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Less Survivable Cancers Taskforce

@lesssurvivable.bsky.social

We are the Less Survivable Cancers Taskforce, made up of: @ActionHeartburn, @BrainTumourOrg, @GutsCharityUK, @LiverTrust, @Roy_Castle_Lung and @PancreaticCanUK.

86 Followers  |  54 Following  |  1,044 Posts  |  Joined: 02.12.2024  |  1.502

Latest posts by lesssurvivable.bsky.social on Bluesky

Thank you to all the Chairs and secretariats for their valuable contributions. This is the beginning of stronger cross cancer APPG collaboration.

19.11.2025 15:25 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

πŸ”Ή The APPG on Genetic, Rare and Undiagnosed Conditions, chaired by Peter Dowd MP
πŸ”Ή The APPG on Children, Teenagers and Young Adults with Cancer; chaired by @richardquigley.bsky.social
πŸ”Ή The APPG on Prostate Cancer; represented by the secretariat - David James

19.11.2025 15:25 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

APPGs and Chairs in attendance included:
πŸ”Ή The APPG on Brain Tumours, chaired by Siobhain McDonagh MP
πŸ”Ή The APPG on Breast Cancer, chaired by @clivejonesmp.bsky.social
πŸ”Ή The APPG on Liver Disease and Liver Cancer, Co-chaired by Lorraine Beavers MP and Rebecca Cooper MP

19.11.2025 15:25 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

The meeting explored where priorities aligned and how they could strengthen their collective impact, particularly ahead of the National Cancer Plan.

19.11.2025 15:25 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Yesterday, the APPG on Less Survivable Cancers convened a joint meeting with other cancer APPGs.

Thank you to the Chair of the APPG on Less Survivable cancers Dr @paulettehamiltonmp.bsky.social, and Vice-Chair @charliemaynard.bsky.social
for skilfully leading the meeting.

19.11.2025 15:25 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Article reveals the NHS failing to hit crucial cancer diagnosis and treatment time targets.

We continue to encourage the government and the NHS to put less survivable cancers at the forefront of their plans as they work to improve these wait times.

πŸ‘‰ bit.ly/NHSTrustsDai...

18.11.2025 09:55 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The horrifyingly subtle symptoms of UK’s β€˜fastest rising cancer’ you might mistake for flu – as deaths surge 41% | Less Survivable Cancers Taskforce New figures released this month by the Office for National Statistics show a stark rise in liver cancer deaths, prompting Liver Cancer UK, part of the The British Liver Trust, to call for urgent publi...

New figures released this month by the Office for National Statistics show a stark rise in liver cancer deaths, prompting Liver Cancer UK, part of the @britishlivertrust.bsky.social, to call for urgent public health action. Read more following the link below πŸ”—πŸ‘‡
www.linkedin.com/feed/update/...

29.10.2025 12:07 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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NHS England Β» Radical NHS reset to give patients faster care | Less Survivable Cancers Taskforce NHS England announced last week plans toΒ deliver faster care for millions of patients as part of the β€œmost radical reset of the NHS in a generation".Β  Β  Ensuring fast access to treatment is vital for ...

@england.nhs.uk's announcement to deliver faster care for millions of patients, marks a positive step forward. However we must ensure that the upcoming National Cancer Plan addresses the varied systemic challenges impacting LSCs. Read our full statementπŸ‘‡πŸ”—
shorturl.at/cJnog

27.10.2025 10:22 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Sign the Petition Implement annual hereditary risk reviews on NHS

Rachel’s Rule seeks to prevent people with complex cancer histories from slipping through the gaps by ensuring annual hereditary risk reviews within the NHS. You can read the full proposal and support the petition here ⬇️
www.change.org/RachelsRule

13.10.2025 09:34 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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October is #LiverCancerAwarenessMonth. 17 people in the UK are diagnosed with #LiverCancer every day.
Early diagnosis saves lives, so this month is an important opportunity to raise awareness. @britishlivertrust.bsky.social Find out more hereπŸ‘‡
livercanceruk.org/liver-cancer-awareness-month

06.10.2025 08:53 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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October is #LiverCancerAwarenessMonth, please join us to raise awareness of this often overlooked disease - the fastest growing cause of cancer death in the UK.

From ordering posters, to hosting a coffee morning, there are loads of ways to raise awareness: livercanceruk.org/liver-cancer...

