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We Are TB

@wearetb.bsky.social

We Are TB is a community of people affected by tuberculosis in the United States. Here to educate, advocate, empower. πŸ’šπŸŒΏ

162 Followers  |  74 Following  |  37 Posts  |  Joined: 17.11.2024
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Posts by We Are TB (@wearetb.bsky.social)

title slide with the webinar title, speakers, and logos for the collabroating partners included. An image of an eye is also present

title slide with the webinar title, speakers, and logos for the collabroating partners included. An image of an eye is also present

Webinar Recording Now Available!

More Than Meets the Eye: Understanding Ocular Tuberculosis

www.currytbcenter.ucsf.edu/trainings/ar...

#Tuberculosis #CurryTBCenter #GotCurry #OcularTB @tbcoalitionamerica.bsky.social

17.02.2026 17:54 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 1    πŸ“Œ 0
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On behalf of the NTCA Board, Section leadership, and staff, may this Valentine's Day be very special and full of love! - Jason Cummins, NTCA President
Read our e-newsletter here:
conta.cc/3ZvNDA8 #tuberculosis #TBfreeUSA

13.02.2026 21:12 β€” πŸ‘ 6    πŸ” 1    πŸ’¬ 0    πŸ“Œ 1

Thank you so much Tori, we are so grateful for your nomination, your support, and for everything you have done for Hill Day! We can’t say enough that we love the @tbfighters.org !!! πŸ’šπŸ’šπŸ’šπŸ’š

13.02.2026 21:22 β€” πŸ‘ 13    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Post-tuberculosis lung disease: a case definition for use in research studies Despite growing awareness of the substantial burden of long-term pulmonary impairment among tuberculosis survivors, marked variability in how post-tuberculosis lung disease is defined across research ...

Post-TB lung disease - the impact of TB on patients does not end with the course of antibiotics, characterised by substantial long-term pulmonary impairment.

Proposed case definition to support assessments and interventions in research studies πŸ‘‡

#TBSky #IDSky @thelancetinfdis.bsky.social

17.11.2025 08:47 β€” πŸ‘ 11    πŸ” 5    πŸ’¬ 1    πŸ“Œ 0
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Congratulations are due for to #WeAreTB β€˜s Maggy! At the NJ TB Update, Maggy was given the β€œNJ TB Rockstar award” for all her work advocating for people with TB in NJ, the USA, and the world! We appreciate the opportunity to honor her- Congratulations Maggy!! #TBfreeUSA

21.11.2025 17:30 β€” πŸ‘ 5    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Sifumba Zolelwa

Sifumba Zolelwa

For our #InfectiousDisease Special Issue we interviewed Dr Sifumba Zolelwa who discusses how her experience as a #tuberculosis survivor, along with her training as a medical doctor, complements her work as a #PatientAdvocate

journals.biologists.com/dmm/article/...

13.11.2025 13:31 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

πŸ™ŒπŸ™ŒπŸ™ŒπŸ™ŒπŸ™Œ

14.11.2025 20:52 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Amazing job by Sue at the Four Corners Conference last week in Colorado! Sue gave a passionate talk about her family’s history with TB and the need for social services and support. Sue is an incredible advocate for people with TB and we are so grateful for her activism!
#FourCornersConference

14.11.2025 20:23 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Thank you Kelly & Aiyana for your presentation at the New England TB Clinicians Conference! It’s so important to hear from those affected by TB when we talk about the disease. Reminder that Aiyana has also shared her experiences in her recent poetry collection, The Underdream! #tuberculosis

28.10.2025 16:52 β€” πŸ‘ 6    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
A TB advocate explaining the significance of the design on a fan to an MP

A TB advocate explaining the significance of the design on a fan to an MP

A group of TB advocates and Honorable Senator Dr. Mohamed- Iqbal Ravalia posing for a picture in front of large wooden doors

A group of TB advocates and Honorable Senator Dr. Mohamed- Iqbal Ravalia posing for a picture in front of large wooden doors

A TB advocate standing in the rain with a blazer over her head, looming very wet but smiling

A TB advocate standing in the rain with a blazer over her head, looming very wet but smiling

It's a rainy day on Parliament Hill but that isn't stopping our TB advocates in the fight for Canada to #LeadOnTB ! Nearly one hundred advocates are meeting with MPs and Senators today, and you can support the fight to #EndTB too by sending a message to your MP now! pihcanada.org/tell-c...

