Abstract for the paper: "Identifying as Autistic Without a Formal Diagnosis: Who Self-Identifies as Autistic and Why? It reads: Adults increasingly self-identify as autistic without a formal diagnosis, yet little research has systematically investigated (a) the unique characteristics, experiences, and needs of self-identifying adults and (b) their preferences regarding diagnosis. Understanding the unique needs and preferences of self-identifying adults is necessary to better support them. We conducted a cross-sectional, mixed-methods study of US autistic adults who either self-identified as autistic or had a formal autism diagnosis, recruited via the survey platofrm Prolific. Participants were compared on (a) demographic characteristics, (b) autistic traits and experiences, (c) psychosocial outcomes, (d) support needs, and (e) beliefs about autism. Moreover, self-identifying participants reported whether they wanted a diagnosis, why or why not, and what barriers they faced. Self-identifying autistic adults were similar to diagnosed adults in autistic traits, including diagnostic traits. However, self-identifying autistic adults different from diagnosed adults in significant ways. Self-identifying adults were more likely to be cisgender female, experienced worse mental well-being, were more likely to experience unmet support needs, and faced unique barriers to receiving support (most frequently a lack of resources). The majority (68.7%) of self-identifying adults wanted a formal diagnosis but faced barriers in doing so. Self-identifying adults named a number of reasons for wanting a diagnosis (e.g., validation, access to certain services), but also grounds for hesitation (e.g., fear of stigma and discrimination). Adults who self-identify as autistic are similar to diagnosed adults in their autistic traits but face more barriers to accessing services and may be uniquely vulnerable to experiencing adverse psychosocial outcomes.
Identifying as Autistic Without a Formal Diagnosis: Who Self-Identifies as Autistic and Why? by Ahuvia et al. 2026 finds that self-identifying autistic adults are similar to dxed autistic adults but face barriers to accessing services.
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journals.sagepub.com/doi/full/10....
17.02.2026 06:04 โ
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Abstract for the paper: โIโm Kind of Stuck in the Middle. I Donโt Know Where to Goโ: Race, Autism, and Intersectional Stigma Among Black and White Autistic Adults. It reads: Autistic adults frequently experience social stigma, which may be compounded by additional marginalized identities such as race, gender, and sexual orientation. Black autistic adults, may face unique challenges at the intersection of racial bias and autism stigma. This study qualitative methods to explore how intersecting identities shape autistic adults' experiences of stigma and marginalization, with an emphasis on Black autistic adults. 32 autistic adults (16 Black and 16 White) completed a semi-structured interview regarding their social experiences. Participants shared recent stories of peer exclusion, acceptance, discrimination, and support that they had experienced, as well as their feelings surrounding these events. Themes explored the unique impact of stigma on those with intersecting identities. Specifically, these themes included: 1) identity-based discrimination shaped by race, gender, and LGBTQ+ status; 2) challenges in obtaining and processing an autism diagnosis; and 3) difficulties navigating personal identity, particularly among Black autistic participants. Black participants often described layered forms of exclusion related to both their race and autistic traits. Across racial groups, women and LGBTQ+ participants also reported distinct forms of marginalization and erasure. These findings highlight how autism stigma intersects with other marginalized identities to shape social experiences. Black autistic adults, along with autistic women and LGBTQ+ autistic people, may encounter compounded barriers to acccptance, identity development, and belonging. These results underscore the need for more inclusive research and supports that attend to the diversity of autistic experiences.
โIโm Kind of Stuck in the Middle. I Donโt Know Where to Goโ: Race, Autism, & Intersectional Stigma Among Black & White Autistic Adults by Jones & team explored how intersecting identities shapes autistic adults' experience of stigma & marginalization.
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journals.sagepub.com/doi/full/10....
17.02.2026 06:19 โ
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En esta openclass de UNIR analizaremos junto a especialistas en autismo y pedagogรญa el caso de la #BarbieAutista (desarrollada por @Mattel en Colab. con @autselfadvocacy), y el debate que ha abierto en la educaciรณn inclusiva.
๐๏ธ Lee la noticia ๐ ow.ly/gtBr50YiJ4B
21.02.2026 11:46 โ
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Development is key to understanding autism: How longitudinal approaches shape our understanding of autism - Kathryn A McNaughton, Alison S Russell, Margaret Lyons, Julia Parish-Morris, Clare Harrop, ,...
