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PaPaCarl

@papaherz.bsky.social

I’m a Grandpa who loves his kids and grandkids and enjoys living life in Southern California. #autism #advocacy https://cureclcn6.org

2,918 Followers  |  5,333 Following  |  44 Posts  |  Joined: 12.01.2025  |  1.9505

Latest posts by papaherz.bsky.social on Bluesky

Can’t cure stupid. He can kiss his Medicaid goodbye!

22.10.2025 03:02 — 👍 1    🔁 0    💬 0    📌 0
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This is my grandson Paxton’s special ed class. This is the sublime work done by special ed teachers paid for by the federal funding the Trump Administration is cutting. Please watch.

16.10.2025 06:39 — 👍 2    🔁 0    💬 0    📌 0

Remember when America was sane? I miss those days!

24.09.2025 16:48 — 👍 2    🔁 0    💬 0    📌 0
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Donate to Help Save Paxton's Life: A Rare Genetic Battle, organized by Paul Purdy Paxton's Story: A Rare Genetic Battle Our son Paxton, recently diagnosed… Paul Purdy needs your support for Help Save Paxton's Life: A Rare Genetic Battle

gofund.me/2c2386cd0

08.09.2025 19:31 — 👍 8    🔁 1    💬 0    📌 0
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Family raises money for son's gene therapy and clinical trial to treat rare genetic mutation Paxton Purdy's parents said he has an ultra-rare neurodegenerative genetic mutation. They hope they can raise enough money to cure it and help children in similar situations.

Story about my autistic grandson, Paxton Purdy, who has a terminal genetic mutation called CLCN6. Now he’s at real risk of losing grants for his life saving gene therapy and for what? So billionaires can have more yachts! I just want to hang my head and cry!

www.cbsnews.com/losangeles/n...

08.08.2025 16:31 — 👍 14    🔁 6    💬 1    📌 1

Thank you so much for your caring words! He’s the most loving, sweet, innocent little guy and being so helpless to do anything is Kafkaesque! I just wish I could wave a magic wand and snap the country out of the republican manufactured idiocracy it is!

09.08.2025 23:49 — 👍 1    🔁 0    💬 0    📌 0
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Family raises money for son's gene therapy and clinical trial to treat rare genetic mutation Paxton Purdy's parents said he has an ultra-rare neurodegenerative genetic mutation. They hope they can raise enough money to cure it and help children in similar situations.

Story about my autistic grandson, Paxton Purdy, who has a terminal genetic mutation called CLCN6. Now he’s at real risk of losing grants for his life saving gene therapy and for what? So billionaires can have more yachts! I just want to hang my head and cry!

www.cbsnews.com/losangeles/n...

08.08.2025 16:31 — 👍 14    🔁 6    💬 1    📌 1
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Post image 03.08.2025 00:48 — 👍 18496    🔁 5582    💬 298    📌 158
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Watching my grandson, Paxton, win his race in the Special Olympics helps too!

22.03.2025 05:18 — 👍 27    🔁 4    💬 2    📌 0
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Love this.

28.07.2025 16:44 — 👍 1260    🔁 495    💬 35    📌 87
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Dropkick Murphys

Warped Tour Long Beach

28.07.2025 23:46 — 👍 19531    🔁 5581    💬 443    📌 508

Exactly!

30.07.2025 21:56 — 👍 1    🔁 0    💬 0    📌 0
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What if MAGA types weren’t allowed to vote unless they passed a civics test similar to one immigrants have to pass to become citizens. We’d have a healthcare system that could save my beautiful grandson!

14.07.2025 08:07 — 👍 33    🔁 8    💬 5    📌 0
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Hugs from Paxton’s little friends at a CureCLCN6.org fundraiser.

13.07.2025 16:55 — 👍 23    🔁 5    💬 4    📌 0
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Child’s Rare Neurodegenerative Disease Fuels Therapy Innovation: Paxton’s Story The Purdy family shares their insights on navigating their child’s rare neurodegenerative disease and their direct involvement in therapy research.

Great story about my grandson Paxton on a very prominent neuroscience website! Please read and share! Thanks!

www.neurologyadvisor.com/features/rar...

22.07.2025 03:04 — 👍 15    🔁 3    💬 1    📌 0

Thank you so much!

28.07.2025 14:03 — 👍 2    🔁 0    💬 1    📌 0

Thank you! You’re awesome!

28.07.2025 06:07 — 👍 1    🔁 0    💬 1    📌 0
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The idiot in chief strikes again!! 🤣🤣

25.07.2025 20:01 — 👍 1013    🔁 358    💬 38    📌 18

Trailer park trash Dunning Kruger Effect.

27.07.2025 06:02 — 👍 2    🔁 0    💬 0    📌 0

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