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We Are TB

@wearetb.bsky.social

We Are TB is a community of people affected by tuberculosis in the United States. Here to educate, advocate, empower. πŸ’šπŸŒΏ

153 Followers  |  70 Following  |  32 Posts  |  Joined: 17.11.2024  |  1.7615

Latest posts by wearetb.bsky.social on Bluesky

A TB advocate explaining the significance of the design on a fan to an MP

A TB advocate explaining the significance of the design on a fan to an MP

A group of TB advocates and Honorable Senator Dr. Mohamed- Iqbal Ravalia posing for a picture in front of large wooden doors

A group of TB advocates and Honorable Senator Dr. Mohamed- Iqbal Ravalia posing for a picture in front of large wooden doors

A TB advocate standing in the rain with a blazer over her head, looming very wet but smiling

A TB advocate standing in the rain with a blazer over her head, looming very wet but smiling

It's a rainy day on Parliament Hill but that isn't stopping our TB advocates in the fight for Canada to #LeadOnTB ! Nearly one hundred advocates are meeting with MPs and Senators today, and you can support the fight to #EndTB too by sending a message to your MP now! pihcanada.org/tell-c...

25.09.2025 15:29 β€” πŸ‘ 11    πŸ” 4    πŸ’¬ 2    πŸ“Œ 0

Amazing job!! πŸ‘πŸ‘πŸ‘πŸ‘

25.09.2025 15:35 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

🚨ACTION ALERT! 🚨Medicare coverage for TB infection is NOT available consistently across the country despite older Americans being at a greater risk! Please this out and contact your representatives! #tuberculosis #TBfreeUSA #Medicare

24.09.2025 18:25 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Tuberculosis (TB) is the world’s deadliest infectious disease, yet it often goes unnoticed. Every year, 10 million people fall sick and 1.5 million die.

We can change this. Awareness, testing, and treatment save lives.

Watch @wearetb.bsky.social Kate O’Brien explain why TB needs to matter πŸ‘‡

14.09.2025 20:21 β€” πŸ‘ 11    πŸ” 5    πŸ’¬ 0    πŸ“Œ 0
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Thank you so much to The Global TB Institute at @rutgersnewarkoll.bsky.social
for having #WeAreTB β€˜s Maggy present at their TB Intensive! It’s so important for people working in healthcare to hear lived experiences, thank you Maggy for sharing yours! #tuberculosis #TBfreeUSA #EndTB

11.09.2025 17:46 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Thanks @globalhealthorg.bsky.social & @worldhepalliance.bsky.social for having Kate for β€œExploring the Overlap Between NCDs & Communicable Diseases”. Many people in #tuberculosis treatment are also managing other health concerns - everyone deserves comprehensive care! #UNGA #TB

10.09.2025 15:16 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Celebrating the release of Aiyana’s poetry collection, The Underdream, out on August 19th! Aiyana wrote these poems while healing from #Tuberculosis during the height of the Covid-19 pandemic. Pre-order until August 12 for 20% off retail price. Use QR code or check out: www.AiyanaMasla.com/poetry

22.07.2025 20:01 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 1
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Projecting the impact and costs of near point-of-care tuberculosis screening assays in community-based active case finding Community-based active case finding (ACF) may reduce tuberculosis incidence and mortality but is not widely implemented due to resource constraints. How novel screening test characteristics would affect the impact and costs of ACF strategies is not clear.

Projecting the impact and costs of near point-of-care tuberculosis screening assays in community-based active case finding

βœ… Just Accepted
✍️ @jasonandrews.bsky.social
#IDSky

22.07.2025 18:36 β€” πŸ‘ 5    πŸ” 6    πŸ’¬ 0    πŸ“Œ 0
A picture of Vidya Krishnan and her book cover, Phantom Plague. "LIVE Q&A. FRIDAY JULY 18TH 11AM EDT. VIDYA KRISHNAN"

A picture of Vidya Krishnan and her book cover, Phantom Plague. "LIVE Q&A. FRIDAY JULY 18TH 11AM EDT. VIDYA KRISHNAN"

Get ready for a #TBReaders Q&A! We'll be talking with #PhantomPlague author, Vidya Krishnan, a week from today on Fri July 18, 11am ET/8am PT. Head to the TBReaders discord to submit your questions: tbfighter.link/tbrea...

