Lots of things can cause or worsen fatigue when you have a medical condition.
Make sure you talk with your healthcare team to make sure you are getting the right support..
Read our advice at https://www.sueryder.org/end-of-life-care/living-with-a-terminal-illness/managing-fatigue/
Leanne Creighton, Head of Policy, Campaigns and Public Affairs at Sue Ryder, says: This divide between the NHS and council-led social care leads to people being passed from pillar to post, without the care and support they need to manage their symptoms and live their lives well. People facing the most challenging conditions, including dementia, are often the most punished as they are forced into a system of bureaucracy, rather than one that wraps care and support around them. This system is long overdue an overhaul so it can put people ahead of processes and respect ahead of red tape.
The gap between what constitutes healthcare and social care has been rightly identified by Baroness Casey as a very real issue that causes unnecessary pain and suffering for a great many people with a terminal illness and their families.
05.03.2026 17:22 — 👍 0 🔁 0 💬 0 📌 0
You can watch it here: www.parliamentlive.tv/Event/Index/...
05.03.2026 10:13 — 👍 0 🔁 0 💬 0 📌 0Later today there's due to be a debate in Parliament on the future of palliative care, led by Rachael Maskell MP. We hope to see MPs discuss what must be addressed to improve care for people at the end of life - including tackling inequalities in access and delays in hospice care.
05.03.2026 10:13 — 👍 1 🔁 0 💬 1 📌 0
First half of quote from Sue Ryder Chief Executive James Sanderson: The absence of any big funding announcements, including for palliative care, means the Government’s plan for palliative care, its Modern Service Framework, really needs to deliver later this year. Following engagement with Sue Ryder, we’re encouraged by the direction the Government is taking and its framework has the potential to be transformative for people with a terminal illness. Without dedicated funding, however, the framework alone will be insufficient to deliver the reform required.
Quote continues: One third of the people in a hospital bed right now are in the last year of life. This places huge pressure on the NHS and most of these people would rather be receiving care at home, surrounded by the people they love. The palliative care sector could deliver that last wish for more people if the Government redirects healthcare funding, allowing us to expand the care we provide beyond hospices and into people’s homes. This Government has shown the value it places in palliative care with grants, but one-off payments won’t facilitate the new models of care needed to meet the rising and increasingly complex demand for care.
The Government’s Modern Service Framework for palliative care must be resourced so that palliative care can reach everyone who needs it.
Read our Chief Executive, @jamescsanderson.bsky.social's response here:
Today’s Spring Statement focused on the economy, with funding decisions due to be announced in the Autumn Budget.
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Hello Michael, I'm sorry to hear Boxmove were unable to collect your furniture on this occasion, and for the inconvenience caused. If you'd like to raise a complaint, please fill in our form at sueryder.org/feedback
Best wishes, Rowan
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We’re one of 10 UK charities who’ve made it as finalists for the Slater and Gordon Charity of the Year award.
https://forms.office.com/pages/responsepage.aspx?id=Sdumegk7TUy-Aptv7UCRmYHAnRkxle5Ht8TX-zUMfkFUOVExMElJNjVaM1c1U0RRMElLQ05ETFlFOC4u&route=shorturl
Run the Great North Run for Sue Ryder and we’ll be with you every step of the way.
Join us on Sunday, 13th September to take on the world's biggest and best half marathon!
Learn more: sueryder.org/get-involved/fundraise-for-us/events/great-north-run/
Text graphic with blue text on a white background, stating: "29% of adults in the UK delayed intimacy because they worried about how others would perceive them." The corners feature a purple circle in the top right and a pink semi-circle in the bottom left.
Illustration of a person sitting with hands on their head. Below, blue text on a white background reads, "59% felt pressure to follow an invisible timeline for dating or intimacy after bereavement."
This may be the month of love, but it can be hard to find a path to love and intimacy after your partner has died.
We have a guide on love after loss at sueryder.org/blog/love-after-loss-dating-reconnecting-after-partner-death/
At Sue Ryder, we want care models that meet these challenges and ensure everyone receives high-quality PEoLC. www.sueryder.org/blog/problem...
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The response strengthens the Government’s commitment to a Modern Service Framework for Palliative and End of Life Care, helping services meet rising and more complex demand. 2/3
19.02.2026 17:29 — 👍 0 🔁 0 💬 1 📌 0
Today, the Government has accepted almost all recommendations from the Health and Social Care Committee report on palliative care, which highlighted gaps in access, quality, workforce pressures and data.
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Text says: With a 55% increase in demand for palliative care expected by 2031, the sector must be ready for the future and find innovative ways to meet the challenges facing society today. Background has abstract shapes in blue and green.
Across the UK, palliative and end‑of‑life care is under real pressure, but the challenge goes beyond lack of money and hospice beds.
Read our latest blog from Chief Executive @jamescsanderson.bsky.social who shares thoughts on the debate and how the sector can adapt sueryder.org/FebBlog
Read the research on the Marie Curie website: www.mariecurie.org.uk/get-involved...
16.02.2026 10:53 — 👍 0 🔁 0 💬 0 📌 0
At Sue Ryder, we believe everyone should have access to high-quality palliative and end-of-life care. No exceptions. We’ve set out what that looks like and how it can be achieved in our blog: www.sueryder.org/blog/assiste...
16.02.2026 10:53 — 👍 0 🔁 0 💬 1 📌 0
Quote from Sue Ryder Chief Executive, James Sanderson: "We welcome this piece of research from Marie Curie. How we die matters, but most of us don't think about it until it happens to someone we know. None of us want our loved ones to die in a hospital corridor or in the back of an ambulance. The memories we make once we know that someone we love is dying should be treasured and that time should be filled with love."
