๐Ÿ‡จ๐Ÿ‡ฆ Spinal CSF Leak Canada's Avatar

๐Ÿ‡จ๐Ÿ‡ฆ Spinal CSF Leak Canada

@spinalcsfleakca.bsky.social

National health charity, with a mission to improve the lives of patients suffering from spontaneous intracranial hypotension (SIH) or spinal CSF leak.

46 Followers  |  28 Following  |  10 Posts  |  Joined: 06.12.2024  |  1.4169

Latest posts by spinalcsfleakca.bsky.social on Bluesky

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๐Ÿ“ข NOUVEAU !
Le dรฉpliant sur la fuite spinale de liquide cรฉrรฉbrospinal (LCS) est maintenant disponible !

Ce dรฉpliant offre une vue dโ€™ensemble sur :
โœ… Symptรดmes
โœ… Causes
โœ… Mรฉthodes de diagnostic
โœ… Options de traitement
โœ… Soins de suivi

Tรฉlรฉchargez-le ici : www.fuitespinalelcs.ca/depliant-sur...

20.02.2025 14:48 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
๐ŸšจREGISTRATION for the 2nd Canadian spontaneous intracranial hypotension (SIH) IS NOW OPEN!๐Ÿšจ

To register & view the program, please scan the QR code or visit: https://www.spinalcsfleakcanada.ca/registration-canadian-sih-conference-2025

>> This event will take place in person in Toronto on Saturday, May 31st and Sunday, June 1st , 2025.  Saturday May 31st will feature a full day of plenary and interactive sessions, while Sunday June 1st will be a half- day focussing on interactive workshops.
>> A VIRTUAL option is also available for lectures on Saturday May 31st, and on Sunday June 1st for patients' session ONLY. The physicians' workshops on June 1st will be held in person ONLY.

๐ŸšจREGISTRATION for the 2nd Canadian spontaneous intracranial hypotension (SIH) IS NOW OPEN!๐Ÿšจ To register & view the program, please scan the QR code or visit: https://www.spinalcsfleakcanada.ca/registration-canadian-sih-conference-2025 >> This event will take place in person in Toronto on Saturday, May 31st and Sunday, June 1st , 2025. Saturday May 31st will feature a full day of plenary and interactive sessions, while Sunday June 1st will be a half- day focussing on interactive workshops. >> A VIRTUAL option is also available for lectures on Saturday May 31st, and on Sunday June 1st for patients' session ONLY. The physicians' workshops on June 1st will be held in person ONLY.

๐ŸšจREGISTRATION for the 2nd Canadian spontaneous intracranial hypotension (SIH) IS NOW OPEN!๐Ÿšจ

To register & view the program, please scan the QR code or visit: t.co/smja6lXr0t

>> May 31st: Full day of plenary sessions. June 1st: Half-day of interactive workshops.

31.01.2025 14:32 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐ŸšจWeโ€™re excited to share our amazing speaker lineup and program for the 2nd Canadian SIH Conference, taking place May 31โ€“June 1, 2025 (Toronto & virtual).

๐Ÿ“Please save the date - Registration will open soon!
>>https://www.spinalcsfleakcanada.ca/program

22.01.2025 22:05 โ€” ๐Ÿ‘ 5    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿšจ๐Ÿ†• Lennarson PJ, Callen AL. Cerebrospinal Fluid Leaks: Diagnosis, Management, and Outcomes. Neurosurg Clin N Am. 2025 Jan;36(1):53-64. doi: 10.1016/j.nec.2024.08.003.
www.sciencedirect.com/science/arti...

14.01.2025 16:08 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Don't miss our upcoming webinar!
๐ŸšจONLY 3โƒฃ DAYS LEFT!

FREE REGISTRATION is still open: ๐Ÿ‘‡
us02web.zoom.us/webinar/regi...

06.01.2025 21:13 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐ŸŽ‰ Happy New Year from all of us at Spinal CSF Leak Canada!
Wishing you a year of health, happiness, and brighter days ahead!

01.01.2025 17:06 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Neurology and Connective Tissue Connective tissue compromise, as is seen in the heritable connective tissue disorders collectively called Ehlers-Danlos Syndrome, but also acquired connective tissue disorders as can be seen in autoim...

Fascinating series of articles on CTD in Neurology in #FrontiersinNeurology including #CSFleak and orthostatic HA.

Great discussion and hypotheses- but surprising how little primary data underpins our current understanding. #knownunknowns

www.frontiersin.org/research-top...

30.11.2024 18:11 โ€” ๐Ÿ‘ 7    ๐Ÿ” 3    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 1

"The survey demonstrates significant gaps in spinal CSF leak care in Canada, similar to global observations. Lack of awareness and access, delayed care, and inconsistencies in investigations and management are common."

06.12.2024 19:13 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
The Challenges of Patients with Spinal CSF Leaks in Canada: A Cross-Sectional Online Survey | Canadian Journal of Neurological Sciences | Cambridge Core The Challenges of Patients with Spinal CSF Leaks in Canada: A Cross-Sectional Online Survey

We are thrilled to announce the publication of our survey on the challenges faced by patients with spinal CSF in Canada, in the Canadian Journal of Neurological Sciences.

Open access: www.cambridge.org/core/journal...

06.12.2024 19:12 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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๐Ÿ“ข New Resource: The Spinal Cerebrospinal Fluid (CSF) Leak Pamphlet
Link to download: www.spinalcsfleakcanada.ca/spinal-csf-l...

06.12.2024 19:07 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Spinal Cerebrospinal Fluid (CSF) Leak of Canada Learn more about, Spinal Cerebrospinal Fluid (CSF) Leak of Canada (Spinal CSF Leak Canada), a national health charity, with a mission to improve the lives and health of sufferers from spontaneous intr...

๐Ÿ‡จ๐Ÿ‡ฆSpinal CSF Leak of Canada is a national health charity, with a mission to improve the lives of patients suffering from spinal CSF leak. We achieve this mission through advocacy, initiatives to raise awareness, education, and support of research.
www.spinalcsfleakcanada.ca

06.12.2024 18:50 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

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