10.07.2025 22:14 β€” πŸ‘ 11    πŸ” 9    πŸ’¬ 0    πŸ“Œ 0
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Have you registered yet for the 2025 Virtual National TB Conference?

tbconference.cventevents.com/event/1522a2...

The abstract submission deadline is July 18th!

#Tuberculosis #NTCA2025 #TBSky

10.07.2025 19:40 β€” πŸ‘ 5    πŸ” 4    πŸ’¬ 0    πŸ“Œ 0
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Congrats to Maggy for her graduation from @harvard.edu Business School’s Analytics Program & her Leadership Degree! A #Tuberculosis diagnosis shouldn’t stop you from achieving your goals. We all deserve the care & support to finish TB treatment & live a healthy life! #WeAreTB can help w/ the support

09.07.2025 14:58 β€” πŸ‘ 8    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Sorry we missed you last week! Support Space is back on tonight at 8pm ET / 5pm PT - a free, confidential tuberculosis support group meeting in English over zoom! Open to anyone in the USA in TB treatment, post TB treatment, and their families. Don’t do this alone! #tuberculosis

07.07.2025 17:08 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

πŸ‘πŸ‘οΏΌπŸ‘πŸ‘

30.06.2025 21:38 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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No meeting tonight! If you or someone you love is being treated or was treated for TB & you are looking to join us, please check out WeAreTB.com - our next (English) meeting is July 7th at 8pm ET / 5pm PT. πŸ’š

30.06.2025 12:45 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

@tschampl.bsky.social @wearetb.bsky.social

21.06.2025 00:08 β€” πŸ‘ 1    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
TBFIGHTERS
ADVOCACY SESSIONS
6/16
MON
12PM & 8PM ET/9AM & 5PM PT
6/17
TUES
12PM & 7 PM ET/ 9AM & 4PM PT
6/18
WED
7PM ET/ 4PM PT
6/19 THURS
12PM & 9PM ET/9AM & 6PM PT
6/20 FRI
2:30 & 8PM ET/ 11:30 & 5PM PT

TBFIGHTERS ADVOCACY SESSIONS 6/16 MON 12PM & 8PM ET/9AM & 5PM PT 6/17 TUES 12PM & 7 PM ET/ 9AM & 4PM PT 6/18 WED 7PM ET/ 4PM PT 6/19 THURS 12PM & 9PM ET/9AM & 6PM PT 6/20 FRI 2:30 & 8PM ET/ 11:30 & 5PM PT

Your representatives are waiting on YOUR call! πŸ“± There are two advocacy sessions almost every day this week! Find the one that fits your schedule best: tbfighter.link/calendar

16.06.2025 18:02 β€” πŸ‘ 24    πŸ” 11    πŸ’¬ 1    πŸ“Œ 1
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Talk to someone who understands! #WeAreTB has free, confidential online support groups. Our English one is tonight & most Mondays, at 8pm ET / 5pm PT. Talk to people who have been through treatment, are in treatment now, and their families in a safe and judgement free space. We are here for you! πŸ’š

16.06.2025 17:26 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Wow!! We really appreciate this!!!
We Are TB & Somos TB, our Spanish language group - has confidential online #tuberculosis support groups for people in the USA. We can also connect you to groups in other countries if you are outside the USA! Thank you for the shout out, TB Fighters! πŸ’š

08.05.2025 00:00 β€” πŸ‘ 10    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Author John Green β€” and his fans β€” want you to pay attention to tuberculosis - WTOP News Author John Green wants people to know tuberculosis is both preventable and curable, but the infectious disease still claims 1.25 million lives every year.

Thank you to #WeAreTB & #SomosTB’s Nicole for contributing to this article and for being an amazing advocate!!

wtop.com/health-fitne...

03.05.2025 18:40 β€” πŸ‘ 17    πŸ” 4    πŸ’¬ 0    πŸ“Œ 0
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Maggy of #WeAreTB joined the @tbfighters.org on #TBHillDay & shared her experience with #Tuberculosis & the need for funding for TB programs & research. Thanks to the offices of Sen. Wicker, Sen. Dianes, Sen. Capito, Sen. Ricketts, Sen. Hoeven & Rep. Clark for speaking with Maggy! We can #EndTB !