Continued quote from Sue Ryder Chief Executive, James Sanderson: "To think instead that people are experiencing pain, trauma and guilt is extremely distressing. This reality is happening to too many people. Enough people to fill Wembley Stadium nearly twice over, every year. This is something our government and our sector cannot tolerate any longer. If the Government's plan for end-of-life care, its Modern Service Framework, is shaped in partnership with the palliative care sector, then collectively I believe we can change this. Death deserves better."
We welcome new research published today by
@mariecurieuk.bsky.social which shows that almost 1 in 3 people in England are dying without the care they need – that’s around 170,000 people each year. This is unacceptable. Our Chief Executive @jamescsanderson.bsky.social responds to this new research:
Illustration of two people exchanging a large heart, with the text "Grief is hard. Remember to be loving and kind to yourself today." in blue letters above them. The background features abstract pink and orange shapes.
Facing Valentine’s Day after the death of your partner can be so painful. If you are struggling, we have advice on how to cope without your person today: sueryder.org/grief-support/helping-you-cope-with-grief/grieving-on-special-occasions/your-first-valentines-day-after-the-death-of-a-loved-one/
14.02.2026 08:30 — 👍 1 🔁 0 💬 0 📌 0
Our Clinical Director of Grief and Bereavement, Bianca Neumann, shares advice on how to navigate dating after loss in today's @the-independent.com.
www.independent.co.uk/life-style/p...
This partnership is an important step forward for our teams and in our commitment to ensuring everyone has access to the expert care they deserve at the end of life.
12.02.2026 11:42 — 👍 0 🔁 0 💬 0 📌 0Heidi’s AI clinical scribe, recently included on the new NHS‑approved Ambient Voice Technology list, is already supporting clinicians across the NHS. We're proud to bring this innovation to palliative and end-of-life settings, where time and human connection are vital.
12.02.2026 11:42 — 👍 0 🔁 0 💬 1 📌 0The rollout has been made possible by Government funding and will be one of the most significant introductions of clinical AI in UK hospice care to date.
12.02.2026 11:42 — 👍 0 🔁 0 💬 1 📌 0More than 630 clinicians working in our hospices and community services will begin using Heidi’s AI clinical scribe to reduce administrative burden and give teams more time to focus on what matters most - providing personalised, expert care for the people we support.
12.02.2026 11:42 — 👍 0 🔁 0 💬 1 📌 0
Quote from Melanie Craig, COO at Sue Ryder: Palliative and end-of-life care clinicians are under huge pressure, balancing complex care with rising demand and limited resources. We cannot afford for their time to be swallowed up by admin. Partnering with Heidi will help us give precious time back to the bedside while modernising how we work across our community services and inpatient settings.
Quote from Melanie Craig, COO at Sue Ryder: We will be working closely with our clinical teams as we roll out Heidi so that the technology genuinely reflects the realities of palliative and end-of-life care, both at home and in our hospices. If we can show that AI, used safely and thoughtfully, improves both the care we provide and the experience of our staff, we hope it will give other hospices the confidence to follow
We’re pleased to share that Sue Ryder has entered a five-year partnership with Heidi, to bring clinical AI into hospice and end-of-life care across the UK.
@jamescsanderson.bsky.social @skinnock.bsky.social
National palliative and end-of-life care charity Sue Ryder has partnered with Heidi, an AI-powered medical scribe company, to bring clinical AI into its community services and hospices.
www.digitalhealth.net/2026/02/sue-...
Image with text which reads: Sue Ryder welcomes the Care Quality Commission's apology and upgrade to Wheatfields Hospice's rating. Quote from James Sanderson, Sue Ryder Chief Executive: "The incorrect rating caused distress to our patients, our clinical teams, the healthcare professionals we work alongside, our supporters and volunteers. I want to thank our supporters for continuing to believe in us throughout this period, which has been really appreciated by our teams in the hospice."
Continued quote from James Sanderson, Chief Executive at Sue Ryder: "I also want to thank our clinical teams at Wheatfields for the huge amount of professionalism and dedication they have shown throughout this difficult time. Sue Ryder Wheatfields Hospice is now focused on moving forward, restoring confidence, and working with the CQC and our partners to continue our vital work caring for the people of Leeds."
Sue Ryder has welcomed news that the Care Quality Commission (CQC) has upgraded its care rating for Sue Ryder Wheatfields Hospice.
Read the full quote from our Chief Executive, @jamescsanderson.bsky.social, on our website sueryder.org/WheatfieldsUpdate
Some grief days can be harder than others. Maybe it’s a special occasion, or maybe there seems to be no reason why. Our Assistant Director of Bereavement, Bianca Neumann, has ideas that can help you cope at: https://griefguide.sueryder.org/support/coping-with-bereavement/griefy-days-coping-tips/
11.02.2026 08:31 — 👍 1 🔁 0 💬 0 📌 0
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Can you help us understand how people start conversations about their end-of-life wishes with those they love by completing this short survey?
https://6280rqjupz9.eu.typeform.com/to/yWsDI9Jt
Valentine’s Day and the lead-up can bring up a lot of different feelings when you are grieving. Give yourself permission to take time to look after yourself.
Would you like to talk about your person? If you’d like to, please share their name and a favourite memory below 💙
Thanks for stopping by! 🙌💙
05.02.2026 09:18 — 👍 1 🔁 0 💬 0 📌 1
