International Journal of Population Data Science (IJPDS)

How do people feel about research studies using their personal data from government-held records? Early Life Cohort Feasibility Study (ELC-FS) findings are positive, paving the way for a UK-wide study involving 30,000 families with children born in 2026 https://ijpds.org/news/4-12-25-elc-fs-personal-data Read the full article here https://ijpds.org/article/view/2965

How do people feel about research studies using their personal data from government-held records?

Early Life Cohort Feasibility Study (ELC-FS) findings are positive, paving the way for a UK-wide study involving 30,000 families with children born in 2026

ijpds.org/news/4-12-25...

𝟮𝟬𝟮𝟲 𝗦𝗽𝗲𝗰𝗶𝗮𝗹 𝗜𝘀𝘀𝘂𝗲: 𝗔𝗜 𝗶𝗻 𝗣𝗼𝗽𝘂𝗹𝗮𝘁𝗶𝗼𝗻 𝗗𝗮𝘁𝗮 𝗦𝗰𝗶𝗲𝗻𝗰𝗲 We are excited to share that IJPDS is dedicating its 2026 Special Issue to the use of AI in Population Data Science research. Stay posted - details coming soon! https://ijpds.org/user/register

𝟮𝟬𝟮𝟲 𝗦𝗽𝗲𝗰𝗶𝗮𝗹 𝗜𝘀𝘀𝘂𝗲: 𝗔𝗜 𝗶𝗻 𝗣𝗼𝗽𝘂𝗹𝗮𝘁𝗶𝗼𝗻 𝗗𝗮𝘁𝗮 𝗦𝗰𝗶𝗲𝗻𝗰𝗲

We are excited to share that IJPDS is dedicating its 2026 Special Issue to the use of AI in Population Data Science research.

𝗦𝘂𝗯𝘀𝗰𝗿𝗶𝗯𝗲 𝘁𝗼 𝗜𝗝𝗣𝗗𝗦 and we'll make sure that you'll be the first to know when this call opens! ijpds.org/user/register

New data resource supports research into vulnerable children in Northern Ireland Introducing the Social Services Client Administration and Retrieval Environment (SOSCARE) dataset, the most comprehensive source of info on vulnerable children in NI. READ: https://ijpds.org/news/03-12-25-vulnerable-children-northern-ireland Read the full open access article here: https://ijpds.org/article/view/3138

New data resource supports research into vulnerable children in Northern Ireland

Introducing the Social Services Client Administration and Retrieval Environment (SOSCARE) dataset, the most comprehensive source of info on vulnerable children in NI.

READ: ijpds.org/news/03-12-2...

A New Index Reveals How Healthy Habits Differ Across the Italian Population The Healthy Lifestyle Composite Index (HLCI) can design targeted health promotion strategies and identify groups at greatest risk of chronic diseases. Find out more here: https://ijpds.org/news/1-12-25-italian-health Read the full open access article here https://ijpds.org/article/view/2977/

A New Index Reveals How Healthy Habits Differ Across the Italian Population

The Healthy Lifestyle Composite Index (HLCI) can design targeted health promotion strategies and identify groups at greatest risk of chronic diseases.

Find out more here: ijpds.org/news/1-12-25...

A new UK-wide consultation reveals public views on synthetic data and its role in research with 10 recommendations for organisations who create and share synthetic datasets. Listening to the Public: UK-wide Consultation Explores views on Synthetic Data https://ijpds.org/news/27-11-25-synthetic-data Read the full article here https://ijpds.org/article/view/2962

A new UK-wide consultation reveals public views on synthetic data and its role in research with 10 recommendations for organisations who create and share synthetic datasets.

Read 'Listening to the Public: UK-wide Consultation Explores views on Synthetic Data' in IJPDS
ijpds.org/news/27-11-2...