24.04.2025 17:35 β€” πŸ‘ 17    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
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Thank you to the offices of Rep. Juan Vargas,
@padilla.senate.gov & @reptedlieu.bsky.social for meeting with #WeAreTB & #SomosTB β€˜s Jackie. Jackie also did an incredible job at a Congressional briefing, thank you for sharing so much of yourself and for being a great advocate Jackie! #Tuberculosis

23.04.2025 18:46 β€” πŸ‘ 12    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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#WeAreTB’s Shaka & Tiffany had a massive #TBHillDay ! Thanks to offices of Rep. John Rose, Sen. Cornyn, Rep. Jake Ellzey, @delauro.house.gov , Sen. Hagerty , Sen. Blackburn & Senator Ted Cruz for talking about #Tuberculosis w/ Shaka, Tiffany, Jason of NTCA & Srishti of @theglobalfight.bsky.social !

22.04.2025 15:49 β€” πŸ‘ 13    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Thank you to the offices of @kirstengillibrand.bsky.social , @repritchie.bsky.social & @schumer.senate.gov for meeting w/ #WeAreTB β€˜s Greg on #TBHillDay ! No one needs to die from #Tuberculosis, thank you Greg for sharing your experience. @tballiance.bsky.social & @tbfighters.org #TBfreeUSA #EndTB

17.04.2025 13:18 β€” πŸ‘ 10    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
Post image Post image People in front of a Congressional office

People in front of a Congressional office

Thanks to the offices of @senatormarkmann.bsky.social @kaine.senate.gov @repsuhas.bsky.social , @repciscomani.bsky.social & Rep. Gerry Connolly for meeting with #WeAreTB β€˜s Tina & Zahra. We can make a TB free Virginia, Arizona & world! #Tuberculosis #TBfreeUSA #STOPTB @tbfighters.org

16.04.2025 16:16 β€” πŸ‘ 8    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Thank you to @heinrich.senate.gov & @lujan.senate.gov
for meeting w/ #WeAreTB’s Sue last week on #TBHillDay. #Tuberculosis is a curable disease we can eliminate with the right leadership & resources. Thanks for your advocacy Sue! #TBfreeUSA #EndTB #STOPTB @tbfighters.org @tballiance.bsky.social

14.04.2025 14:34 β€” πŸ‘ 10    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
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#WeAreTB finished our annual #TBHillDay w/the TB Roundtable, with @johngreensbluesky.bsky.social & the incredible @tbfighters.org ! So grateful for the passionate new voices joining this movement & for the long term support & expertise of the Roundtable. Over 200 meetings this year - amazing!

11.04.2025 21:06 β€” πŸ‘ 33    πŸ” 5    πŸ’¬ 1    πŸ“Œ 0

😍😍😍😍😍

10.04.2025 15:28 β€” πŸ‘ 6    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Kate O'Brien from We Are TB and John Green side hugging at the front of a training room

Kate O'Brien from We Are TB and John Green side hugging at the front of a training room

A packed training room with people milling around

A packed training room with people milling around

Shaka Brown presenting at TB Hill
Day training

Shaka Brown presenting at TB Hill Day training

A very large group picture of all participants during the training day for TB Hill Day

A very large group picture of all participants during the training day for TB Hill Day

Training day: βœ… Next up: #TBHillDay! We have a lot of work ahead of us to #EndTB, but isn't it fun doing the work with such great friends ❀️

09.04.2025 03:57 β€” πŸ‘ 37    πŸ” 4    πŸ’¬ 3    πŸ“Œ 2

πŸ™ŒπŸ™ŒπŸ™ŒπŸ™ŒπŸ™Œ

10.04.2025 01:02 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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@johngreensbluesky.bsky.social is excited for today πŸ‘

Good luck to everyone in their meetings! #TBHillDay

@tbfighters.org @stoptbusa.bsky.social @wearetb.bsky.social

09.04.2025 13:54 β€” πŸ‘ 40    πŸ” 3    πŸ’¬ 1    πŸ“Œ 0

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