horrible “you’re gonna die in 5 yrs if you’re lucky” medical news and you have me right now.

Dx at 1yo w a fatal disease. I never believed it would break me until I was 25 and all the medical trauma fell on top of me. I thought that would break me. I just turned 39 (in the hospital but still alive.) the human will is inexplicable

Yes. Hugely. Written about extensively on my substack. And my Instagram @kellybergin

Writing about the 3 weeks I spent inpatient at the #NIH while they gutted funding and cut jobs including maintainence crews. Two days later, sewage started coming out of the patients’ shower drains. Including my own. I had to switch rooms mid-vomiting attack.

A nurse here at NIH heard I needed the basics as my stay is now for weeks. I’m quite ill. This angel nurse heard and went to Target on HER DAY OFF! She refuses to let me pay her back. That is beauty and empathy, things you’ll find at the National Institutes of health.

Trying to swallow with candida esophagitis is like trying to swallow knives. I head to the NIH on Sunday or else I’d go to the ER. Unfortunately NIH is so strict about IV pain meds. Candida esophagitis is horrific; I shouldn’t have to fight for minor, short comfort. We’ll see how they are Sunday.

I did enjoy The Good Fight but I don’t think I finished it. Christine Baranski is a force

I thought him and Juliana were so hot so it lost the appeal for me. lol

Serendipity How the pieces come together

Today is International Holocaust Remembrance Day. More than 90 members of my extended family were murdered. Children. Parents. Grandparents.

I'm sharing a piece I wrote in 2021. #neverforget

open.substack.com/pub/jenmen/p...

I watched it until Josh Charles left the show!

It’s so good

My mom and I are on like episode 6 and loving it. I like Matlock more but Elsbeth is such a gem too. I guess this is what happens when you age. You start to like CBS shows.

I’m babysitting till midnight and I need something to watch. I don’t like anything scary, disturbing, super serious. My fav show ever is The West Wing & unfortunately, Gilmore Girls. I love the new Matlock. And High Potential. Should I watch episode 2 of #ThePitt? Help. I can’t watch another Gilmore

I fell down 6 wooden stairs in my parents’ house today and I’m fairly certain the ring and pinky are broken. They’re so swollen. My baby toe looks like Chris Farley.

Great coping method, cuz lol

@ehahnmd.bsky.social hey, can I send you a private message? My friend’s niece just got diagnosed w osteosarcoma and starts chemo Friday at MSKCC and I told the mom that the pain team was great but I’m sure she’d be super reassured knowing I mentioned her name to you. Would so appreciate it. Thanks.

Same for many of my meds, being at patient at the NIH means they send them to me free of charge. They saved my life.

I got the Joe Joes and the peppermint chocolate covered marshmallows. Ate half of them on the half hour drive home

Currently eating Ghirardelli peppermint bark as I attempt to escape an obnoxious blood sugar low. It’s so good. Especially the ones shaped like Santa. Or maybe it’s a snowman. I ate it too fast. Now I need a trip to Trader Joe’s.

Will Mario be able to attend?

“I have never cried so much in a day,” she says every couple months now. #grief #suddendeath #67istooyoung #deadDadclub