25.09.2025 15:29 β€” πŸ‘ 11    πŸ” 4    πŸ’¬ 2    πŸ“Œ 0

Amazing job!! πŸ‘πŸ‘πŸ‘πŸ‘

25.09.2025 15:35 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

🚨ACTION ALERT! 🚨Medicare coverage for TB infection is NOT available consistently across the country despite older Americans being at a greater risk! Please this out and contact your representatives! #tuberculosis #TBfreeUSA #Medicare

24.09.2025 18:25 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Tuberculosis (TB) is the world’s deadliest infectious disease, yet it often goes unnoticed. Every year, 10 million people fall sick and 1.5 million die.

We can change this. Awareness, testing, and treatment save lives.

Watch @wearetb.bsky.social Kate O’Brien explain why TB needs to matter πŸ‘‡

14.09.2025 20:21 β€” πŸ‘ 12    πŸ” 5    πŸ’¬ 0    πŸ“Œ 0
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Thank you so much to The Global TB Institute at @rutgersnewarkoll.bsky.social
for having #WeAreTB β€˜s Maggy present at their TB Intensive! It’s so important for people working in healthcare to hear lived experiences, thank you Maggy for sharing yours! #tuberculosis #TBfreeUSA #EndTB

11.09.2025 17:46 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Thanks @globalhealthorg.bsky.social & @worldhepalliance.bsky.social for having Kate for β€œExploring the Overlap Between NCDs & Communicable Diseases”. Many people in #tuberculosis treatment are also managing other health concerns - everyone deserves comprehensive care! #UNGA #TB

10.09.2025 15:16 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Celebrating the release of Aiyana’s poetry collection, The Underdream, out on August 19th! Aiyana wrote these poems while healing from #Tuberculosis during the height of the Covid-19 pandemic. Pre-order until August 12 for 20% off retail price. Use QR code or check out: www.AiyanaMasla.com/poetry

22.07.2025 20:01 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 1
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Projecting the impact and costs of near point-of-care tuberculosis screening assays in community-based active case finding Community-based active case finding (ACF) may reduce tuberculosis incidence and mortality but is not widely implemented due to resource constraints. How novel screening test characteristics would affect the impact and costs of ACF strategies is not clear.

Projecting the impact and costs of near point-of-care tuberculosis screening assays in community-based active case finding

βœ… Just Accepted
✍️ @jasonandrews.bsky.social
#IDSky

22.07.2025 18:36 β€” πŸ‘ 6    πŸ” 6    πŸ’¬ 0    πŸ“Œ 0
A picture of Vidya Krishnan and her book cover, Phantom Plague. "LIVE Q&A. FRIDAY JULY 18TH 11AM EDT. VIDYA KRISHNAN"

A picture of Vidya Krishnan and her book cover, Phantom Plague. "LIVE Q&A. FRIDAY JULY 18TH 11AM EDT. VIDYA KRISHNAN"

Get ready for a #TBReaders Q&A! We'll be talking with #PhantomPlague author, Vidya Krishnan, a week from today on Fri July 18, 11am ET/8am PT. Head to the TBReaders discord to submit your questions: tbfighter.link/tbrea...

10.07.2025 22:14 β€” πŸ‘ 11    πŸ” 9    πŸ’¬ 0    πŸ“Œ 0
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Have you registered yet for the 2025 Virtual National TB Conference?

tbconference.cventevents.com/event/1522a2...

The abstract submission deadline is July 18th!

