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Make Cancer Less Shitty

@cancersuckless.bsky.social

Advocate-led initiative highlighting the need to improve supportive care therapies, resources, and access. Powered by love and Napo Pharmaceuticals. #MakeCancerLessShitty

238 Followers  |  132 Following  |  38 Posts  |  Joined: 11.04.2024
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Posts by Make Cancer Less Shitty (@cancersuckless.bsky.social)

At last an advert with a more realistic portrayal of cancer patients, thank you @breastcancernow.bsky.social
Yes, we do feel awful, stressed, scared, anxious. Yes we might pretend we are okay, but we're not.
#CanSky #OncoSky #MakeCancerLessShitty

08.09.2025 10:00 β€” πŸ‘ 8    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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JJ Singleton: Why I Became an MCLS Ambassador This is "JJ Singleton: Why I Became an MCLS Ambassador" by Peter Hodge on Vimeo, the home for high quality videos and the people who love them.

"Cancer is more than just the physical part, it is the emotional and mental part too." ~ @jj5145.bsky.social on his ambassador efforts to raise awareness on the realities of cancer treatment and cancer survivorship.

#makecancerlessshitty #CanSky
makecancerlessshitty.com
vimeo.com/1077286057/5...

08.08.2025 21:10 β€” πŸ‘ 13    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Loved meeting patient advocates and sharing shirts at the @cancercaremascc.bsky.social annual meeting last month in Seattle! Excited to learn from others on ways we can collectively #MakeCancerLessShitty
@gitteilc.bsky.social
@tingtingzhang.bsky.social
#MASCC25

11.07.2025 16:53 β€” πŸ‘ 10    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

THIS! Oral mucositis is often overlooked and definitely under-addressed. Education about WHAT it is and HOW to alleviate would definitely help to #MakeCancerLessShitty

11.07.2025 16:20 β€” πŸ‘ 9    πŸ” 1    πŸ’¬ 0    πŸ“Œ 1

#MakeCancerLessShitty #Survivorship #ThanksCancer

16.06.2025 09:22 β€” πŸ‘ 6    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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πŸ‘• Headed to ASCO? Come find me if you want a #MakeCancerLessShitty t-shirt! They’re soft, expressive, and mildly therapeutic. Like a hug… but with attitude. Limited supplyβ€”like everyone’s emotional bandwidth πŸ’© #ASCO2025 #SuppOnc #SurvOnc #CancerHumor #OncoSwag @cancersuckless.bsky.social

24.05.2025 17:24 β€” πŸ‘ 14    πŸ” 6    πŸ’¬ 0    πŸ“Œ 0
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Excited that our team will be presenting at #MASCC25

Let’s make supportive care smarter, stronger, and more human 🧬 πŸ’ͺ πŸ’š

@coffeemommy.bsky.social @jj5145.bsky.social @cancersuckless.bsky.social @cancercaremascc.bsky.social #OralMucositis #MakeCancerLessShitty #PatientVoice #SuppOnc #SurvOnc

24.04.2025 15:09 β€” πŸ‘ 8    πŸ” 3    πŸ’¬ 0    πŸ“Œ 2
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We β™₯️ meeting new people who are doing amazing things to #MakeCancerLessShitty & we met plenty of fabulous humans at #ONS25 last week! We shared stories, chatted about impacts of side effects & discussed the need to improve access to quality supportive care! Looking forward to #AACR25 & #ASCO25 too!

18.04.2025 19:25 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Sure I’m happy and thankful. But cancer causes you to lose trust in your body. It takes that away from you, and you spend so much time getting it back. #Cansky

16.04.2025 17:54 β€” πŸ‘ 11    πŸ” 1    πŸ’¬ 3    πŸ“Œ 0

Stupid observations of cancer: Yes, I look healthy.
No, I don’t feel healthy.
Both can be true. Be kind.
#cansky. #oncsky

17.04.2025 16:08 β€” πŸ‘ 133    πŸ” 7    πŸ’¬ 3    πŸ“Œ 0

Stupid observations of cancer: Not having the energy to do things you really love to do… sucks.
#oncsky. #cansky

13.04.2025 12:29 β€” πŸ‘ 486    πŸ” 18    πŸ’¬ 27    πŸ“Œ 0
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Today is Oral Mucositis (OM) Awareness Day. OM is an often unseen but painful side effect of cancer treatment where large patches of sores appear all over the mouth & sometimes throat. Current #SuppOnc often fails to meet patient needs
We need to #MakeCancerLessShitty
#MoreThanASore #OMAD25 #CanSky

01.04.2025 16:05 β€” πŸ‘ 5    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Cancer treatment effects continue to kick my arse 15 years later ☹️. #PelvicRadiationDisease #damncancer

18.03.2025 10:40 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 1

@cancersuckless.bsky.social

25.03.2025 20:02 β€” πŸ‘ 5    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

Side effects and long-term effects of cancer treatment have long been minimized for those surviving cancer! The phrase "manageable & tolerable" is misleading. Just because a side effect doesn't land us in the hospital doesn't mean it's tolerable.

