New book on #delirium for families - coming out in August 2025.
#newbook
@annefinucane.bsky.social
Marie Curie Senior Research Fellow in Clinical Psychology at the University of Edinburgh. Palliative care, psychological interventions, Acceptance and Commitment Therapy (ACT), implementation. Co-Lead: https://www.mainexchange.org.uk
New book on #delirium for families - coming out in August 2025.
#newbook
Listen to our latest Mini Series with Dr Anne Finucane and Dr David Gillanders and you'll find out more about their brilliant resource - mygriefmyway.co.uk - listen here or wherever you get your pods.
rossmcintosh.co.uk/links/
The Royal Society of Medicine have launched their medical student essay competition - palliative care section.
2000 words by 25th sept.
Title: βDifficult patients" or a difficult system? Reimagining palliative care for people with serious mental illness.
www5.shocklogic.com/scripts/jmev...
Thanks so much Mark! We are uploading additional new material soon. And we have a webinar on the resource and its development on 10th June: www.mainexchange.org.uk/webinars/upc...
30.05.2025 19:20 β π 2 π 1 π¬ 0 π 0
Sharing the results of this important study at #EAPC2025:
Mapping the #PalliativeCare #Research workforce in the UK πΊοΈ - thoughts?
Led by @annefinucane.bsky.social
-with wide collaboration including @simonnoahetkind.bsky.social & @flissmurtagh.bsky.social
Funded by @mariecurieeolc.bsky.social
@davidgillanders.bsky.social @lavendercrew.bsky.social @donnawakefield.bsky.social @emilyharrop.bsky.social @lizforbat.bsky.social @lgrahamwisener.bsky.social
30.05.2025 03:49 β π 0 π 0 π¬ 0 π 0Great to see over 100 posters on the management of psychological symptoms & needs at #eapc2025. Check out our poster on research required in this area. And feel free to join our network to exchange ideas on research and practice in this space: www.mainexchange.org.uk
30.05.2025 03:49 β π 8 π 6 π¬ 1 π 0@davidgillanders.bsky.social @lucyselman.bsky.social @donnawakefield.bsky.social @emilyharrop.bsky.social @sabinebest.bsky.social
29.05.2025 08:03 β π 0 π 0 π¬ 1 π 0
My Grief My Way: delighted to present a poster on our bereavement support resource at #eapc2025. Our website content is free to use by all, with further material coming soon!
mygriefmyway.co.uk
Funded by @mariecurieuk.bsky.social
Myth: Sedatives (like benzos) are mostly helpful in calming delirium.
Fact: Sedatives often worsen delirium. Non-drug approaches (reorientation, hydration, mobility) are first-line treatments.
Grant writing workshop - Edinburgh 08.05.25.
π Networking & brainstorming ideas for future grant applications on mental wellbeing towards end-of-life.
πBursaries available for 2 early career researchers
πInfo: www.mainexchange.org.uk/news/grant-w...
Funded by @mariecurieeolc.bsky.social
New paper: Caregiving burden, receipt of palliative care, and the use of bereavement support: secondary analysis of population-based data
bmcpalliatcare.biomedcentral.com/articles/10....
Congratulations Maja!
My Grief My Way: All welcome to our webinar on the development of an acceptance based bereavement support website to enhance coping and quality of life after bereavement. 10.06.25. With @davidgillanders.bsky.social
Register:
www.mainexchange.org.uk/webinars/
Funded by @mariecurieeolc.bsky.social
Our meta review out now on psychosocial interventions in #dementia #palliative care - critical gaps in evidence on care co-ordination, transitions, and carer support www.sciencedirect.com/science/arti...
31.03.2025 19:53 β π 10 π 6 π¬ 1 π 1
Want to engage more with someone who has memory loss or dementia, but don't know where to start? With OU Connect, I've created a short guide to Reminiscence Therapy, using objects to unlock memories & connections. Interactive & free printout here -
publuu.com/flip-book/46...
π RECRUITMENT ALERT π
Very excited to be recruiting to THREE new posts (Lecturer, G6/7 and G4) in my team at Kingβs College London to set up and grow a new Impact Centre for Palliative and End of Life Care.
See next tweets for details.
Impact Centre: www.kcl.ac.uk/research/the...
Pls share
Invitation: Our next Mental health and wellbeing in Advanced Illness Network (MAIN) webinar is on 1 April @ 1pm.
