Rehabilitation Science Research Network for COVID

2025 ME Conference - ICanCME

Join ICanCME for their Canadian Collaborative Conference on Myalgic Encephalomyelitis: Nothing About Us Without Us. Learn more and register at icancme.ca/research/202...
@icancmeresearch.bsky.social

New Event: Join us for the Fireside Chat: Deep dive into activity, movement, PESE and PEM in the context of Long COVID and Infection-Associated Chronic Conditions. Visit our website for more information and to register! tinyurl.com/33hd3r2a
@drjillcameron.bsky.social @kellyobrien25.bsky.social

Dr. Kelly O'Brien (@kellyobrien25.bsky.social) and Dr. Jill Cameron (@drjillcameron.bsky.social) will be presenting and chairing at the 2025 @longcovidweb.bsky.social Canadian Symposium on Long COVID.

More details on the event below:
www.longcovidweb.ca/events/3rd-c...

New publication: Establishing a framework of measurement for use in Long COVID research and practice: protocol for a scoping review involving evidence review and consultation
@longcovidweb.bsky.social

Read it below:

bmjopen.bmj.com/content/15/9...

Congratulations to Dr. Euson Yeung, 2025-2026 Catalyst Grant recipient for the project 'Defining Entry-Level Competencies for Safe Rehabilitation of Individuals with Post-Exertional Malaise: A Delphi Study’. @drjillcameron.bsky.social @kellyobrien25.bsky.social

Congratulations to Dr. Chavon Niles, 2025-2026 Catalyst Grant recipient for the project ‘Untold Stories of Long COVID: A Photovoice and Narrative Study Among Black and Racialized Communities in Ontario’.
@drjillcameron.bsky.social @kellyobrien25.bsky.social

@longcovidgroup.bsky.social @kellyobrien25.bsky.social @lisamccorkell.bsky.social @darrenabrown.bsky.social @cathythomsonpt.bsky.social @kerlandsonmd.bsky.social

Experiences of pacing to reduce symptoms among adults living with Long COVID in Canada, Ireland, the United Kingdom and the United States - Discover Public Health Background Long COVID is a multisystem condition that negatively impacts daily function. Pacing is a self-management strategy to mitigate symptoms. Our aim was to describe experiences of pacing from t...

New publication: Experiences of pacing to reduce symptoms among adults living with Long COVID in Canada, Ireland, the United Kingdom and the United States
doi.org/10.1186/s129...
@longcovidsupport.bsky.social
@lcaireland.bsky.social
@patientled.bsky.social
@longcovidphysio.bsky.social

@longcovidgroup.bsky.social @kellyobrien25.bsky.social @lisamccorkell.bsky.social @darrenabrown.bsky.social @cathythomsonpt.bsky.social @kerlandsonmd.bsky.social

Community Engagement in Long Covid Research: Process, Evaluation and Recommendations From the Long COVID and Episodic Disability Study Introduction Long Covid and other infection-associated chronic condition communities have been integral in advocating for patient engagement in all stages of research, from design and conduct, and i...

New publication: Community Engagement in Long Covid Research: Process, Evaluation and Recommendations From the Long COVID and Episodic Disability Study

doi.org/10.1111/hex....

@longcovidsupport.bsky.social @lcaireland.bsky.social @longcovidphysio.bsky.social @patientled.bsky.social

Recordings and the Report from the 2025 International Forum on COVID Rehabilitation Research are now available, including the keynote session by @julialmv.bsky.social
www.youtube.com/watch?v=6wPH...
Check out all the recordings and report below:
rehabcovidnetwork.med.utoronto.ca/2025-interna...

infographic on the PLRF with an address to register at bit.ly/PLRF-2025

list of researchers presenting, including on T cell responses, foraminal stenosis in ME/CFS patients, and more

list of researchers presenting, including on microclots, PEM pathophysiology, clinical trial results, and more

We're hosting a Patient-Led Research Fund (PLRF) webinar on July 9, 1–4:30PM ET!

Hear results from 10 PLRF-funded biomedical studies (on microclots, T cell exhaustion, trials, & more), all selected by a panel of patient-researchers.

🗓️ Register: us02web.zoom.us/webinar/regi...

#LongCOVID

@patientled.bsky.social is hosting a free webinar next week, where the results and latest progress from biomedical studies funded by the Patient-Led Research Fund (PLRF) will be presented!

When: Thursday July 9th, 2025 | 1PM - 5PM ET
Where: Register on Zoom us02web.zoom.us/webinar/regi...

Photo of forum attendees

Thank you to everyone who attended the #COVIDrehab forum in-person and online. It was a great day of knowledge exchange and collaboration!

Sue Birch shares tips to accommodate return to work:
💡noise cancelling earphones
💡printer beside desk
💡blue light filter on computer

Fran Wolfe speaks about importance of peer support for people with Long COVID. "The family members and caregivers don't understand. Peer support gives them a community."

"Just because we don't know something doesn't mean it's not real"

Cara Kaup speaks about lived experience with Long COVID. "Support and education is so vital."

Michelle shares some self management resources for patients, caregivers and family members

Now for our second panel discussion, Navigating the Maze of the Continuum of Care for Rehabilitation Living with Long COVID, with Sue Birch, Elizabeth Racz, Michelle DiLauro, Fran Wolfe and Cara Kaup at #COVIDRehab forum

Simon Décary’s #KeyMessages from the #COVIDRehab forum:

📌 Quebec implemented a 15-site integrated care model, delivering care to thousands of Long COVID patients from 2020-2025

Samantha Hancock’s #KeyMessages from the #COVIDRehab forum:

📌 The return-to-work process for people with Long COVID is non-linear and individualized

Samantha Hancock presents research

Samantha Hancock presents research on Long COVID and One’s Ability to Work at #COVIDRehab forum

Angela Cheung gives presentation

Angela Cheung gives an update on CANCOV, RECLAIM and Long COVID web at #COVIDrehab forum.

Video of someone trying to access safe rehab, but along the path, there are hurdles in the way.

Tania Janaudis-Ferreira starts Research Session 2.

Understanding the Impacts of Post-Exertional Malaise in Individuals with Long COVID Participating in a Physical Rehabilitation Trial.

Key finding:
📌 Identifying complexities involved in effective, safe physical rehabilitation for Long COVID

Kiera McDuff & Julia Nathanson’s discuss Establishing a Framework of Measurement for Long COVID Research and Practice: Updates from a Scoping Study Involving Evidence Review and Consultation.

📌The selection, utility and interpretation of outcome measures for Long COVID must be advanced

Alice MacLean discusses people's experiences of attempts to return to work and school with Long COVID.

Key message at #COVIDRehab forum:
📌 Existing policies are not well-designed for episodic disabilities like Long COVID

This was an excellent keynote by @julialmv.bsky.social from @patientled.bsky.social.💙

Thank you so much for using both research and personal experience to further the discussion on wearable technology and #LongCovid rehabilitation. #CovidForum

Can automated language analyses identify cognitive deficits in Long COVID? Tijana Simic & Kathleen Fraser present research at the #COVIDRehab forum:

📌Long COVID affects >1 million Canadians, causing long-term symptoms not well-captured by standard cognitive testing

Todd Davenport’s #KeyMessages from the #COVIDRehab forum:
📌 Long COVID symptoms have a basis in bioenergetic impairment, which can be demonstrated using 2-day CPET