Lonely Eyes Blog's Avatar

Lonely Eyes Blog

@lonelyeyesblog.bsky.social

Sharing my personal story about living with Sjogren's dry eye disease; and it's profound impact on my life. Hoping to also provide comfort to others suffering from any autoimmune condition & chronic illness; by showing them; they are not suffering alone.

6 Followers  |  1 Following  |  75 Posts  |  Joined: 13.07.2024  |  1.609

Latest posts by lonelyeyesblog.bsky.social on Bluesky

Preview
A year and 2Β days It has been one year and 2 days since I published my first post. It has been 6 months since I last wrote. This definitely did not go as I had planned. I intended on writing consistently. That did not take place. The reason I stopped posting? Depression. Plain and simple. Period. I have unfortunately fallen into a very deep depression.

A year and 2Β days

It has been one year and 2 days since I published my first post. It has been 6 months since I last wrote. This definitely did not go as I had planned. I intended on writing consistently. That did not take place. The reason I stopped posting? Depression. Plain and simple. Period.…

23.04.2025 01:02 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
How do we find joy? How do we find joy & the desire to keep moving forward; when we are dealing with something negative which impacts our daily life? I’m not sure. When I find myself really down in the dumps…

lonelyeyes4.wordpress.com/2024/10/20/h...

20.10.2024 21:43 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Secrets and lies; always come out………. *I am sharing this post from another blogger* Deleting messages doesn’t make things disappear. It doesn’t erase the lies, the secrets, or the betrayal that comes with it. If there’s nothing wrong, …

lonelyeyes4.wordpress.com/2024/10/11/s...

20.10.2024 21:42 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Insomnia I don’t always sleep well anymore. I have to say insomnia is difficult. I want to sleep. But, for some reason my body is totally backwards. I am wide awake at night and during the day, I cras…

lonelyeyes4.wordpress.com/2024/10/04/i...

04.10.2024 13:44 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
No specific title; just thoughts Well, it’s the same as I have mentioned in my past few posts. I have not published much of anything in the past couple of months. I have really been struggling with the Sjogren’s; tryin…

lonelyeyes4.wordpress.com/2024/10/03/n...

03.10.2024 23:10 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
A suggestion of what *not* to say to someone I have written about this subject a bit; in several previous posts. However, I want to bring it up again; & share a post about communication & how it can be received by someone who is dealing with a d...

lonelyeyes4.wordpress.com/2024/09/15/a...

16.09.2024 00:10 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Depression I have not posted much in well over a month. I have really been struggling mentally. Trying to stay positive while having dry eyes; hair loss; insomnia and lately exhaustion during the day. It's been ...

lonelyeyes4.wordpress.com/2024/09/12/d...

13.09.2024 00:40 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Last eye appointment I meant to write about my last eye appt; but have not. I have just been in a horrible funk lately; and can't seem to get out of it. I had mentioned back in July; I was beginning to wonder if I could p...

lonelyeyes4.wordpress.com/2024/09/11/l...

12.09.2024 01:27 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Rambling/update So much has been going on since July; I just have not had time to write about most of it. A couple of my reason's for beginning this blog; was "therapy" for myself & attempting to bring more awareness...

lonelyeyes4.wordpress.com/2024/08/25/r...

26.08.2024 00:18 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
A heavy heart I have not posted in quite a while. So much has been going on; so many emotions I've been trying to juggle & balance. My mama heart is hurting this week. My youngest has left for school. I am so happy...

lonelyeyes4.wordpress.com/2024/08/21/a...

22.08.2024 01:07 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Lipiflow & IPL I've been researching possible treatments which could help me in some way. 2 treatments which have come up are Lipiflow & IPL. I've read some posts from people with Sjogren's using these treatments. B...

#sjogrens #dryeyetreatments #dryeyedisease #silentdisease #autoimmune

lonelyeyes4.wordpress.com/2024/07/30/l...

31.07.2024 02:31 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Sunsets I'm looking out my window & the sun is a gorgeous golden ball right now. We had storms earlier this evening. The clouds cleared & the sun is shining through the mountains. The rays are coming through ...

#dryeyedisease #autoimmunedisease #sjogrens #silentdisease #mentalhealth #depression #dryeyes #sjogrenssyndrome

lonelyeyes4.wordpress.com/2024/07/30/s...

31.07.2024 01:07 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
The Mirror Something else dry eye disease takes from so many of us; Confidence. Self Esteem. Feeling attractive. Feeling pretty. Feeling as if we look "well enough" to even be out in public. I absolutely loathe ...

#dryeyes #dryeyedisease #sjogrens #autoimmune #silentdisease #blogger #mentalhealth #depression #sjogrenssyndrome #autoimmunedisease

lonelyeyes4.wordpress.com/2024/07/28/t...

28.07.2024 16:43 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Autologous serum eye drops or PRP? *I wrote this a couple of days ago & have not had time to publish* I am frustrated beyond belief. I have made several posts; about using the "PRP" eye drops. I was even beginning to have *some* hope; ...

