Alan Carson

That and the modern journalists problem with false equivalence equating to balance

The battle over Canada's mystery brain disease A small Canadian province feared it had a mystery neurological illness on its hands. The search for answers set off a battle for the truth.

www.bbc.co.uk/news/article.... Poor bordering on irresponsible from @bbc

At the year's end, our Edinburgh FND Research Group 2023-25 report.

A huge thank you to those who have given to us, and an update on what we've all been doing.

☑️ 2023-5 Report here - bit.ly/3KWEcpH
☑️ You can donate here - neurosymptoms.org/en/donate/

Thank you!

No.

Functional Neurological Disorder, Reframed

magazine.hms.harvard.edu/articles/fun...

Just renewed my @fndsociety.bsky.social membership!

They've done a huge amount of work over the last few years to improve research, treatment, and education for folks with FND. And there's clearly more ahead.

Check them out!

@fndsociety.bsky.social Advanced Course for the Assessment & Management of Functional Neurological Disorder is OPEN for registration & ON-DEMAND viewing of talks. Webinar on Nov 6th 9am EST @fndportal.bsky.social @jonstoneneuro.bsky.social @alancarson15.bsky.social
www.fndsociety.org/fnd-educatio...

An important study (IMO) looking at social dynamics re: FND on Twitter.

People w FND face continual attack by a variety of groups who dismiss our condition and experiences - ranging from abusive clinicians to other disabled people.

It makes it even harder to exist in public with this dx.

Not sure we need word ‘may’- the rate of diagnostic increase is biologically implausible and speaks to diagnostic practice- probably previously under disgnosed now considerably over diagnosed

An Exploration of How Functional Neurological Disorder Is Discussed on X (Twitter): Mixed Methods Study Using Social Network and Content Analysis Background: Functional neurological disorder (FND) is one of the commonest conditions in neurological practice, describing symptoms like paralysis and seizures that can be severe and disabling. It is ...

www.jmir.org/2025/1/e73439

Pleased that "Continuum" the AAN journal asked for this article on the management of functional movement disorder - coauthored with @alancarson15.bsky.social

Article paywalled but podcast is free.
Some snippets in thread🧵

Article: continuum.aan.com/doi/full/10....
Podcast: x.com/ContinuumAAN....

Finally: AI cannot do your job, but an AI salesman can 100% convince your boss to fire you and replace you with an AI that can't do your job, and when the bubble bursts, the money-hemorrhaging "foundation models" will be shut off and we'll lose the AI that can't do your job, and you will be long gone, retrained or retired or "discouraged" and out of the labor market, and no one will do your job. AI is the asbestos we are shoveling into the walls of our society and our descendants will be digging it out for generations:

This whole section really.

It was an elegant study- interesting work

Would one not antipate differences depending on system thus for vision space may be more important but say pain one might predict time??

They made a nice job of it and it is well reasoned- although part of me thinks you could have knocked out the answer in the pub before you got half way through first pint

Functional/dissociative seizures: Proposal for a new diagnostic label and definition by the ILAE task force The acceptability and validity of the term

onlinelibrary.wiley.com/doi/10.1111/...

Image description: A white and green poster for the FND Ireland Conference speakers. The text reads: "Meet Our Speakers: Dr. Caoimhe McLoughlin, Consultation-Liaison Psychiatrist Dr McLoughlin trained in Ireland in Consultation-Liaison Psychiatry, the branch of medicine that deals with conditions at the interface of body and mind. She was awarded a European Fellowship with the ETUDE program for Functional Disorders, which she recently completed in Edinburgh, under the supervision of Professors Jon Stone and Alan Carson. Her topic of study was Stigma in Functional Neurological Disorder (FND). FND Ireland Conference 2025 Date: Saturday 18th October, Location: Maldron Hotel Tallaght, Dublin." There is a headshot photo of Dr. McLoughlin in the top left of the poster. She is a person with dark hair and is wearing a yellow cardigan and black top. There is a green and orange graphic of a person's silhouette in the bottom right and a QR code to book tickets to the conference in bottom left

📢 Delighted to have Dr. Caoimhe McLoughlin speak at our
first #FNDIreland Conference on 'The Role of Neuropsychiatry in FND' and share her research on Stigma in #FND which she completed under the supervision of @jonstoneneuro.bsky.social and @alancarson15.bsky.social. 💚🧡
@fndportal.bsky.social

It’s not “dismissing” someone to give them a diagnosis of Functional Neurological Disorder.

Like all other conditions, it’s either

1. A correct dx for that person, or
2. not.

When you say “dismissing as FND,” you reveal that you think there’s a hierarchy of disorders, some more legit than others

Is it not the case that both propositions are extremes- lesion based studies clearly show some localisation but adaptations shows widespread networks- so my bet is schrodingers- you’re both simultaneously right and wrong

2 of last 3 sold out so when bookings go live later this year- get in

Effects of therapeutic interventions on long COVID: a meta-analysis of randomized controlled trials Exercise training should be prioritized for improving cardiopulmonary function and exercise capacity in Long COVID, supported by high-certainty evidence. Respiratory muscle training and PEA-LUT offer ...

www.thelancet.com/journals/ecl...

No surprises here- but good to see confirmed- what many of us who followed the evidence have been saying

Alasdair has dedicated himself to this topic for last 25 years- ghis should be cracking

Great work by veronica the app is now available - Mementum by cogniss

Maybe they could pay their fair share of taxes instead?

Absolutely- also although we live in an era of biomarkers and imaging remember the single most useful investigation in dementia is speaking to s family member

There are multiple levels of assumptions and calculations and dats fitting- none pre registered through this analysis

I ll eat humble pie when the findings are independently replicated

What an amazing opportunity! Taught by the brilliant @vaughanbell.bsky.social and free for @bnpa.bsky.social members. BNPA is a wonderful society uniting psychiatrists, neurologists, neuropsychologists, neuroscientists and psychologists. Join today

Congratulations Michael

Classifying neurogenic dysphagia as a movement disorder Swallowing is a complex sensorimotor task with widespread control throughout the nervous system. Jones et al. explore swallowing disorders in neurological

academic.oup.com/brain/advanc.... This is interesting