VIDEO: Patients with complex post-viral illnesses encouraged to participate in research project
Posted Thu 19 Oct 2023 at 1:58amThursday 19 Oct 2023 at 1:58am
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Duration: 3 minutes 48 seconds3m 48s
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People living with chronic fatigue syndrome and long covid are being asked to join a research project aiming to boost medical understanding of the conditions.
4-minute ABC (Australia) news item on new AusMe Registry (ME/CFS and #LongCOVID).
Emerge Australia CEO, Anne Wilson, is interviewed
www.abc.net.au/news/2023-10...
#MEcfs #CFS #PwME #MyalgicE #PwLC #postcovid #postcovid19 #LC
25.10.2023 16:50 β π 7 π 3 π¬ 1 π 0
Never know when Twitter stops. Glad we can keep in touch here. I am not much online but do like to know how you are doing.
25.10.2023 16:57 β π 2 π 1 π¬ 2 π 0
Ja klopt
23.10.2023 21:02 β π 1 π 0 π¬ 1 π 0
Sometimes it can be eased a bit with the way your head is on your pillow. Or the balance of your bed. Also I use muscle and joint gel. It can be because of all the virus type that goes around now. The lymph nodes are working harder and swelling, which puts pressure on your neck, ear and jaw muscles
23.10.2023 10:27 β π 0 π 0 π¬ 0 π 0
Sorry dat ik laat reageer, ben niet zo vaak meer online ivm terug aan het werk en merendeels zelfs fulltime. Ondertussen hoofd van een buitenschoolse opvang voor basisschool kinderen. Super leuk maar ook druk. #B12injections gaven mij uiteindelijk een π nieuw leven met nieuwe mogelijkheden.
23.10.2023 10:13 β π 1 π 0 π¬ 1 π 0
@jhanne.bsky.social
Hoi ik ben hier. Gelukt
18.10.2023 18:19 β π 5 π 0 π¬ 2 π 0
Te veel thuis, thuisheksπ§ββοΈ, te vaak in bed door mitochondriale dysfunctie, breinstuk, astma, metabool syndroom met pcos, autistisch burnout, ME spoonieπ₯
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ME/CFS | Long COVID | IACC