#dryeyedisease #sjogrens #silentdisease #autoimmune #PRP #prptherapy #eyedrops #dryeyes #mentalhealth #chronicdisease #blogger

lonelyeyes4.wordpress.com/2024/07/27/a...

28.07.2024 03:14 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Shopping Another activity most take for granted "shopping". When I say shopping; I am not just referring to clothes. I mean; any kind of shopping. This is something else I can no longer do at my own leisure. I...

lonelyeyes4.wordpress.com/2024/07/24/s...

#sjogrens #dryeyedisease #dryeyes #autoimmune #silentdisease #mentalhealth #dailylife #chronicdisease #depression

25.07.2024 02:57 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

#sjogrens #dryeyes #dryeyedisease #autoimmune #chronicillness #silentdisease #mentalhealth #depression #sjogrenssyndrome

24.07.2024 04:51 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Travel & Vacations Travel? vacation? Something else I have not been able to enjoy since prior to 2021 when my nightmare began. I have been on "small" trips since my dry eye disease developed. They have been attending th...

lonelyeyes4.wordpress.com/2024/07/24/t...

#dryeyes #sjogrens #autoimmune #chronicillness #silentdisease #mentalhealth #depression #dailylife

24.07.2024 04:49 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Friends & Activities Something else I have lost due to Sjogren's; friendships. During 2021 "friends" who I would previously see or talk with on a regular basis; had already somewhat changed. Due to everything which went o...

lonelyeyes4.wordpress.com/2024/07/22/f...

22.07.2024 04:58 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Preview
Everyday routine; gone I mentioned in my previous post; I have decided to write about what I have personally "lost" from this disease. Not to be depressing or have sympathy. But, to help bring awareness to others who may be...

lonelyeyes4.wordpress.com/2024/07/20/e...

21.07.2024 04:12 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Lonely lives I wonder; do people understand how lonely having a chronic illness, chronic ailment, autoimmune disease, or a "silent illness" can be for those of us living it? Whether it be our friends, extended fam...

lonelyeyes4.wordpress.com/2024/07/20/l...

21.07.2024 00:50 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Drops/eye update Just a brief update; yesterday was a rough day for my eyes. It is disappointing. Over the past few weeks; while using my drops; my eyes have been a "tad" improved. I haven't had as many days of consis...

lonelyeyes4.wordpress.com/2024/07/15/d...

21.07.2024 00:50 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Suffocating I've realized over the past 3 years; how overwhelming having your own health issues; added onto your "life" which was already in existence; can be. Today has been one of those days; where I am just ex...

lonelyeyes4.wordpress.com/2024/07/12/s...

21.07.2024 00:49 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Coincidence? I spoke with a friend today; who also has health issues. We had not touched base in awhile. It was time for our usual "catch up session" on the phone. We were sharing life updates, status updates on o...

lonelyeyes4.wordpress.com/2024/07/11/c...

20.07.2024 02:21 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Sjogren’s, morning & night struggles? Does anyone with Sjogren's struggle in the morning? Or feel as if your body needs a certain amount of time to "wake up" in order to function for the day? What about being a night owl; even when you do...

lonelyeyes4.wordpress.com/2024/07/09/s...

18.07.2024 15:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
One of those days, part 3 I realized I stopped making the 4th of July cake; because the boys had grown up. Life got in the way. Interests changed. They changed. Then I began to think about how back then; I had no idea how luck...

lonelyeyes4.wordpress.com/2024/07/07/o...

15.07.2024 13:20 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
One of those days; part 2 After we were going over his housing choices, dates, deadlines etc. I made dinner; feeling happy for him and trying not to think about my mixed feelings of joy and sadness. After dinner; I needed some...

lonelyeyes4.wordpress.com/2024/07/05/o...

15.07.2024 13:20 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
One of those days Do you ever have a day when it's hard to just "snap" out of it? When you do not want to be depressed or sad; but your mood doesn't improve? What about a day where out of nowhere your mental mood chang...

lonelyeyes4.wordpress.com/2024/07/05/o...

15.07.2024 13:19 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Hats I mentioned in a previous post; I would write more about "hats". I do not enjoy wearing a hat. Why? Because I have had to wear one on probably 99% of my "public" outings since the onset of my dry eyes...

lonelyeyes4.wordpress.com/2024/07/02/h...

15.07.2024 13:19 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Update on drops Just want to post an update on the drops; since I have been using them since last Wednesday. The good news is; no adverse side affects. It is worth noting; Wednesday; Thursday and Friday; after I woul...

lonelyeyes4.wordpress.com/2024/07/02/u...

15.07.2024 13:18 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
It is a big deal After reading the thread I discussed in my last post; I began to reflect on numerous situations over the past 3 years; when I had to be with people; I didn't feel like being around; and I had to be ou...

lonelyeyes4.wordpress.com/2024/06/30/i...

15.07.2024 13:18 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

@lonelyeyesblog is following 1 prominent accounts