Jo

Thanks An, I’m sure it will be fine. Well, I’m not especially anxious.

I’m well aware things can go wrong and often do for me. But I’m more worried by Mr.Cough than the procedure

Sitting in the day procedures waiting pen. The only person in a mask. Man nearby coughing…

While having a neurological adverse reaction to my mestinon from taking it fasted.

So many sighs.

Oh my. Hoping the pause is worthwhile!

Towards an understanding of physical activity-induced post-exertional malaise: Insights into microvascular alterations and immunometabolic interactions in post-COVID condition and myalgic encephalomye... Background A considerable number of patients who contracted SARS-CoV-2 are affected by persistent multi-systemic symptoms, referred to as Post-COVID Condition (PCC). Post-exertional malaise (PEM) has ...

Towards an understanding of physical activity-induced post-exertional malaise: Insights into microvascular alterations and immunometabolic interactions in post-COVID condition and myalgic encephalomyelitis/chronic fatigue syndrome
link.springer.com/article/10.1...

Mitochondrial heterogeneity and homeostasis through the lens of a neuron - Nature Metabolism In this Perspective, Pekkurnaz and Wang offer an integrative overview on how mitochondrial homeostasis and diversity in morphology, distribution, composition and function contribute to meeting specifi...

Mitochondrial heterogeneity and homeostasis through the lens of a neuron
nature.com/articles/s42...

Some nice nuggets of info in here 🧵

The most alarming aspect of the clinical knowledge summary published by NICE (May 2025) in response to #MaeveInquest (ended Oct 2024) is its perfect failure comprehend how to manage #PEM. This was the ignorance that killed Maeve.
3 years of inquiries. #MEKills #ME/cfs
cks.nice.org.uk/topics/myalg...

Early bird registration forour landmark conference ends tomorrow – don’t miss out!

Early bird registration for our landmark conference Safer shared air: Making the invisible visible ends tomorrow - don’t miss out!

🗓 Thursday 6th November
📍 Parliament House, Canberra & online
🎟 Learn more and register: bit.ly/ssa-2025

#SaferSharedAir #MakingTheInvisibleVisible #IAQ #Inclusion

Donate to Medical fundraiser :Stuck between a rock & a hard place, organized by Pixie Louise Rosie medina - Medical bills fundraiser :Stuck between a rock an… Pixie Louise needs your support for Medical fundraiser :Stuck between a rock & a hard place

Medical fundraiser: Stuck between a rock & a hard place
www.gofundme.com/f/rosie-medi...

I've been in touch with this lass and she's in a really bad place. Please do support if you can, even just sharing is super helpful! 🙏

"Nikita said she pushed for further answers but struggled to get a doctor to “listen” and so she paid £400 to have an MRI scan privately, which revealed a “large” tumour in her brain – the cause of her worsening symptoms."

Wonderful news!

Hey, #MedSky & #SciSky! New text from Elsevier out today, "The Scientific Basis of Fatigue", with multiple chapters on different diseases, including #MECFS, COVID, Parkinson's, stroke and MS.

Proud to be the co-author of the #MECFS chapter with authors from Mayo and Bateman-Horne! More info:🧪

Let me be clear. As someone who has been professionally involved with the biodefense / biosecurity sector for nearly 20 years, and has worked on biological risk analysis for Covid-19 since early 2020, reducing one's risk of being infected is not health anxiety. It's just smart.

What a gorgeous smile.

TL:DR- patients having operations that started between 1300 and 1800 had statistically significant increases in postop complications, compared to pts with operative starts before 1300.

Next question- I'd love to know the results for ops starting after 1800. 🤔
#MedSky

💯 this

And perfect cups of tea 😀

Nothing is less reassuring than a doctor that says the word reassure.

GP scepticism could undermine new long COVID funding
www.stirlingnews.co.uk/news/2549691...

"But he warned that systemic challenges must be addressed for the investment to succeed."

Oh no!

“Reassurance” is a four letter word.

Disability modelling agency boss pocketing money she could use to pay her models

This NDIS registered provider (the govt says that registration will ‘keep us safe’) wants to be famous.

Well, let’s meet Monique, who underpays and exploits disabled people through her NDIS registered modelling agency, Diversity Models.

9now.nine.com.au/a-current-af...

Make her famous.

We are very honoured to have been part of Healthy Indoor Air: A Global Call to Action - the inaugural High-Level Side Event on indoor air quality which took place on the sidelines of the UN General Assembly this week.

Community Forum: NDIS Cuts One Year On NDIS cuts are harming disabled people and our supporters. Join us for a forum to learn what's happening and how you can be prepared and take action.

SHARE SIGN UP GET IN FAST

THIS IS AWESOME events.humanitix.com/community-fo...

What we know about the Optus outage linked to three deaths It's been two days since three people died after a devastating Optus outage caused hundreds of emergency calls to fail, but information about the incident remains scarce.

Deaths included an 8 week old baby

No clarity

They didn’t seem to notify governments or other authorities at the time

Fines are not enough

💯 all this 👇🏻

But theres also a weird dynamic where drs will bash wellness BS whilst also spouting it. How many of us have been told to do yoga or lose weight (and ive heard much utter BS on this topic from drs) instead of getting tests? They actively encourage us to seek wellness BS too

FOI Amendment Bill: Not what Faulkner or Allan Hawke wanted The Explanatory Memorandum for the government’s Freedom of Information Amendment Bill 2025 claims it implements or responds to certain recommendations from previous reviews and inquiries, citing in pa...

#FOI isn’t a sexy sport, but it is used by engaged citizens, NGOs and media to increase participation in democracy and to scrutinise Govt. @AlboMP’s FOI Amendment Bill is an assault on open government and shows him to be a #transparency fraudster. #auspol

Opinion: Chronic absenteeism from school has worsened since Covid and must be tackled Student attendance has deteriorated since Covid, with more than 30% of students in Deis second-level schools now defined as ‘chronic absentees’

This illustrates exactly how the term, 'Covid' has come to mean, 'the non-pharmaceutical interventions adopted during the emergency phase of the pandemic', not the disease itself.

The 'Covid effect' mentioned in the piece is actually acute C-19 and its sequelae.

www.irishtimes.com/ireland/educ...

Kaiterra Matched giving day from 1pm AEST 4th September.

Exciting news! 
 
On Thurs 4 Sept from 1pm AEST, we're holding a Matched Giving Day, generously supported by Kaiterra
 
Every donation received from 1pm will be doubled - up to a total of $800. That means your support can go twice as far in helping us take lived experience to UN Headquarters.

Oh no

Is there anyone in government prepared to rein in the agency? Because I keep asking, and keep presenting documentary evidence, and not a word from ministers.

Exclusive: NDIA accused of ‘repeated non-compliance’ as it prepares for autism reforms While advocates say they have been ambushed by Labor’s plans to eject autistic children from the National Disability Insurance Scheme, the agency has been accused of ignoring multiple legal orders.

As govt prepares to remove children from the NDIS, the agency in charge of the scheme has been torn to shreds by the administrative review tribunal for breaking the law, 'repeated non-compliance' and conduct that constitutes contempt. A pattern emerges. www.thesaturdaypaper.com.au/news/politic...