𝗖𝗮𝗹𝗹 𝗖𝗹𝗼𝘀𝗶𝗻𝗴 𝗶𝗻 𝟮 𝗪𝗲𝗲𝗸𝘀

Focus: Linked Administrative Education and Health Data - Scoping International Collaborations

𝗙𝗶𝗻𝗮𝗹 𝗗𝗲𝗮𝗱𝗹𝗶𝗻𝗲 𝟭𝟮𝘁𝗵 𝗗𝗲𝗰𝗲𝗺𝗯𝗲𝗿 𝟮𝟬𝟮𝟱

𝗖𝗟𝗜𝗖𝗞 𝗛𝗘𝗥𝗘 𝗙𝗢𝗥 𝗗𝗘𝗧𝗔𝗜𝗟𝗦:
ijpds.org/calls/educat...

Results of a new study show certain personal characteristics and sub-groups of the population of Wales are disproportionately represented when combining population estimates and using Census data in data linkage population-wide studies in SAIL. READ: https://ijpds.org/article/view/2994/

Results of a new study show certain personal characteristics and sub-groups of the population of Wales are disproportionately represented when combining population estimates and using Census data in data linkage population-wide studies in SAIL.

READ: ijpds.org/article/view...

Electronic Health Records can provide reliable, up-to-date statistics about a population

Almost everyone is registered with a GP, so could health records provide up-to-date population statistics that are as reliable as the Census? We found they can! New research published today in @ijpds.bsky.social, with @popdatascisu.bsky.social & Uni of Edinburgh 📄✨ www.qmul.ac.uk/ceg/news/ite...

Revealed: the hidden differences between medicines taken during pregnancy as reported to midwives, and prescription records. Read about combining information reported to midwives and pharmacy data for a clearer picture of medication use in pregnancy https://ijpds.org/news/24-11-25-medicines-during-pregnancy Read the full article here https://ijpds.org/article/view/2910/

Revealed: the hidden differences between medicines taken during pregnancy as reported to midwives, and prescription records.

Read about combining information reported to midwives and pharmacy data for a clearer picture of medication use in pregnancy

ijpds.org/news/24-11-2...

EHRs can provide reliable, up-to-date statistics about a population A new study demonstrates that pseudonymised data from health records can be used to produce up-to-date population statistics compared to the Census and more complex linked datasets READ: https://ijpds.org/news/24-11-25-ehr Read the full open access article here https://ijpds.org/article/view/2958/

EHRs can provide reliable, up-to-date statistics about a population

A new study demonstrates that pseudonymised data from health records can be used to produce up-to-date population statistics compared to the Census and more complex linked datasets

READ: ijpds.org/news/24-11-2...

Health inequalities across Brazil highlighted by new small-area deprivation index Powerful new tool to monitor health inequalities in one of the world’s most diverse middle-income countries. 𝗙𝗶𝗻𝗱 𝗼𝘂𝘁 𝗮𝗯𝗼𝘂𝘁 𝘁𝗵𝗲 𝗜𝗕𝗣 𝗛𝗲𝗿𝗲: https://ijpds.org/news/19-11-25-iep Read the full open access article here https://ijpds.org/article/view/2974/

Health inequalities across Brazil highlighted by new small-area deprivation index

Powerful new tool to monitor health inequalities in one of the world’s most diverse middle-income countries.

𝗙𝗶𝗻𝗱 𝗼𝘂𝘁 𝗮𝗯𝗼𝘂𝘁 𝘁𝗵𝗲 𝗜𝗕𝗣 𝗛𝗲𝗿𝗲: ijpds.org/news/19-11-2...

