Tania Tirraoro's Avatar

Tania Tirraoro

@tanialt.bsky.social

Founder @spcialndsjungle.bsky.social, writer, #autistic, #SENDparent, #SENDsky #EhlersDanlos #Disability #ChildrensRights, Devoted Grandma #wheelchair user #chronicpain

1,157 Followers  |  876 Following  |  235 Posts  |  Joined: 06.08.2024  |  2.0755

Latest posts by tanialt.bsky.social on Bluesky

Preview
New Tube map shows which TfL stations have one important feature The iconic Tube map has been reinvented to show essential features which help make sure everyone can get around

Check out this brilliant article about Snowballs new Accessible London Underground Map in @itsmylondon.bsky.social

www.mylondon.news/news/transpo...

07.10.2025 08:06 โ€” ๐Ÿ‘ 4    ๐Ÿ” 3    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

If it helps, mine had only 80% attendance but still left with good results, including an A* in English with a scribe (mind you this was an amazing specialist school)

07.10.2025 08:31 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

In our second study it was the use of risk assessments that meant children, including those who needed suctioning, were told to stay home https://www.specialneedsjungle.com/scandal-children-complex-needs-not-welcome-back-school/
https://www.specialneedsjungle.com/coronavirus-send-education-survey/

07.10.2025 08:29 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

This really resonates

07.10.2025 08:18 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

We carried out two SEND covid surveys and concur that there was no planning, especially in how to get children with very complex needs back to schoolโ€”many were not allowed to

07.10.2025 08:13 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Doublethink by Stewart Lee @thenerve.news
Mandelson lost his job for being pals with Epstein. Epstein pal Trump, got a state banquet from a King whose brother lost his job for being pals with Epstein https://www.thenerve.news/p/stewart-lee-new-column-doublethink-does-doubletime-starmer-kimmel-trump

06.10.2025 07:58 โ€” ๐Ÿ‘ 5    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1
Video thumbnail

Why are so many #Autistic girls & women diagnosed late, or missed altogether?

Join Dr. Clare Harrop as she unpacks the latest research on the developmental pathways of autistic girls and women, from early childhood through to adulthood. https://bit.ly/3YYg1Li

03.10.2025 16:20 โ€” ๐Ÿ‘ 2    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

And why is it โ€˜the systemโ€™ or framework at fault when itโ€™s the funding of it and the people operating it that have ruined it? These are harder things to deal with, so easier to ignore 3/3

03.10.2025 09:43 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Childrenโ€™s support is not seen as a priorityโ€”just look at the CAMHS initiatives that went nowhere, and the rampant unlawfulness of LAsโ€”why is the government not outraged about that? These reports should make clear theyโ€™re not blaming families (unless they are?) as itโ€™s always the impression left 2/

03.10.2025 09:43 โ€” ๐Ÿ‘ 1    ๐Ÿ” 2    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Perhaps theyโ€™re NEETโ€ฆ because theyโ€™re disabled and unable to work & thereโ€™s too little help. Stats tell one part of a story, but itโ€™s no surprise when cuts to educational and CAMHS support in the last decade have increased needs, as did the pandemic. Social media means more people know about DLA. 1/

03.10.2025 09:43 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Mine is an adult and although there are budgeting apps, the biggest hurdles are getting them to download one-and to admit there is a problem. Even though there is clearly a problem. Impulsiveness for a start and understanding spending priorities.

03.10.2025 09:20 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
image shows a green-colourised photo of a dictionary with the word โ€œbehaviourโ€ behind a personโ€™s hands on a smartphone

image shows a green-colourised photo of a dictionary with the word โ€œbehaviourโ€ behind a personโ€™s hands on a smartphone

NEW POST: Are behaviour-tracking apps harming #SEND children and their families?
Natalia James, discusses her research into how digital monitoring may be discriminating against disabled children and increasing stress on their parents: www.specialneedsjungle.com/b...
#SENDsky #disability

02.10.2025 05:02 โ€” ๐Ÿ‘ 5    ๐Ÿ” 3    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 2

Weโ€™d be happy to help!

01.10.2025 08:52 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Lucky you!

01.10.2025 08:48 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Black background with white text that reads: โ€œBlack History Month: Weโ€™d love to share your story. How has being a sibling shaped your experience? Email info@sibs.org.ukโ€ There are three strips of paper that form an arc in red, gold and green.

Black background with white text that reads: โ€œBlack History Month: Weโ€™d love to share your story. How has being a sibling shaped your experience? Email info@sibs.org.ukโ€ There are three strips of paper that form an arc in red, gold and green.

