@physiopaul.bsky.social
Postdoctoral Consultant Physiotherapist - Haemophilia/ Bleeding Disorders | Royal Free Hospital London | Research Dept Haematology UCL
Elderly people exercising
An NDORMS study has found that a tailored exercise programme for people aged 80 years + with osteoarthritis is practical and acceptable, leading the way to a large clinical trial. https://www.ndorms.ox.ac.uk/news/study-finds-tailored-exercise-programme-feasible-for-adults-over-80-with-osteoarthritis
21.10.2025 06:01 — 👍 4 🔁 2 💬 0 📌 0
The EAHAD 2026 AHP Day programme is live! Explore the sessions and prepare for the latest in haemophilia science and care: eahadcongress.com/allied-healt...
11.09.2025 09:00 — 👍 1 🔁 1 💬 0 📌 0
📰 Check the recently published article “Gap Analysis Investigating Healthcare Professionals’ Skills and Knowledge for Pain Management in Haemophilia - A Qualitative Study”. 🔗 onlinelibrary.wiley.com/doi/10.1111/... @haemophilia.bsky.social
04.09.2025 08:48 — 👍 4 🔁 2 💬 0 📌 1
#WorldPTDay we highlight the importance of physiotherapy for those living with a #bleedingdisorder #haemophilia Specialized, personalised and supported care from childhood through to later in life, promoting and enabling participation and physical activity for all.
08.09.2025 10:13 — 👍 5 🔁 4 💬 0 📌 0Calling all physiotherapists with experience in inherited bleeding disorders! The #EMPOWER study, led by 2024 Research Grant recipient Megan Kennedy, highlights the often-overlooked experiences of PTs caring for women and girls with BD. Take the survey tcdhealthsciences.qualtrics.com/jfe/form/SV_...
06.08.2025 11:59 — 👍 2 🔁 2 💬 0 📌 1
🩸Abstract submissions for EAHAD 2026 will open soon! Get organised and start compiling your latest findings ahead of time: eahadcongress.com/abstract-sub...
01.08.2025 06:00 — 👍 2 🔁 1 💬 0 📌 0
🚨 New in @rpth.bsky.social: “Gene-based therapies for hemophilia” offers a clear, visual overview of gene therapy for hemophilia A and B, now available #openaccess.
🔗 Read the full article & be sure to follow @rpth.bsky.social: www.rpthjournal.org/article/S2475-0379(25)00194-3/fulltext
🩸 Join the EAHAD community and play an active role in advancing care for #haemophilia and allied disorders. Gain access to exclusive benefits, including discounted registration for #EAHAD2026 in Dublin! 🔗 Sign up today: www.eahad.org/become-a-mem...
16.07.2025 07:00 — 👍 1 🔁 1 💬 0 📌 0
Scoping review highlighting lack of #rehabilitation research in POEMS syndrome,
Led by NHNN physio Lucy Johnson, published in @clinicalrehab.bsky.social
journals.sagepub.com/doi/10.1177/...
@uclh.bsky.social @gitaramdharry.bsky.social @jackiewalumbe.bsky.social
🎥 Prof. Niamh O’Connell, President of #EAHAD2026, welcomes you to the journey toward Dublin. Watch her short message to the haemophilia community:
🔗 eahadcongress.com
The 19th Annual Congress of EAHAD is taking place in Dublin from 3 - 6 February 2026. Join experts in #haemophilia and allied disorders for four days of science, connection, and impact. Explore the website: eahadcongress.com
#EAHAD2026
@hcpa.bsky.social
www.linkedin.com/posts/deciph...
Every single person is a heart beat, a car crash or an infection away from acquiring a lifelong disability and needing support.
Ring fencing PIP to those who already receive it is, paradoxically, even more unfair than the original proposal. #Newsnight
👏 A truly encouraging session today at the #ISTHCongress on the ISTH haemophilia guidelines. The open and constructive dialogue reflects the progress we’ve made collectively as a global community. This evolving landscape highlights the value of collaboration and mutual respect among all stakeholders
24.06.2025 18:36 — 👍 5 🔁 3 💬 0 📌 0
🤝 We are pleased to announce that EAHAD has signed an MoU with @isth.org reaffirming our commitment to supporting the bleeding disorders community. This is the result of early efforts and continued dialogue from our side, supported with enthusiasm by our ISTH colleagues!