𝗖𝗮𝗹𝗹 𝗖𝗹𝗼𝘀𝗶𝗻𝗴 𝗦𝗼𝗼𝗻 Focus: Linked Administrative Education and Health Data. Scoping International Collaborations 𝗙𝗶𝗻𝗮𝗹 𝗗𝗲𝗮𝗱𝗹𝗶𝗻𝗲 𝟭𝟮𝘁𝗵 𝗗𝗲𝗰𝗲𝗺𝗯𝗲𝗿 𝟮𝟬𝟮𝟰 𝗙𝗢𝗥 𝗙𝗨𝗟𝗟 𝗗𝗘𝗧𝗔𝗜𝗟𝗦 𝗖𝗟𝗜𝗖𝗞 𝗛𝗘𝗥𝗘 https://ijpds.org/calls/education-and-health

𝗖𝗮𝗹𝗹 𝗖𝗹𝗼𝘀𝗶𝗻𝗴 𝗦𝗼𝗼𝗻
Focus: Linked Administrative Education and Health Data. Scoping International Collaborations

𝗙𝗶𝗻𝗮𝗹 𝗗𝗲𝗮𝗱𝗹𝗶𝗻𝗲 𝟭𝟮𝘁𝗵 𝗗𝗲𝗰𝗲𝗺𝗯𝗲𝗿 𝟮𝟬𝟮𝟰

𝗙𝗢𝗥 𝗙𝗨𝗟𝗟 𝗗𝗘𝗧𝗔𝗜𝗟𝗦 𝗖𝗟𝗜𝗖𝗞 𝗛𝗘𝗥𝗘 ijpds.org/calls/educat...

From Birth to Grade 12: How Poverty Shapes Education Success Education scores of c90k children aged from 5 to 17 provides a valuable picture of how poverty impacts educational achievement - when it happens, how long it lasts and how it is measured. READ: https://ijpds.org/news/17-11-25-poverty-education or Read the full article: here https://ijpds.org/article/view/2984/

From Birth to Grade 12: How Poverty Shapes Education Success

Education scores of c90k children aged from 5 to 17 provides a valuable picture of how poverty impacts educational achievement - when it happens, how long it lasts and how it is measured.

READ: ijpds.org/news/17-11-2...

New study recommends that data providers increase endeavours to raise awareness among people whose data is being used for research in the public good, as a way to drive trustworthiness of the research process.

READ: Simplifying legislation on data use... ijpds.org/news/05-11-2...

New publication of a paper on Care-experienced young people co-producing data research to make it more relevant and impactful. Our researchers have worked with @voypic.bsky.social to produce this paper alongside the wonderful young people. @drsarahmckenna.bsky.social @aideenqub.bsky.social

Care-experienced young people work alongside researchers as equal partners to co-produce complex data-intensive research demonstrating that is not only possible, but delivers real benefits for individuals, research quality, and organisations. READ https://ijpds.org/news/04-11-25-young-people-in-care Read the full open access article here https://ijpds.org/article/view/2976/

Care-experienced young people work alongside researchers as equal partners to co-produce complex data-intensive research demonstrating that is not only possible, but delivers real benefits for individuals, research quality, and organisations.

READ ijpds.org/news/04-11-2...

@hawnnelson.bsky.social

Beyond the Poverty Line: Rethinking Material Deprivation in UK Families New study explores the basic needs for a decent life: warm clothes, healthy food, holidays, safe places for children to play and why current measures may not tell the full story READ https://ijpds.org/news/03-11-25-material-deprivation @uomsoss.bsky.social Read the full open access article here https://ijpds.org/article/view/2463

Beyond the Poverty Line: Rethinking Material Deprivation in UK Families

New study explores basic needs for a decent life: warm clothes, healthy food, holidays, safe places for children to play and why current measures may not tell the full story

READ ijpds.org/news/03-11-2...

@uomsoss.bsky.social

Using Data to Improve Psychosis Care in Ontario - Where are people diagnosed? - What health services are they using following their psychosis diagnosis? Two key questions help provide insight into how mental health services can be enhanced READ: https://ijpds.org/news/30-10-25-psycosis-care Read the full open access article here https://ijpds.org/article/view/2968/

Using Data to Improve Psychosis Care in Ontario

- Where are people diagnosed?
- What health services are they using following their psychosis diagnosis?

Two key questions help provide insight into how mental health services can be enhanced

READ: ijpds.org/news/30-10-2...