#MakeCancerLessShitty #SurvOnc #SuppOnc #PallOnc

18.03.2025 16:19 β€” πŸ‘ 9    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Possibly the least controversial opinion you’ll read on the Internet today.

#cansky

16.03.2025 09:49 β€” πŸ‘ 68    πŸ” 12    πŸ’¬ 2    πŸ“Œ 1

THIS.
There are the side effects that happen during treatment and then there are the side effects that "just keep on giving" πŸ˜‘
We need to #MakeCancerLessShitty by improving the access to supportive care during treatment AND post-treatment survivorship support. #SuppOnc #SurvOnc #CanSky #OncSky

17.03.2025 15:37 β€” πŸ‘ 7    πŸ” 3    πŸ’¬ 1    πŸ“Œ 0

In order to #MakeCancerLessShitty, we need to support cancer research, not slash it.

#CanSky #OncSky

13.03.2025 18:23 β€” πŸ‘ 17    πŸ” 11    πŸ’¬ 0    πŸ“Œ 0
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Managing 13 pills daily, plus as-needed meds, can be overwhelming. I number each bottle’s lid and mark as-needed ones with a ring for clarity! How do you manage your meds? Share your tips! πŸ’Šβœ¨ #makecancerlessshitty #ChronicIllnessLife #PillBoxOrganization

02.03.2025 12:36 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0

The trauma is real.

#MakeCancerLessShitty

27.02.2025 20:44 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Happy 4 Year Cancerversary to me!
Cancer has taken a lot, but it’s also given me:
πŸ„ Surfing
πŸ”οΈ Hiking the Dolomites
β›΅ Sailing in Santorini
🎀 Meeting Shania Twain (!!)
Grateful for every moment. Let’s keep making cancer less shitty. 🀍 #MakeCancerLessShitty

23.02.2025 13:35 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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How often should you poo? The ideal poo is a 'type 3' or 'type 4' – cracked or smooth sausage – delivered once per day.

www.bbc.com/future/artic... unfortunately some of us don’t have that choice πŸ’© @cancersuckless.bsky.social #makecancerlessshitty

26.02.2025 13:54 β€” πŸ‘ 5    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

@cancersuckless.bsky.social helps us acknowledge the reality of treatment an cancer care together we and others can help put a focus on mental health especially PTSD that comes with cancer and treatments and living with cancer so that nobody has to think living with PTSD from cancer is acceptable

14.02.2025 20:31 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

We concur!

#MakeCancerLessShitty #CanSky

10.02.2025 20:08 β€” πŸ‘ 5    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Cancer treatments get approved on the basis of lengthening life but the QUALITY of that life is important. We need to #MakeCancerLessShitty with improved access to effective supportive care, personalized dosing, and affordable access to quality care. #CanSky #OncSky #OncoSky #hpm #SuppOnc

07.02.2025 15:40 β€” πŸ‘ 17    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0

Oh my - we think this just needs to be shared, Tom

Cancer anxiety, the gift that keeps on giving πŸ˜‘#MakeCancerLessShitty

29.01.2025 21:58 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Lost 15lbs in a dayβ€”who needs a gym when you’ve got gut-wrenching constipation and a toilet marathon? πŸ’© Shoutout to my iron meds for the extra challenge! #toiletgains #keepinitreal #makecancerlessshitty

28.01.2025 19:35 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

The slowing or stopping of cancer research will NOT #MakeCancerLessShitty for anyone 🀬
We've seen tremendous progress with treatment efficacy & we are eager to focus on improving access to supportive care - let's not go backwards

#CanSky #OncSky #OncoSky #SuppOnc #PallOnc #hpm

27.01.2025 21:38 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

#MakeCancerLessShitty

"Life altering" for all and not just limited to an "event" for many.

Sharing the true reality of impacts, including those that persist long after treatment highlights that, as we prolong life, we need more attention to the QUALITY of life!
#CanSky #OncoSky

14.01.2025 17:30 β€” πŸ‘ 5    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0