Tired 🌈🏴‍☠️✨🔇♿🇵🇸

outside outside I'm outside! walked very slowly still dizzy
it's sunny, I need sun
completely blur sky birds etc beautiful warm sun
Shane sunlight hurts eyes and head so bad but too depressed in bed
Will try to stay out 10 minutes 🤞🏻

right after I posted that I suddenly got extremely dizzy and fell over
smacked my shoulder really hard and twisted my ankle
was so weak for about an hour I couldn't lift a cup of water without spilling it
then felt less weird and the cup became "lighter" 🤷
stupid body

used all today energy to have a wash and get dressed properly to sit outside and get sun
doing roadworks metres away 😑
nothing back from GP
still got severe burning pain in feet all the time
really shaky as well
no energy

oh yeah I found the other clown I made ages ago and just forgot I made?? (yay brain fog)
really hope j can get back to doing it again one day; there's a half-finished one in a box somewhere

can't take photos so I'll see if I took any before

thankfully wasn't bad at all. just aura and a mild pain behind eye, thank god

doing pretty bad after food
rested as much as I could but have really bad RLS (not just in legs either more like restless legs, abdomen, arm and jaw???)
so not very restful in practice
HAVE to try and have bath
don't even know how
hard to move
no choice!
submitted GP request... again 🤞🏻

okay using phone is hurting my head, Def migraine coming

wish me luck
hope everybody's doing well and enjoying sunshine if you have it ☀️

managed to borrow one from mum!

got a cuppa 👍🏻

have to try and wash pan now the.n make food
just scrambled egg I guesSO fucking TIRED, whole body hurts and burns

please send me strength and luck!

suddenly have blind spots in vision too, hopefully not a migraine coming AGAIN

like to cast a spell to ward off a migrain 😅

going to try and make cuppa
really hard to use phone
can't take photos anymore as no space (also means no emails get through, not good)
looks so nice out here hopefully I'll see a cat again one day soon 🤞🏻

had noise incident yesterday unfortunately with extremely loud bike going past my window when it was open caused severe immediate pain in my ears and hasn't subsided now the loudness is even worse. every bird sound (thru ear defenders AND earplugs is like pipes directly into my head. hurts)

first time outside I.n daytime actually sitting outside in maybe months?? can't sit up long and hard to use phone, daylight hurts because light sensitivity has got so bad. I'm outside though!!! just staying out for 2 minutes max. sun shining and there are flowers again

oh good my blood pressure machine has packed up
so there goes that

Potentially underplayed: Positive politics

Everyone I spoke to who was voting Reform gave reasons as concerns and fears of various kinds, mainly over immigration and general state of the country

The Green voters generally said they were inspired by what the party was standing for and its vision

first time "outside" (sitting in front of open kitchen door) in weeks

splitting headache, vertigo, pounding heart

weird sleep again, keep rolling onto back multiple times a night which means I stop breathing and wake up 😑

unfortunately PEM is back and bad. hard to type Wil keep it brief. severe headache and neck pain, vertigo, sore throat, burning pain in eyes and nose, chills, joint pain. feels like flu again. no help from anybody anywhere.

FYI folks with #disabilities who use Amazon wish lists

If you have any public Amazon wish lists, this is pretty urgent. I just checked my Amazon dot co dot UK lists and the deadline for UK is March 25, not February.

unfortunately I have experienced a sudden severe increase in nerve pain in my feet and hands

it's still draining for me to use screens and type so won't be here much for a while, hopefully will change 🤞🏻

update
I seriously limited screentime and made sure to just sleep whenever I felt like I needed to, regardless of the time of day and how long I'd been awake, and have seen some very minor improvements to my energy levels and ability this past week. I've been able to at least use the stairs.

My painting THE CAIRNGORMS

please can somebody send me a photo of something nice or cheerful or pretty

so it's officially impossible for me to speak to my GP

I just waited AN HOUR to speak to my GP and they refuse to use the relay service for deaf and HoH people, but I was calling to explain that I can't connect to their online service. their solution? submit an online request to let them use relay & call them back

asthma time again !

didn't sleep due to restless legs but did manage to get something to eat

opened the window, after a couple minutes he walked upstairs just to close it then went back downstairs and sprayed a load of the aerosol again

every day it's going to be like this now

yep he's done it again, guess it will be daily. had coughing and wheezing fit, had to go and open the windows and now wearing mask again. exhausted already only 9am. it's truly, honestly just patheticm what a pathetic man.

iron clinic denied my referral and told me to go private (costing at least £1000), so it's officially impossible for me to get my iron deficiency corrected

had an actual meal with meat and veggies. instantly felt slightly less dizzy and headachey 👍🏻 almost as if you're supposed to eat proper food regularly instead of sporadic snacking. but apparently that's impossible in this house.

chest still really bad after yesterday. made it downstairs again going to heat some food I found in the fridge. I am trapped