Opening up access to official data with Low Fidelity Synthetic Data (LFSD)

A new framework of 4 essential checks balances the use of LFSD whilst protecting patient confidentiality

1 Labelling
2 Structure
3 Disclosure
4 Documentation

Find Out More: ijpds.org/news/28-10-2...

@scadrdata.bsky.social

New interactive dashboard puts actionable intelligence in the hands of local leaders Find out how the new IA Data Drive helps local execs and public service leaders find the data they need to identify needs of the community and patters of service use https://ijpds.org/news/23-10-25-dashboard Read the full open access article here https://ijpds.org/article/view/2969/

New interactive dashboard puts actionable intelligence in the hands of local leaders

Find out how the new IA Data Drive helps local execs and public service leaders find the data they need to identify needs of the community and patters of service use

ijpds.org/news/23-10-2...

Drastic, lasting increase in deaths at home and more long-term conditions since Covid-19 pandemic New study investigated how the Covid-19 pandemic has affected who died at home in Scotland. Find out more here: https://ijpds.org/news/20-10-25-covid-deaths-home #PalliativeCare #EndofLife #DataLinkage Full Article Available Here: https://ijpds.org/article/view/2923/

Drastic, lasting increase in deaths at home and more long-term conditions since Covid-19 pandemic

New study investigated how the Covid-19 pandemic has affected who died at home in Scotland.

Find out more here: ijpds.org/news/20-10-2...

#PalliativeCare #EndofLife #DataLinkage

𝗖𝗮𝗹𝗹 𝗢𝗽𝗲𝗻 𝗳𝗼𝗿 𝗳𝗼𝗿 𝗔𝗯𝘀𝘁𝗿𝗮𝗰𝘁𝘀 & 𝗪𝗼𝗿𝗸𝘀𝗵𝗼𝗽𝘀 #IPDLN2026! Deadline for Submissions December 14 IPDLN Conference: July 13–16, 2026 | Erasmus University, Rotterdam Visit: https://ipdln.org/call-for-papers-international-population-data-linkage-conference-2026/

𝗖𝗮𝗹𝗹 𝗢𝗽𝗲𝗻 𝗳𝗼𝗿 𝗳𝗼𝗿 𝗔𝗯𝘀𝘁𝗿𝗮𝗰𝘁𝘀 & 𝗪𝗼𝗿𝗸𝘀𝗵𝗼𝗽𝘀 #IPDLN2026!

Deadline for Submissions December 14

IPDLN Conference: July 13–16, 2026 | Erasmus University, Rotterdam

Visit: ipdln.org/call-for-pap...

@phrn.org.au @georgeinstitute.bsky.social @adrwales.bsky.social @adr-scotland.bsky.social

𝗖𝗮𝗹𝗹 𝗢𝗽𝗲𝗻 𝗳𝗼𝗿 𝗳𝗼𝗿 𝗔𝗯𝘀𝘁𝗿𝗮𝗰𝘁𝘀 & 𝗪𝗼𝗿𝗸𝘀𝗵𝗼𝗽𝘀 #IPDLN2026! Deadline for Submissions December 14 IPDLN Conference: July 13–16, 2026 | Erasmus University, Rotterdam Visit: https://ipdln.org/call-for-papers-international-population-data-linkage-conference-2026/

𝗖𝗮𝗹𝗹 𝗢𝗽𝗲𝗻 𝗳𝗼𝗿 𝗳𝗼𝗿 𝗔𝗯𝘀𝘁𝗿𝗮𝗰𝘁𝘀 & 𝗪𝗼𝗿𝗸𝘀𝗵𝗼𝗽𝘀 #IPDLN2026!

Deadline for Submissions December 14

IPDLN Conference: July 13–16, 2026 | Erasmus University, Rotterdam

Visit: ipdln.org/call-for-pap...