Itโ€™s the start of #BlackHistoryMonth and this yearโ€™s theme is โ€˜Standing Firm in Power and Prideโ€™. This is especially important for Black siblings who have a disabled brother/sister. How has being a sibling shaped your experience? Weโ€™d love to share your story โ€“ email info@sibs.org.uk

01.10.2025 07:35 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Todayโ€™s post from @spcialndsjungle.bsky.social

30.09.2025 06:59 โ€” ๐Ÿ‘ 1    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Thatโ€™s difficultโ€”& wonโ€™t appreciate not being there makes him stand out more. If no needs assessment, may want to ask for oneโ€”Not Fine in School has help. Also gov guidance for children too unwell to attendโ€”such high anxiety is an illness. GP should be able to refer for therapy. Document everything

29.09.2025 08:28 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

This can only be a good thing.

29.09.2025 07:53 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Preview
NEW Map of Monotropic Experiences: FREE Open Source Trainingย Resources Map of Monotropic Experiences: FREE Open Source Training ResourcesThe Map of Monotropic Experiences:Reframing Autism Through A Neurodiversity-Affirming Lens Training for Professionals, Families and Community Groups to Support Autistic People I am excited to announce that in collaboration with Stumpunks, we have a new free, open-source training resource!At Autistic Realms and Stimpunks, we believe in telling our own stories and validating each other's experiences. The Map of Monotropic...

NEW Map of Monotropic Experiences: FREE Open Source Trainingย Resources

Map of Monotropic Experiences: FREE Open Source Training ResourcesThe Map of Monotropic Experiences:Reframing Autism Through A Neurodiversity-Affirming Lens Training for Professionals, Families and Community Groups to Supportโ€ฆ

28.09.2025 07:24 โ€” ๐Ÿ‘ 16    ๐Ÿ” 8    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

too much, was too accommodatingโ€”but then remember that at the time, I had to be their safe place. Iโ€™d get them in by saying weโ€™d find their mentor, have a chat to see how he could help. Going from one safe person to another helped. 80% attendance, still got A* and with a scribe. (specialist school)

29.09.2025 07:29 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

If you know the root cause, ask him what would help? School should put in reasonable adjustments. Went through similar with youngest. Sometimes, a mental health day was the only way, others, I would wait at school with them for pastoral support to take over. With hindsight, Iโ€™ve wondered if I did โ€ฆ

29.09.2025 07:29 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
A Spanish dagger yucca in bloom

A Spanish dagger yucca in bloom

And now itโ€™s the turn of the sidekick to the main Spanish dagger yucca to have its moment in bloom. Isnโ€™t it spectacular! #gardeningSky ๐ŸŒฑ

28.09.2025 11:41 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Biggest problem is me-I have a chronic pain condition that limits energy and capacity-and other directors have jobs or similar challenges. Plus caregiving ofc. For me, that means just getting posts out is all I can do. We need not just expert advice, but someone to help enact it.

28.09.2025 08:42 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Preview
Impact on children of government decision-making during the pandemic to be focus of UK Covid-19 Inquiry hearings across next four weeks | Article 39

UK Covid-19 Inquiryโ€™s dedicated hearings on children and young people start this Monday 29 September, through to 23 October.

Article 39 is a core participant. We will be holding last government to account and pressing for greater rights protection, more here: article39.org.uk/2025/09/26/i...

27.09.2025 13:15 โ€” ๐Ÿ‘ 4    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

yes, no one is paid a salary and weโ€™re a non-profit. Need some input from somewhere on future sustainability (as Iโ€™m getting old!)

28.09.2025 08:34 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

just did the questionnaire. Apparently Iโ€™m โ€œmore Monotropic than 99% of Allistic people. Which explains a lotโ€”and probably why SNJ is still going after 17 years of free labour. And why Iโ€™m still into the same things I was at 19.

28.09.2025 08:21 โ€” ๐Ÿ‘ 5    ๐Ÿ” 0    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 0

My daughter has been learning Korean for several years, but this may yet still be beyond her

26.09.2025 09:26 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
image shows a speech therapist touching her chin to demonstrate a technique to a child colourised in pink

image shows a speech therapist touching her chin to demonstrate a technique to a child colourised in pink

NEW POST: Speech, language and communication needs (SLCN) are the most common issues experienced by children. Todayโ€™s article, from Gillian Rudd at @mybcu.bsky.social offers a guide for choosing a speech and language therapist for your child with #SEND www.specialneedsjungle.com/c... #SENDsky

26.09.2025 05:02 โ€” ๐Ÿ‘ 1    ๐Ÿ” 4    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Try to work with school on a planโ€”try not to catastrophise about his future and keep the levels of stress around him low โ€”there lots of ways he can do work onlineโ€”but try to get some mental health support from the GP too. There are resources from Not Fine in School

26.09.2025 08:25 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
image shows a small girl with yellow rimmed glasses playing on a bead toy

image shows a small girl with yellow rimmed glasses playing on a bead toy

On SNJ Today: There'll soon be another SEND consultation when the Schools White Paper comes out. But the DfE must learn lessons from the last #SEND Review, say @sheffieldhallamuni.bsky.social researchers when consulting with parent carers & disabled children www.specialneedsjungle.com/c... #SENDsky

24.09.2025 18:50 โ€” ๐Ÿ‘ 0    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

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