Prof Katherine Sleeman

The Health and Social Care Committee’s evaluation of palliative care in England was published yesterday.

It’s hugely important, not least in the context of the assisted dying bill.

It’s had almost no media coverage.

committees.parliament.uk/publications...

Terminally Ill Adults (End of Life) Bill Committee - Reports, special reports and government responses - Committees - UK Parliament Report, special report and government response publications for Terminally Ill Adults (End of Life) Bill Committee.

The report of the House of Lords Terminally Ill Adults (End of Life) Bill Committee has been published.

Less of a ‘report’ than I was expecting - more a compilation of evidence - but useful nonetheless.

committees.parliament.uk/committee/81...

Terminally Ill Adults (End of Life) update

As many will know, the House of  Lords convened a Select Committee to consider the Bill, which heard from witnesses in late October / early November.  It has now finished its evidence sessions.  The transcripts of the oral evidence given by witnesses can…

Dying with dignity Investment in palliative care is crucial to both easing the burden on hospitals and ensuring terminally ill people can have a good death

“The difference between this [hospice] and the hospital is the dignity”

Thank you Sarah Dawood for writing this important article on dying with dignity - and to the patients and families at St Raphael’s for sharing their experiences.

www.newstatesman.com/spotlight/he...

The Association for Palliative Medicine has produced a Myth Buster on assisted dying and the Terminally Ill Adults bill.

The debate must be based on evidence, not soundbites and spin.

It’s an essential tool for Peers, journalists and other commentators.

apmonline.org/wp-content/u...

Stimulating and productive meeting today of our NIHR Policy Research Unit in palliative and end of life care. So lucky to work with such brilliant colleagues.

For more info on our work: www.kcl.ac.uk/research/nih...

Models, components and outcomes of palliative and end-of-life care provided to adults living at home: A systematic umbrella review of reviews - Sophie Pask, Chukwuebuka Okwuosa, Ahmed Mohamed, Rebecca... Background: There is growing demand for home-based palliative care because of patient preference, and increased number of deaths. Optimal models for community-b...

Latest paper from the @mariecurieeolc.bsky.social Better End of Life programme.

Meta-level evidence supporting provision of in-home palliative care, specialist palliative care and integration of primary pall care w specialist support.
journals.sagepub.com/doi/10.1177/...
@palliativemedj.bsky.social

🚨Calling UK health and care practitioners!

Please help us shape the work of the new Impact Centre for palliative and end-of-life care.

Survey takes 15 mins to complete.

We especially want to hear from people from Wales, Scotland and Northern Ireland 🙏

Survey 👇

Join us on 21st October for this year’s Cicely Saunders Institute Michal Galazka Study Day!

👉Topic - Delivering Integrated Palliative Care

👉Great speakers - including @drbenbowers.bsky.social Dr Matthew Allsop and Dr Sarah Mitchell

👉In person and online

👉Free!

Registration: shorturl.at/JzMwG

Join us on 21st October for this year’s Cicely Saunders Institute Michal Galazka Study Day!

👉Topic - Delivering Integrated Palliative Care

👉Great speakers - including @drbenbowers.bsky.social Dr Matthew Allsop and Dr Sarah Mitchell

👉In person and online

👉Free!

Registration: shorturl.at/JzMwG

Good question! Yes, correct.

🔔 We are looking for people aged 18-25 living with complex health conditions to help us with a research study.

📋 The study is about how we measure the symptoms and concerns that matter to you. We’ll pay you £25ph.

📧 Contact Rachel (details below) if you are interested.

Our report for the UK Covid Inquiry on palliative and end of life care during the pandemic has been published.

We include 15 recommendations to strengthen palliative and end of life care so it is fit for the future, including future pandemics.

covid19.public-inquiry.uk/documents/in...

Lovely pic ❤️

Please could you help with the Impact Centre for Palliative and End-of-Life Care Stakeholder Survey, colleagues.
Led by @katherinesleeman.bsky.social

Your insights will directly inform the Centre’s plans:

qualtrics.kcl.ac.uk/jfe/form/SV_...

📣 Are you a UK-based professional working in palliative or end of life care?

💥 Help shape priorities for the new Impact Centre for Palliative and End-of-Life Care.

We’re inviting health & care professionals & commissioners to complete our Stakeholder Survey

👉 qualtrics.kcl.ac.uk/jfe/form/SV_...

🔔 HIRING!

We are looking for a Grade 6 Research Associate to join our great team, delivering policy-focused research to improve palliative and end of life care.

📅 Closes 7th August
📧 Contact me for info

t.co/SR2iA63y0o

🔔 HIRING!

We are looking for a Grade 6 Research Associate to join our great team, delivering policy-focused research to improve palliative and end of life care.

📅 Closes 7th August
📧 Contact me for info

t.co/SR2iA63y0o

Sage Journals: Discover world-class research Subscription and open access journals from Sage, the world's leading independent academic publisher.

New paper from PhD Fellow Rachel Chambers

Evaluating the measurement properties of patient-reported outcome measures for young adults with life-limiting conditions: A systematic review

journals.sagepub.com/doi/10.1177/...

Read about the new Impact Centre for Palliative and End-of-Life Care 👇👇👇

t.co/lMlnKGHzEi

Help us shape the work of the Impact Centre!

If you are a health / care professional or responsible for delivering / commissioning services for dying people, help us understand how the Impact Centre can help YOU by filling out our short survey: qualtrics.kcl.ac.uk/jfe/form/SV_...

Thank you!

Thanks so much Gemma and please let’s have a conversation about it some time 👍

We're delighted to host the new Impact Centre for Palliative and End-of-Life Care, spearheaded by @katherinesleeman.bsky.social, at the Cicely Saunders Institute.

More information 👇

Half of UK adults worried about painful death Almost half (47%) of UK adults are worried that they or their loved ones will have a painful or undignified death, according to a survey commissioned by King’s College London.

King's is delighted to announce the Impact Centre for Palliative and End-of-Life Care.

The Centre will enable the provision of high-quality palliative and end-of-life care across the UK and create systemic change in the delivery of care for dying people.

www.kcl.ac.uk/news/half-of...

Help us shape the work of the Impact Centre!

If you are a health / care professional or responsible for delivering / commissioning services for dying people, help us understand how the Impact Centre can help YOU by filling out our short survey: qualtrics.kcl.ac.uk/jfe/form/SV_...

For more information about the Impact Centre, and to read about the work that has led us to this point, see: www.kcl.ac.uk/nmpc/assets/...

Half of UK adults worried about painful death Almost half (47%) of UK adults are worried that they or their loved ones will have a painful or undignified death, according to a survey commissioned by King’s College London.

Improving palliative and end-of-life care has never been more important.

I am thrilled to announce the Impact Centre for Palliative and End-of-Life Care, which will accelerate better care for dying people by closing the gap between evidence and practice.

www.kcl.ac.uk/news/half-of...

It still concerns me that the only direct consultation with marginalised groups on the #AssistedDyingBill has been the tiny bits I’ve done

I summarise the key findings here

MPs must not take the silencing of these groups as reassurance

#AssistedDying
@katiewhitemp.bsky.social

Rachel outside today programme studio

Yep that’s Justin Webb behind me & I’ll be on the Today programme very shortly to talk about - joy! - winning the 2025 @womensprize.bsky.social for non-fiction for THE STORY OF A HEART!

Tune in to learn about the medical miracle that is organ donation 🩷🫁🫀