@popdatascisu.bsky.social @popdatabc.bsky.social @icesontario.bsky.social @harvardepi.bsky.social

𝗖𝗮𝗹𝗹 𝗢𝗽𝗲𝗻 𝗳𝗼𝗿 𝗳𝗼𝗿 𝗔𝗯𝘀𝘁𝗿𝗮𝗰𝘁𝘀 & 𝗪𝗼𝗿𝗸𝘀𝗵𝗼𝗽𝘀 #IPDLN2026! Deadline for Submissions December 14 IPDLN Conference: July 13–16, 2026 | Erasmus University, Rotterdam Visit: https://ipdln.org/call-for-papers-international-population-data-linkage-conference-2026/

𝗖𝗮𝗹𝗹 𝗢𝗽𝗲𝗻 𝗳𝗼𝗿 𝗳𝗼𝗿 𝗔𝗯𝘀𝘁𝗿𝗮𝗰𝘁𝘀 & 𝗪𝗼𝗿𝗸𝘀𝗵𝗼𝗽𝘀 #IPDLN2026!

Deadline for Submissions December 14

IPDLN Conference: July 13–16, 2026 | Erasmus University, Rotterdam

Visit: ipdln.org/call-for-pap...

@drtomemery.bsky.social @ipdln.bsky.social @emma-gordon.bsky.social @kimmcgrail.bsky.social

Understanding mental ill-health and substance use following release from Scottish prisons RELEASE - a new dataset created to understand how people released from prison are accessing services for mental ill-health and substance use problems. Find out about RELEASE here https://ijpds.org/news/16-10-25-mental-health-release Read the ful open access article here https://ijpds.org/article/view/2971

Understanding mental ill-health and substance use following release from Scottish prisons

RELEASE - a new dataset created to understand how people released from prison are accessing services for mental ill-health and substance use problems.

Find out about RELEASE here ijpds.org/news/16-10-2...

Synthetic data: how a shared language will help advance public good research synthetic data - utility - utility measures - fidelity 4 key terms with suggested definitions & recommendations for future use may help smooth the journey for researchers READ https://ijpds.org/news/15-10-25-synthetic-data READ the full article here https://ijpds.org/article/view/2967/

Synthetic data: how a shared language will help advance public good research

synthetic data - utility - utility measures - fidelity

4 key terms with suggested definitions & recommendations for future use may help smooth the journey for researchers
ijpds.org/news/15-10-2...

@fionalw.bsky.social

The government has our data—but what data do they have and what do they use it for? Data dictionaries explain what data the government has about its citizens. Find out how they “hold promise as agents of transparency and ethical data use.” https://ijpds.org/news/13-10-25-government-data @pennsp2.bsky.social Read the full article here https://ijpds.org/article/view/2956/

The government has our data—but what data do they have and what do they use it for?

Data dictionaries explain what data the government has about its citizens. Find out how they “hold promise as agents of transparency and ethical data use.”

ijpds.org/news/13-10-2...

@pennsp2.bsky.social

The government has our data—but what data do they have and what do they use it for?

Data dictionaries explain what data the government has about its citizens. Find out how they “hold promise as agents of transparency and ethical data use.”

ijpds.org/news/13-10-2...

@pennsp2.bsky.social

NSW Ministry of Health publishes 'Using graph theory to flexibly construct patient journeys in linked healthcare data' in IJPDS This new method assists with preparing data for epidemiological research in New South Wales Full Article Available Here https://ijpds.org/article/view/2371 #NSWHealth

NSW Ministry of Health publishes 'Using graph theory to flexibly construct patient journeys in linked healthcare data' in IJPDS

This new method assists with preparing data for epidemiological research in New South Wales

Full Article Available Here ijpds.org/article/view...

#NSWHealth

IJPDS and The World Health Organization have combined forces for a Special Issue on Linked Data Across the Life Course Call for submissions is open https://ijpds.org/calls/leveraging-data-health-wellbeing Exploring how routinely collected data can be used in novel ways to improve health and wellbeing across the life course

IJPDS and The World Health Organization have combined forces for a Special Issue on Linked Data Across the Life Course

Call for submissions is open ijpds.org/calls/levera...

Exploring how routinely collected data can be used in novel ways to improve health and wellbeing across the life course