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Laura

@harmonicsoul.bsky.social

X Refugee 11/8/24. California Native. ME/CFS and Long Covid Community. Looking to reconnect with other X Refugees in chronic illness community. Please say hello and give me a follow.

1,704 Followers  |  2,600 Following  |  248 Posts  |  Joined: 09.11.2024  |  2.0366

Latest posts by harmonicsoul.bsky.social on Bluesky

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To funnyโ€ฆ please watch

09.10.2025 03:11 โ€” ๐Ÿ‘ 565    ๐Ÿ” 205    ๐Ÿ’ฌ 33    ๐Ÿ“Œ 16

@georgemonbiot.bsky.social Thank you for remembering people with ME/CFS, and for exposing the sadistic psychopath Wessley again! You are our hero. ๐Ÿ’™

08.10.2025 22:23 โ€” ๐Ÿ‘ 3    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

I think members of congress should have to comply with a work requirement to get healthcare.

02.07.2025 19:06 โ€” ๐Ÿ‘ 20943    ๐Ÿ” 4073    ๐Ÿ’ฌ 703    ๐Ÿ“Œ 213
Post image 01.07.2025 21:38 โ€” ๐Ÿ‘ 19514    ๐Ÿ” 4689    ๐Ÿ’ฌ 355    ๐Ÿ“Œ 230

I work as an elder and hospice caregiver, which I am oddly passionate about. I can love on them shamelessly and no one complains about my codependence. It's a win-win situation. 

Many of my caregiving colleagues complain about the repetitive questions and, sometimes reactions, of the elderly, especially when those patients happen to read the newspaper, especially with the current downward spiral of our country โ€” as if these people haven't lived through enough horror...

I love my dementia peeps, but sometimes wonder if there's a Guinness Book World Record for how many times an hour a dementia patient can repeat the same question โ€” it's got to be in the hundreds. At least with small children, they ask different questions. Dementia patients will get stuck on one short question and ask it until you can interrupt their train(carousel) of thought and successfully redirect their attention. That carousel is pretty manic sometimes. 

A couple days ago, I picked up my mail from the post office and drove over to the nursing home to take (let's call her "Miss Daisy") Miss Daisy out for a drive. Before we took off on our road trip, to the end of The Road and back, in our landlocked little town (Juneau, Alaska), I set my copy of The Onion down in front of her. 

Over our two-hour excursion, tiny Miss Daisy read that front page at least a dozen times and each time she would snicker, giggle, and guffaw, then put it down on the dash board and, a minute later, discover it anew. I think it was the best afternoon of my life. We don't often hear them laugh and when they do, it's the sweetest thing you've ever heard. 

...

Thank you, thank you, thank you, for the really important work all of you do. You make the world a better place.

I work as an elder and hospice caregiver, which I am oddly passionate about. I can love on them shamelessly and no one complains about my codependence. It's a win-win situation. Many of my caregiving colleagues complain about the repetitive questions and, sometimes reactions, of the elderly, especially when those patients happen to read the newspaper, especially with the current downward spiral of our country โ€” as if these people haven't lived through enough horror... I love my dementia peeps, but sometimes wonder if there's a Guinness Book World Record for how many times an hour a dementia patient can repeat the same question โ€” it's got to be in the hundreds. At least with small children, they ask different questions. Dementia patients will get stuck on one short question and ask it until you can interrupt their train(carousel) of thought and successfully redirect their attention. That carousel is pretty manic sometimes. A couple days ago, I picked up my mail from the post office and drove over to the nursing home to take (let's call her "Miss Daisy") Miss Daisy out for a drive. Before we took off on our road trip, to the end of The Road and back, in our landlocked little town (Juneau, Alaska), I set my copy of The Onion down in front of her. Over our two-hour excursion, tiny Miss Daisy read that front page at least a dozen times and each time she would snicker, giggle, and guffaw, then put it down on the dash board and, a minute later, discover it anew. I think it was the best afternoon of my life. We don't often hear them laugh and when they do, it's the sweetest thing you've ever heard. ... Thank you, thank you, thank you, for the really important work all of you do. You make the world a better place.

I got permission to share this, and I'm extremely grateful for that.

The Onion got this letter from one of our subscribers in Alaska. She works with dementia patients and decided to leave a copy in the car for each one.

This email made my year. Read it and you'll see what I mean. People are good.

01.07.2025 18:46 โ€” ๐Ÿ‘ 37268    ๐Ÿ” 6825    ๐Ÿ’ฌ 641    ๐Ÿ“Œ 507
Drunk On Patriotism!
YouTube video by Hawk's Podcasts / mdg650hawk Drunk On Patriotism!

Former Defense Intel Officer Rebekah Koffler delivers her "Drunk History" version of Trump's parade.

www.youtube.com/shorts/_-Bmh...

16.06.2025 00:43 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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โ€œNo Kingsโ€ demonstration, Ocean Beach, San Francisco

14.06.2025 18:52 โ€” ๐Ÿ‘ 24380    ๐Ÿ” 4063    ๐Ÿ’ฌ 250    ๐Ÿ“Œ 160

I'm with you. Canada should apply the law equally. Trump is a convicted Felon. If I committed a Felony, I'd be banned for life. Canada should demonstrate nobody is above the law. He could be allowed to Zoom in. So you also could mute him whenever it was appropriate. Toddlers need handling.

14.06.2025 23:58 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

I wonder if Israel's strikes on Iran today was the opening act for Trump's dictator show. Seems like they're kicking off WWIII this weekend. Then attend G7 in Canada Monday? They shouldn't let Trump into the country.

