Dr Simon Stones

🌍 Our 2026 #WORDDay2026 webinar brings the theme: “Children Are Not Small Adults: Why Young People Need Dedicated Paediatric Rheumatology Care”.

We are pleased to have Caroline Kirsten from EULAR Young PARE as one of our speakers. Join us 👉https://pulse.ly/3npd35i5ur

#eularPARE #eularPAED

EULAR PARE is offering up to 10 World Arthritis Day (WAD) bursaries of up to EUR 5,000 each to support national activities that raise awareness of #RMDs.

📅 Open until 31 March 2026
✅ Open to EULAR member organisations and scientific affiliates

Apply now 🔗 https://pulse.ly/k6znsqnhz2

Apply for a travel bursary to support your attendance at the EULAR European Congress of Rheumatology.

✔️ Free EULAR 2026 registration (+On-Demand access)
✔️ 3 nights’ hotel accommodation (3–6 June 2026)
✔️ €350 towards travel & living expenses

Apply here: https://pulse.ly/m2cokv4vzp

Visit of the Prime Minister of Denmark 22nd Jawary 2026 We'll get by with a little help from our friends

Sky News: Danish PM Mette Freideriksen’s note in the visitors book when she visited UK today

Happy New Year to all of the @eular.org family! 💙

As we wrap up another year of progress and collaboration in rheumatology, we extend our heartfelt thanks to our incredible community of patients, healthcare professionals, researchers, and partners. 🙌

Here’s to continued progress together in 2026! 🔬

#StrongerTogether

Our incredible @eular.org International PARE Working Group! Uniting the voices of the global patient community with RMDs beyond Europe. #pare2025

Opportunities like this week are critical for bringing together patient organisation CEOs to learn, listen, and grow together! #pare2025 @eular.org

Our wonderful @eular.org PARE Committee and Young PARE Working Group! Proud to know and work with everyone. 💙 #pare2025

Wrapping up and summarising our key reflections on managing multiple priorities as volunteers - be kind to yourself, and clear with boundaries #pare2025

We must not underestimate the importance of stepping back and reflecting, which is why our @eular.org PARE training programme is so critical for our volunteers. So much self-reflection taking place! #pare2025

Time for coffee and networking! LOVE hearing so many ideas and experiences being shared. #pare2025

A productive morning for our new volunteers in their ‘communicating impactful messages’ training! #pare2025

We see the importance of investing in all members of our @eular.org PARE community, which is why our annual training programme is vital so no volunteer is left behind! #pare2025

Stay tuned across platforms this week for updates from @eular.org #pare2025!

I'm honoured to serve on the international steering committee for the PxP Conference 2025, a virtual global event championing the leadership of patient experts in healthcare transformation. The time has come to unleash the full power of lived experience... patients are no longer passive participants, but active drivers of research and care that truly reflect the needs of our diverse society. This is the democratisation of healthcare: bold, inclusive, and guided by those with the deepest expertise - people living with health conditions every day. Together, we're redefining what meaningful, equitable, and person-led health systems look like."

PxP Steering Committee Member Simon Stones shares a quote on the importance of patient partner leadership and why they should be at the forefront of initiatives like PxP.

Learn more about PxP 2025 here:
pxphub.org/event/

#PxP25 #PatientEngagement

The fabulous @lynnlaidlaw.bsky.social showcasing how patient-led research is possible! The system forces people to choose their silo, which is crazy - time to move towards an expertise and interest-led model I say!

Delighted to be at the British Society for Rheumatology ‘Patient Voices in Rheumatology’ conference in London! #rheumatology

You’ve already had a sneak peek at what’s happening at this year’s Brain Health & Sustainability booth — now it’s your turn to get involved! 🧠🪴

Collect stamps on your Brain Health Bingo card for a chance to win a prize!

#BrainHealthMission #ean2025 #Neurology @EANeurology

Excited to be in Helsinki for the next few days at @ean.org #ean2025! Please say hello if you’re attending!

🙌Thank you for attending the #EULAR2025 Congress!
We hope you had a memorable experience!

📺Access the On-demand Congress Platform until 31 December 2025 👉 https://pulse.ly/vl0sg17x4k

✈️We Look forward to seeing you at #EULAR2026 in London!

#EULAR #EULAR2025 #Rheumatology

🦋Impossible to summarise all #EULAR2025 has meant for us.

While we prepare more content to share scientific highlights, here’s a short video with some special, human moments.

From this energy & passion come projects like #LupusGPT 

🙏 Thanks to all who make all this possible

Best picture of the entire Congress 🤣 #eular2025

💥 The 3 “Move Together” sessions were a great success at #EULAR2025!
Hands-on, inclusive, and packed with practical tools to bring exercise science into daily care for people with RMDs.
A huge thank you to all who joined us!
posted by thomasdavergne.bsky.social

#EULAR2025 #PARE #Highlights: Fishbowl session - From exclusion to empowerment: Engaging marginalised groups, chaired beautifully by @simonrstones.bsky.social

😃 #LupusGPT has been highlighted once again at @eular_org PARE Highlights session, recognising its value as a patient-driven, multilingual tool that makes reliable lupus info accessible worldwide.

A great example of how co-creation with patients leads to🔝innovation!
#EULAR2025

Very happy to see again #PARE highlights in the closing session of #EULAR2025.
Michael Poelzl presented the #Highlights of the Patient and joint sessions presented by Peter Boyd, a 🧵

Peter and Michael representing PARE in the @eular.org 2025 Highlights Session #eular2025

"This congress as a living example of what meaningful collaboration looks like" Simon Stones at #eular2025 @eular.org