I haven't posted on here for a while....so here's a quick update... loads of stuff happened and as a result...Im now officially attempting the #worldrecord for completing a marathon on my crutches and one leg for #BCRT👇
www.justgiving.com\page\lloydymarathon2
Child wearing a black Nike jacket and gray Adidas beanie holding a metal cup against a green background with a gold ribbon symbol for Childhood Cancer Awareness Month.
It’s #ChildhoodCancerAwarenessMonth 🎗️
Each year in the UK, around 70 children are diagnosed with primary bone cancer — enduring decades-old treatment and low survival rates.
Help raise awareness so no family faces it alone 🧡
Visit: ow.ly/9mAn50WLTNE
#CCAM25 #UntilTheresACure
Scientist wearing a lab coat and gloves using a pipette to transfer liquid samples inside a sterile biosafety cabinet.
Laboratory research can feel removed from patient care.
Dr Lucas Souza found connection through our Patient and Public Involvement Panel (PPIP) 🤝
Learn more in our latest Impact Report: ow.ly/2ByG50WCGPk
#Research #UntilTheresACure
A person smiles at the camera, she has long dark curly hair and is sat in a grass field.
@newcastleuni.bsky.social medical student Saanvi completed the National Sarcoma Awareness Project (NSAP) in 2024, showing why sarcomas need more attention in early training 🩺
Our award-winning programme with @sarcoma.org.uk bridges this gap.
Students & doctors, sign-up here: ow.ly/QlCe50Wr6iU
Did you hear... we're investing £800,000 into the future of Ewing sarcoma treatment 🔬
This includes Dr Jonathan Fisher's work developing new, immune-based treatments for Ewing sarcoma that has spread to the lungs.
Visit: ow.ly/bqF350Wl359
#SarcomaAwarenessMonth #Research #UntilTheresACure
Lab technician wearing gloves holding a blood sample tube with a purple cap against a background of various colored test tubes.
Could a blood test detect Ewing sarcoma relapse before it appears on scans?
A new study led by Professor McCabe @manchester.ac.uk is searching for clues that could transform patient monitoring and care 🧡
Learn more: ow.ly/uO4c50Wp4Uk
#Research #UntilTheresACure
A picture me with a Nkue BCRT hat on and my orange overalls with a WorldSBK tabard on, looking over the race track, the photo is a portrait and the track is blurred in the background.
Something I do on the weekends is marshal, the British Super Bikes, World Super Bikes, and the MotoGP... it's been a hell of a season so far, and I absolutely love it. #OrangeFamily #OrangeArmy #BSB #OneLeggedMarshal #WSBK #MotoGP
14.07.2025 20:45 — 👍 2 🔁 0 💬 0 📌 0
A collage containing three photographs of senior leadership members at CCLG: The Children & Young People's Cancer Association, Great Ormond Street Hospital Charity and the Bone Cancer Research Trust.
BREAKING: £800,000 invested in the future of Ewing sarcoma treatment.
In #SarcomaAwarenessMonth, we’re proud to fund 4 bold new projects with @cclguk.bsky.social and @greatormondst.bsky.social — bringing new hope to patients and families 🧡
Read more: ow.ly/lx1m50WkrQc
#Research #UntilTheresACure
A man smiles for a photograph in front of a bridge.
Medical students & resident doctors — bone cancer patients need YOU!
If you're passionate about oncology, join the National Sarcoma Awareness Project to help save lives 🩺
Visit: ow.ly/GlsR50Wicm1
#SarcomaAwarenessMonth #SAM2025 #Awareness #UntilTheresACure
Dr Alexander Bishop presenting on stage at the Advances in Ewing Sarcoma Research (AESR) meeting.
Keynote #2 is underway 🎙️
Dr. Alexander Bishop @nationwidekids.bsky.social discusses the biology behind therapeutic vulnerabilities in Ewing sarcoma.
#AESR #Research #UntilTheresACure
Dr Adam Shlein presenting to a room full of attendees at the AESR meeting.
Our first keynote is underway!
Dr Adam Shlien from the Hospital for Sick Children in Toronto, Canada updates on genomic and transcriptomic variability in Ewing sarcoma 🧬
#AESR #Research #UntilTheresACure
Zoe Davison from the Bone Cancer Research Trust presents to a room full of attendees to open the Advances in Ewing Sarcoma Research meeting.
Live from London!
We’re hosting the Advances in Ewing Sarcoma Research (AESR) meeting — welcoming researchers and clinicians from 23 countries to share progress, insights, and new ideas
Follow along for updates throughout the day 🧵
#AESR #Research #UntilTheresACure
A man lays in a hospital bed whilst receiving treatment for primary bone cancer. He is covered by a bedsheet and looking at the camera. Beside him reads 'Sarcoma Awareness Month' with a sunflower adorned with the Bone Cancer Research Trust 'b' logo. The full charity logo appears in the bottom left corner.
July is #SarcomaAwarenessMonth 🎗️
There are so many ways to support:
– Learn about bone sarcomas
– Share this to raise awareness
– Make a donation
– Complete the National Sarcoma Awareness Programme
– Visit Beyond Fear in #Oxford, UK
Click: ow.ly/xVXo50WhgQe
#Awareness #UntilTheresACure
On June 15th Team Clarke-Saul will be attempting the London-Brighton bike ride to raise funds for our dear Elizabeth's adamantinoma charity on what is nearly the 5th anniversary of her death. Please be generous. justgiving.com/page/jeremy-...