22.06.2025 15:54 — 👍 3 🔁 2 💬 0 📌 0🩺 Calling all nurses in #haemophilia & bleeding disorders! The EAHAD Nurses Committee is looking for one new member to join for a three-year term starting September 2025! 📅 Don’t wait and apply now: www.eahad.org/call-for-app...
02.06.2025 14:47 — 👍 5 🔁 4 💬 0 📌 0
Late breaking at #ASCO25:
A 3-year structured exercise program after adjuvant chemotherapy for colon cancer improved disease-free and overall survival, physical functioning, and fitness, as compared with health education alone. Full CHALLENGE phase 3 trial: nej.md/4mh5RPL
@ascocancer.bsky.social
🔍Rethink the way you search! Join Wichor Bramer, Biomedical Information Specialist, for a hands-on session on literature searches. A unique collaboration between the Nurses Committees of @wfhemophilia @isth and #EAHAD 📺: academy.eahad.org/eahad/2025/n...
30.05.2025 09:08 — 👍 3 🔁 2 💬 0 📌 0
In light of recent decisions by several pharmaceutical companies to pause, scale back, or discontinue their haemophilia gene therapy programs, the International Society on @isth.org #WFH and #EAHAD have issued a formal Call-to-Action.📄 Read the full statement here: www.isth.org/news/699516/
06.05.2025 13:06 — 👍 2 🔁 2 💬 0 📌 0
#PhysiotherapyNews 📚 The Clinical Practice Guideline for Physiotherapy in Haemophilia is now available in Italian 🇮🇹 in addition to English, French and Dutch! 🔗 www.eahad.org/eahad-projec...
🔬 Thanks to UMC Utrecht, EAHAD PT Committee, and European experts
At #wfhccs in Dubai one of our UK physiotherapists Melanie Bladen speaking on the international expert panel discussing the importance of periodic visits for people with #BleedingDisorders #physiotherapy #mskcare #medsky
24.04.2025 09:47 — 👍 4 🔁 2 💬 0 📌 0
#wfhccs UK and Ireland physiotherapists Richard Davis & Mark McGowan share their work in the poster hall #physiotherapy #bleedingdisorders
Developing physiotherapy guidelines for iliopsoas haematomas and Adapting physiotherapy approaches for older patients with #haemophilia
Professor David Stephensen, UK physiotherapist sharing his work at #wfhccs on identifying performance based outcome measures of physical function in #haemophilia #physiotherapy moving towards core outcomes in #BleedingDisorders
24.04.2025 09:59 — 👍 4 🔁 3 💬 0 📌 0Fancy a new venture in #nursing? Why not come take a look at joining the @SheffieldHosp #haemostasis team as a #TTP & #BleedingDisorders specialist nurses? Give us a call, come meet the team. Lots of opportunities for development in this exciting field
www.sth.nhs.uk/work-for-us/...
www.bmj.com/content/389/...
Oh dear me
What @mgtmccartney.bsky.social said, basically.......
Future of pain care on a billboard
I presented findings from my PhD at a workshop supported by materials co- produced with @designscience.bsky.social. Inspired conversations captured with @sanjamaretic.bsky.social we share our editorial 👇🏾👇🏾👇🏾⭐️https://painandrehabilitation.co.uk/index.php/par/article/view/18 ⭐️
03.04.2025 19:18 — 👍 5 🔁 3 💬 0 📌 0
#PhysioNews 🎙️ Get ready for an insightful conversation with @physiopaul.bsky.social on his recent paper "Exercise-based telerehabilitation for the management of chronic pain in people with severe haemophilia"! Tune in now 🎧 on Spotify: open.spotify.com/episode/2B8j...
27.03.2025 12:40 — 👍 3 🔁 3 💬 0 📌 0
Discover the latest advancements in Acquired Haemophilia A with the latest e-learning module on the EAHAD Academy! Join expert Rebecca Kruse-Jarres as she explores current practices and future directions in this comprehensive session. 🎥 academy.eahad.org/eahad/2025/e... #HaemophiliaA
14.03.2025 11:59 — 👍 2 🔁 1 💬 0 📌 0Link to final version now available 50 days free access, no sign up 🙂
kwnsfk27.r.eu-west-1.awstrack.me/L0/https:%2F...
