They have no choice really. This technology is here and increasingly being used by patients. Interestingly, the same technology is being used by physicians and healthcare organizations, but the two world do not intersect. This will also come.
20.10.2025 02:24 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0
I think itโs symbiotic: patients shape the technologies as they adopt the technologies. The next evolutions, already begun, are in #genAI and #agenticAI, which #epatients are already began to leverage to help them better understand their health, health records, & to help w/ diagnosis & navigation.
19.10.2025 12:28 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0
I look forward to moderating a panel, co-hosted by JoPM/@jmirpub.bsky.social/ @s4pm.bsky.social on e-patients & evolving use of tech over time. Join @epatientdave.bsky.social @gfry.bsky.social @denisesilber.bsky.social @amyprice.bsky.social and me. landingpage.jmirpublications.com/how-digital-...
19.10.2025 00:03 โ ๐ 4 ๐ 3 ๐ฌ 2 ๐ 0
Heartbreaking panel at #STATSummit about what has happening and *is still* happening to @NIH, formerly the envy of the world, as brilliant scientists and critical programs and grants are being terminated. I am sad and angry. #cruelty #arewegreatyet
16.10.2025 14:36 โ ๐ 1 ๐ 1 ๐ฌ 1 ๐ 0
PODCAST: Dr Danny Sands and the evolved e-patient - Pulse+IT
โE-patientsโ has evolved to mean โengaged, equipped and empoweredโ, global patient advocate Dr Danny Sands says on the latest episode of PULSE the Podcast. And there is now a model of โinformation sym...
My dear Aussie friends, @georgemargelis.bsky.social & @drlouiseschaper.bsky.social, interviewed me for their podcast drds.us/4mCQa55. We discussed #epatients, #participatorymedicine, & my recent paper in @jmirpub.bsky.social J Participatory Medicine jopm.jmir.org/2025/1/e68911.
@s4pm.bsky.social
29.07.2025 17:16 โ ๐ 8 ๐ 3 ๐ฌ 2 ๐ 0
Excellent article. As a physician and public health advocate, it makes me angry that we have an ignorant science denier heading Health and Human Services.
04.07.2025 03:38 โ ๐ 5 ๐ 1 ๐ฌ 0 ๐ 0
March is #multiplesclerosis Awareness Month. Join @s4pm.bsky.social on March 20 for "MS Patient Journey: from first diagnosis to #patient engagement." Keynotes include @healthhats.bsky.social & Dr. Ursela Baber (BIDMC). Please join and share with your network!
www.eventbrite.com/e/the-ms-pat...
04.03.2025 20:08 โ ๐ 3 ๐ 1 ๐ฌ 0 ๐ 0
Join us on March 20 as we explore the MS #patient journey! Keynotes by @healthhats.bsky.social and Ursela Baber. Please share!
www.eventbrite.com/e/the-ms-pat...
@s4pm.bsky.social
#SPMPatientJourney
25.02.2025 22:15 โ ๐ 3 ๐ 1 ๐ฌ 0 ๐ 0
The MS Patient Journey: From New Diagnosis to Patient Engagement
Join this interactive conference to explore the MS diagnosis journey, with insights from patients, caregivers, and healthcare professionals.
Join @s4pm.bsky.social Mar 20 at The Multiple Sclerosis Patient Journey: From New Dx to Engagement. Engage w #patients, #caregivers, #healthcare pros, & others; learn importance of #participatorymedicine in MS. Keynotes
@healthhats.bsky.social & Ursela Baber.
www.eventbrite.com/e/the-ms-pat...
16.02.2025 20:51 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
โSuck it Up Buttercupโ, is a defiant documentary exposing a broken U.S. healthcare system, focused on greed, profits and chaos at the cost of peopleโs lives.
Join us. Support us. #MedSky #PolicySky #Burnout #Physicians
https://suckitupbuttercupfilm.com
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Infodemiologist, Medical Informatics Professor (University of Victoria, BC); Founder/CEO JMIR Publications (Toronto, ON, Canada); Editor-in-Chief J Med Internet Res; Principal Investigator, AI & Innovation in Scholarly Communication FutureLab Toronto
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Retired senior public service faculty, anthropologist, and globalist. I am a believer in the power of stories to change the world for the better. I donโt engage in direct conversation with individuals I donโt know.
Lifelong sky watcher โข Publisher of The Evening Sky Map (PDF) each month since January 2000: skymaps.com/tesm/ โข Interests: Astronomy outreach โข Astro-imaging โข Supernovae |ย Career scientist (retired)
Kym Thalassoudis PhD
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