On longitudinal autism research journals.sagepub.com/doi/10.1177/... "individuals recruited as non-autistic may move into the autism group over time, & those diagnosed beyond the age span of the study or those stuck on long waitlists for diagnostic evaluations would be ineligible for these designs"
14.02.2026 11:00 โ
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Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
Delighted to have our new paper, โEliciting the views of autistic adolescents attending specialist schools on what friendships mean to themโ, published in @journalautism.bsky.social! ๐งต
#autres #openaccess
journals.sagepub.com/doi/10.1177/...
31.01.2026 15:11 โ
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07.11.2025 09:55 โ
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๐ข ยกVuelven las Jornadas de Neurodiversidad y Empleo!
Tras el รฉxito de la primera ediciรณn, celebramos la II ediciรณn del 16 al 20 de marzo (18:00โ20:00 h).
Pronto mรกs novedades ๐
#Neurodiversidad #EmpleoInclusivo #IIJornadasNeurodiversidadyEmpleo
14.01.2026 14:21 โ
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๐ข ยกVuelven las Jornadas de Neurodiversidad y Empleo!
Tras el รฉxito de la primera ediciรณn, celebramos la II ediciรณn del 16 al 20 de marzo (18:00โ20:00 h).
Pronto mรกs novedades ๐
#Neurodiversidad #EmpleoInclusivo #IIJornadasNeurodiversidadyEmpleo
14.01.2026 14:21 โ
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Certificate from the Journal of Medical Imaging and Radiation Sciences awarding Ben Potts the Editorโs Highlight 2025 for the A3ReAcH framework paper on inclusive healthcare research for autistic, ADHD and AuDHD individuals.
Text explaining that autistic, ADHD and AuDHD people are often excluded from healthcare and radiography research due to inaccessible methods and systemic bias, and introducing the A3ReAcH framework as practical guidance for inclusive and participatory research.
Front page of the published review article titled โThe A3ReAcH framework,โ listing the authors and journal details for the Journal of Medical Imaging and Radiation Sciences.
Visual overview of the A3ReAcH framework showing principles and practical actions for accessible and inclusive healthcare research across planning, recruitment, data collection, analysis and dissemination.
Pleased to share that our paper on the A3ReAcH (Autistic, ADHD and AuDHD research accessibility in healthcare) framework was selected as the Editor-in-Chief Highlight for 2025 by the Journal of Medical Imaging and Radiation Sciences. An encouraging start to my PhD. ๐ doi.org/10.1016/j.jm...
#AutRes
20.12.2025 11:43 โ
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Screenshot of the front page of a journal article titled "Navigating Teacher Agency, Empathy, and Disability Discourses in Schools: A Reflexive Thematic Analysis of Autistic Teachers' Perceptions of Work Experiences in the United States.
We have a new paper out! We interviewed 8 autistic teachers to ask about their experiences in US schools. www.liebertpub.com/doi/epub/10....
03.12.2025 16:20 โ
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DON'T MISS this qualitative analysis which found that autistic adults face a conflict between balancing their desire for social connection with their limited energy for engaging in social experiences.
FREE until 25th November
www.liebertpub.com/doi/10.1177/...
24.11.2025 14:27 โ
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๐ฅฐ muchas gracias, compaรฑera
07.11.2025 13:17 โ
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07.11.2025 09:55 โ
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07.11.2025 09:55 โ
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Finally out our last paper on autistic experiences navigating social norms and expectations. #autism #wellbeing #camouflaging #masking #autismo #CEA ๐
50 days free access.
kwnsfk27.r.eu-west-1.awstrack.me/L0/https:%2F...
07.11.2025 09:50 โ
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new paper fully co-produced and co-authored with neurodivergent young people
www.nature.com/articles/s41...
27.10.2025 22:54 โ
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Gracias por tus amables palabras y dedicaciรณn continua. Un placer haberte encontrado. Haces mucho bien
18.10.2025 19:08 โ
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โFeeling constantly kicked downโ: A qualitative phenomenological study exploring rejection sensitivity in autistic adults
Alvin van Asselt et al.
15.10.2025 21:51 โ
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