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CrunchME

@crunchme.bsky.social

CrunchME is a patient-led organisation, creating the evidence and insight base needed to crunch infection-associated chronic conditions (IACCs), including #MECFS and #LongCovid. 📍 https://crunchme.org/

654 Followers  |  6 Following  |  13 Posts  |  Joined: 21.11.2024  |  1.8718

Latest posts by crunchme.bsky.social on Bluesky

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This week we are highlighting 7 different clinical trials across Long COVID, ME/CFS and POTS that are ✨ recruiting participants ✨

These are happening across USA 🇺🇸, UK 🇬🇧 and Australia 🇦🇺

If you'd like to find out more, the links are here 👇

crunchme.notion.site/clinical-tri...

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As our Clinical Trials database continues to grow, we will be spotlighting some of the treatments being tested around the world, for Long COVID, ME/CFS & other IACCs 💊

Thank you to @mildtin.bsky.social, our clinical trials lead, for putting these together!

A visual thread 🧵

#MECFS #LongCovid

07.04.2025 11:44 — 👍 14    🔁 6    💬 2    📌 0
Graph showing increase

Graph showing increase

ME/CFS Publications have steadily increased for a while.

Despite this, ME is still one of if not the most underfunded common disabling illness on earth.

Source: @crunchme.bsky.social

#MEAwarenessHour

25.12.2024 20:26 — 👍 114    🔁 32    💬 1    📌 1

Currently writing a fundraising pitch for CrunchME 😀💙

@crunchme.bsky.social

#MECFS #LongCovid #IACC

30.11.2024 17:48 — 👍 17    🔁 2    💬 0    📌 1

Absolutely delighted to welcome Elisa @mildtin.bsky.social to the volunteer team @ CrunchME 🤝🙌

#MECFS #LongCovid #IACC

24.11.2024 23:49 — 👍 13    🔁 1    💬 0    📌 0

We've just added a new table to CrunchME, showing government funding and policy announcements 🏛️

(Follow @crunchme.bsky.social if you wanna)

Hopefully useful knowledge for helping to pressure governments slipping behind into action!

You can check it out here 👇

crunchme.notion.site/1462a60c4996...

23.11.2024 13:10 — 👍 12    🔁 4    💬 1    📌 0

We are now on Bluesky! 🦋

CrunchME is a patient-led project mapping the scientific, tech, advocacy and medical ecosystem around solving #MECFS, #LongCovid and other IACCs 💙

21.11.2024 16:27 — 👍 29    🔁 10    💬 2    📌 1

@crunchme is following 6 prominent accounts