#Tuberculosis #NTCA2025 #TBSky

10.07.2025 19:40 β€” πŸ‘ 5    πŸ” 4    πŸ’¬ 0    πŸ“Œ 0
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Congrats to Maggy for her graduation from @harvard.edu Business School’s Analytics Program & her Leadership Degree! A #Tuberculosis diagnosis shouldn’t stop you from achieving your goals. We all deserve the care & support to finish TB treatment & live a healthy life! #WeAreTB can help w/ the support

09.07.2025 14:58 β€” πŸ‘ 8    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Sorry we missed you last week! Support Space is back on tonight at 8pm ET / 5pm PT - a free, confidential tuberculosis support group meeting in English over zoom! Open to anyone in the USA in TB treatment, post TB treatment, and their families. Don’t do this alone! #tuberculosis

07.07.2025 17:08 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

πŸ‘πŸ‘οΏΌπŸ‘πŸ‘

30.06.2025 21:38 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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No meeting tonight! If you or someone you love is being treated or was treated for TB & you are looking to join us, please check out WeAreTB.com - our next (English) meeting is July 7th at 8pm ET / 5pm PT. πŸ’š

30.06.2025 12:45 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

@tschampl.bsky.social @wearetb.bsky.social

21.06.2025 00:08 β€” πŸ‘ 1    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
TBFIGHTERS
ADVOCACY SESSIONS
6/16
MON
12PM & 8PM ET/9AM & 5PM PT
6/17
TUES
12PM & 7 PM ET/ 9AM & 4PM PT
6/18
WED
7PM ET/ 4PM PT
6/19 THURS
12PM & 9PM ET/9AM & 6PM PT
6/20 FRI
2:30 & 8PM ET/ 11:30 & 5PM PT

TBFIGHTERS ADVOCACY SESSIONS 6/16 MON 12PM & 8PM ET/9AM & 5PM PT 6/17 TUES 12PM & 7 PM ET/ 9AM & 4PM PT 6/18 WED 7PM ET/ 4PM PT 6/19 THURS 12PM & 9PM ET/9AM & 6PM PT 6/20 FRI 2:30 & 8PM ET/ 11:30 & 5PM PT

Your representatives are waiting on YOUR call! πŸ“± There are two advocacy sessions almost every day this week! Find the one that fits your schedule best: tbfighter.link/calendar

16.06.2025 18:02 β€” πŸ‘ 24    πŸ” 11    πŸ’¬ 1    πŸ“Œ 1
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Talk to someone who understands! #WeAreTB has free, confidential online support groups. Our English one is tonight & most Mondays, at 8pm ET / 5pm PT. Talk to people who have been through treatment, are in treatment now, and their families in a safe and judgement free space. We are here for you! πŸ’š

16.06.2025 17:26 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Wow!! We really appreciate this!!!
We Are TB & Somos TB, our Spanish language group - has confidential online #tuberculosis support groups for people in the USA. We can also connect you to groups in other countries if you are outside the USA! Thank you for the shout out, TB Fighters! πŸ’š

08.05.2025 00:00 β€” πŸ‘ 10    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Author John Green β€” and his fans β€” want you to pay attention to tuberculosis - WTOP News Author John Green wants people to know tuberculosis is both preventable and curable, but the infectious disease still claims 1.25 million lives every year.

Thank you to #WeAreTB & #SomosTB’s Nicole for contributing to this article and for being an amazing advocate!!

wtop.com/health-fitne...

03.05.2025 18:40 β€” πŸ‘ 17    πŸ” 4    πŸ’¬ 0    πŸ“Œ 0
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Maggy of #WeAreTB joined the @tbfighters.org on #TBHillDay & shared her experience with #Tuberculosis & the need for funding for TB programs & research. Thanks to the offices of Sen. Wicker, Sen. Dianes, Sen. Capito, Sen. Ricketts, Sen. Hoeven & Rep. Clark for speaking with Maggy! We can #EndTB !

24.04.2025 17:35 β€” πŸ‘ 17    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
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Thank you to the offices of Rep. Juan Vargas,
@padilla.senate.gov & @reptedlieu.bsky.social for meeting with #WeAreTB & #SomosTB β€˜s Jackie. Jackie also did an incredible job at a Congressional briefing, thank you for sharing so much of yourself and for being a great advocate Jackie! #Tuberculosis

23.04.2025 18:46 β€” πŸ‘ 12    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0