Topic: Identification of psychological distress in palliative care. With @lgrahamwisener.bsky.social & Dr Niall Galligan.
Register here:
events.teams.microsoft.com/event/a35af4...
*New paper*: As in other settings, the term 'delirium' is rarely used. Targeted training alongside timely advice from specialist palliative care teams is recommended.
Led by: Liz Arnold. With Juliet Spiller.
Funded by @mariecurieeolc.bsky.social
bmcpalliatcare.biomedcentral.com/articles/10....
This paper is a helpful reminder of importance of consistent and scheduled #writing!
I've recently started to write everyday but the paper offers tips how to make it more structured and effectiveπ€©
Thanks @johnmacartney.bsky.social and Rachel Perry!
#academicsky
nilq.qub.ac.uk/index.php/ni...
The top 10 new priorities for palliative and end of life care research are: How do people with dementia experience end of life? How can palliative and end of life care better meet their needs and those of their carers, friends and families? How can NHS, social services and charities work more collaboratively to provide joined-up care that better meets the needs of people with a serious life-limiting illness and their carers, friends and families? What kinds of palliative and end of life care and support need to be in place to enable people to die well at home? What skills do staff need? What helps or hinders the delivery of care at home? What are the best ways to provide personalised palliative and end of life care that meets all the physical, mental, practical, social and spiritual needs of a person with a serious life-limiting illness? How can palliative and end of life care better meet the complex needs of people with multiple health conditions? How can communication and care co-ordination be improved across the teams of health and social care professionals caring for people with any serious life-limiting illness? What skills, training and information do carers, friends and family members need to be able to care for someone who is dying at home (e.g. giving medicines safely by injection, managing incontinence, moving people)? What is the impact (pros and cons) of upskilling the people giving care? How can the quality of palliative and end of life care in hospital be improved? What helps or hinders improvement? What are the best ways to provide palliative and end of life care, support and advice at all hours (24/7 or out of hours)? How can palliative and end of life care better meet the needs of people who live alone, or are socially isolated?
Weβre excited to announce the launch of new research priorities for palliative and end of life care!
These have been created in a project with the JLA and other partner organisations, including co-funders the ESRC and @mndassoc.bsky.social, and guided by people affected by a life limiting illness.
You can also now download and read our report, "'To Know Dying' Identifying research areas in palliative and end of life care for the social sciences and humanities"
healthopenresearch.org/documents/7-1
@ericaborgstrom.bsky.social @brionyhudson.bsky.social @marigreenfield.bsky.social
Hi Emma, we have a session on recognising & managing delirium at our upcoming Marie Curie conference. 13th feb @ 11am. Free to register. All welcome! (Thx @natashabradley.bsky.social for the connection).
www.mariecurie.org.uk/globalassets...
Looking forward to the next MAIN webinar, TODAY at 12:30 with @paedpallcare.bsky.social & @victoriaefisher.bsky.social On the health and wellbeing of parents and children with life-limiting conditions. Still time to register here!: www.mainexchange.org.uk/webinars/upc...
17.01.2025 08:56 β π 1 π 1 π¬ 0 π 0
REALLY IMPORTANT SURVEY for all those in the UK researching dying and palliative care.
The results will help shape research funding - so have your say, *especially* if you are have a social science or humanities background!
Invitation - open until Sunday 12th: If you are a UK-based researcher, or clinician conducting palliative care research, please complete our brief survey to help funders understand what is needed to sustain and grow palliative care research in the UK. Now open until 12.1.25:
We share links to systematic review evidence on mental wellbeing & psychological support for people with advanced illness here: www.mainexchange.org.uk/research/. If you would like us to add any open access reviews you are aware of, please get in touch!
19.12.2024 09:35 β π 1 π 1 π¬ 0 π 0
If you interested in research on mental health and wellbeing for people impacted by advanced illness, please check out our MAIN website and resources. Free to join. All welcome. Next webinar is 17.01.25. Funded by @mariecurieuk.bsky.social
www.mainexchange.org.uk
Invitation: If you are a UK-based researcher, or clinician conducting palliative care research, please complete our brief survey to help funders understand what is needed to sustain and grow palliative care research in the UK. Now open until 12.1.25:
app.onlinesurveys.jisc.ac.uk/s/edinburgh/...