Malka_G

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A Chicago Pope implies the existence of an MLA Pope and APA Pope

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We grew up watching Back to the Future thinking 2025 would have flying cars (hell that was supposed to happen 10 years ago). Instead, we got chronic illness, corrupted science, & vibes-based infection control. And that gave us fascism. Just like the 1918 pandemic & the events that followed.

It's been great to see the influx of people from the ME/CFS and long Covid community in the last week.

Here's a starter pack by @chromatowski.bsky.social that's worth checking out:
bsky.app/starter-pack...

It lists interesting people to follow and also has a feed

#MEcfs #CFS #PwME #LongCovid

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again, this is why wearing a mask is one of the most compelling acts of daily resistance you can engage in. if you changed almost nothing else but start wearing a mask in public indoor spaces, you’re arguably doing more material mitigation to keep you & your community well than this administration.

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Many data sets held by NOAA are being "retired" in may, including datasets relevant to ocean sciences and climate. If you have need for these data, or are an archivist, it would be good to download this now. PLEASE SHARE WIDELY. www.nesdis.noaa.gov/about/docume...

An image of all agency and program eliminations proposed for HHS. Reach out to altCDC for an accessible version or filterable PDF. The alt-text box does not fit all the text contained.

🏥HHS ELIMINATIONS💀
We have created a list of all agency and program eliminations proposed in the HHS 2026 Budget.

Feds: Please let us know if you have any clarity to share.

The cuts are massive. Reach out if you would like a PDF or xlsx

@alt-hhs.altgov.info
@altfda.altgov.info

Disabled/neurodivergent people are worthy of living regardless of whether they have a job or pay taxes or not.

HHS Systems Are in Danger of Collapsing, Workers Say The purging of IT and cybersecurity staff at the Department of Health and Human Services could threaten the systems used by the agency’s staff and the safety of critical health data.

🚨 Still not getting the attention it deserves:

Critical systems behind Medicare, Medicaid, and more—programs that serve over 150 million Americans—are at risk of collapse.

Wired article explains how mass layoffs in HHS IT + cybersecurity leave our health infrastructure dangerously exposed. 🧵

Disability is one of the few minority groups you can join at any time.

People believe they will be the exception & have trouble accepting they’re likely to become disabled at some point in their lives.

Work on internalized ableism. Engage in disability justice. It will benefit you in the long run

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For #NEISvoid folks stocking up on supplements—my LC friend Anna is an NP, so has provider discounts from Pure Encapsulations (35%), Thorne (30%), and Fullscript (25%, has many brands).

I just checked and she said I could share her Linktree w/those discounts: linktr.ee/annabell_np

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This is fine. Everything is super, duper fine.

www.cbsnews.com/news/fda-foo...

National Center for Emerging and Zoonotic Infectious Diseases The Budget discontinues funding for the Lyme Disease,. Prion Disease, Chronic Fatigue Syndrome and the Harmful Algal Bloom programs to prioritize funding for core infectious disease and surveiIlance activities. The Budget also includes $25 minion for the wastewater surveillance program within the Emerging Infectious Diseases PPA."

Some bad news for people living with #MECFS.

Under the 2026 "passback", the "reorganization" of HHS and CDC would cut all ME/CFS funding from CDC.

I think this is a 'scoop', since I'm unaware of anyone having reported on it, yet.

Let's talk about what a passback is, and what it means for us. 🧵🧪

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US FDA suspends food safety quality checks after staff cuts

US FDA suspends food safety quality checks after staff cuts reut.rs/42C4h1Z

banner with pastel colors that says "Patient-Led Research Collaborative 5th anniversary - you can sustain long covid patient-led work when it's needed most!" with a link to bit.ly/plrc-donate

PLRC is 5 years old today!!!!

If you are able, please consider donating to help sustain #LongCOVID research when it’s needed most.

bit.ly/plrc-donate 1/

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Defend the Internet Archive. Protect the Wayback Machine. Tell the music labels: Drop the 78s lawsuit. Sign our open letter on change.org

📢 The Internet Archive needs your help.

At a time when information is being rewritten or erased online, a $700 million lawsuit from major record labels threatens to destroy the Wayback Machine.

Tell the labels to drop the 78s lawsuit.

👉 Sign our open letter: www.change.org/p/defend-the...

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YES! This is a budget *proposal* at the current stage. We can NOT let them do this. This is the time to fight. This is the time to tell everyone you know what's happening and why it matters, to call your senators and reps, to write an op ed, to make your voice heard