Thatβs why many of us wonβt shut up about Covid and other infectious diseases: Weβre trying to help. For what itβs worth, I genuinely wish we were wrong though
11.12.2025 10:51 β π 4 π 0 π¬ 1 π 0Thatβs why many of us wonβt shut up about Covid and other infectious diseases: Weβre trying to help. For what itβs worth, I genuinely wish we were wrong though
11.12.2025 10:51 β π 4 π 0 π¬ 1 π 0Openly discussing something that people would rather ignore is generally annoying to people trying to ignore it. But thatβs what activism looks like. Itβs often thankless, even results in scorn or harassment, but itβs done for the greater good.
11.12.2025 10:51 β π 5 π 0 π¬ 1 π 0
βYou are more than your disability!β
No. Iβm exactly the same amount. I am disabled and it doesnβt make me less than
Reminder as we blaze toward the new year that itβs OK if 2025 was just a blur of pain and chaos instead of a productive era to reflect on. Being alive is particularly rough right now. Youβre doing your best and thatβs enough
04.12.2025 10:48 β π 8 π 2 π¬ 0 π 0
For many, scent is a barrier.
Fragrance (even essential oils!) means volatile organic compounds (VOCs) which can trigger a cascade of chemical reactions with indoor air.
Scents can trigger migraines, asthma, MCAS, and more.
Access starts with awareness.
Please be mindful of your scent. 2/2
Scented products are a disability rights issue.
Before you light that candle, do your laundry with scented detergent, or spray perfume, ask yourself: Who else will breathe this in? 1/2
You donβt have to be perfect to do better. But doing anything at all really means a lot. It shows disabled people that you care about our lives. That you see us as worth protecting. And it means the world.
17.11.2025 13:48 β π 49 π 7 π¬ 0 π 0
If you still wear a mask at all, even just when sick or at the hospital or on public transit, THANK YOU!
If you still try to isolate or protect others when you are sick, THANK YOU.
If you still test for COVID when you have any symptoms, THANK YOU.
Not so friendly reminder that Trump doesnβt see your ableist comments making fun of him for having XYZ condition or needing a catheter, but disabled people like me who have dealt with incontinence sure do.
Donβt be ableist. Thereβs far better things to critique him for
I had two medical appointments and one prescription pickup today and it took about 5 hours in total.
Being disabled or chronically ill is like having a full-time job you have to pay to do.
And for many of us (myself included), holding an actual full-time job on top of that simply isnβt accessible.
Oh this would be a low cost or free service in my mind. Volunteers or low bono
20.08.2025 10:14 β π 1 π 0 π¬ 1 π 0
Why hasnβt someone invented a βrent a cis white man to pretend to be your partner to help advocate for you in medical appointmentsβ app yet?
This would honestly be a great way for cis white men to use their privilege for good.
If youβll bend over backward to βrescueβ a three-legged dog but canβt be bothered to care about disabled humans (or toss a dime to disability mutual aid) youβre not compassionate, youβre just collecting props.
06.08.2025 14:31 β π 4 π 0 π¬ 0 π 0
Damn. That sucks. π
Iβm late to seeing it I guess as Iβve been offline dealing with some health stuff. Disappointing but not surprising
Trump has chronic venous insufficiency.
Get ready for a wave of ableism from the left. π«
The worst part of being disabled with a complex medical condition requiring many different specialities, numerous appointments, and many medications every week?
Automated clinic, hospital, and pharmacy phone systems. π«
In a world that worships productivity, choosing rest is rebellion.
Accommodating yourself is resistance.
Honoring your limits is power.
Itβs Disability Pride Month, and Iβm proud as fuck of you for taking care of yourself even when the world tells you not to.
Now?
I PROUDLY accommodate myself.
Iβm proud to be disabled in general.
And Iβm a better clinician for it.
3/3
Iβve since realized that is bull. I cannot simply will away the fact that I am human too. And I cannot just push my way through things that I need accommodations for.
2/
In grad school, I was told by my supervisors and professors to ensure that I hid pretty much everything about myself from my patients, including factors relating to my being disabled.
1/
My mom is FINALLY acknowledging that her AFib, brain fog, extreme fatigue, and other health issues that onset after she was sick with COVID almost 2 years ago are actually post covid issues. It only took me telling her this for 2 years and then a single provider at a hospital saying it once. π«
16.06.2025 17:35 β π 63 π 2 π¬ 0 π 0Just a bunch of comments about the author of the article being βstupidβ or cognitively impaired or whatever else
08.06.2025 12:57 β π 0 π 0 π¬ 0 π 0Yikes. The comment section is horribly ableist though. What is going on on Bluesky? Thought it was supposed to be better? π
08.06.2025 12:22 β π 0 π 0 π¬ 1 π 0People are upset about you venting? Thatβs really gross and they donβt deserve to be in your space, honestly. You are allowed to share your feelings and experiences. This is your space. Iβm so sorry you are dealing with that (the abuse from people via those messages and people trying to silence you)
08.06.2025 09:39 β π 7 π 0 π¬ 2 π 0
1. that number is just those that get caught. The actual number is likely much higher.
2. itβs not about getting it βwrong,β itβs about fraud and problematic practices. Which I expect are much more common than thought and captured based on what Iβve seen working in academia and heard from others π
So gross, right? π«
30.05.2025 11:07 β π 1 π 0 π¬ 0 π 0Oh I catch stats errors that should result in retractions (or corrections) on a regular basis but Iβve realized itβs not a good use of my time to try to correct people who donβt want to be corrected π«
30.05.2025 08:35 β π 1 π 0 π¬ 0 π 0
Unfortunately, I have seen some really crap science in top tier journals. Clout does not equal quality. In fact, high impact journals are MORE likely to have retractions:
www.pnas.org/doi/10.1073/...
If weβre going to combat misinformation we need to be well informed when we do so.
Thatβs so inconvenient. Iβm sorry
29.05.2025 13:26 β π 0 π 0 π¬ 0 π 0Yeah thatβs absolute bull. And how are you even supposed to tell most of the time??
29.05.2025 10:55 β π 2 π 0 π¬ 2 π 0