Health update: things are healing up reasonably well and my energy is coming back (resting heart rate reverting to normal). Relieved that my GI system seems to be back to normal. I find this kinda amazing: excise ~25% of a colon and in a few weeks the rest is like "meh, we got this."
26.01.2026 14:24 β
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I can't decide between Megaunconsiousness or Prettybigdeth. . . .
13.01.2026 02:12 β
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Staples came out without too much pain and I'm cleared to start judiciously introducing fiber back into my diet. We decamped from our NYC outpost and it's so good to be back home with our dogs after nearly three weeks away!
08.01.2026 21:48 β
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with my surgeon, Dr. Karagkounis.
Reunited with the muppets
Followup with my surgeon similarly positive; he would put my condition more modestly: "there's presently no evidence of disease". Fair enough. I may not have decisively beat stage IV colon cancer, but we certainly won this round.
08.01.2026 21:48 β
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It's likely that the cancer will recur at some point (though it doesn't always), but it's hard to believe that I'm done with chemo for at least a good while. Keeping my port for at least another year to be on the safe side. Heading home tomorrow after my surgeon consult (staples come out).
07.01.2026 15:57 β
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Just had my followup appointment with my oncologist. Pathology report looked pretty good; mostly dead cells / mucin pools in the biopsied tissues. She proclaimed me βdisease freeβ for now. Next step is monitoring (CT scan in 6 mo.).
07.01.2026 15:57 β
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Can't fail to mention that Laura has been an absolute godsend in all of this β keeping me fed, comfortable, motivated. . . . I am definitely getting the better end of that "in sickness and health" clause. Couldn't do any of this without her. β€οΈ
03.01.2026 22:15 β
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I should have the pathology report from the surgery β MSK apparently keeps / samples *everything* β back early next week. Meeting with my oncologist on Wednesday and with my surgeon the day after (to get my staples out and generally check in). And then (assuming no whammies) homeward bound.
03.01.2026 22:01 β
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Continued progress on the health front here. I'm extending my walking distance / time, getting in some naps, reading, listening to music, trying to stay away from the news, and gradually getting my appetite back. GI system still on training wheels, but showing some signs of improvement.
03.01.2026 22:01 β
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First 15 min walk outside in a while. Pain manageable. Making slow, steady progress. Eager for my gut to get past this "training wheels" phase, but it'll take time β and months, possibly, to fully get back to normal.
30.12.2025 18:53 β
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Jeez: maybe a photo that better hides the insane amount of water weight I took on in the last week (>15 lbs)! At least she didn't post my 14" Frankenstein incision. . . . So happy to be out of the hospital. Will post more soon.
29.12.2025 17:55 β
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I'm not going to jinx myself by suggesting that I have such a record! Still a ways to go to heal from this one, and I'll never *truly* be out of the woods viz the cancer, I don't think.
29.12.2025 02:30 β
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Haha, I don't think anyone's ever accused me of the latter. And I'm phased for sure, so I'll go with "Neither" for 100, Alex.
29.12.2025 02:28 β
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Might be able to check out on Monday. Tuesday at the latest I think. Thanks for all the well wishes. Itβs amazing to know that so many people have my back. Catching up on some basketball now.
27.12.2025 20:39 β
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Well, itβs been a journey within a journey. But it seems that body is getting used to 12β less colon (no appendix or peritoneal lining) adequately. Still have a few challenges to work out: tachy heartrate, edema, pain, and such, but the team here is working hard at tackling these.
27.12.2025 20:39 β
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Happy Christmas from MSK! A successful surgery seems like an excellent present.
25.12.2025 15:20 β
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Third timeβs the charm? π€ As before, @lolamaya.bsky.social will update.
23.12.2025 11:06 β
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Just posted about this; 12/23. So nope, I'll probably be in the hospital for both. Actually kinda curious about the holiday festivities on a recovery ward.
17.12.2025 00:53 β
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Got confirmation that the surgery do-over will be on the 23rd. So it's gonna be a (hopefully) magical "Christmas on 67th St. (and York)" Possibly also NYE. . . . Hey, I'll take it. Just sorry to miss the parties. And this way I'll likely be ready to roll (just not literally) by the start of classes.
17.12.2025 00:51 β
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What would have been much MUCH worse is if they had discovered this AFTER making a 14" incision in my abdomen (or more!) or not at all. And we had a nice long weekend in NYC.
09.12.2025 22:17 β
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Keeps striking me how close a call this was. I was hooked up, port accessed, about to be sedated, when they were like: "Wait, your last chemo included bevacizumab? Uh oh." There's a close possible world in which I was in the hospital for a month or worse (but rich from a malpractice suit?). . . .
05.12.2025 22:22 β
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Well, surgery got postponed because of a miscommunication about my last chemo. Good that they caught it otherwise my healing could have been badly compromised. But super frustrating still. Waiting to hear when we can reschedule but probably late December at the earliest. π
05.12.2025 18:33 β
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Crystal flat white is what I need!
04.12.2025 22:50 β
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Sorry: shouldβve said CLEAR liquid (ie no cappuccinos).
04.12.2025 20:29 β
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Waiting for pre-op testing and appt at MSK. The fancy coffee machine here is taunting me (liquid only diet today).
04.12.2025 19:51 β
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So normally I'd be back to chemo this morning. But all that's on hold in the leadup (and hopefully aftermath) of my surgery. π₯³Instead, I'm back for a CT scan to get a pre-surgery baseline. And no grape for me this time! Brought my own orange gatorade.
17.11.2025 19:35 β
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Met with my MSK oncologist yesterday and she was very enthusiastic about the surgery and its potential to keep me from chemo for a good while (again, assuming that there aren't any surprises awaiting in my abdominal cavity!). So we're in.
14.11.2025 12:17 β
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Going for the surgery (unless my MSK oncologist takes an unexpectedly contrary view). Booked for 12/5. Basically I get a retry on my first surgery a little less than a year later. Whatever comes from it, I'm reeeeeaalllly looking forward to a break from #chemo.
07.11.2025 22:58 β
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As a bonus, I'd probably be able to go off chemo for at least 6β9 months (possibly longer), which would be amazing after this many cycles. Still considering options (stay the course, take a break from chemo without surgery and monitor), but strongly leaning towards the surgery.
04.11.2025 15:40 β
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