C. V. phoenixskywind - Bluesky Statics

What are your favorite "go to"s when you are in a pain flare? Your comfort items? Your routine?

07.05.2025 12:40 — 👍 2 🔁 0 💬 0 📌 0

Blessed Beltane to those that celebrate. The halfway point between the Spring Equinox and Summer Solstice.

01.05.2025 11:10 — 👍 1 🔁 0 💬 0 📌 0

I guess I don't have to worry about much snow at home today... .

08.04.2025 12:49 — 👍 1 🔁 0 💬 0 📌 0

Some days I wish I could be her. All curled up feeling safe from the world.

08.04.2025 11:06 — 👍 1 🔁 0 💬 0 📌 0

Fill up day!

27.03.2025 14:54 — 👍 1 🔁 0 💬 0 📌 0

Not what I was expecting to wake up to, but all water is welcome. We are still in a drought in parts of New England.

25.03.2025 15:31 — 👍 2 🔁 0 💬 0 📌 0

I had to stop doing that, myself. The depression hit way too hard on me.

13.03.2025 12:37 — 👍 1 🔁 0 💬 0 📌 0

Far too many. Way too many of us.

12.03.2025 12:43 — 👍 1 🔁 0 💬 1 📌 0

My kinda day..

11.03.2025 19:41 — 👍 2 🔁 0 💬 0 📌 0

All of the US, so long as weather cooperates, I will be looking for ll of these.

11.03.2025 00:28 — 👍 1 🔁 0 💬 0 📌 0

06.03.2025 20:15 — 👍 0 🔁 0 💬 0 📌 0

One of my favorite pain charts I've found to date.

02.03.2025 15:27 — 👍 1 🔁 0 💬 0 📌 0

Today's view while I'm having my infusion.

26.02.2025 15:54 — 👍 1 🔁 0 💬 0 📌 0

Bag with the heating pad, tablet, and a snack is packed. Medical Bag packed. Off for another IVIG Infusions. It will be a good day.

26.02.2025 12:44 — 👍 3 🔁 0 💬 0 📌 0

Sometimes I wish that my Uncle Phil was so alive so I could chat with him more. Too many people are gone, WAY to soon.

24.02.2025 04:45 — 👍 1 🔁 0 💬 0 📌 0

I was going every 6 weeks for mine when the clinic was still open. I hope they continue to help you.

16.02.2025 15:32 — 👍 1 🔁 0 💬 1 📌 0

Ket is awesome for CRPS. At least it was for me. I just no longer have access to that. I was able to get IVIG because of Small Fiber Neuropathy, not CRPS. I've had CRPS for 26 years. I hope it helps you. You are not alone in this fight

16.02.2025 11:14 — 👍 0 🔁 0 💬 1 📌 0

Intravenous Immunoglobulin is a treatment that involves administering purified antibodies (immunoglobulins) directly into the bloodstream through an intravenous infusion. It is used to boost the immune system and treat various conditions, including:
Autoimmune disorders, and
Immune deficiencies.

16.02.2025 02:35 — 👍 0 🔁 0 💬 1 📌 0

Hello New England. Are you ready for the storm that's brewing?

15.02.2025 02:32 — 👍 2 🔁 0 💬 0 📌 0

Insomnia blows. At least I have a lot of books to read. #ChronicallyIll #CRPS #IDT2 #Insomnia

11.02.2025 06:46 — 👍 4 🔁 0 💬 0 📌 0

I'm hoping so. This fall or next. Not sure yet.

07.02.2025 23:12 — 👍 0 🔁 0 💬 0 📌 0

Love you too.

07.02.2025 22:02 — 👍 0 🔁 0 💬 0 📌 0

I didn't post it on FB. IVIG helps with autoimmune disorders, CRPS, Neuropathy and Small Fiber Neuropathy. All of which I have. So far I can walk better than before. Its incredible.

07.02.2025 21:48 — 👍 4 🔁 0 💬 2 📌 0

It's ok Twinnie. It's helping

07.02.2025 21:38 — 👍 1 🔁 0 💬 2 📌 0