01.10.2025 09:57 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Three in four English hospitals failing to hit two cancer targets in league tables Exclusive: Cancer experts declare β€˜national emergency’ as hospitals miss targets on diagnosis and starting treatment

Today's article by The Guardian shows three in four English hospitals are failing to hit two cancer targets in league tables. Alfie Bailey-Bearfield, the interim chair of the Taskforce, said treatment delays were unacceptable. Read Alfie's full response β¬‡οΈπŸ”—
shorturl.at/Ynm2Z

15.09.2025 08:33 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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On behalf of the APPG on Less Survivable Cancers, please find below its latest newsletter. πŸ“°Visit the APPG website for further information and updates.πŸ”—βž‘οΈ shorturl.at/xgdlH

04.09.2025 14:59 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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"Only then can we improve survival rates for people facing these devastating diseases."
Read our full statement on why we're joining the #OneCancerVoice in urging the government to deliver a National Cancer Plan that meets our collective six tests here ➑️ shorturl.at/LQfzK

27.08.2025 15:48 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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The recent Less Survivable Cancers APPG report highlighted the difficulty in diagnosing and detecting less survivable cancers early. Read our recommendations to the Government on addressing this and more in the full report here: shorturl.at/c3c4Z

19.08.2025 16:07 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

"Extending the opening hours of Community Diagnostic Centres is a vital step forwards for diagnosing a variety of conditions, including cancer - the leading cause of death from disease in this country." Read our full statement ➑️ shorturl.at/tX5jL

18.08.2025 13:22 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 1
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A new study by the London School of Hygiene and Tropical Medicine, U. | Less Survivable Cancers Taskforce A new study by the London School of Hygiene and Tropical Medicine, U. of London reveals further evidence of the disparity of survival rates between cancer types, including little improvements for some...

A new study from @lshtm.bsky.social highlights the disparity of survival rates between cancer types, including less survivable cancers. β€œThe National Cancer Plan must… make meaningful strides in improving outcomes for all patients.” Read our full statement here ➑️ shorturl.at/JFlFb

13.08.2025 14:05 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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August is Gastroparesis Awareness Month, a condition impacting the stomach. A side effect of many of the cancers we represent, it is important to raise awareness about this condition. Head to @gutscharityuk.bsky.social and their website to learn more ➑ shorturl.at/toVKk

12.08.2025 12:48 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The past few weeks have been busy for the Taskforce with key policy developments occurring and a significant positive win in Wales. Throughout it all we remain dedicated to continuing our work to advocate for better outcomes for people with less survivable cancers. #lesssurvivable

07.08.2025 12:37 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Today marks the start of Gastroparesis Awareness Month πŸ’š

Find out more about gastroparesis via the link here: https://ow.ly/2Oeb50WxSOU (🧡1/5)

01.08.2025 10:03 β€” πŸ‘ 1    πŸ” 2    πŸ’¬ 1    πŸ“Œ 0
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This year the APPG on Less Survivable Cancers produced a powerful report looking into earlier detection and faster diagnosis. It contains key recommendations to the Government on improving outcomes. To read the full report click here ➑️https://lesssurvivablecancers.org.uk/news/

31.07.2025 14:46 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Only 16% of people diagnosed with some of the less survivable cancers survive beyond 5 years. The #RareCancersBill is a unique opportunity to tackle this and more. We are pleased to have supported this Bill throughout its journey and will continue to do so as it progresses.

29.07.2025 10:56 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Living with a health condition, or caring for someone who does, can be challenging. On #InternationalSelfCareDay, and every day, it's worth remembering that it's OK to take a moment for yourself if you need to.

And remember, we're here for you if you want to talk: ow.ly/EkLp50Wuzhw

24.07.2025 11:43 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

The Rare Cancers Bill has passed its third reading in Parliament. πŸŽ‰ We will continue to support the Bill as it progresses through the next stages of the legislative process. Read our statement ➑️https://shorturl.at/ZPxth

11.07.2025 16:31 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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As mentioned by Gregory Stafford MP, only 16% people diagnosed with some of the less survivable cancers survive beyond 5 years, in comparison to over 55% for more common cancers. The #RareCancersBill is a unique opportunity to improve survival rates.

11.07.2025 13:30 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 1
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Big thanks to Gregory Stafford MP for highlighting the importance of the Rare Cancers Bill in improving earlier diagnosis for the less survivable cancers. #RareCancersBill

11.07.2025 13:13 β€” πŸ‘ 5    πŸ” 2    πŸ’¬ 1    πŸ“Œ 0

We thank the Prime Minister for sharing his personal story of supporting his brother through stage four lung cancer. Sharing stories like this helps break the silence and fuels the urgency for action to change the outcomes for people with less survivable cancers.

11.07.2025 08:17 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The Taskforce supports the Rare Cancers Bill. The Bill reaches its 3rd reading in Parliament tomorrow, Friday 12 July and we need at least 40 MPs in Westminster to ensure it progresses.
πŸ‘‰ We are calling on all MPs to attend and support the Bill.

10.07.2025 13:36 β€” πŸ‘ 5    πŸ” 4    πŸ’¬ 0    πŸ“Œ 1

As the Less Survivable Cancers Taskforce, we warmly welcome the government's commitment to deliver neighbourhood health services in the most deprived areas of the country, where life expectancy is lowest, and where people often face the greatest barriers to care. #10YearPlan

10.07.2025 08:07 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

The Taskforce welcomes news today that an important diagnostic test for oesophageal cancer is going to be piloted for use in pharmacies. Read our recommendations for improving early diagnosis➑️https://shorturl.at/SENvp

09.07.2025 14:05 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

@lesssurvivable is following 17 prominent accounts