13.06.2025 02:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 2    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 0

I'm a patient w/pre-Covid ME/CFS and first wave Long Covid. In my observation, the medical community needs to be a lot more vocal against the crazies in this admin. My patient community fought Long Covid research cuts and won. Med community needs to fight these crazies along w/patients.

24.05.2025 03:25 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Hakeem Jeffries does not inspire my confidence. At all. Underscore at all.

24.05.2025 02:13 โ€” ๐Ÿ‘ 53    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Yes, we deserve to know the amount of the tax we are all paying. We also deserve to see the prices drop again when tariffs are dropped. Or Trump drops dead. Whichever comes first. We're going to have to keep boycotting these retailers if they don't do it.

30.04.2025 04:08 โ€” ๐Ÿ‘ 3    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

On the bright side, she divorced a multi-Billionaire with a nice settlement. Allowing her to do the good in the world she is driven to do, that none of the others will. It would be such a fun privilege to be able to change things in the world with that kind of money.

30.04.2025 03:50 โ€” ๐Ÿ‘ 5    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Kamala was shaped and molded as a candidate. AOC is something else entirely. She has "it" whatever "it" is. She clearly cares about everyone. Doesn't take corporate money (unlike Kamala/Dems). AOC was suppressed by elder Dems. w/ "not her turn". No more. She's showing THEM how it's done.

17.04.2025 18:40 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

If we stop paying, El Salvadore wouldn't release him. They'd kill him, if they haven't already done so. There is no way Trump or Pres of El Salvadore can afford for any of the detainees to be set free and do 60 Minutes interviews on what's happening inside CECOT.

17.04.2025 03:47 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Is this real?

17.04.2025 02:38 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Episode 1: Unveiling the Hidden World of Telepathic Communication in a Silenced Community
YouTube video by The Telepathy Tapes Episode 1: Unveiling the Hidden World of Telepathic Communication in a Silenced Community

Slightly off-thread. According to this scientist, through accidental discovery, non-verbal autistic people are exceptionally intelligent and amazingly telepathic. Utterly fascinating what they have to say, encourage a listen. www.youtube.com/watch?v=mxLp...

17.04.2025 02:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image 09.04.2025 16:23 โ€” ๐Ÿ‘ 9925    ๐Ÿ” 2900    ๐Ÿ’ฌ 493    ๐Ÿ“Œ 218

I don't think he usually ends his texts with DJT. Could it be code?

10.04.2025 04:25 โ€” ๐Ÿ‘ 3    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

This is not good news. The mentioned holdouts want even DEEPER cuts to social programs. Call your lawmakers. They're planning to decimate everything they have to in order to pass tax cuts for Billionaires and corps FOR THE NEXT 30 YEARS. They want to lock it in. Fight back!

10.04.2025 04:03 โ€” ๐Ÿ‘ 3    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

@schiff.senate.gov Your constituent here. Thanks for investigating suspected insider trading on Trump tariff manipulations. Thanks also for not being one of the 11 Dems yesterday that voted in another one of Trump's unhinged nominees. No to everything. No cooperation!

10.04.2025 03:45 โ€” ๐Ÿ‘ 3    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Yes. Save the science! Make it BETTER than NIH. We need to accelerate the science that provides real treatment to patients. As a patient with Long Covid and ME/CFS I learned NIH never wants to cure. It wants to fund slow incremental progress to legacy players. Let's disrupt science!

10.04.2025 03:20 โ€” ๐Ÿ‘ 5    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Preview
Whistleblower to allege in Congress she saw Facebook "undermine U.S. national security" Meta strongly denies Sarah Wynn-Williams' claims, which will include: "They did these things in secret to win favor with Beijing."

Today's Senate testimony of former Facebook executive Sarah-Wynn Williams, author of "Careless People". Delivers shattering revelation of compromised National Security with China through special FB AI projects intended to help China win the AI race. With your data.

www.axios.com/2025/04/09/f...

10.04.2025 03:07 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

I'm shocked event organizers haven't yet cancelled. There should be an outpouring of rage to move these events. Even if the athletes come, I don't know why the spectators would travel here. Moreover Trump will insist on being some host of honor and doesn't deserve it.

09.04.2025 03:56 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Why would we pay wages for people to screw in little screws in iPhones when we have robots to do that? ๐Ÿ™„

07.04.2025 02:45 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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San Francisco gets an A+ for presentation and form.

06.04.2025 11:34 โ€” ๐Ÿ‘ 22062    ๐Ÿ” 5042    ๐Ÿ’ฌ 286    ๐Ÿ“Œ 170

(2) ..."if I had to choose between the two illnesses I would rather have H.I.V. But C.F.S., which impacts millions of people in the US alone, has had a small fraction of the research dollars directed toward it.โ€โ€”Dr. Nancy Klimas, AIDS and CFS researcher and clinician, University of Miami (23).

05.04.2025 23:54 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Two expert opinions referring to ME/CFS (what Long Covid often turns into, and what I am referring to) (1) โ€œIn my experience, (ME/CFS) is one of the most disabling diseases that I care for, far exceeding HIV disease except for the terminal stages.โ€โ€”Dr. Daniel Peterson (22). 1/2

05.04.2025 23:52 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

I don't mean to minimize HIV. But in the US with the Billions/year in support for pwHIV, most now live pretty normal lives. While pwLC are MOSTLY too disabled to live and not sick enough to die. It's a special kind of hell and also have to advocate for ourselves bc society denies us support.

05.04.2025 23:20 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Actually that was the topic of this thread ..."someone here called me a โ€œeugenicistโ€ because I said LongCOVID is nothing like AIDS..." A faction w/in LC community arguing Long Covid is "airborne aids". Though w/HIV/AIDS most can live a normal life while pwLC cannot due to much worse disability.

05.04.2025 23:15 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

@harmonicsoul is following 17 prominent accounts