#adamantinoma #cancersucks @bcrt-uk.bsky.social
Sat 7th June, I will be walking Snowdon, joined by my colleagues and managers, to raise money for Bone Cancer Research Trust. We are all doing this dressed as skeletons, with various bones highlighted to represent different types of primary bone cancer.
justgiving.com/fletcherbcrt...
www.independent.co.uk/life-style/h...
A once “fit and healthy” 25-year-old woman whose lower back pain was initially misdiagnosed, died from bone cancer less than a year after a tumour was finally discovered in her pelvis.
Her sister urges others to “listen to your body” and “advocate for yourself”
Two travel cups adorned with the Bone Cancer Research Trust 'b' logo. The background shows multiple rows of burgundy hearts, akin to the Costa Coffee brand colour.
Easter Sunday, with a little extra treat for TYA patients 🍫🐰
For #TYACAM, we're offering £10 Costa Coffee vouchers to young people (13 - 25) currently in treatment or follow-up care. There's just 10 days left to get yours!
Apply today: ow.ly/wt4W50VtIwO
#EasterSunday #Support #UntilTheresACure
Sat 7th June, I will be walking Snowdon, joined by my colleagues and managers, to raise money for Bone Cancer Research Trust. We are all doing this dressed as skeletons, with various bones highlighted to represent different types of primary bone cancer. justgiving.com/page/fletche...
16.04.2025 10:58 — 👍 2 🔁 1 💬 0 📌 0So, fundraising. I've been fundraising for @bcrt-uk.bsky.social for the past couple of years, since my dad sadly passed away in November 2022 to bone cancer in his spine. I've fundraised since 2010 for various charities, but never had as much support as I've had from the team at BCRT #teambones
14.01.2025 11:07 — 👍 3 🔁 1 💬 1 📌 0
A 3D illustration of cancer cells migrating to other tissues and organs, creating metastasis. At the bottom third of the image is the Bone Cancer Research Trust logo to the left and CCLG's logo to the right.
We are proud to announce a new co-funded research project with @cclguk.bsky.social 🧪
The study, led by Dr Pardo @imperialcollegeldn.bsky.social, will replicate osteosarcoma cells travelling through the bloodstream to understand how this aggressive bone cancer spreads.
Visit: ow.ly/3vx250VACeu
It's all kicking off in just over 5 hours time! The 48hr relay for @bcrt-uk.bsky.social and the #StreamForBCRT event is so close now.
Search StreamForBCRT on Twitch and you should find whoever is live at any time, but dates/times are below. It promises to be an amazing weekend 🧡🤍💙
A young girl with long blonde hair is smiling at the camera. She is wearing a denim jacket, white top, and black trousers. She is sat in a garden egg-shaped chair drinking coffee. Two logos appear at the bottom of the photograph. To the left is the Bone Cancer Research Trust logo, and to the right is the Teenage and Young Adult Cancer Awareness Month logo.
April is Teenage and Young Adult Cancer Awareness Month 🎗️
Primary bone cancer is responsible for 16% of all cancer-related deaths in teenagers and young adults (TYAs).
Please show your support for our campaign: ow.ly/u1sz50VqAph
#TYACAM #TYACancer #UntilTheresACure
Thank you to our amazing ambassador @matt-forde.bsky.social for sharing his story in @theguardian.com to raise vital awareness of primary bone cancer and the long term effects 🧡
31.03.2025 09:32 — 👍 6 🔁 2 💬 0 📌 0
Just over a week away now from our 48hr stream relay for @BCRT as part of #StreamForBCRT - if you are a fellow streamer raising money for BCRT, please use this hashtag, and I'll be able to find and support you too!
twitch.tv/scepticalsqu...
justgiving.com/page/fletche...
#teambones
Support our PhD student Michael Dack and #TeamBones to raise money for Bone Cancer Research by running the 2025 #LondonMarathon
15.03.2025 20:44 — 👍 3 🔁 1 💬 0 📌 0
Felix is a great guy - he's helping raise money for Leeds Mind along with our friend @yorkshirebother.bsky.social, and he's also part of the stream team for the 48hr raising money for BCRT too.
Tune in to help support him tonight - I know I will be :)
I had the pleasure of spending time with James, Rachel and Miles from Hannah’s Willberry Wonder Pony Charity today, exploring how we can continue to work together to advance our shared vision for kinder and more effective treatments for #osteosarcoma patients. Watch this space. @bcrt-uk.bsky.social
14.03.2025 22:41 — 👍 3 🔁 2 💬 0 📌 0
I've sent my MP an email, it took a minute to write and send.
Please help rare cancers get the funding and awareness they need.
#RareCancersBill
#Parliament
##UntilTheresACure
Please share with your MP, and ask them to support my Rare Cancer Bill on the 14th of March.
30 cancer charities agree that it will make a difference.
(The graphic was created Georgie Maynard, a mum who has a glioblastoma brain tumour)
A quick reminder of the 48hr stream relay we will be doing over the first weekend in April, raising vital funds for @bcrt-uk.bsky.social as part of Teenage and Young Adult Cancer Awareness Month.
#teambones #tyacam #charity #fundraising #48hrs
