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πŸ‡¨πŸ‡¦ Spinal CSF Leak Canada

@spinalcsfleakca.bsky.social

National health charity, with a mission to improve the lives of patients suffering from spontaneous intracranial hypotension (SIH) or spinal CSF leak.

45 Followers  |  28 Following  |  10 Posts  |  Joined: 06.12.2024
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Posts by πŸ‡¨πŸ‡¦ Spinal CSF Leak Canada (@spinalcsfleakca.bsky.social)

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πŸ“’ NOUVEAU !
Le dΓ©pliant sur la fuite spinale de liquide cΓ©rΓ©brospinal (LCS) est maintenant disponible !

Ce dΓ©pliant offre une vue d’ensemble sur :
βœ… SymptΓ΄mes
βœ… Causes
βœ… MΓ©thodes de diagnostic
βœ… Options de traitement
βœ… Soins de suivi

TΓ©lΓ©chargez-le ici : www.fuitespinalelcs.ca/depliant-sur...

20.02.2025 14:48 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
🚨REGISTRATION for the 2nd Canadian spontaneous intracranial hypotension (SIH) IS NOW OPEN!🚨

To register & view the program, please scan the QR code or visit: https://www.spinalcsfleakcanada.ca/registration-canadian-sih-conference-2025

>> This event will take place in person in Toronto on Saturday, May 31st and Sunday, June 1st , 2025.  Saturday May 31st will feature a full day of plenary and interactive sessions, while Sunday June 1st will be a half- day focussing on interactive workshops.
>> A VIRTUAL option is also available for lectures on Saturday May 31st, and on Sunday June 1st for patients' session ONLY. The physicians' workshops on June 1st will be held in person ONLY.

🚨REGISTRATION for the 2nd Canadian spontaneous intracranial hypotension (SIH) IS NOW OPEN!🚨 To register & view the program, please scan the QR code or visit: https://www.spinalcsfleakcanada.ca/registration-canadian-sih-conference-2025 >> This event will take place in person in Toronto on Saturday, May 31st and Sunday, June 1st , 2025. Saturday May 31st will feature a full day of plenary and interactive sessions, while Sunday June 1st will be a half- day focussing on interactive workshops. >> A VIRTUAL option is also available for lectures on Saturday May 31st, and on Sunday June 1st for patients' session ONLY. The physicians' workshops on June 1st will be held in person ONLY.

🚨REGISTRATION for the 2nd Canadian spontaneous intracranial hypotension (SIH) IS NOW OPEN!🚨

To register & view the program, please scan the QR code or visit: t.co/smja6lXr0t

>> May 31st: Full day of plenary sessions. June 1st: Half-day of interactive workshops.

31.01.2025 14:32 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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🚨We’re excited to share our amazing speaker lineup and program for the 2nd Canadian SIH Conference, taking place May 31–June 1, 2025 (Toronto & virtual).

πŸ“Please save the date - Registration will open soon!
>>https://www.spinalcsfleakcanada.ca/program

22.01.2025 22:05 β€” πŸ‘ 5    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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πŸš¨πŸ†• Lennarson PJ, Callen AL. Cerebrospinal Fluid Leaks: Diagnosis, Management, and Outcomes. Neurosurg Clin N Am. 2025 Jan;36(1):53-64. doi: 10.1016/j.nec.2024.08.003.
www.sciencedirect.com/science/arti...

14.01.2025 16:08 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Don't miss our upcoming webinar!
🚨ONLY 3⃣ DAYS LEFT!

FREE REGISTRATION is still open: πŸ‘‡
us02web.zoom.us/webinar/regi...

06.01.2025 21:13 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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πŸŽ‰ Happy New Year from all of us at Spinal CSF Leak Canada!
Wishing you a year of health, happiness, and brighter days ahead!

01.01.2025 17:06 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Neurology and Connective Tissue Connective tissue compromise, as is seen in the heritable connective tissue disorders collectively called Ehlers-Danlos Syndrome, but also acquired connective tissue disorders as can be seen in autoim...

Fascinating series of articles on CTD in Neurology in #FrontiersinNeurology including #CSFleak and orthostatic HA.

Great discussion and hypotheses- but surprising how little primary data underpins our current understanding. #knownunknowns

www.frontiersin.org/research-top...

30.11.2024 18:11 β€” πŸ‘ 7    πŸ” 3    πŸ’¬ 1    πŸ“Œ 1

"The survey demonstrates significant gaps in spinal CSF leak care in Canada, similar to global observations. Lack of awareness and access, delayed care, and inconsistencies in investigations and management are common."

06.12.2024 19:13 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
The Challenges of Patients with Spinal CSF Leaks in Canada: A Cross-Sectional Online Survey | Canadian Journal of Neurological Sciences | Cambridge Core The Challenges of Patients with Spinal CSF Leaks in Canada: A Cross-Sectional Online Survey

We are thrilled to announce the publication of our survey on the challenges faced by patients with spinal CSF in Canada, in the Canadian Journal of Neurological Sciences.

Open access: www.cambridge.org/core/journal...

06.12.2024 19:12 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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πŸ“’ New Resource: The Spinal Cerebrospinal Fluid (CSF) Leak Pamphlet
Link to download: www.spinalcsfleakcanada.ca/spinal-csf-l...

06.12.2024 19:07 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Spinal Cerebrospinal Fluid (CSF) Leak of Canada Learn more about, Spinal Cerebrospinal Fluid (CSF) Leak of Canada (Spinal CSF Leak Canada), a national health charity, with a mission to improve the lives and health of sufferers from spontaneous intr...

πŸ‡¨πŸ‡¦Spinal CSF Leak of Canada is a national health charity, with a mission to improve the lives of patients suffering from spinal CSF leak. We achieve this mission through advocacy, initiatives to raise awareness, education, and support of research.
www.spinalcsfleakcanada.ca

06.12.2024 18:50 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0