Jenrose

We will be able to handle the cost, not without pain, for a while. But most of the people I've heard of who were on marketplace plans flat out cannot afford the increase. I'm disabled but do not qualify for disability assistance.

This year it was $10 per month for that same drug. OOP that drug is about $1700 per month. It's a drug necessary to my survival and the only one in its class that I tolerate consistently and well.

I'm on one drug that is generic but expensive. The plan we're going to has $25 copays for generics but another bronze plan that said it had that counts my expensive generic as a specialty drug. There is no copay assistance, so we will spend a couple hundy per month more for this plan.

But I'm going from $20 copays for pt to subject to the deductible pt and my pt just agreed to let me pay $100 per month to even out the ridiculous frontloading bronze plans create. Mental health goes from $20 per visit to $50 per visit so I'm dropping from weekly to twice a month.

Now this will, assuming no medical emergencies in the first quarter of 2026, be somewhat lower because of copay assistance on my name brand drugs. Emgality and trulicity alone will offset at least a couple grand per month.

I believe the oop for a gold plan was maybe a couple thousand lower but i would hit that within 5 months or so (due to differences in how the prescription copays happen). Our estimated total cost for a gold plan was over 48,000 dollars. About 39,000 for bronze.

Our health care is going from 1700 ish per month for a gold plan to 2400 ish per month for a bronze plan. To stay with our existing plan would have been about 3400 per month. I will hit my oop of over 9000 in the first 90 days of 2026.

I was able to drive and attend a con 2 months after surgery, and recently started emgality for migraines which works GREAT.

My base pain level when sitting is now like a 2-3. Standing is less reliable and can be very difficult but that's not new. I can deal with not standing as much.

Tinzanidine, ftw. Still breathing, only mildly loopy and mostly from lack of pain.

but also high doses of antihistamines may affect muscle function anyway and yet are also very important to continued breathing and having skin that isn't constantly itchy.
So what to do?

@rahaeli.bsky.social any info on the effects of antihistamines on muscle recovery and how to balance the trade-off for mast cell stuff? I just had back surgery and the antihistamines are not compatible with muscle relaxers, which is a problem...

Blue cheese hurts me like that. But aged parm does not.

Did that ages ago because I need to be able to speak to a pharmacist without a half hour phone tree.

I already ditched them as my pharmacy. Drive thru ain't worth the nightmare phone tree.

I started college in 1990 and was required to get a second dose. (GenX)

Eyyyyyy!
Eds, mcas, pots, plus TWO genetic clotting issues, ra and thyroid issues. That's not even getting into the spinal bullshit. Fucking bodies, man.

If you could go anywhere in the world for treatment of complex spinal issues, rheumatoid arthritis and me/cfs, where would you go? Please be specific.

Blue cheese gives me a migraine. But pills containing sls cause me joint pain and strawberries give me hives. Shellfish make my gut hurt.

This is one of those "why the fuck was I right about That.?!" moments.

I'm flat out allergic to both oats and wheat but my reactions to them are totally different because bodies

(I literally add potassium chloride and lemon juice and sweetener to water that's it that's the whole recipe)

Want my recipe for potassium rich lemonade?

I am forever thankful that one of the few foods I'm not outright allergic to is dairy. I react to some of it, sometimes, but there are safe things that are consistent.

they bake wheat bread in subway I cannot eat there ever, anything

It’s nearly impossible to explain to non disabled people the hope we had at the beginning of the pandemic.

Hope for inclusion & accommodation. For better awareness & treatment of chronic illness.

Having that hope ripped away and replaced with increasing ableism, eugenics & hatred? Its devastating

solidarity from someone who managed to get our school to stop having official prayer without having to take them to court. (they consulted their lawyer who said, "this is correct" in response to my letter to them.)

I cannot express how hard I'm noping out. Fuck that.

Making cheesecake and pizza and planning our trip to CR.

I decided to make my presence on fb as useless to fb as possible by using firefox, ublock, adblock, facebook container and social fixer. No more suggested posts, ads, or trackers on other sites.